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In a message dated 05/06/2001 6:18:28 PM Central Daylight Time,

gbreadjunction@... writes:

<< 2. My surgeon told me that my new tummy is 4oz....and will NEVER

stretch to hold more??? That's not what I've been reading? Hearing

that has really made me depressed...do you find that you can eat more

than half a cup at a time?

3. He also said that there is a risk of leaking if I eat too much

within the first 6 weeks...this has me scared and only eating

bitefuls at at time.....am I worrying too much??

4. I don't have a feeling of full or hungry...wondering how long this

lasts for?...How long does it take for the stomach to empty itself??

>>

I don't know if the stomach will stretch, but it is most certainly swollen

right now. As it recovers more fully, it will be more accepting of food. I

can certainly eat more now at 1 year post op than I could at 1 week. I would

say upwards (at times) of 6 or 7 times more. At one week I could only eat

about 1 Tablespoon of food at a time. I would say I can easily eat a cup now

depending on the day and the food and how long I take to eat (sometimes

more). The math doesn't make sense here but I think I am making sense

otherwise.

I remember it being a while before I had any type of hunger/satieation

signals. It did kind of worry me, but they did return. I don't know when.

Dawn

BPD/DS

Dr. Hess, Bowling Green, OH

267 to 165

size 22 to size 10

5'4 "

no more high blood pressure, sore feet, or dieting!!

have met size goal, weight goal to be adjusted!

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In a message dated 05/06/2001 6:18:28 PM Central Daylight Time,

gbreadjunction@... writes:

<< 2. My surgeon told me that my new tummy is 4oz....and will NEVER

stretch to hold more??? That's not what I've been reading? Hearing

that has really made me depressed...do you find that you can eat more

than half a cup at a time?

3. He also said that there is a risk of leaking if I eat too much

within the first 6 weeks...this has me scared and only eating

bitefuls at at time.....am I worrying too much??

4. I don't have a feeling of full or hungry...wondering how long this

lasts for?...How long does it take for the stomach to empty itself??

>>

I don't know if the stomach will stretch, but it is most certainly swollen

right now. As it recovers more fully, it will be more accepting of food. I

can certainly eat more now at 1 year post op than I could at 1 week. I would

say upwards (at times) of 6 or 7 times more. At one week I could only eat

about 1 Tablespoon of food at a time. I would say I can easily eat a cup now

depending on the day and the food and how long I take to eat (sometimes

more). The math doesn't make sense here but I think I am making sense

otherwise.

I remember it being a while before I had any type of hunger/satieation

signals. It did kind of worry me, but they did return. I don't know when.

Dawn

BPD/DS

Dr. Hess, Bowling Green, OH

267 to 165

size 22 to size 10

5'4 "

no more high blood pressure, sore feet, or dieting!!

have met size goal, weight goal to be adjusted!

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In a message dated 05/06/2001 6:18:28 PM Central Daylight Time,

gbreadjunction@... writes:

<< 2. My surgeon told me that my new tummy is 4oz....and will NEVER

stretch to hold more??? That's not what I've been reading? Hearing

that has really made me depressed...do you find that you can eat more

than half a cup at a time?

3. He also said that there is a risk of leaking if I eat too much

within the first 6 weeks...this has me scared and only eating

bitefuls at at time.....am I worrying too much??

4. I don't have a feeling of full or hungry...wondering how long this

lasts for?...How long does it take for the stomach to empty itself??

>>

I don't know if the stomach will stretch, but it is most certainly swollen

right now. As it recovers more fully, it will be more accepting of food. I

can certainly eat more now at 1 year post op than I could at 1 week. I would

say upwards (at times) of 6 or 7 times more. At one week I could only eat

about 1 Tablespoon of food at a time. I would say I can easily eat a cup now

depending on the day and the food and how long I take to eat (sometimes

more). The math doesn't make sense here but I think I am making sense

otherwise.

I remember it being a while before I had any type of hunger/satieation

signals. It did kind of worry me, but they did return. I don't know when.

Dawn

BPD/DS

Dr. Hess, Bowling Green, OH

267 to 165

size 22 to size 10

5'4 "

no more high blood pressure, sore feet, or dieting!!

have met size goal, weight goal to be adjusted!

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Bobbie Jo:

First, congratulations on your successful surgery. Next, please understand that everyone's experience is different. What I'll share with you about what happened to me may be VERY different from what happens to you. And to everyone else.

1. The dreaded oil slick. Yes, that is common. I got it a LOT when I first got out of the hospital. I was 8 weeks out when I went home due to a complication or two but my first meal home was a pepperoni pizza. One of the major food groups. And I got the oil slick in spades. I hadn't had that in my two months in the hospital. Of course I didn't have many pepperoni pizzas in the hospital. Hospitals are notorious about avoiding ANY fat and I didn't do that at home. Ideas? Avoid fat as much as possible, at least for a couple of months. This will lead to less diarrhea and less foul smelling gas and BMs. And a sharp reduction on the oil slick. And it will get better. I'm five months out now and it is no longer a problem for me. And I still eat pizza.

2. I can't speak for your surgery but my stomach has expanded. You are a week out. There is still (and will be for a couple of months) a lot of swelling in your stomach. That will go down dramatically. I am able to eat twice as much now as I could when I first got out of the hospital. I understand that is a function of the swelling going down rather than my stomach stretching. But I'm told that my stomach definitely will stretch but over a period of a couple of years. I don't know why your surgeon says yours won't but he may be right. So I expect you will be able to eat lots more than you can now due to swelling going down. But whether your stomach will actually stretch I don't know.

3. If your surgeon says that there is a six week danger of leaks I would definitely pay a LOT of attention. It appears to me that the worst complications happen about half immediately after surgery. But the other half occur weeks to months later. If your doctor says there is a specific risk in your case, for God's sake be careful. After all you can do six weeks of light eating standing on your head. You'll have a lifetime of normal eating ahead of you. But do what you can to avoid the complications. I can tell you they are no damned fun.

4. I had the feelings of being full or being hungry immediately on getting out of the hospital - indeed while I was in the hospital. I don't know why you don't have these feelings but would expect that since you are only a week out the feelings will return with a vengeance. I'd guess between two and four weeks out. But that's only a guess and I really can't answer that definitively. And again, your experience will be different from anyone else's.

Congratulations on making it to the other side without major complications. You will find this is the best decision you've ever made.

Regards.

Joe Frost, old gentleman, not old fartSan , TX, 60 years oldSurgery 11/29/00 by Dr. Welker Lateral Gastrectomy with Duodenal Switch340 starting weight, currently 244http://www.duodenalswitch.com/Patients/Joe/joe.html

Back Home

> Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with....> > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas??> > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time?> > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much??> > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself??> > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-)> It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!!> > BTW........I'm down 15 lbs in 1 week!!!!!!!> > Bobbi-jo> 4-30-01> 307> 292> > > ---------------------------------------------------------------------->

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Bobbie Jo:

First, congratulations on your successful surgery. Next, please understand that everyone's experience is different. What I'll share with you about what happened to me may be VERY different from what happens to you. And to everyone else.

1. The dreaded oil slick. Yes, that is common. I got it a LOT when I first got out of the hospital. I was 8 weeks out when I went home due to a complication or two but my first meal home was a pepperoni pizza. One of the major food groups. And I got the oil slick in spades. I hadn't had that in my two months in the hospital. Of course I didn't have many pepperoni pizzas in the hospital. Hospitals are notorious about avoiding ANY fat and I didn't do that at home. Ideas? Avoid fat as much as possible, at least for a couple of months. This will lead to less diarrhea and less foul smelling gas and BMs. And a sharp reduction on the oil slick. And it will get better. I'm five months out now and it is no longer a problem for me. And I still eat pizza.

2. I can't speak for your surgery but my stomach has expanded. You are a week out. There is still (and will be for a couple of months) a lot of swelling in your stomach. That will go down dramatically. I am able to eat twice as much now as I could when I first got out of the hospital. I understand that is a function of the swelling going down rather than my stomach stretching. But I'm told that my stomach definitely will stretch but over a period of a couple of years. I don't know why your surgeon says yours won't but he may be right. So I expect you will be able to eat lots more than you can now due to swelling going down. But whether your stomach will actually stretch I don't know.

3. If your surgeon says that there is a six week danger of leaks I would definitely pay a LOT of attention. It appears to me that the worst complications happen about half immediately after surgery. But the other half occur weeks to months later. If your doctor says there is a specific risk in your case, for God's sake be careful. After all you can do six weeks of light eating standing on your head. You'll have a lifetime of normal eating ahead of you. But do what you can to avoid the complications. I can tell you they are no damned fun.

4. I had the feelings of being full or being hungry immediately on getting out of the hospital - indeed while I was in the hospital. I don't know why you don't have these feelings but would expect that since you are only a week out the feelings will return with a vengeance. I'd guess between two and four weeks out. But that's only a guess and I really can't answer that definitively. And again, your experience will be different from anyone else's.

Congratulations on making it to the other side without major complications. You will find this is the best decision you've ever made.

Regards.

Joe Frost, old gentleman, not old fartSan , TX, 60 years oldSurgery 11/29/00 by Dr. Welker Lateral Gastrectomy with Duodenal Switch340 starting weight, currently 244http://www.duodenalswitch.com/Patients/Joe/joe.html

Back Home

> Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with....> > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas??> > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time?> > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much??> > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself??> > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-)> It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!!> > BTW........I'm down 15 lbs in 1 week!!!!!!!> > Bobbi-jo> 4-30-01> 307> 292> > > ---------------------------------------------------------------------->

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Bobbi-jo,

Congratulations!! I'm glad you're back home safe and sound. I also can't help

with the post-op questions, but just wanted to let you know we're glad you're

back.

Anita

Pre-pre-op in Denver

> Hi all....I'm back home and feeling great....for my first week

> post-op. Everything went well with no complications. I have been

> eating a lot more normal than I thought...I have had oatmeal, deviled

> crab, pot pie...and lot more.....lol. I have a few questions that

> maybe other post-ops can help me out with....

>

> 1. I have not been eating a lot of fat but when I go, it is like an

> oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot

> of you had that experience..... ;-) Any helpful ideas??

>

> 2. My surgeon told me that my new tummy is 4oz....and will NEVER

> stretch to hold more??? That's not what I've been reading? Hearing

> that has really made me depressed...do you find that you can eat more

> than half a cup at a time?

>

> 3. He also said that there is a risk of leaking if I eat too much

> within the first 6 weeks...this has me scared and only eating

> bitefuls at at time.....am I worrying too much??

>

> 4. I don't have a feeling of full or hungry...wondering how long this

> lasts for?...How long does it take for the stomach to empty itself??

>

> I would like to thank everyone for their support and caring for when

> I was in the hospital....especially my wonderful angel ... :-)

> It seems like I knew a lot before going into this but I feel like I

> am weighed down with so many questions so I hope some of you post-ops

> can help.....Love to you all!!

>

> BTW........I'm down 15 lbs in 1 week!!!!!!!

>

> Bobbi-jo

> 4-30-01

> 307

> 292

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Joe,

I have to tell you you are the best! I love reading your responses...I am learning alot from you and everyone

in NE

May 14th 1st Consult w/ Dr.

Back Home

> Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with....> > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas??> > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time?> > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much??> > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself??> > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-)> It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!!> > BTW........I'm down 15 lbs in 1 week!!!!!!!> > Bobbi-jo> 4-30-01> 307> 292> > > ---------------------------------------------------------------------->

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  • 4 years later...
Guest guest

Hi try to hang in there if at all possible. My husband wasn't too fond of his

port they put in for chemo, etc. If I could have gotten my legs to work right

I woould be still kicking myself for letting him be buried without having Chris

Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on

dialysis I had to watch the area of his shunt all the time as his veins kept

collapsing and once when he was in the hospital I had to do like you or as my

husband so aptly put it, " Dolores got it taken care of and she only had to throw

a screaming fit one time " . I have had IV's back up on me like that and it is

really a miserable thing. I am so sorry you had to endure " a know it all nurse "

along with your surgery. I hope you will soon be on the road to recovery. I

will keep you in my thought and prayers. Dolores

matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the

hospital, biospy went well, and

pathologist were doing study while i was still on the table. Three

insicions on my side. Lung tube for drainage and breathing was

painful, dont ever want that again!!! Nurses were wonderful except

for one who i did get into a screaming match with. She gave me

morphine via IV, and the vein had collapsed so no medication got

through vein, just under my skin which my hand immediately blew up

like a catchers mit. when i told her the IV was out, she accused me

of wanting more morphine, and i exploded at that. Anyway another

nurse came in and i showed her my hand and i showed her my other arm

(wrist) where they had a blood gas needle in and told her that was

also collapsed, to please call my doc to get permission to have them

pulled. She was back in ten minutes with orders to pull them, and

the nurse who was so rude was repromanded by her superior. so there

is justice in the world!!! My veins collapsed within 6 hours of

being put in. So the doc came in that night to visit me and he

asked if he could do the surgery for my port, that they were all in

agreement that poking me over and over was not a good idea. He put

the port in the following morning and while i was under he pulled my

lung line. He explained its rght below my collor bone on the left

side and i will receive chemo, hydration adn nutrician thruough

this, and im grateful for that. Im black and blue everywhere there

was something done. The insicion for the lung tube has no stitches,

no steri stiches nothihg just a big gaping hole, right beneath where

the breast and chest meet up again, and it is still draining, which

is good, i just wish it would stop and heal.. The port sight is

swollen like a golf ball, he said that was normal, and it hurts so

bad, i feel at night like i will rip my hair out, and im on plenty

of pain medication. the evenings when its quiet, is when it bothers

me the most. and im extremely tired. They did take MH precautions,

and that was good since they didnt understand mito much, but they

sure knew about MH. I will meet with chemo nurses this week, to

discuss everything, three days of chemo, three weeks off. WEll i

have to go lay down cant keep my eyes open, Thanks for all the

prayers and good wishes!!! Now we can get those drangonflies to do

thier jobs!! Love ya's, Barb

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

---------------------------------

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Hi try to hang in there if at all possible. My husband wasn't too fond of his

port they put in for chemo, etc. If I could have gotten my legs to work right

I woould be still kicking myself for letting him be buried without having Chris

Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on

dialysis I had to watch the area of his shunt all the time as his veins kept

collapsing and once when he was in the hospital I had to do like you or as my

husband so aptly put it, " Dolores got it taken care of and she only had to throw

a screaming fit one time " . I have had IV's back up on me like that and it is

really a miserable thing. I am so sorry you had to endure " a know it all nurse "

along with your surgery. I hope you will soon be on the road to recovery. I

will keep you in my thought and prayers. Dolores

matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the

hospital, biospy went well, and

pathologist were doing study while i was still on the table. Three

insicions on my side. Lung tube for drainage and breathing was

painful, dont ever want that again!!! Nurses were wonderful except

for one who i did get into a screaming match with. She gave me

morphine via IV, and the vein had collapsed so no medication got

through vein, just under my skin which my hand immediately blew up

like a catchers mit. when i told her the IV was out, she accused me

of wanting more morphine, and i exploded at that. Anyway another

nurse came in and i showed her my hand and i showed her my other arm

(wrist) where they had a blood gas needle in and told her that was

also collapsed, to please call my doc to get permission to have them

pulled. She was back in ten minutes with orders to pull them, and

the nurse who was so rude was repromanded by her superior. so there

is justice in the world!!! My veins collapsed within 6 hours of

being put in. So the doc came in that night to visit me and he

asked if he could do the surgery for my port, that they were all in

agreement that poking me over and over was not a good idea. He put

the port in the following morning and while i was under he pulled my

lung line. He explained its rght below my collor bone on the left

side and i will receive chemo, hydration adn nutrician thruough

this, and im grateful for that. Im black and blue everywhere there

was something done. The insicion for the lung tube has no stitches,

no steri stiches nothihg just a big gaping hole, right beneath where

the breast and chest meet up again, and it is still draining, which

is good, i just wish it would stop and heal.. The port sight is

swollen like a golf ball, he said that was normal, and it hurts so

bad, i feel at night like i will rip my hair out, and im on plenty

of pain medication. the evenings when its quiet, is when it bothers

me the most. and im extremely tired. They did take MH precautions,

and that was good since they didnt understand mito much, but they

sure knew about MH. I will meet with chemo nurses this week, to

discuss everything, three days of chemo, three weeks off. WEll i

have to go lay down cant keep my eyes open, Thanks for all the

prayers and good wishes!!! Now we can get those drangonflies to do

thier jobs!! Love ya's, Barb

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

---------------------------------

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Guest guest

Thanks for the update - healing vibes are being sent your way.

Take care,

RH

> Hi all, Im back home from the hospital, biospy went well, and

> pathologist were doing study while i was still on the table. Three

> insicions on my side. Lung tube for drainage and breathing was

> painful, dont ever want that again!!! Nurses were wonderful except

> for one who i did get into a screaming match with. She gave me

> morphine via IV, and the vein had collapsed so no medication got

> through vein, just under my skin which my hand immediately blew up

> like a catchers mit. when i told her the IV was out, she accused

me

> of wanting more morphine, and i exploded at that. Anyway another

> nurse came in and i showed her my hand and i showed her my other

arm

> (wrist) where they had a blood gas needle in and told her that was

> also collapsed, to please call my doc to get permission to have

them

> pulled. She was back in ten minutes with orders to pull them, and

> the nurse who was so rude was repromanded by her superior. so

there

> is justice in the world!!! My veins collapsed within 6 hours of

> being put in. So the doc came in that night to visit me and he

> asked if he could do the surgery for my port, that they were all in

> agreement that poking me over and over was not a good idea. He put

> the port in the following morning and while i was under he pulled

my

> lung line. He explained its rght below my collor bone on the left

> side and i will receive chemo, hydration adn nutrician thruough

> this, and im grateful for that. Im black and blue everywhere there

> was something done. The insicion for the lung tube has no

stitches,

> no steri stiches nothihg just a big gaping hole, right beneath

where

> the breast and chest meet up again, and it is still draining, which

> is good, i just wish it would stop and heal.. The port sight is

> swollen like a golf ball, he said that was normal, and it hurts so

> bad, i feel at night like i will rip my hair out, and im on plenty

> of pain medication. the evenings when its quiet, is when it

bothers

> me the most. and im extremely tired. They did take MH

precautions,

> and that was good since they didnt understand mito much, but they

> sure knew about MH. I will meet with chemo nurses this week, to

> discuss everything, three days of chemo, three weeks off. WEll i

> have to go lay down cant keep my eyes open, Thanks for all the

> prayers and good wishes!!! Now we can get those drangonflies to

do

> thier jobs!! Love ya's, Barb

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Guest guest

Thanks for the update - healing vibes are being sent your way.

Take care,

RH

> Hi all, Im back home from the hospital, biospy went well, and

> pathologist were doing study while i was still on the table. Three

> insicions on my side. Lung tube for drainage and breathing was

> painful, dont ever want that again!!! Nurses were wonderful except

> for one who i did get into a screaming match with. She gave me

> morphine via IV, and the vein had collapsed so no medication got

> through vein, just under my skin which my hand immediately blew up

> like a catchers mit. when i told her the IV was out, she accused

me

> of wanting more morphine, and i exploded at that. Anyway another

> nurse came in and i showed her my hand and i showed her my other

arm

> (wrist) where they had a blood gas needle in and told her that was

> also collapsed, to please call my doc to get permission to have

them

> pulled. She was back in ten minutes with orders to pull them, and

> the nurse who was so rude was repromanded by her superior. so

there

> is justice in the world!!! My veins collapsed within 6 hours of

> being put in. So the doc came in that night to visit me and he

> asked if he could do the surgery for my port, that they were all in

> agreement that poking me over and over was not a good idea. He put

> the port in the following morning and while i was under he pulled

my

> lung line. He explained its rght below my collor bone on the left

> side and i will receive chemo, hydration adn nutrician thruough

> this, and im grateful for that. Im black and blue everywhere there

> was something done. The insicion for the lung tube has no

stitches,

> no steri stiches nothihg just a big gaping hole, right beneath

where

> the breast and chest meet up again, and it is still draining, which

> is good, i just wish it would stop and heal.. The port sight is

> swollen like a golf ball, he said that was normal, and it hurts so

> bad, i feel at night like i will rip my hair out, and im on plenty

> of pain medication. the evenings when its quiet, is when it

bothers

> me the most. and im extremely tired. They did take MH

precautions,

> and that was good since they didnt understand mito much, but they

> sure knew about MH. I will meet with chemo nurses this week, to

> discuss everything, three days of chemo, three weeks off. WEll i

> have to go lay down cant keep my eyes open, Thanks for all the

> prayers and good wishes!!! Now we can get those drangonflies to

do

> thier jobs!! Love ya's, Barb

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Barb

Thanks for the update.

I am so sorry that you are so brusied and sore. It sure doesn't sound

like a picnic in any way, shape or form.

You are in my thoughts and prayers. I'm thinking dragonflies.

Hugs,

laurie

> Hi try to hang in there if at all possible. My husband wasn't too fond of his

port they put in for chemo, etc. If I could have gotten my legs to work right

I woould be still kicking myself for letting him be buried without having Chris

Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on

dialysis I had to watch the area of his shunt all the time as his veins kept

collapsing and once when he was in the hospital I had to do like you or as my

husband so aptly put it, " Dolores got it taken care of and she only had to throw

a screaming fit one time " . I have had IV's back up on me like that and it is

really a miserable thing. I am so sorry you had to endure " a know it all nurse "

along with your surgery. I hope you will soon be on the road to recovery. I

will keep you in my thought and prayers. Dolores

>

> matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the

hospital, biospy went well, and

> pathologist were doing study while i was still on the table. Three

> insicions on my side. Lung tube for drainage and breathing was

> painful, dont ever want that again!!! Nurses were wonderful except

> for one who i did get into a screaming match with. She gave me

> morphine via IV, and the vein had collapsed so no medication got

> through vein, just under my skin which my hand immediately blew up

> like a catchers mit. when i told her the IV was out, she accused me

> of wanting more morphine, and i exploded at that. Anyway another

> nurse came in and i showed her my hand and i showed her my other arm

> (wrist) where they had a blood gas needle in and told her that was

> also collapsed, to please call my doc to get permission to have them

> pulled. She was back in ten minutes with orders to pull them, and

> the nurse who was so rude was repromanded by her superior. so there

> is justice in the world!!! My veins collapsed within 6 hours of

> being put in. So the doc came in that night to visit me and he

> asked if he could do the surgery for my port, that they were all in

> agreement that poking me over and over was not a good idea. He put

> the port in the following morning and while i was under he pulled my

> lung line. He explained its rght below my collor bone on the left

> side and i will receive chemo, hydration adn nutrician thruough

> this, and im grateful for that. Im black and blue everywhere there

> was something done. The insicion for the lung tube has no stitches,

> no steri stiches nothihg just a big gaping hole, right beneath where

> the breast and chest meet up again, and it is still draining, which

> is good, i just wish it would stop and heal.. The port sight is

> swollen like a golf ball, he said that was normal, and it hurts so

> bad, i feel at night like i will rip my hair out, and im on plenty

> of pain medication. the evenings when its quiet, is when it bothers

> me the most. and im extremely tired. They did take MH precautions,

> and that was good since they didnt understand mito much, but they

> sure knew about MH. I will meet with chemo nurses this week, to

> discuss everything, three days of chemo, three weeks off. WEll i

> have to go lay down cant keep my eyes open, Thanks for all the

> prayers and good wishes!!! Now we can get those drangonflies to do

> thier jobs!! Love ya's, Barb

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

>

>

> ---------------------------------

>

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Barb

Thanks for the update.

I am so sorry that you are so brusied and sore. It sure doesn't sound

like a picnic in any way, shape or form.

You are in my thoughts and prayers. I'm thinking dragonflies.

Hugs,

laurie

> Hi try to hang in there if at all possible. My husband wasn't too fond of his

port they put in for chemo, etc. If I could have gotten my legs to work right

I woould be still kicking myself for letting him be buried without having Chris

Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on

dialysis I had to watch the area of his shunt all the time as his veins kept

collapsing and once when he was in the hospital I had to do like you or as my

husband so aptly put it, " Dolores got it taken care of and she only had to throw

a screaming fit one time " . I have had IV's back up on me like that and it is

really a miserable thing. I am so sorry you had to endure " a know it all nurse "

along with your surgery. I hope you will soon be on the road to recovery. I

will keep you in my thought and prayers. Dolores

>

> matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the

hospital, biospy went well, and

> pathologist were doing study while i was still on the table. Three

> insicions on my side. Lung tube for drainage and breathing was

> painful, dont ever want that again!!! Nurses were wonderful except

> for one who i did get into a screaming match with. She gave me

> morphine via IV, and the vein had collapsed so no medication got

> through vein, just under my skin which my hand immediately blew up

> like a catchers mit. when i told her the IV was out, she accused me

> of wanting more morphine, and i exploded at that. Anyway another

> nurse came in and i showed her my hand and i showed her my other arm

> (wrist) where they had a blood gas needle in and told her that was

> also collapsed, to please call my doc to get permission to have them

> pulled. She was back in ten minutes with orders to pull them, and

> the nurse who was so rude was repromanded by her superior. so there

> is justice in the world!!! My veins collapsed within 6 hours of

> being put in. So the doc came in that night to visit me and he

> asked if he could do the surgery for my port, that they were all in

> agreement that poking me over and over was not a good idea. He put

> the port in the following morning and while i was under he pulled my

> lung line. He explained its rght below my collor bone on the left

> side and i will receive chemo, hydration adn nutrician thruough

> this, and im grateful for that. Im black and blue everywhere there

> was something done. The insicion for the lung tube has no stitches,

> no steri stiches nothihg just a big gaping hole, right beneath where

> the breast and chest meet up again, and it is still draining, which

> is good, i just wish it would stop and heal.. The port sight is

> swollen like a golf ball, he said that was normal, and it hurts so

> bad, i feel at night like i will rip my hair out, and im on plenty

> of pain medication. the evenings when its quiet, is when it bothers

> me the most. and im extremely tired. They did take MH precautions,

> and that was good since they didnt understand mito much, but they

> sure knew about MH. I will meet with chemo nurses this week, to

> discuss everything, three days of chemo, three weeks off. WEll i

> have to go lay down cant keep my eyes open, Thanks for all the

> prayers and good wishes!!! Now we can get those drangonflies to do

> thier jobs!! Love ya's, Barb

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

>

>

> ---------------------------------

>

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Dear Dolores, Thank you so much for your kind words and your

prayers!! Its very comforting to me!! Im so glad you only had to

throw one tissy fit, to get them to listen to you, in your case with

the IV, and your husbands case with his port!! Your Dad was very

lucky to have you there for him, too. I am very lucky I only had

one bad experience so far. I guess they are not use to folks who

actually been chronically ill, and that do know their own bodies,

and when something is really wrong. I understand most folks who are

only sick now and again, complaining can make it hard for nurses and

Docs. But folks like us that have mito, and others with

disabilities, we do know our bodies, we do know more than any human

that hasnt studied medicine, should ever need to know, but we do

because we have too. What they have told me about my situation with

this port is that the weight lost ive had, my port is sticking way

above normal skin level, there just isnt any meat left on my bones,

and this will cause severe disconfort. (I was 160 two years ago,

and now 100 pounds, mostly from mito-cycle vomiting), if i do gain

weight back (God knows im trying) the port will stick out less and

be so much less painful. Heres the dilema, have to be careful what

i eat because of the mito. So hard to figure out what to eat without

causing major mito crashes, and what will help me and put weight

back on, I think we have the cycle vomiting under control now. Time

will tell! But Thank God we have our voices to speak up when we

need too!! Thanks again, Hugs!! Barb

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Guest guest

Dear Dolores, Thank you so much for your kind words and your

prayers!! Its very comforting to me!! Im so glad you only had to

throw one tissy fit, to get them to listen to you, in your case with

the IV, and your husbands case with his port!! Your Dad was very

lucky to have you there for him, too. I am very lucky I only had

one bad experience so far. I guess they are not use to folks who

actually been chronically ill, and that do know their own bodies,

and when something is really wrong. I understand most folks who are

only sick now and again, complaining can make it hard for nurses and

Docs. But folks like us that have mito, and others with

disabilities, we do know our bodies, we do know more than any human

that hasnt studied medicine, should ever need to know, but we do

because we have too. What they have told me about my situation with

this port is that the weight lost ive had, my port is sticking way

above normal skin level, there just isnt any meat left on my bones,

and this will cause severe disconfort. (I was 160 two years ago,

and now 100 pounds, mostly from mito-cycle vomiting), if i do gain

weight back (God knows im trying) the port will stick out less and

be so much less painful. Heres the dilema, have to be careful what

i eat because of the mito. So hard to figure out what to eat without

causing major mito crashes, and what will help me and put weight

back on, I think we have the cycle vomiting under control now. Time

will tell! But Thank God we have our voices to speak up when we

need too!! Thanks again, Hugs!! Barb

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Hi Anne-Marie, Thank you for all your prayers, and good thoughts, they

really help!!! Im waiting now for a return call from my pain

management doc, ( i will tell him today about the cancer) I want him to

be part of my team, he knows me for 5 years now, and i think he can be

very beneficial, in my treatment as far as the pain goes. If not, hes

fired!!! I just have to be that discriminating at this point, they

either help or they are fired!!! I will ask him to up my morphine as

the cancer is affecting my OA and degenarative bone and joint disease,

and need more morphine because of the cancer pain. I rather him up the

dose than, the oncologist just write up for pain pills, becuase they

dont know me as well as him, he can write up for a higher dose and i

dont have to worry if the dose is too high or not, that is how much

confidence i have in him. Well keep thinking Dragonflies, and keep me

in your thoughts!!! Hugs, Barb

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Guest guest

Hi Anne-Marie, Thank you for all your prayers, and good thoughts, they

really help!!! Im waiting now for a return call from my pain

management doc, ( i will tell him today about the cancer) I want him to

be part of my team, he knows me for 5 years now, and i think he can be

very beneficial, in my treatment as far as the pain goes. If not, hes

fired!!! I just have to be that discriminating at this point, they

either help or they are fired!!! I will ask him to up my morphine as

the cancer is affecting my OA and degenarative bone and joint disease,

and need more morphine because of the cancer pain. I rather him up the

dose than, the oncologist just write up for pain pills, becuase they

dont know me as well as him, he can write up for a higher dose and i

dont have to worry if the dose is too high or not, that is how much

confidence i have in him. Well keep thinking Dragonflies, and keep me

in your thoughts!!! Hugs, Barb

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Guest guest

That's how my husband's port was just my hand bumping it in the night was very

painful to him. Take care and a surprise may come your way. Dolores

matts_mom96 matts_mom96@...> wrote:

Dear Dolores, Thank you so much for your kind words and your

prayers!! Its very comforting to me!! Im so glad you only had to

throw one tissy fit, to get them to listen to you, in your case with

the IV, and your husbands case with his port!! Your Dad was very

lucky to have you there for him, too. I am very lucky I only had

one bad experience so far. I guess they are not use to folks who

actually been chronically ill, and that do know their own bodies,

and when something is really wrong. I understand most folks who are

only sick now and again, complaining can make it hard for nurses and

Docs. But folks like us that have mito, and others with

disabilities, we do know our bodies, we do know more than any human

that hasnt studied medicine, should ever need to know, but we do

because we have too. What they have told me about my situation with

this port is that the weight lost ive had, my port is sticking way

above normal skin level, there just isnt any meat left on my bones,

and this will cause severe disconfort. (I was 160 two years ago,

and now 100 pounds, mostly from mito-cycle vomiting), if i do gain

weight back (God knows im trying) the port will stick out less and

be so much less painful. Heres the dilema, have to be careful what

i eat because of the mito. So hard to figure out what to eat without

causing major mito crashes, and what will help me and put weight

back on, I think we have the cycle vomiting under control now. Time

will tell! But Thank God we have our voices to speak up when we

need too!! Thanks again, Hugs!! Barb

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

---------------------------------

Link to comment
Share on other sites

Guest guest

That's how my husband's port was just my hand bumping it in the night was very

painful to him. Take care and a surprise may come your way. Dolores

matts_mom96 matts_mom96@...> wrote:

Dear Dolores, Thank you so much for your kind words and your

prayers!! Its very comforting to me!! Im so glad you only had to

throw one tissy fit, to get them to listen to you, in your case with

the IV, and your husbands case with his port!! Your Dad was very

lucky to have you there for him, too. I am very lucky I only had

one bad experience so far. I guess they are not use to folks who

actually been chronically ill, and that do know their own bodies,

and when something is really wrong. I understand most folks who are

only sick now and again, complaining can make it hard for nurses and

Docs. But folks like us that have mito, and others with

disabilities, we do know our bodies, we do know more than any human

that hasnt studied medicine, should ever need to know, but we do

because we have too. What they have told me about my situation with

this port is that the weight lost ive had, my port is sticking way

above normal skin level, there just isnt any meat left on my bones,

and this will cause severe disconfort. (I was 160 two years ago,

and now 100 pounds, mostly from mito-cycle vomiting), if i do gain

weight back (God knows im trying) the port will stick out less and

be so much less painful. Heres the dilema, have to be careful what

i eat because of the mito. So hard to figure out what to eat without

causing major mito crashes, and what will help me and put weight

back on, I think we have the cycle vomiting under control now. Time

will tell! But Thank God we have our voices to speak up when we

need too!! Thanks again, Hugs!! Barb

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

---------------------------------

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Guest guest

Welcome home Barb,

I am sorry to hear all that you have been through and will continue to keep

you and your family in my thoughts and prayers.

Hugs,

Donna K

---- matts_mom96 matts_mom96@...> wrote:

> Hi RH, Thank your for those healing vibes, I can feel them!!! Hugs,

> Barb

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

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Guest guest

Welcome home Barb,

I am sorry to hear all that you have been through and will continue to keep

you and your family in my thoughts and prayers.

Hugs,

Donna K

---- matts_mom96 matts_mom96@...> wrote:

> Hi RH, Thank your for those healing vibes, I can feel them!!! Hugs,

> Barb

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

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