Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Does anyone have any tips on coping with the depression caused by my meds, Im so down, im not sleeping and I keep picking on my girlfriend over stupid things and little things are just getting blown out of proportion. Ive just had a replapse and its the first one Ive had since being with my girlfriend and now Ive had to increase my meds its hitting me hard, I warned her what I can be like but I dont think she understands and Im worried she wont be able to cope with my behaviour. I feel so lucky to have survived another attack as it is on my brain stem but Im so angry that I relapsed as I had made so much progress - now Im back to square one again, not only is my depsression coming back but all the usual side effects are appearing and i just dont know if I can cope with this again im so tired and in pain, I just dont kno what to do. Clair To help you stay safe and secure online, we've developed the all new Yahoo! Security Centre. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Clair, would she be willing to get online here with the group & share how she's feeling about it all? Many of us here can relate to the effect on our loved ones. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "Neurosarcoidosis " <Neurosarcoidosis >Subject: Coping with deppressionDate: Sat, 4 Mar 2006 14:16:50 +0000 (GMT) Does anyone have any tips on coping with the depression caused by my meds, Im so down, im not sleeping and I keep picking on my girlfriend over stupid things and little things are just getting blown out of proportion. Ive just had a replapse and its the first one Ive had since being with my girlfriend and now Ive had to increase my meds its hitting me hard, I warned her what I can be like but I dont think she understands and Im worried she wont be able to cope with my behaviour. I feel so lucky to have survived another attack as it is on my brain stem but Im so angry that I relapsed as I had made so much progress - now Im back to square one again, not only is my depsression coming back but all the usual side effects are appearing and i just dont know if I can cope with this again im so tired and in pain, I just dont kno what to do. Clair To help you stay safe and secure online, we've developed the all new Yahoo! Security Centre. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Hi Tracie/Rose/Matt Thanks for your words of wisdom. Im feeling better now, my girlfriend and I had a good talk about things and she explained how shes been feeling and how scared she was, its only starting to hit home now the worst is over. Im going to see my consultant tomorrow and im going to see if a can get a tranquilser as my sleeping tablets arent working, and I think if I could just get some sleep I wont be so grumpy !! Being at home all day when Im used to working and being active mentally isn't helping but im not ready to go back to work ! Im going to try and avoid antidrepresant for the moment as If I want to get back to work its hard when taking them and also if the insurance company find out im taking them they and refuse to may out as mental health is not covered and that pays for my loan when im off sick ! Im taking the prednicolone in tablets now but im also on Neoral (Cyclosporin) and Cellcept (Mycophenolate Mofetil) which are both immunosupressants to stop people rejecting transplanted organs, but I get every side effect going :-( I have a good consultant but he's an opthalmicneurologist who maily deals with opthamology, I have a neurologist who is about as useful as a chocolate teapot, and there just isnt any support or information on neurosarcoid in the UK outside of London. I even has one doctor say that is was something you read about in medical school but you never actually met someone with it !! Thanks for listening Clairtiodaat@... wrote: Clair,Didn't you just do another huge round of solumedrol? So I imagine this is a prednisone caused depression?So many of us get so whacked out on the steroids--and the withdrawal--that we cna't use this choice of drugs anymore. It sounds like you too need something other than pred. Can your MD give you an antidepressant to counteract the steroids?I know this is so hard on relationships-- and yeah, when you've got huge doses of steroids in your body--everything is magnified so many times over.I want to say hang in there-- and I know that's what you will do-- just know we're here-- and if you need to vent--here's a good place. Let it rip-- and Rose will score your rant-- (and then we can put it back into perspective) because this does suck------- If you have a guided meditation tape--listen to it. Put on some soothing music, get a cup to green tea (decaf) and wrap up in our virtual blanket. Let it calm you, comfort you, and breath, slowly-- focus on your breath, and let it calm you. Close your eyes, and just be comforted. One breath at a time.Love to you,TracieNS Co-owner/moderator Yahoo! Cars NEW - sell your car and browse thousands of new and used cars online search now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Hi Tracie/Rose/Matt Thanks for your words of wisdom. Im feeling better now, my girlfriend and I had a good talk about things and she explained how shes been feeling and how scared she was, its only starting to hit home now the worst is over. Im going to see my consultant tomorrow and im going to see if a can get a tranquilser as my sleeping tablets arent working, and I think if I could just get some sleep I wont be so grumpy !! Being at home all day when Im used to working and being active mentally isn't helping but im not ready to go back to work ! Im going to try and avoid antidrepresant for the moment as If I want to get back to work its hard when taking them and also if the insurance company find out im taking them they and refuse to may out as mental health is not covered and that pays for my loan when im off sick ! Im taking the prednicolone in tablets now but im also on Neoral (Cyclosporin) and Cellcept (Mycophenolate Mofetil) which are both immunosupressants to stop people rejecting transplanted organs, but I get every side effect going :-( I have a good consultant but he's an opthalmicneurologist who maily deals with opthamology, I have a neurologist who is about as useful as a chocolate teapot, and there just isnt any support or information on neurosarcoid in the UK outside of London. I even has one doctor say that is was something you read about in medical school but you never actually met someone with it !! Thanks for listening Clairtiodaat@... wrote: Clair,Didn't you just do another huge round of solumedrol? So I imagine this is a prednisone caused depression?So many of us get so whacked out on the steroids--and the withdrawal--that we cna't use this choice of drugs anymore. It sounds like you too need something other than pred. Can your MD give you an antidepressant to counteract the steroids?I know this is so hard on relationships-- and yeah, when you've got huge doses of steroids in your body--everything is magnified so many times over.I want to say hang in there-- and I know that's what you will do-- just know we're here-- and if you need to vent--here's a good place. Let it rip-- and Rose will score your rant-- (and then we can put it back into perspective) because this does suck------- If you have a guided meditation tape--listen to it. Put on some soothing music, get a cup to green tea (decaf) and wrap up in our virtual blanket. Let it calm you, comfort you, and breath, slowly-- focus on your breath, and let it calm you. Close your eyes, and just be comforted. One breath at a time.Love to you,TracieNS Co-owner/moderator Yahoo! Cars NEW - sell your car and browse thousands of new and used cars online search now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Hi Tracie/Rose/Matt Thanks for your words of wisdom. Im feeling better now, my girlfriend and I had a good talk about things and she explained how shes been feeling and how scared she was, its only starting to hit home now the worst is over. Im going to see my consultant tomorrow and im going to see if a can get a tranquilser as my sleeping tablets arent working, and I think if I could just get some sleep I wont be so grumpy !! Being at home all day when Im used to working and being active mentally isn't helping but im not ready to go back to work ! Im going to try and avoid antidrepresant for the moment as If I want to get back to work its hard when taking them and also if the insurance company find out im taking them they and refuse to may out as mental health is not covered and that pays for my loan when im off sick ! Im taking the prednicolone in tablets now but im also on Neoral (Cyclosporin) and Cellcept (Mycophenolate Mofetil) which are both immunosupressants to stop people rejecting transplanted organs, but I get every side effect going :-( I have a good consultant but he's an opthalmicneurologist who maily deals with opthamology, I have a neurologist who is about as useful as a chocolate teapot, and there just isnt any support or information on neurosarcoid in the UK outside of London. I even has one doctor say that is was something you read about in medical school but you never actually met someone with it !! Thanks for listening Clairtiodaat@... wrote: Clair,Didn't you just do another huge round of solumedrol? So I imagine this is a prednisone caused depression?So many of us get so whacked out on the steroids--and the withdrawal--that we cna't use this choice of drugs anymore. It sounds like you too need something other than pred. Can your MD give you an antidepressant to counteract the steroids?I know this is so hard on relationships-- and yeah, when you've got huge doses of steroids in your body--everything is magnified so many times over.I want to say hang in there-- and I know that's what you will do-- just know we're here-- and if you need to vent--here's a good place. Let it rip-- and Rose will score your rant-- (and then we can put it back into perspective) because this does suck------- If you have a guided meditation tape--listen to it. Put on some soothing music, get a cup to green tea (decaf) and wrap up in our virtual blanket. Let it calm you, comfort you, and breath, slowly-- focus on your breath, and let it calm you. Close your eyes, and just be comforted. One breath at a time.Love to you,TracieNS Co-owner/moderator Yahoo! Cars NEW - sell your car and browse thousands of new and used cars online search now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Clair, The depression is, if your like me, stemming from the identity loss from not working. No matter how terrible my life was or is, if I had a job, I excelled and escaped from my home life at work. My identity was always tied up in my job. As far as the anti-depressant goes, you can try St. s Wort which is a natural herbal anti-depressant. Just make sure that if you ever go on a prescription, you do not take both. By the way, what type of work were you doing? I hope things with you and your girlfriend get better. It is very difficult to be sick all the time and have so much upheaval in your life. You need the least amount of stress possible. So take care of yourself and think about the St. s Wort. Terri G. > > Clair, > Didn't you just do another huge round of solumedrol? So I imagine this is a prednisone caused depression? > So many of us get so whacked out on the steroids--and the withdrawal--that we cna't use this choice of drugs anymore. It sounds like you too need something other than pred. > Can your MD give you an antidepressant to counteract the steroids? > I know this is so hard on relationships-- and yeah, when you've got huge doses of steroids in your body--everything is magnified so many times over. > I want to say hang in there-- and I know that's what you will do-- just know we're here-- and if you need to vent--here's a good place. Let it rip-- and Rose will score your rant-- (and then we can put it back into perspective) because this does suck------- > > If you have a guided meditation tape--listen to it. Put on some soothing music, get a cup to green tea (decaf) and wrap up in our virtual blanket. Let it calm you, comfort you, and breath, slowly-- focus on your breath, and let it calm you. Close your eyes, and just be comforted. > One breath at a time. > > Love to you, > Tracie > NS Co-owner/moderator > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Clair, Sorry you can't take the St. s Wort but I am glad you are feeling better. A lot of us feel the same way about not working. I am lucky to have some money coming from disability from my job, but I would rather be out with people, not stuck in here looking at the four walls. Are you able to exercise? If so, try hatha yoga. It is great stress relief. Well, let me know hoe things go. Terri G. > >> > Clair,> > Didn't you just do another huge round of solumedrol? So I imagine this> is a prednisone caused depression?> > So many of us get so whacked out on the steroids--and the> withdrawal--that we cna't use this choice of drugs anymore. It sounds> like you too need something other than pred.> > Can your MD give you an antidepressant to counteract the steroids?> > I know this is so hard on relationships-- and yeah, when you've got> huge doses of steroids in your body--everything is magnified so many> times over.> > I want to say hang in there-- and I know that's what you will do--> just know we're here-- and if you need to vent--here's a good place. Let> it rip-- and Rose will score your rant-- (and then we can put it back> into perspective) because this does suck-------> >> > If you have a guided meditation tape--listen to it. Put on some> soothing music, get a cup to green tea (decaf) and wrap up in our> virtual blanket. Let it calm you, comfort you, and breath, slowly--> focus on your breath, and let it calm you. Close your eyes, and just be> comforted.> > One breath at a time.> >> > Love to you,> > Tracie> > NS Co-owner/moderator> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > NS CHAT:- Has been cancelled for now.> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> > Quote Link to comment Share on other sites More sharing options...
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