Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 In a message dated 05/06/2001 6:18:28 PM Central Daylight Time, gbreadjunction@... writes: << 2. My surgeon told me that my new tummy is 4oz....and will NEVER stretch to hold more??? That's not what I've been reading? Hearing that has really made me depressed...do you find that you can eat more than half a cup at a time? 3. He also said that there is a risk of leaking if I eat too much within the first 6 weeks...this has me scared and only eating bitefuls at at time.....am I worrying too much?? 4. I don't have a feeling of full or hungry...wondering how long this lasts for?...How long does it take for the stomach to empty itself?? >> I don't know if the stomach will stretch, but it is most certainly swollen right now. As it recovers more fully, it will be more accepting of food. I can certainly eat more now at 1 year post op than I could at 1 week. I would say upwards (at times) of 6 or 7 times more. At one week I could only eat about 1 Tablespoon of food at a time. I would say I can easily eat a cup now depending on the day and the food and how long I take to eat (sometimes more). The math doesn't make sense here but I think I am making sense otherwise. I remember it being a while before I had any type of hunger/satieation signals. It did kind of worry me, but they did return. I don't know when. Dawn BPD/DS Dr. Hess, Bowling Green, OH 267 to 165 size 22 to size 10 5'4 " no more high blood pressure, sore feet, or dieting!! have met size goal, weight goal to be adjusted! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 In a message dated 05/06/2001 6:18:28 PM Central Daylight Time, gbreadjunction@... writes: << 2. My surgeon told me that my new tummy is 4oz....and will NEVER stretch to hold more??? That's not what I've been reading? Hearing that has really made me depressed...do you find that you can eat more than half a cup at a time? 3. He also said that there is a risk of leaking if I eat too much within the first 6 weeks...this has me scared and only eating bitefuls at at time.....am I worrying too much?? 4. I don't have a feeling of full or hungry...wondering how long this lasts for?...How long does it take for the stomach to empty itself?? >> I don't know if the stomach will stretch, but it is most certainly swollen right now. As it recovers more fully, it will be more accepting of food. I can certainly eat more now at 1 year post op than I could at 1 week. I would say upwards (at times) of 6 or 7 times more. At one week I could only eat about 1 Tablespoon of food at a time. I would say I can easily eat a cup now depending on the day and the food and how long I take to eat (sometimes more). The math doesn't make sense here but I think I am making sense otherwise. I remember it being a while before I had any type of hunger/satieation signals. It did kind of worry me, but they did return. I don't know when. Dawn BPD/DS Dr. Hess, Bowling Green, OH 267 to 165 size 22 to size 10 5'4 " no more high blood pressure, sore feet, or dieting!! have met size goal, weight goal to be adjusted! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 In a message dated 05/06/2001 6:18:28 PM Central Daylight Time, gbreadjunction@... writes: << 2. My surgeon told me that my new tummy is 4oz....and will NEVER stretch to hold more??? That's not what I've been reading? Hearing that has really made me depressed...do you find that you can eat more than half a cup at a time? 3. He also said that there is a risk of leaking if I eat too much within the first 6 weeks...this has me scared and only eating bitefuls at at time.....am I worrying too much?? 4. I don't have a feeling of full or hungry...wondering how long this lasts for?...How long does it take for the stomach to empty itself?? >> I don't know if the stomach will stretch, but it is most certainly swollen right now. As it recovers more fully, it will be more accepting of food. I can certainly eat more now at 1 year post op than I could at 1 week. I would say upwards (at times) of 6 or 7 times more. At one week I could only eat about 1 Tablespoon of food at a time. I would say I can easily eat a cup now depending on the day and the food and how long I take to eat (sometimes more). The math doesn't make sense here but I think I am making sense otherwise. I remember it being a while before I had any type of hunger/satieation signals. It did kind of worry me, but they did return. I don't know when. Dawn BPD/DS Dr. Hess, Bowling Green, OH 267 to 165 size 22 to size 10 5'4 " no more high blood pressure, sore feet, or dieting!! have met size goal, weight goal to be adjusted! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Bobbie Jo: First, congratulations on your successful surgery. Next, please understand that everyone's experience is different. What I'll share with you about what happened to me may be VERY different from what happens to you. And to everyone else. 1. The dreaded oil slick. Yes, that is common. I got it a LOT when I first got out of the hospital. I was 8 weeks out when I went home due to a complication or two but my first meal home was a pepperoni pizza. One of the major food groups. And I got the oil slick in spades. I hadn't had that in my two months in the hospital. Of course I didn't have many pepperoni pizzas in the hospital. Hospitals are notorious about avoiding ANY fat and I didn't do that at home. Ideas? Avoid fat as much as possible, at least for a couple of months. This will lead to less diarrhea and less foul smelling gas and BMs. And a sharp reduction on the oil slick. And it will get better. I'm five months out now and it is no longer a problem for me. And I still eat pizza. 2. I can't speak for your surgery but my stomach has expanded. You are a week out. There is still (and will be for a couple of months) a lot of swelling in your stomach. That will go down dramatically. I am able to eat twice as much now as I could when I first got out of the hospital. I understand that is a function of the swelling going down rather than my stomach stretching. But I'm told that my stomach definitely will stretch but over a period of a couple of years. I don't know why your surgeon says yours won't but he may be right. So I expect you will be able to eat lots more than you can now due to swelling going down. But whether your stomach will actually stretch I don't know. 3. If your surgeon says that there is a six week danger of leaks I would definitely pay a LOT of attention. It appears to me that the worst complications happen about half immediately after surgery. But the other half occur weeks to months later. If your doctor says there is a specific risk in your case, for God's sake be careful. After all you can do six weeks of light eating standing on your head. You'll have a lifetime of normal eating ahead of you. But do what you can to avoid the complications. I can tell you they are no damned fun. 4. I had the feelings of being full or being hungry immediately on getting out of the hospital - indeed while I was in the hospital. I don't know why you don't have these feelings but would expect that since you are only a week out the feelings will return with a vengeance. I'd guess between two and four weeks out. But that's only a guess and I really can't answer that definitively. And again, your experience will be different from anyone else's. Congratulations on making it to the other side without major complications. You will find this is the best decision you've ever made. Regards. Joe Frost, old gentleman, not old fartSan , TX, 60 years oldSurgery 11/29/00 by Dr. Welker Lateral Gastrectomy with Duodenal Switch340 starting weight, currently 244http://www.duodenalswitch.com/Patients/Joe/joe.html Back Home > Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with....> > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas??> > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time?> > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much??> > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself??> > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-)> It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!!> > BTW........I'm down 15 lbs in 1 week!!!!!!!> > Bobbi-jo> 4-30-01> 307> 292> > > ----------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Bobbie Jo: First, congratulations on your successful surgery. Next, please understand that everyone's experience is different. What I'll share with you about what happened to me may be VERY different from what happens to you. And to everyone else. 1. The dreaded oil slick. Yes, that is common. I got it a LOT when I first got out of the hospital. I was 8 weeks out when I went home due to a complication or two but my first meal home was a pepperoni pizza. One of the major food groups. And I got the oil slick in spades. I hadn't had that in my two months in the hospital. Of course I didn't have many pepperoni pizzas in the hospital. Hospitals are notorious about avoiding ANY fat and I didn't do that at home. Ideas? Avoid fat as much as possible, at least for a couple of months. This will lead to less diarrhea and less foul smelling gas and BMs. And a sharp reduction on the oil slick. And it will get better. I'm five months out now and it is no longer a problem for me. And I still eat pizza. 2. I can't speak for your surgery but my stomach has expanded. You are a week out. There is still (and will be for a couple of months) a lot of swelling in your stomach. That will go down dramatically. I am able to eat twice as much now as I could when I first got out of the hospital. I understand that is a function of the swelling going down rather than my stomach stretching. But I'm told that my stomach definitely will stretch but over a period of a couple of years. I don't know why your surgeon says yours won't but he may be right. So I expect you will be able to eat lots more than you can now due to swelling going down. But whether your stomach will actually stretch I don't know. 3. If your surgeon says that there is a six week danger of leaks I would definitely pay a LOT of attention. It appears to me that the worst complications happen about half immediately after surgery. But the other half occur weeks to months later. If your doctor says there is a specific risk in your case, for God's sake be careful. After all you can do six weeks of light eating standing on your head. You'll have a lifetime of normal eating ahead of you. But do what you can to avoid the complications. I can tell you they are no damned fun. 4. I had the feelings of being full or being hungry immediately on getting out of the hospital - indeed while I was in the hospital. I don't know why you don't have these feelings but would expect that since you are only a week out the feelings will return with a vengeance. I'd guess between two and four weeks out. But that's only a guess and I really can't answer that definitively. And again, your experience will be different from anyone else's. Congratulations on making it to the other side without major complications. You will find this is the best decision you've ever made. Regards. Joe Frost, old gentleman, not old fartSan , TX, 60 years oldSurgery 11/29/00 by Dr. Welker Lateral Gastrectomy with Duodenal Switch340 starting weight, currently 244http://www.duodenalswitch.com/Patients/Joe/joe.html Back Home > Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with....> > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas??> > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time?> > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much??> > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself??> > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-)> It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!!> > BTW........I'm down 15 lbs in 1 week!!!!!!!> > Bobbi-jo> 4-30-01> 307> 292> > > ----------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Bobbi-jo, Congratulations!! I'm glad you're back home safe and sound. I also can't help with the post-op questions, but just wanted to let you know we're glad you're back. Anita Pre-pre-op in Denver > Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with.... > > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas?? > > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time? > > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much?? > > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself?? > > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-) > It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!! > > BTW........I'm down 15 lbs in 1 week!!!!!!! > > Bobbi-jo > 4-30-01 > 307 > 292 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Joe, I have to tell you you are the best! I love reading your responses...I am learning alot from you and everyone in NE May 14th 1st Consult w/ Dr. Back Home > Hi all....I'm back home and feeling great....for my first week > post-op. Everything went well with no complications. I have been > eating a lot more normal than I thought...I have had oatmeal, deviled > crab, pot pie...and lot more.....lol. I have a few questions that > maybe other post-ops can help me out with....> > 1. I have not been eating a lot of fat but when I go, it is like an > oil slick.....SORRY!! I know it's gross to post, but I'm sure a lot > of you had that experience..... ;-) Any helpful ideas??> > 2. My surgeon told me that my new tummy is 4oz....and will NEVER > stretch to hold more??? That's not what I've been reading? Hearing > that has really made me depressed...do you find that you can eat more > than half a cup at a time?> > 3. He also said that there is a risk of leaking if I eat too much > within the first 6 weeks...this has me scared and only eating > bitefuls at at time.....am I worrying too much??> > 4. I don't have a feeling of full or hungry...wondering how long this > lasts for?...How long does it take for the stomach to empty itself??> > I would like to thank everyone for their support and caring for when > I was in the hospital....especially my wonderful angel ... :-)> It seems like I knew a lot before going into this but I feel like I > am weighed down with so many questions so I hope some of you post-ops > can help.....Love to you all!!> > BTW........I'm down 15 lbs in 1 week!!!!!!!> > Bobbi-jo> 4-30-01> 307> 292> > > ----------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi try to hang in there if at all possible. My husband wasn't too fond of his port they put in for chemo, etc. If I could have gotten my legs to work right I woould be still kicking myself for letting him be buried without having Chris Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on dialysis I had to watch the area of his shunt all the time as his veins kept collapsing and once when he was in the hospital I had to do like you or as my husband so aptly put it, " Dolores got it taken care of and she only had to throw a screaming fit one time " . I have had IV's back up on me like that and it is really a miserable thing. I am so sorry you had to endure " a know it all nurse " along with your surgery. I hope you will soon be on the road to recovery. I will keep you in my thought and prayers. Dolores matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the hospital, biospy went well, and pathologist were doing study while i was still on the table. Three insicions on my side. Lung tube for drainage and breathing was painful, dont ever want that again!!! Nurses were wonderful except for one who i did get into a screaming match with. She gave me morphine via IV, and the vein had collapsed so no medication got through vein, just under my skin which my hand immediately blew up like a catchers mit. when i told her the IV was out, she accused me of wanting more morphine, and i exploded at that. Anyway another nurse came in and i showed her my hand and i showed her my other arm (wrist) where they had a blood gas needle in and told her that was also collapsed, to please call my doc to get permission to have them pulled. She was back in ten minutes with orders to pull them, and the nurse who was so rude was repromanded by her superior. so there is justice in the world!!! My veins collapsed within 6 hours of being put in. So the doc came in that night to visit me and he asked if he could do the surgery for my port, that they were all in agreement that poking me over and over was not a good idea. He put the port in the following morning and while i was under he pulled my lung line. He explained its rght below my collor bone on the left side and i will receive chemo, hydration adn nutrician thruough this, and im grateful for that. Im black and blue everywhere there was something done. The insicion for the lung tube has no stitches, no steri stiches nothihg just a big gaping hole, right beneath where the breast and chest meet up again, and it is still draining, which is good, i just wish it would stop and heal.. The port sight is swollen like a golf ball, he said that was normal, and it hurts so bad, i feel at night like i will rip my hair out, and im on plenty of pain medication. the evenings when its quiet, is when it bothers me the most. and im extremely tired. They did take MH precautions, and that was good since they didnt understand mito much, but they sure knew about MH. I will meet with chemo nurses this week, to discuss everything, three days of chemo, three weeks off. WEll i have to go lay down cant keep my eyes open, Thanks for all the prayers and good wishes!!! Now we can get those drangonflies to do thier jobs!! Love ya's, Barb Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi try to hang in there if at all possible. My husband wasn't too fond of his port they put in for chemo, etc. If I could have gotten my legs to work right I woould be still kicking myself for letting him be buried without having Chris Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on dialysis I had to watch the area of his shunt all the time as his veins kept collapsing and once when he was in the hospital I had to do like you or as my husband so aptly put it, " Dolores got it taken care of and she only had to throw a screaming fit one time " . I have had IV's back up on me like that and it is really a miserable thing. I am so sorry you had to endure " a know it all nurse " along with your surgery. I hope you will soon be on the road to recovery. I will keep you in my thought and prayers. Dolores matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the hospital, biospy went well, and pathologist were doing study while i was still on the table. Three insicions on my side. Lung tube for drainage and breathing was painful, dont ever want that again!!! Nurses were wonderful except for one who i did get into a screaming match with. She gave me morphine via IV, and the vein had collapsed so no medication got through vein, just under my skin which my hand immediately blew up like a catchers mit. when i told her the IV was out, she accused me of wanting more morphine, and i exploded at that. Anyway another nurse came in and i showed her my hand and i showed her my other arm (wrist) where they had a blood gas needle in and told her that was also collapsed, to please call my doc to get permission to have them pulled. She was back in ten minutes with orders to pull them, and the nurse who was so rude was repromanded by her superior. so there is justice in the world!!! My veins collapsed within 6 hours of being put in. So the doc came in that night to visit me and he asked if he could do the surgery for my port, that they were all in agreement that poking me over and over was not a good idea. He put the port in the following morning and while i was under he pulled my lung line. He explained its rght below my collor bone on the left side and i will receive chemo, hydration adn nutrician thruough this, and im grateful for that. Im black and blue everywhere there was something done. The insicion for the lung tube has no stitches, no steri stiches nothihg just a big gaping hole, right beneath where the breast and chest meet up again, and it is still draining, which is good, i just wish it would stop and heal.. The port sight is swollen like a golf ball, he said that was normal, and it hurts so bad, i feel at night like i will rip my hair out, and im on plenty of pain medication. the evenings when its quiet, is when it bothers me the most. and im extremely tired. They did take MH precautions, and that was good since they didnt understand mito much, but they sure knew about MH. I will meet with chemo nurses this week, to discuss everything, three days of chemo, three weeks off. WEll i have to go lay down cant keep my eyes open, Thanks for all the prayers and good wishes!!! Now we can get those drangonflies to do thier jobs!! Love ya's, Barb Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Thanks for the update - healing vibes are being sent your way. Take care, RH > Hi all, Im back home from the hospital, biospy went well, and > pathologist were doing study while i was still on the table. Three > insicions on my side. Lung tube for drainage and breathing was > painful, dont ever want that again!!! Nurses were wonderful except > for one who i did get into a screaming match with. She gave me > morphine via IV, and the vein had collapsed so no medication got > through vein, just under my skin which my hand immediately blew up > like a catchers mit. when i told her the IV was out, she accused me > of wanting more morphine, and i exploded at that. Anyway another > nurse came in and i showed her my hand and i showed her my other arm > (wrist) where they had a blood gas needle in and told her that was > also collapsed, to please call my doc to get permission to have them > pulled. She was back in ten minutes with orders to pull them, and > the nurse who was so rude was repromanded by her superior. so there > is justice in the world!!! My veins collapsed within 6 hours of > being put in. So the doc came in that night to visit me and he > asked if he could do the surgery for my port, that they were all in > agreement that poking me over and over was not a good idea. He put > the port in the following morning and while i was under he pulled my > lung line. He explained its rght below my collor bone on the left > side and i will receive chemo, hydration adn nutrician thruough > this, and im grateful for that. Im black and blue everywhere there > was something done. The insicion for the lung tube has no stitches, > no steri stiches nothihg just a big gaping hole, right beneath where > the breast and chest meet up again, and it is still draining, which > is good, i just wish it would stop and heal.. The port sight is > swollen like a golf ball, he said that was normal, and it hurts so > bad, i feel at night like i will rip my hair out, and im on plenty > of pain medication. the evenings when its quiet, is when it bothers > me the most. and im extremely tired. They did take MH precautions, > and that was good since they didnt understand mito much, but they > sure knew about MH. I will meet with chemo nurses this week, to > discuss everything, three days of chemo, three weeks off. WEll i > have to go lay down cant keep my eyes open, Thanks for all the > prayers and good wishes!!! Now we can get those drangonflies to do > thier jobs!! Love ya's, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Thanks for the update - healing vibes are being sent your way. Take care, RH > Hi all, Im back home from the hospital, biospy went well, and > pathologist were doing study while i was still on the table. Three > insicions on my side. Lung tube for drainage and breathing was > painful, dont ever want that again!!! Nurses were wonderful except > for one who i did get into a screaming match with. She gave me > morphine via IV, and the vein had collapsed so no medication got > through vein, just under my skin which my hand immediately blew up > like a catchers mit. when i told her the IV was out, she accused me > of wanting more morphine, and i exploded at that. Anyway another > nurse came in and i showed her my hand and i showed her my other arm > (wrist) where they had a blood gas needle in and told her that was > also collapsed, to please call my doc to get permission to have them > pulled. She was back in ten minutes with orders to pull them, and > the nurse who was so rude was repromanded by her superior. so there > is justice in the world!!! My veins collapsed within 6 hours of > being put in. So the doc came in that night to visit me and he > asked if he could do the surgery for my port, that they were all in > agreement that poking me over and over was not a good idea. He put > the port in the following morning and while i was under he pulled my > lung line. He explained its rght below my collor bone on the left > side and i will receive chemo, hydration adn nutrician thruough > this, and im grateful for that. Im black and blue everywhere there > was something done. The insicion for the lung tube has no stitches, > no steri stiches nothihg just a big gaping hole, right beneath where > the breast and chest meet up again, and it is still draining, which > is good, i just wish it would stop and heal.. The port sight is > swollen like a golf ball, he said that was normal, and it hurts so > bad, i feel at night like i will rip my hair out, and im on plenty > of pain medication. the evenings when its quiet, is when it bothers > me the most. and im extremely tired. They did take MH precautions, > and that was good since they didnt understand mito much, but they > sure knew about MH. I will meet with chemo nurses this week, to > discuss everything, three days of chemo, three weeks off. WEll i > have to go lay down cant keep my eyes open, Thanks for all the > prayers and good wishes!!! Now we can get those drangonflies to do > thier jobs!! Love ya's, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Barb Thanks for the update. I am so sorry that you are so brusied and sore. It sure doesn't sound like a picnic in any way, shape or form. You are in my thoughts and prayers. I'm thinking dragonflies. Hugs, laurie > Hi try to hang in there if at all possible. My husband wasn't too fond of his port they put in for chemo, etc. If I could have gotten my legs to work right I woould be still kicking myself for letting him be buried without having Chris Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on dialysis I had to watch the area of his shunt all the time as his veins kept collapsing and once when he was in the hospital I had to do like you or as my husband so aptly put it, " Dolores got it taken care of and she only had to throw a screaming fit one time " . I have had IV's back up on me like that and it is really a miserable thing. I am so sorry you had to endure " a know it all nurse " along with your surgery. I hope you will soon be on the road to recovery. I will keep you in my thought and prayers. Dolores > > matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the hospital, biospy went well, and > pathologist were doing study while i was still on the table. Three > insicions on my side. Lung tube for drainage and breathing was > painful, dont ever want that again!!! Nurses were wonderful except > for one who i did get into a screaming match with. She gave me > morphine via IV, and the vein had collapsed so no medication got > through vein, just under my skin which my hand immediately blew up > like a catchers mit. when i told her the IV was out, she accused me > of wanting more morphine, and i exploded at that. Anyway another > nurse came in and i showed her my hand and i showed her my other arm > (wrist) where they had a blood gas needle in and told her that was > also collapsed, to please call my doc to get permission to have them > pulled. She was back in ten minutes with orders to pull them, and > the nurse who was so rude was repromanded by her superior. so there > is justice in the world!!! My veins collapsed within 6 hours of > being put in. So the doc came in that night to visit me and he > asked if he could do the surgery for my port, that they were all in > agreement that poking me over and over was not a good idea. He put > the port in the following morning and while i was under he pulled my > lung line. He explained its rght below my collor bone on the left > side and i will receive chemo, hydration adn nutrician thruough > this, and im grateful for that. Im black and blue everywhere there > was something done. The insicion for the lung tube has no stitches, > no steri stiches nothihg just a big gaping hole, right beneath where > the breast and chest meet up again, and it is still draining, which > is good, i just wish it would stop and heal.. The port sight is > swollen like a golf ball, he said that was normal, and it hurts so > bad, i feel at night like i will rip my hair out, and im on plenty > of pain medication. the evenings when its quiet, is when it bothers > me the most. and im extremely tired. They did take MH precautions, > and that was good since they didnt understand mito much, but they > sure knew about MH. I will meet with chemo nurses this week, to > discuss everything, three days of chemo, three weeks off. WEll i > have to go lay down cant keep my eyes open, Thanks for all the > prayers and good wishes!!! Now we can get those drangonflies to do > thier jobs!! Love ya's, Barb > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Barb Thanks for the update. I am so sorry that you are so brusied and sore. It sure doesn't sound like a picnic in any way, shape or form. You are in my thoughts and prayers. I'm thinking dragonflies. Hugs, laurie > Hi try to hang in there if at all possible. My husband wasn't too fond of his port they put in for chemo, etc. If I could have gotten my legs to work right I woould be still kicking myself for letting him be buried without having Chris Mercer of Mercer Funeral Home at Holton, remove his port. When my Dad was on dialysis I had to watch the area of his shunt all the time as his veins kept collapsing and once when he was in the hospital I had to do like you or as my husband so aptly put it, " Dolores got it taken care of and she only had to throw a screaming fit one time " . I have had IV's back up on me like that and it is really a miserable thing. I am so sorry you had to endure " a know it all nurse " along with your surgery. I hope you will soon be on the road to recovery. I will keep you in my thought and prayers. Dolores > > matts_mom96 matts_mom96@...> wrote:Hi all, Im back home from the hospital, biospy went well, and > pathologist were doing study while i was still on the table. Three > insicions on my side. Lung tube for drainage and breathing was > painful, dont ever want that again!!! Nurses were wonderful except > for one who i did get into a screaming match with. She gave me > morphine via IV, and the vein had collapsed so no medication got > through vein, just under my skin which my hand immediately blew up > like a catchers mit. when i told her the IV was out, she accused me > of wanting more morphine, and i exploded at that. Anyway another > nurse came in and i showed her my hand and i showed her my other arm > (wrist) where they had a blood gas needle in and told her that was > also collapsed, to please call my doc to get permission to have them > pulled. She was back in ten minutes with orders to pull them, and > the nurse who was so rude was repromanded by her superior. so there > is justice in the world!!! My veins collapsed within 6 hours of > being put in. So the doc came in that night to visit me and he > asked if he could do the surgery for my port, that they were all in > agreement that poking me over and over was not a good idea. He put > the port in the following morning and while i was under he pulled my > lung line. He explained its rght below my collor bone on the left > side and i will receive chemo, hydration adn nutrician thruough > this, and im grateful for that. Im black and blue everywhere there > was something done. The insicion for the lung tube has no stitches, > no steri stiches nothihg just a big gaping hole, right beneath where > the breast and chest meet up again, and it is still draining, which > is good, i just wish it would stop and heal.. The port sight is > swollen like a golf ball, he said that was normal, and it hurts so > bad, i feel at night like i will rip my hair out, and im on plenty > of pain medication. the evenings when its quiet, is when it bothers > me the most. and im extremely tired. They did take MH precautions, > and that was good since they didnt understand mito much, but they > sure knew about MH. I will meet with chemo nurses this week, to > discuss everything, three days of chemo, three weeks off. WEll i > have to go lay down cant keep my eyes open, Thanks for all the > prayers and good wishes!!! Now we can get those drangonflies to do > thier jobs!! Love ya's, Barb > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Dear Dolores, Thank you so much for your kind words and your prayers!! Its very comforting to me!! Im so glad you only had to throw one tissy fit, to get them to listen to you, in your case with the IV, and your husbands case with his port!! Your Dad was very lucky to have you there for him, too. I am very lucky I only had one bad experience so far. I guess they are not use to folks who actually been chronically ill, and that do know their own bodies, and when something is really wrong. I understand most folks who are only sick now and again, complaining can make it hard for nurses and Docs. But folks like us that have mito, and others with disabilities, we do know our bodies, we do know more than any human that hasnt studied medicine, should ever need to know, but we do because we have too. What they have told me about my situation with this port is that the weight lost ive had, my port is sticking way above normal skin level, there just isnt any meat left on my bones, and this will cause severe disconfort. (I was 160 two years ago, and now 100 pounds, mostly from mito-cycle vomiting), if i do gain weight back (God knows im trying) the port will stick out less and be so much less painful. Heres the dilema, have to be careful what i eat because of the mito. So hard to figure out what to eat without causing major mito crashes, and what will help me and put weight back on, I think we have the cycle vomiting under control now. Time will tell! But Thank God we have our voices to speak up when we need too!! Thanks again, Hugs!! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Dear Dolores, Thank you so much for your kind words and your prayers!! Its very comforting to me!! Im so glad you only had to throw one tissy fit, to get them to listen to you, in your case with the IV, and your husbands case with his port!! Your Dad was very lucky to have you there for him, too. I am very lucky I only had one bad experience so far. I guess they are not use to folks who actually been chronically ill, and that do know their own bodies, and when something is really wrong. I understand most folks who are only sick now and again, complaining can make it hard for nurses and Docs. But folks like us that have mito, and others with disabilities, we do know our bodies, we do know more than any human that hasnt studied medicine, should ever need to know, but we do because we have too. What they have told me about my situation with this port is that the weight lost ive had, my port is sticking way above normal skin level, there just isnt any meat left on my bones, and this will cause severe disconfort. (I was 160 two years ago, and now 100 pounds, mostly from mito-cycle vomiting), if i do gain weight back (God knows im trying) the port will stick out less and be so much less painful. Heres the dilema, have to be careful what i eat because of the mito. So hard to figure out what to eat without causing major mito crashes, and what will help me and put weight back on, I think we have the cycle vomiting under control now. Time will tell! But Thank God we have our voices to speak up when we need too!! Thanks again, Hugs!! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hi RH, Thank your for those healing vibes, I can feel them!!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hi RH, Thank your for those healing vibes, I can feel them!!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hey there Laurie, Thank you for thinking Drangonflies!!! You have been a wonderful friend, and strong force of support to me!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hey there Laurie, Thank you for thinking Drangonflies!!! You have been a wonderful friend, and strong force of support to me!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hi Anne-Marie, Thank you for all your prayers, and good thoughts, they really help!!! Im waiting now for a return call from my pain management doc, ( i will tell him today about the cancer) I want him to be part of my team, he knows me for 5 years now, and i think he can be very beneficial, in my treatment as far as the pain goes. If not, hes fired!!! I just have to be that discriminating at this point, they either help or they are fired!!! I will ask him to up my morphine as the cancer is affecting my OA and degenarative bone and joint disease, and need more morphine because of the cancer pain. I rather him up the dose than, the oncologist just write up for pain pills, becuase they dont know me as well as him, he can write up for a higher dose and i dont have to worry if the dose is too high or not, that is how much confidence i have in him. Well keep thinking Dragonflies, and keep me in your thoughts!!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hi Anne-Marie, Thank you for all your prayers, and good thoughts, they really help!!! Im waiting now for a return call from my pain management doc, ( i will tell him today about the cancer) I want him to be part of my team, he knows me for 5 years now, and i think he can be very beneficial, in my treatment as far as the pain goes. If not, hes fired!!! I just have to be that discriminating at this point, they either help or they are fired!!! I will ask him to up my morphine as the cancer is affecting my OA and degenarative bone and joint disease, and need more morphine because of the cancer pain. I rather him up the dose than, the oncologist just write up for pain pills, becuase they dont know me as well as him, he can write up for a higher dose and i dont have to worry if the dose is too high or not, that is how much confidence i have in him. Well keep thinking Dragonflies, and keep me in your thoughts!!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 That's how my husband's port was just my hand bumping it in the night was very painful to him. Take care and a surprise may come your way. Dolores matts_mom96 matts_mom96@...> wrote: Dear Dolores, Thank you so much for your kind words and your prayers!! Its very comforting to me!! Im so glad you only had to throw one tissy fit, to get them to listen to you, in your case with the IV, and your husbands case with his port!! Your Dad was very lucky to have you there for him, too. I am very lucky I only had one bad experience so far. I guess they are not use to folks who actually been chronically ill, and that do know their own bodies, and when something is really wrong. I understand most folks who are only sick now and again, complaining can make it hard for nurses and Docs. But folks like us that have mito, and others with disabilities, we do know our bodies, we do know more than any human that hasnt studied medicine, should ever need to know, but we do because we have too. What they have told me about my situation with this port is that the weight lost ive had, my port is sticking way above normal skin level, there just isnt any meat left on my bones, and this will cause severe disconfort. (I was 160 two years ago, and now 100 pounds, mostly from mito-cycle vomiting), if i do gain weight back (God knows im trying) the port will stick out less and be so much less painful. Heres the dilema, have to be careful what i eat because of the mito. So hard to figure out what to eat without causing major mito crashes, and what will help me and put weight back on, I think we have the cycle vomiting under control now. Time will tell! But Thank God we have our voices to speak up when we need too!! Thanks again, Hugs!! Barb Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 That's how my husband's port was just my hand bumping it in the night was very painful to him. Take care and a surprise may come your way. Dolores matts_mom96 matts_mom96@...> wrote: Dear Dolores, Thank you so much for your kind words and your prayers!! Its very comforting to me!! Im so glad you only had to throw one tissy fit, to get them to listen to you, in your case with the IV, and your husbands case with his port!! Your Dad was very lucky to have you there for him, too. I am very lucky I only had one bad experience so far. I guess they are not use to folks who actually been chronically ill, and that do know their own bodies, and when something is really wrong. I understand most folks who are only sick now and again, complaining can make it hard for nurses and Docs. But folks like us that have mito, and others with disabilities, we do know our bodies, we do know more than any human that hasnt studied medicine, should ever need to know, but we do because we have too. What they have told me about my situation with this port is that the weight lost ive had, my port is sticking way above normal skin level, there just isnt any meat left on my bones, and this will cause severe disconfort. (I was 160 two years ago, and now 100 pounds, mostly from mito-cycle vomiting), if i do gain weight back (God knows im trying) the port will stick out less and be so much less painful. Heres the dilema, have to be careful what i eat because of the mito. So hard to figure out what to eat without causing major mito crashes, and what will help me and put weight back on, I think we have the cycle vomiting under control now. Time will tell! But Thank God we have our voices to speak up when we need too!! Thanks again, Hugs!! Barb Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Welcome home Barb, I am sorry to hear all that you have been through and will continue to keep you and your family in my thoughts and prayers. Hugs, Donna K ---- matts_mom96 matts_mom96@...> wrote: > Hi RH, Thank your for those healing vibes, I can feel them!!! Hugs, > Barb > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Welcome home Barb, I am sorry to hear all that you have been through and will continue to keep you and your family in my thoughts and prayers. Hugs, Donna K ---- matts_mom96 matts_mom96@...> wrote: > Hi RH, Thank your for those healing vibes, I can feel them!!! Hugs, > Barb > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.