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I would be not be interested in being on any TV show,-if I can't talk

in a normal way in everyday life - I can only imagine what I'd scared

to death on national tv ;) but I think it would be a good thing if

somehow someone could draw attention to MSS and NS on a big show.

Montel would be a good one too. A couple of weeks ago my local

newspaper had this story about a woman who had to sell her old

historical home because she had Fibromyalgia and couldn't maintain

it. Please don't misunderstand - my best friend has fibro and I know

it is hard...but I had to think that I should call the newspaper and

tell them they should write a story about the struggles of sarcoid

patients to maintain not just their homes..but their lives.

ttfn

Ruth

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