Thanks everyone

June 24, 2002

Hi Sherry,

I haven't been here in awhile.....and was catching up on the

posts when I saw that you wrote : (Also, I can drink a gallon of

water every day and hardly ever pee. Is this normal? I don't think

so.)

Well....this sounds like me....I was worrying to death over

it...had thought maybe I had a kidney infection and they did some

blood test that came back negative.....still.....when your in the

bathroom and in the next stall is a woman way older than you are and

she is peeing like crazy while your trickling and realizing I hadn't

peed like that in years is scary.

Please let me know if your docs come up with any

answers......these tests are costing me a fortune. I dropped out of

taking them for something that they say I have and have no cure for.

Wishing you a great monday,

Dawn

> Hello Everyone

>

> I want to thank all of you for holding good thoughts for me. The

people on

> this list are the best. I am feeling some better today but I am

still so

> upset at the way that doc reacted to me. I have talked to some

people and

> read about the TrP injections and I guess I will try it. Not only

do I have

> FMS/CFS/MFS; I also have OA, PA, and diabetes. All of these things

can be

> very painful and for her to believe I just have general muscle

pain is

> ridiculous. I am scared to have this done but I just need some

relief from

> this pain. She wants to inject the steroid in my left shoulder and

the left

> side of my waist area. Did anyone have something to relax them

when they had

> this done?

>

> Again I want to say how I appreciate all your suggestions and

thoughts.

>

> As for my SS disability, I will be calling a lawyer on Monday; I

have been

> trying to get SSD for eternity (it feels). This is the fourth time

I was

> refused. So I am not giving up. To make a long story short, I

moved from Va.

> to SC, which really messed things up good. I did go before a

judge in Va.

> and his conclusion was that my symptoms were " suggestive " and some

of my

> doctors took to long to reply to him, so their opinions did not

count. I

> have a dozen letters from different doctors explaining my health

but yet I

> still keep getting refused. I had a lawyer in Va. and after the

judge denied

> me, she called and said she did not want to handle my case any

further. It

> took 22 months to go before the judge, 4 months to get the refusal

letter.

> So everything has been so time consuming. I hope this lawyer I am

going to

> call is a good one.. cause I am gonna need one.

>

> One more thing, I have written to one of the Senators in this

state and

> explained everything to him. I have not heard anything yet. I

mailed it in

> mid April so I am hoping that will help also. It was a 3 page

typed letter.

> I told him everything with dates and doctors names. I also sent

him copies

> of all those letters from the different doctors. I do have a PCP

that really

> cares and that helps. She is the way a doctor should be.

>

> Gentle Hugs to All

> Sherry in SC

> Age: 56

> " Never underestimate the power of a woman "

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

June 24, 2002

Hi Sherry,

I haven't been here in awhile.....and was catching up on the

posts when I saw that you wrote : (Also, I can drink a gallon of

water every day and hardly ever pee. Is this normal? I don't think

so.)

Well....this sounds like me....I was worrying to death over

it...had thought maybe I had a kidney infection and they did some

blood test that came back negative.....still.....when your in the

bathroom and in the next stall is a woman way older than you are and

she is peeing like crazy while your trickling and realizing I hadn't

peed like that in years is scary.

Please let me know if your docs come up with any

answers......these tests are costing me a fortune. I dropped out of

taking them for something that they say I have and have no cure for.

Wishing you a great monday,

Dawn

> Hello Everyone

>

> I want to thank all of you for holding good thoughts for me. The

people on

> this list are the best. I am feeling some better today but I am

still so

> upset at the way that doc reacted to me. I have talked to some

people and

> read about the TrP injections and I guess I will try it. Not only

do I have

> FMS/CFS/MFS; I also have OA, PA, and diabetes. All of these things

can be

> very painful and for her to believe I just have general muscle

pain is

> ridiculous. I am scared to have this done but I just need some

relief from

> this pain. She wants to inject the steroid in my left shoulder and

the left

> side of my waist area. Did anyone have something to relax them

when they had

> this done?

>

> Again I want to say how I appreciate all your suggestions and

thoughts.

>

> As for my SS disability, I will be calling a lawyer on Monday; I

have been

> trying to get SSD for eternity (it feels). This is the fourth time

I was

> refused. So I am not giving up. To make a long story short, I

moved from Va.

> to SC, which really messed things up good. I did go before a

judge in Va.

> and his conclusion was that my symptoms were " suggestive " and some

of my

> doctors took to long to reply to him, so their opinions did not

count. I

> have a dozen letters from different doctors explaining my health

but yet I

> still keep getting refused. I had a lawyer in Va. and after the

judge denied

> me, she called and said she did not want to handle my case any

further. It

> took 22 months to go before the judge, 4 months to get the refusal

letter.

> So everything has been so time consuming. I hope this lawyer I am

going to

> call is a good one.. cause I am gonna need one.

>

> One more thing, I have written to one of the Senators in this

state and

> explained everything to him. I have not heard anything yet. I

mailed it in

> mid April so I am hoping that will help also. It was a 3 page

typed letter.

> I told him everything with dates and doctors names. I also sent

him copies

> of all those letters from the different doctors. I do have a PCP

that really

> cares and that helps. She is the way a doctor should be.

>

> Gentle Hugs to All

> Sherry in SC

> Age: 56

> " Never underestimate the power of a woman "

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

June 24, 2002

Hi Sherry,

I haven't been here in awhile.....and was catching up on the

posts when I saw that you wrote : (Also, I can drink a gallon of

water every day and hardly ever pee. Is this normal? I don't think

so.)

Well....this sounds like me....I was worrying to death over

it...had thought maybe I had a kidney infection and they did some

blood test that came back negative.....still.....when your in the

bathroom and in the next stall is a woman way older than you are and

she is peeing like crazy while your trickling and realizing I hadn't

peed like that in years is scary.

Please let me know if your docs come up with any

answers......these tests are costing me a fortune. I dropped out of

taking them for something that they say I have and have no cure for.

Wishing you a great monday,

Dawn

> Hello Everyone

>

> I want to thank all of you for holding good thoughts for me. The

people on

> this list are the best. I am feeling some better today but I am

still so

> upset at the way that doc reacted to me. I have talked to some

people and

> read about the TrP injections and I guess I will try it. Not only

do I have

> FMS/CFS/MFS; I also have OA, PA, and diabetes. All of these things

can be

> very painful and for her to believe I just have general muscle

pain is

> ridiculous. I am scared to have this done but I just need some

relief from

> this pain. She wants to inject the steroid in my left shoulder and

the left

> side of my waist area. Did anyone have something to relax them

when they had

> this done?

>

> Again I want to say how I appreciate all your suggestions and

thoughts.

>

> As for my SS disability, I will be calling a lawyer on Monday; I

have been

> trying to get SSD for eternity (it feels). This is the fourth time

I was

> refused. So I am not giving up. To make a long story short, I

moved from Va.

> to SC, which really messed things up good. I did go before a

judge in Va.

> and his conclusion was that my symptoms were " suggestive " and some

of my

> doctors took to long to reply to him, so their opinions did not

count. I

> have a dozen letters from different doctors explaining my health

but yet I

> still keep getting refused. I had a lawyer in Va. and after the

judge denied

> me, she called and said she did not want to handle my case any

further. It

> took 22 months to go before the judge, 4 months to get the refusal

letter.

> So everything has been so time consuming. I hope this lawyer I am

going to

> call is a good one.. cause I am gonna need one.

>

> One more thing, I have written to one of the Senators in this

state and

> explained everything to him. I have not heard anything yet. I

mailed it in

> mid April so I am hoping that will help also. It was a 3 page

typed letter.

> I told him everything with dates and doctors names. I also sent

him copies

> of all those letters from the different doctors. I do have a PCP

that really

> cares and that helps. She is the way a doctor should be.

>

> Gentle Hugs to All

> Sherry in SC

> Age: 56

> " Never underestimate the power of a woman "

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

September 24, 2002

In a message dated 09/24/2002 12:01:14 PM Pacific Daylight Time,

gumbo_yaya_69@... writes:

> Just one week from tomorrow I will be in MN.

>

- that is the spirit. Just keep busy and before you know it next week

will be here. Look at how the time flew from the time you found out you were

going to be able to get the surgery. Wish the doctor was more help, but that

road is a well-worn path.

Keep in touch,

Gail West, Indiana State Representative

September 26, 2002

,

I hope all goes well with the surgery. Is Dr. B your usual

GI or the office partner? Just wanted to know. Either way,

contact JCAHO and make a complaint. And from what I know,

patients aren't allowed to give orders on their medications.

Some doctor had to write the order, even if it's just a

verbal order.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

September 26, 2002

,

I hope all goes well with the surgery. Is Dr. B your usual

GI or the office partner? Just wanted to know. Either way,

contact JCAHO and make a complaint. And from what I know,

patients aren't allowed to give orders on their medications.

Some doctor had to write the order, even if it's just a

verbal order.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

September 26, 2002

,

I hope all goes well with the surgery. Is Dr. B your usual

GI or the office partner? Just wanted to know. Either way,

contact JCAHO and make a complaint. And from what I know,

patients aren't allowed to give orders on their medications.

Some doctor had to write the order, even if it's just a

verbal order.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

September 26, 2002

Kimber,

My regular GI is a senior partner. I've pretty much gotten things

straightened out. My pain management Dr has hooked me up Very Well.

As far as medication orders...no a patient can't order their own but

when the Dr has written orders for meds to be given every 3-4

hours...if the patient requests the med at 3 hours the nurses should

do their best to administer them when requested. I have a little

different relationship with many of the Dr's I've seen especially the

ER Dr's. I know what I need and usually they ask me if this is an

admit time or simply a 'get it under control for now' situation.

I leave in 5 days for MN. Weathered the storm here beautifully. I

just hope there won't be another one cropping up to spoil my plans

for next week.

Peace & prayers (hope your eye is better),

> ,

> I hope all goes well with the surgery. Is Dr. B your usual

> GI or the office partner? Just wanted to know. Either way,

> contact JCAHO and make a complaint. And from what I know,

> patients aren't allowed to give orders on their medications.

> Some doctor had to write the order, even if it's just a

> verbal order.

> Kimber

>

> --

> Kimber

> Vallejo, CA

> hominid2@c...

> Southwest Representative

> Pancreatitis Association, International

September 27, 2002

,

glad you've gotten things straightened out. I'll pray that

the rest of next week goes well and your surgery too. My eye

is slowly getting there. The doctor is checking it daily,

said the bacteria I got in there was a nasty one. So, I'm

doing eye drops every hour, even during sleeping hours,

until further notice. What fun.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

September 27, 2002

,

glad you've gotten things straightened out. I'll pray that

the rest of next week goes well and your surgery too. My eye

is slowly getting there. The doctor is checking it daily,

said the bacteria I got in there was a nasty one. So, I'm

doing eye drops every hour, even during sleeping hours,

until further notice. What fun.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

September 27, 2002

,

glad you've gotten things straightened out. I'll pray that

the rest of next week goes well and your surgery too. My eye

is slowly getting there. The doctor is checking it daily,

said the bacteria I got in there was a nasty one. So, I'm

doing eye drops every hour, even during sleeping hours,

until further notice. What fun.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

September 27, 2002

Kimber,

Oh what Joy!!! LOL!!! I remeber when I was an avid swimmer that I

would get very bad cases of conjunctivitis...pink eye...4-5 days of

no sleep with having to put drops in my eyes every hour or two. No

much fun. I'm glad you caught it early. I shudder to think what could

have been. My neighbor is an opthamologist as well as 2 of his sons

and I think he had almost as many emergencies during non office hours

as my dad did as a surgeon. The eyesight is nothing to mess around

with. Glad it's doing better.

Thanks for the well wishes. As I suspected...my celiac block is

starting to fade away quickly. Thanks to my pain management 'honey'

(no, things have not gotten to another level) I've got the proper

meds to keep Mr P. in check until I leave in 4 days!! I just pray

that Lily doesn't decide to pick up speed. Right now the weather

service is predicting it will be in the middle of the gulf by

wednesday night. I just want to get out of here early wednesday

Morning.

Wishing you a restful night,

> ,

> glad you've gotten things straightened out. I'll pray that

> the rest of next week goes well and your surgery too. My eye

> is slowly getting there. The doctor is checking it daily,

> said the bacteria I got in there was a nasty one. So, I'm

> doing eye drops every hour, even during sleeping hours,

> until further notice. What fun.

> Kimber

>

> --

> Kimber

> Vallejo, CA

> hominid2@c...

> Southwest Representative

> Pancreatitis Association, International

September 27, 2002

Kimber,

Oh what Joy!!! LOL!!! I remeber when I was an avid swimmer that I

would get very bad cases of conjunctivitis...pink eye...4-5 days of

no sleep with having to put drops in my eyes every hour or two. No

much fun. I'm glad you caught it early. I shudder to think what could

have been. My neighbor is an opthamologist as well as 2 of his sons

and I think he had almost as many emergencies during non office hours

as my dad did as a surgeon. The eyesight is nothing to mess around

with. Glad it's doing better.

Thanks for the well wishes. As I suspected...my celiac block is

starting to fade away quickly. Thanks to my pain management 'honey'

(no, things have not gotten to another level) I've got the proper

meds to keep Mr P. in check until I leave in 4 days!! I just pray

that Lily doesn't decide to pick up speed. Right now the weather

service is predicting it will be in the middle of the gulf by

wednesday night. I just want to get out of here early wednesday

Morning.

Wishing you a restful night,

> ,

> glad you've gotten things straightened out. I'll pray that

> the rest of next week goes well and your surgery too. My eye

> is slowly getting there. The doctor is checking it daily,

> said the bacteria I got in there was a nasty one. So, I'm

> doing eye drops every hour, even during sleeping hours,

> until further notice. What fun.

> Kimber

>

> --

> Kimber

> Vallejo, CA

> hominid2@c...

> Southwest Representative

> Pancreatitis Association, International

September 27, 2002

Kimber,

Oh what Joy!!! LOL!!! I remeber when I was an avid swimmer that I

would get very bad cases of conjunctivitis...pink eye...4-5 days of

no sleep with having to put drops in my eyes every hour or two. No

much fun. I'm glad you caught it early. I shudder to think what could

have been. My neighbor is an opthamologist as well as 2 of his sons

and I think he had almost as many emergencies during non office hours

as my dad did as a surgeon. The eyesight is nothing to mess around

with. Glad it's doing better.

Thanks for the well wishes. As I suspected...my celiac block is

starting to fade away quickly. Thanks to my pain management 'honey'

(no, things have not gotten to another level) I've got the proper

meds to keep Mr P. in check until I leave in 4 days!! I just pray

that Lily doesn't decide to pick up speed. Right now the weather

service is predicting it will be in the middle of the gulf by

wednesday night. I just want to get out of here early wednesday

Morning.

Wishing you a restful night,

> ,

> glad you've gotten things straightened out. I'll pray that

> the rest of next week goes well and your surgery too. My eye

> is slowly getting there. The doctor is checking it daily,

> said the bacteria I got in there was a nasty one. So, I'm

> doing eye drops every hour, even during sleeping hours,

> until further notice. What fun.

> Kimber

>

> --

> Kimber

> Vallejo, CA

> hominid2@c...

> Southwest Representative

> Pancreatitis Association, International

June 16, 2005

I am just so in a panic state right now. I had a breakfast to go to

this morning and I think I handled it fairly well. I immediately had

them bring me a box and only ate what I left out. About 1/2 the

omelet made with egg beaters, a few bites red potatoes and 1/2 slice

of toast. Im completely and utterly too full. So for lunch Im either

skipping if Im still this full or doing fruit.

I am so petrified. I do not want to be a failure to myself!!

I do know that Ive come a long way....I just dont want to get

complacent and think that 5 or 10 pounds is ok. If I start thinking

like that then its gonna be that 20 pounds is ok. I dont want to

rationalize and give myself excuses. I know that with the grazing

its just because its there, boredom, etc. I gotta get a handle on

this emotional eating. It was so easier newly post op, because I

physcially couldnt do it. I need to get strict with myself again.

Looking at my food log Beth asked me to keep...Im embarrassed to be

turning it in...but its a truthful look at what Ive been doing so

hopefully she can give me some real strong tools to get back in

control.

Thanks for your support...Pam,Robynn,Tim and anyone else Ive

forgotten..I dont mean to leave anyone out!!

Huggles

June 16, 2005

,

I am so there with you girlfriend! Thank you for being so honest and

sharing about this. Being 2years and 6 months out I to have gained

about 7 pounds. I am down three but thats still 4 more then I should

be. I am scared to. I have to say that when I did this surgery I was

never sure this would work for me ether. Its one of the main reasons

I won't do plastic surgey. I try my best,but I am a addicted to

food,booze,shopping lol i'm addicted to everything!! I just try and

work on it one day at a time. I pray and ask god for help when I

feeling I am powerless which is most of the time. I totllay

understand your fears and am right there with ya.

love ya

Shell

> I am just so in a panic state right now. I had a breakfast to go

to

> this morning and I think I handled it fairly well. I immediately

had

> them bring me a box and only ate what I left out. About 1/2 the

> omelet made with egg beaters, a few bites red potatoes and 1/2

slice

> of toast. Im completely and utterly too full. So for lunch Im

either

> skipping if Im still this full or doing fruit.

>

> I am so petrified. I do not want to be a failure to myself!!

>

> I do know that Ive come a long way....I just dont want to get

> complacent and think that 5 or 10 pounds is ok. If I start

thinking

> like that then its gonna be that 20 pounds is ok. I dont want to

> rationalize and give myself excuses. I know that with the grazing

> its just because its there, boredom, etc. I gotta get a handle on

> this emotional eating. It was so easier newly post op, because I

> physcially couldnt do it. I need to get strict with myself again.

> Looking at my food log Beth asked me to keep...Im embarrassed to

be

> turning it in...but its a truthful look at what Ive been doing so

> hopefully she can give me some real strong tools to get back in

> control.

>

> Thanks for your support...Pam,Robynn,Tim and anyone else Ive

> forgotten..I dont mean to leave anyone out!!

>

> Huggles

June 16, 2005