Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 Hello, I found this site searching for neurosarcoidosis. I was diagnosed 5 years ago and felt very alone. No one seems to know much about it. I'm glad to see there are people that can relate. I have tried most of the normal drugs -prednisone, imuran, methotrexate, and still have growth. My doc wants me to try humira (he did mention remicade) but my insurance won't pay because its experimental for sarcoidosis. I'm starting to have symptoms such as loss of balance and weaknes on my right side. It just isn't fair that insurance denies you something you need. Well, thanks for letting me complain. Angie Quote Link to comment Share on other sites More sharing options...
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