Doctor in land

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Yesterday when I was at my neurologist appointment he said that there was a "world famous" Sarcoid Neurologist in land. His name is Dr. Sterns (not exactly sure about the spelling) I do know he was at Emory Univ in Atlanta for a good while. Thought I would let you know in case there is anyone in that area, or close by. If you need me too I will try and get his first name. The doctor told me but I can't remember. He was trying to find a neurologist that specializes in sarc for me. Because I can not undergo a MRI (pacer) it is making it very difficult to figure out what is happening to my head. He worked with Dr Sterns at one time and was going to ask him if he knew of someone in or near florida. Because he definitely can't determine what is going on he will not take on my medication supervision. I am so down.

My pulmonologist is a great person, but he acts like the only thing sarc affects is lungs, and the only thing for sarc is pred. When I try to talk to him about the other systemic things that are happening, or doing something about the pred. he just gives me an infuriating "I'm being tolerant" smile like you would give your child when they ask you can they fly. Since I've reduced the pred my joints, spine, head etc have just gone haywire. I don't know where to turn to get somebody to take care of the systemic problems, or how to get someone to understand what is happening to my brain. I know something is really wrong and so does my family. I asked my mother to honestly tell me was I just imagining everything that was happening to me the speech problems, numbness, headaches, etc or did she notice a difference. She said no I was not imagining it that weird things were happening

when I tried to speak, my memory was awful and my personality was changing, she just hadn't said much to me because she didn't want to upset me. I honestly just feel like ditching doctors, medicine, the whole shooting match and bucking up and shutting up. I don't know how long I could last, but if I did what I felt like right now I cry and scream at the same time. I am so frustrated, it feels like it did before I got my pacer. I knew without a doubt from everything that was happening, that there was something terribly wrong with my heart. But it took it almost killing me before anyone would even halfway listen, and they were still giving me grief till they put it in and found out how messed it was. Thanks for letting me vent.....BAD day///Connie

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