Itching

January 26, 2006

For those of you with dry skin that can be most trouble some here is a trick my allergist told me & I swear it does work!after your regular bath clean & rinse VERY well your bath tub. Next fill 1/2 full with warm water. To that add 1/2 cup of non Iodized table salt. Soak for 15 to 20 min.s.When you get out of the tub do NOT dry off with towel. Instead, put a small amount of preservitive free liquid cooking oil in the palm of your hands & rub the water droplets into your skin.Yeah, I know it sounds Nuts as all get out. I snickered up my sleeve till I tried it & found out how effective it is. I recommend doing this 2 times a week.It wont help with phantom itching but it should cut down alot of the skin irritations due to dryness. Yes, I do know what you are talking about. I too have had phantom itching & worse for me was the Burning sensations. I have sat & scratched a spot for no other reason than the itch was driving me till it was bruised & raw. It's a pain in the backside when you Know that it can't be as real as it feels huh?Strange as it may seem I noticed sence I have been blessed with this Sarc. that my skin is not the same. It is dry, leathery & thick in places like my feet but thin & like crap paper on my arms.>> In a message dated 1/25/06 8:07:43 AM Pacific Standard Time, > mosaicgirl1@y... writes:> > > > Does anyone have phantom itching - but no sores? It is especially bad in > > the summer, but sometimes I itch with no cause at all.> > > > Yes, it's the Small nerve fiber neuropathy. Not only will I itch, but my > skin gets so sensitive even the air touching it makes it feel like it's on fire.> I use the Neutrogenia Swedish Formula body lotion-- and it is wonderful. > Instead of scratching next time, put some lotion on-- and see it that soothes > your skin. > > Tracie>

January 26, 2006

Tracie,

Thanks....I will give that a try.

Terri

>

> In a message dated 1/25/06 8:07:43 AM Pacific Standard Time,

> mosaicgirl1@y... writes:

>

> > Does anyone have phantom itching - but no sores? It is especially bad in

> > the summer, but sometimes I itch with no cause at all.

> >

>

> Yes, it's the Small nerve fiber neuropathy. Not only will I itch, but my

> skin gets so sensitive even the air touching it makes it feel like it's on

fire.

> I use the Neutrogenia Swedish Formula body lotion-- and it is wonderful.

> Instead of scratching next time, put some lotion on-- and see it that soothes

> your skin.

>

> Tracie

>

January 26, 2006

I know it sounds gross....but in the military (according to my uncle)

they have the men pee on their feet to help with athletes feet. Maybe

it is an old wivestale??

>

> My son has a terrible problem with athletes foot. His wife had a yeast

> infection and was using an over the counter product. He picked it up

> and read the ingredients and it was the same as his foot cream only

> stronger version.

> New round of athletes foot, he sends her after medication, she comes

> back with Vagisil. This is only a topical cream used for itching and

> odor. He lays it down and it has been at my house for several months.

> I start having a bout of the itching on my legs and feet, driving me

> crazy kind. Lotions not working, oatmeal is not working, then I get a

> light bulb moment. Try it,it works.

> Now the only thing is the look on people's face when you bring out the

> tube of Vagisil in front of them. You can see the relief when they

> realize your not going to put it where they thought you were. LOL

> Elodia

>

January 26, 2006

Reading all these posts about itching has got me scratching everythere! Well, and reading an article in the local paper about bedbugs didn't help, especially the enlarged photo.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: 's legsDate: Wed, 25 Jan 2006 22:01:05 -0800

I had of systemic involvement was intense itching of my eyes that lasted several days. I would run my fingernails over my eyelidsRose, I had this last year, I thought it was just allergies, it drove me crazy, I still get it a little, and get no relief, until I close my eyes for the night and go to sleep. Wow, I really thought this was allergies?? duh, me :-) Marla

Terri, the only itching I have is where I have neuropathy--the forward half of my feet (just the bottoms) & one of my fingers. I can usually ignore itching from mosquito bites, etc., but this drives my crazy! It's like the feeling you get when your face has been numbed for dental work & the numbness is about half gone. It itches, but scratching doesn't bring any relief. I'm sure it's part of the sarc, because the first symptom I had of systemic involvement was intense itching of my eyes that lasted several days. I would run my fingernails over my eyelids & was tempted to use my hairbrush. Nothing helped, & meanwhile I got the fatigue, muscle weakness, etc. The eye itching gradually subsided & never came back.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: 's legsDate: Wed, 25 Jan 2006 12:23:25 -0000Quick question: Does anyone have phantom itching - but no sores? It is especially bad in the summer, but sometimes I itch with no cause at all.Terri>> Don't know if this is true or not but on another forum someone said > their doctor told them to wash with selson blue shampoo. They said it > was helping with the itching a lot. I can't remember if you said yours > was itching , but just thought I would throw my 2 cents in.> Elodia>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

January 27, 2006

Rose,

That is the first thing I thought after I saw the bed bug article - ewww!!!!

Terri G.

January 27, 2006

Fortunately the grandkids are teenagers & haven't

brought me a bunch of the little " friends " down to

spend the night on my pillows for quite a few years.

My daughter finally figured out who they kept catching

them from & they were on the no sleep over list until

you Nix.

grannylunatic@...

__________________________________________________

December 22, 2008

The more I itch, the more I scratch, and nightime is

the worst....so more itching means less sleep and more

fatigue.

I find that when I am in that cycle, itch, no-sleep,

it makes the itching worse because mentallly I can't

deal with it, however, if I take Ambien CR, it knocks

me out and lets me get precious sleep, which in turn,

helps me to cope with the itching a wee bit better

during the day. (note, wee-bit)

My brother in law works for a antimicrobial company

(well, he OWNS it). They worked with a textile mill

that developed this silk under garments that are

supposed to alleviate itching. He gave them to me to

test out. Yesterday he asked about them. I was

honest...they didn't stop the itching, but they did

have some soothing affects. I like to wear them under

weaters because sweaters drive me bonkers!

Cindy Baudoux-Northrup

December 22, 2008

The more I itch, the more I scratch, and nightime is

the worst....so more itching means less sleep and more

fatigue.

I find that when I am in that cycle, itch, no-sleep,

it makes the itching worse because mentallly I can't

deal with it, however, if I take Ambien CR, it knocks

me out and lets me get precious sleep, which in turn,

helps me to cope with the itching a wee bit better

during the day. (note, wee-bit)

My brother in law works for a antimicrobial company

(well, he OWNS it). They worked with a textile mill

that developed this silk under garments that are

supposed to alleviate itching. He gave them to me to

test out. Yesterday he asked about them. I was

honest...they didn't stop the itching, but they did

have some soothing affects. I like to wear them under

weaters because sweaters drive me bonkers!

Cindy Baudoux-Northrup

December 22, 2008

Hi Cindy,

Well, I've been there and done that, the itching, that is. I recieved a

liver transplant May 2007. The itching stopped completely after

transplant. I do however have some ideas for you since I tried just

about every thing from lotions to medication and lastly the light box

therapy (high intensity UV prescribed by my dermatologist) which gave

me the most relief from the puritis. The many medications I tried gave

zero relief. The anti-itch lotions with menthol worked only

temporarily. The best lotion was made by Aveeno and was described as an

anti-itch. Hpoe that this helps and you get some relief. Until I got

severely ill the itching was by far the worst part of my PSC and the

ultimate liver failure.

December 22, 2008

Hi Cindy,

Well, I've been there and done that, the itching, that is. I recieved a

liver transplant May 2007. The itching stopped completely after

transplant. I do however have some ideas for you since I tried just

about every thing from lotions to medication and lastly the light box

therapy (high intensity UV prescribed by my dermatologist) which gave

me the most relief from the puritis. The many medications I tried gave

zero relief. The anti-itch lotions with menthol worked only

temporarily. The best lotion was made by Aveeno and was described as an

anti-itch. Hpoe that this helps and you get some relief. Until I got

severely ill the itching was by far the worst part of my PSC and the

ultimate liver failure.

December 23, 2008

please let us know when they are for sale!

Subject: Re: ItchingTo: Date: Monday, December 22, 2008, 10:03 AM

The more I itch, the more I scratch, and nightime isthe worst....so more itching means less sleep and morefatigue. I find that when I am in that cycle, itch, no-sleep,it makes the itching worse because mentallly I can'tdeal with it, however, if I take Ambien CR, it knocksme out and lets me get precious sleep, which in turn,helps me to cope with the itching a wee bit betterduring the day. (note, wee-bit)My brother in law works for a antimicrobial company(well, he OWNS it). They worked with a textile millthat developed this silk under garments that aresupposed to alleviate itching. He gave them to me totest out. Yesterday he asked about them. I washonest...they didn't stop the itching, but they didhave some soothing affects. I like to wear them underweaters because sweaters drive me bonkers!Cindy Baudoux-Northrup

December 23, 2008

please let us know when they are for sale!

Subject: Re: ItchingTo: Date: Monday, December 22, 2008, 10:03 AM

The more I itch, the more I scratch, and nightime isthe worst....so more itching means less sleep and morefatigue. I find that when I am in that cycle, itch, no-sleep,it makes the itching worse because mentallly I can'tdeal with it, however, if I take Ambien CR, it knocksme out and lets me get precious sleep, which in turn,helps me to cope with the itching a wee bit betterduring the day. (note, wee-bit)My brother in law works for a antimicrobial company(well, he OWNS it). They worked with a textile millthat developed this silk under garments that aresupposed to alleviate itching. He gave them to me totest out. Yesterday he asked about them. I washonest...they didn't stop the itching, but they didhave some soothing affects. I like to wear them underweaters because sweaters drive me bonkers!Cindy Baudoux-Northrup

December 23, 2008

I'll be seeing my brother in law Christmas Day and I

will find out how to get those. If they are still in

the testing mode, he might give me some to have others

with PSC try them. If I can get them I will need to

know the size S, M or L...but I will keep you posted

on what he says.

Cindy Baudoux-Northrup

December 23, 2008

I'll be seeing my brother in law Christmas Day and I

will find out how to get those. If they are still in

the testing mode, he might give me some to have others

with PSC try them. If I can get them I will need to

know the size S, M or L...but I will keep you posted

on what he says.

Cindy Baudoux-Northrup

January 27, 2009

Actually for me I have had severe itching since early Jan 09. I did have my labs drawn on Jan 6th and wound up with all of my bilirubins being up, but my total was only 1.2.

I was itching but my eyes (which usually turn yellow first) were not even yellow at all.

So I actually had the itching bad enough that my GI put me back on cholestrymine 2x per day. Plus he gave me Atarax (sp?) to help control my itching. It has almost completely gone away. And when I had my blood rechecked on Jan 19th, all of my labs that were high had come back down, closer to normal range.

Good luck with the itching, oh I found a lotion that helps quite a bit with itching. It is called Sarna, and I found it at Walgreens

Best of luck with everything,

Beth B Thornton, CO

January 27, 2009

Actually for me I have had severe itching since early Jan 09. I did have my labs drawn on Jan 6th and wound up with all of my bilirubins being up, but my total was only 1.2.

I was itching but my eyes (which usually turn yellow first) were not even yellow at all.

So I actually had the itching bad enough that my GI put me back on cholestrymine 2x per day. Plus he gave me Atarax (sp?) to help control my itching. It has almost completely gone away. And when I had my blood rechecked on Jan 19th, all of my labs that were high had come back down, closer to normal range.

Good luck with the itching, oh I found a lotion that helps quite a bit with itching. It is called Sarna, and I found it at Walgreens

Best of luck with everything,

Beth B Thornton, CO

January 27, 2009

Actually for me I have had severe itching since early Jan 09. I did have my labs drawn on Jan 6th and wound up with all of my bilirubins being up, but my total was only 1.2.

I was itching but my eyes (which usually turn yellow first) were not even yellow at all.

So I actually had the itching bad enough that my GI put me back on cholestrymine 2x per day. Plus he gave me Atarax (sp?) to help control my itching. It has almost completely gone away. And when I had my blood rechecked on Jan 19th, all of my labs that were high had come back down, closer to normal range.

Good luck with the itching, oh I found a lotion that helps quite a bit with itching. It is called Sarna, and I found it at Walgreens

Best of luck with everything,

Beth B Thornton, CO

January 28, 2009

My husband had bloodwork done yesterday and the nurse called today to

say that the bilirubin is 3.2 and the other liver numbers are high

normal for him. His regular doctor is gone for the week but another

doctor in the office wants him to have an ERCP done as soon as

possible. Unfortunately it isn't until Feb 25. I do also believe that

my husband has small duct psc. His regular doctor has been very

proactive so I am concerned that he won't respond well to the other

doctor jumping on this so quickly. We have had a hard time finding a

GI that is well educated on psc in our area.

wife to Rick

Crohn's, PSC, Spondyloarthropathy, Gilbert's

> I have a question about itching. My husband has never had itching

with

> his psc until today. Yesterday he was throwing up and now today he

> says that he itches from head to toe. Does that mean that there is

> something going on with the liver? This is a new symptom for us.

January 28, 2009