Tracie from Kim & Remembering Darlene on Thursday

[Guest guest]

I am remembering now that Darlene is to have her first Remicade infusion tomorrow, Thursday. I am sure all will go smoothly, but it was comforting to me to know some of you had me in your thoughts and prayers when I had mine and I am sure htat Darlene would appreciate the same. Let's keep her in our hearts and prayers tomorrow. Darlene know that we are thinking of you - and let us hear from you and know how things go when you are up to it. Tracie- Im sure you read my post already about my cardiologist appt today, so i wont rewrite it all agian here. what a mess. i havent called the dr at the hsopital yet to tell them. i almost dont see a point in it if you can imagine. would the cellcept not cover

me for antibodies the same as the metho ??? with the remicade i mean?? i wanted so badly to talk to the dr about this before they started it and to ask what antihistimines they were using etc, but no one would ever come talk to me....except the one dr who just doesnt know any answers and always says dr so and so i sgoing to come see you ... and then dr who ever never ever shows up. at this point i honestly feel like my neuro is purposely tryinig to make me go outside of kuwait for care, not realising that i do not have this option any longer, like i used to. he literally will not speak to me, but will not remove himself from my case either. even if he is the head of neuro. at the hosptial, why does his name have to be on all my files and orders if he wont see or speak to me? and none of the drs on this committee will actually see me. they have spent about 10 minutes assessing me when i was admitted, and then they

ordered labs and tests of course. the only drs who see me are drs who do not know my case at all or my labs or history, or exams from one visit to the other. and the other dr who seems to work under all the other neuros, he is an internist and he must be interning as a neurologist or something, he is kind and honestly the only one taken an interest or doing anything, but again cant lieterally do anything on his own it seems. my neuros private office wont even release my records to me now, claim they dont have my eeg report, its gone missing, etc. so where is it, always say we have to ask the dr, we will call you back then never do. i dont know what to do. that eeg is very important i think. i need the report and paid for it dearly. its been since jan. when it was done. i dont know what to do. well forget it im exhausted. take care and darlene we are thinking of you good luck kim Kim,Did they jump on the Benadryl also-- that is the best antihistamine for allergic reaction.Maybe now they'll take Baughman's advice and get you on the Cytoxan? I do wish they'd added teh MTX, it is formulated to work in conjunction with the Remicade--oh, well-- next step--onward and upward--Hugs,Tracie

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