Re: Problems with Pep & AFP

[Guest guest]

My ASD son is gfcf for 9 mos. He's been on the HZP for about 7 mos. My 4 yr

old was the one with the bad breath problem; that went away though with the

HZP. I do believe we gave the Pep somewhere around a month's time (the AFP

too). They were still urinating excessively; not all the time, but pretty

regularly. Neither is trained (my 4 yr old is getting there) & my ASD son is

non verbal so it concerns me how it might have been affecting the bladder.

The hyperness etc never really went away either; I remember the verbal

stimming getting much worse during that time.

Thanks,

Michele

In a message dated 7/18/02 3:42:48 PM Eastern Daylight Time,

david_j_mead@... writes:

<< Michele-how long did you try the Pep? It took my daughter about a

month to level out from the regression(and she was already gfcf) and

she did have excess urination but it,too stopped. You mentioned the

bad breath-are your children gfcf? I know that bad breath can be an

allergy/sinus symptom so maybe your child is allergic to dairy but

the Pep is getting rid of the dairy problem for you. Just a thought.

>>

[Guest guest]

Michele-how long did you try the Pep? It took my daughter about a

month to level out from the regression(and she was already gfcf) and

she did have excess urination but it,too stopped. You mentioned the

bad breath-are your children gfcf? I know that bad breath can be an

allergy/sinus symptom so maybe your child is allergic to dairy but

the Pep is getting rid of the dairy problem for you. Just a thought.

> Did anyone have a child who could not tolerate either the Pep or

the AFP? We

> had the same reactions with each, excessive urination (right

through diapers

> & clothes) which did not level out, increased hyperactivity &

stimming. Since

> it did not get better after some time with each of them I had to

discontinue.

> He has been on HN-Zyme for many months with no problem. No real

gains, but no

> problems either.

>

> Also, my 4 yr old with temperament issues is on HN-Z with no

problems. In

> fact, it got rid of his bad breath problem which was not his teeth.

While I

> was trying the AFP & Pep on my ASD son, I tried it with him too. He

had the

> same reactions with urination, & also increased temperament

problems & bad

> behavior.

>

> Anyone???

> Thanks,

> Michele

[Guest guest]

-Michele-are you giving any supplements(like DMG or SNT??) My

daughter was very hyper until I quit the supplements once starting

enzymes. Maybe its a withdrawl from something other than gluten or

casein-I am pretty sure my daughter had a withdrawl from soy. Its

possible of course that they can't tolerate the Pep for some reason

but they may just still be adjusting. It took my daughter a good

month.

-- In

@y..., hugsfam5@c... wrote:

> My ASD son is gfcf for 9 mos. He's been on the HZP for about 7 mos.

My 4 yr

> old was the one with the bad breath problem; that went away though

with the

> HZP. I do believe we gave the Pep somewhere around a month's time

(the AFP

> too). They were still urinating excessively; not all the time, but

pretty

> regularly. Neither is trained (my 4 yr old is getting there) & my

ASD son is

> non verbal so it concerns me how it might have been affecting the

bladder.

> The hyperness etc never really went away either; I remember the

verbal

> stimming getting much worse during that time.

>

> Thanks,

> Michele

>

>

> In a message dated 7/18/02 3:42:48 PM Eastern Daylight Time,

> david_j_mead@y... writes:

>

> << Michele-how long did you try the Pep? It took my daughter about

a

> month to level out from the regression(and she was already gfcf)

and

> she did have excess urination but it,too stopped. You mentioned

the

> bad breath-are your children gfcf? I know that bad breath can be

an

> allergy/sinus symptom so maybe your child is allergic to dairy but

> the Pep is getting rid of the dairy problem for you. Just a

thought.

>

> >>

[Guest guest]

Yes, he has TMG & has had it for years. He has it with added folic acid for

hyperness. Nothing really has ever helped calm him down or decrease stim. I

tried many months ago, after about a month on enzymes, to cut out tmg & it

didn't change anything. I brought it back & again the only changes it seems

to help him with are mood & sleep - but the diet has seemed to help his sleep

improve more we believe. I'm always nervous to take him off tmg because then

it's a struggle easing him back onto his dosage. He has 4 caps/day now (non

flavored/caps from Kirkmans) & his nutritionist thinks we can go up a lot

more to see if it helps language. It never has though so I'm not sure whether

to do that since it might exaserbate his problems with hyperactivity &

stimming. I've heard once on enzymes some children have not needed tmg, but

again I'm not sure whether to experiment right now; particularly because

we've just started Sacc B this week & it will take a while for me to ease him

onto the proper dosage since he's so sensitive. I thought maybe I should

leave everything else " as is " for now.

Michele

In a message dated 7/18/02 11:38:25 PM Eastern Daylight Time,

david_j_mead@... writes:

<<

-Michele-are you giving any supplements(like DMG or SNT??) My

daughter was very hyper until I quit the supplements once starting

enzymes. Maybe its a withdrawl from something other than gluten or

casein-I am pretty sure my daughter had a withdrawl from soy. Its

possible of course that they can't tolerate the Pep for some reason

but they may just still be adjusting. It took my daughter a good

month.

>>

[Guest guest]

>

> Hi,

> when you start enzimes should i stop vitamins supplements.

> thanks for info.

> silvia

I would keep them so you are only changing one thing, adding the

enzymes. Then see if your child still needs them.

Dana