Can anyone offer feedback about their progress at one year

September 10, 2009

Hi all - while I realize that this is an individual journey I am just curious

how people who are or wee athe the one year mark were doing. I just got off a

eight month run with Prednisone in July (maybe a 3/4 a month at 15-40 mg, but

everything after that was mainly 12 mg and lower) and still can only eat beef,

buffalo elk and fish (Chicken, turkey pork, lamb and eggs I react to),I can eat

cheeses, red wine, really no fruit at this point (recently found out that the

ripe banana I was putting in my daily smoothies seemed to coordinate with about

2-3 more BMs per day)and I can eat well cooked, skinned, zucchini, tomato I am

on the fence about (minus seeds) and bell peppers. I may be dealing with a

salyciliate issue. I can also have dry red wine but white seems to give me

trouble - wine in general seems to give me trouble because it is one of the few

coping mechanisms that I have ot had to completely move away from so I lean on

it probably more than I should as a result...makes me eat more ...into the

evening...you get the idea. I'd say all and all I eat about 30-40 different

ingredients but very very heavy in protein with remaining nutrition coming from

supplements. I still have about 4-13 BMS a day and there is bleeding and D. I

do realize that some of this has to do with my struggle to not eat later into

the evening when the digestion slows among other things, mainly that evolve

around impatience, but I can usually get back down to the lower end of BMS with

diet modifications. Just could use some feedback about if this is common place

at a little over a year. I do know the UC tends to take longer to heal from

than Chrones- not sure why, so if anyone has info on that - this too would be

helpful.

P.S. I am not interested in the LDN option at this time - I tried it briefly,

Eileen's daughter healed without it and I am struggling with the variables of

what works and what does not. I am not interested in adding yet another

variable to the mix at this point.

aiazeen

UC 7 years

asacol 400 mg 3x/day

Imipramine 30 mg/day

SCD 1 yr 1 and 1 1/2 months

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