Tracie, I Care and I Am So Sorry...Re: Tracie Update

[Guest guest]

Tracie,

I am so sorry for your situatiion. Truly I am. I had no idea of

what was going on with you. I know it can be very frightening to

have that type of anaphylactic reaction. Please do not allow youself

to go through your next injection on the 27th of July alone! Please!

It would be a very unwise thing to do. You desparately need someone

their with you just in case. And I am certain you know this already

with your background, advice and intellect. So do what you must but

do not endure this alone under any circumstances, vacation or not!

I am hoping and praying for your well being my friend.

You once told me that you are blessed and I believe that. So

continue to be blessed my sister and know that I care about you.

Love,

Brother :}

>

> Ok guys,

>

> We all know I'm in a funk.

>

> Two weeks ago when I got my Remicade infusion, I ended up with a

wallbanger

> allergic reaction, and for 3 or 4 days, my throat was closing off.

Benadryl

> managed to work this time.

>

> My next infusion is set for July 27 and I'm having to make a

serious

> decision. If I get the infusion-- I will have to have all the

premeds and the

> Benadryl. If I have another allergic reaction--then I will have

to discontinue the

> Remicade.

>

> I've decided to roll the dice on the 27th, and get the infusion--

with the

> hope that the other meds will keep me safe. I am frustrated,

scared, angry

> becuase I know that my other choices are no where near as effective

as the

> Remicade has been.

>

> I've been on Remicade for almost 2 yrs now, and I would hate to

lose the

> progress I've made. For me, it has been excellant, but the more I

take, the

> higher the dosage, and the more often you require it-- the higher

the chance of

> side effects.

>

> It's going to be interesting, will be backpacking that week

with a

> bunch of kids-- so there isn't anyone else that will be home.

(Torey has moved

> out.)

>

> I am struggling with this decision, yet I know that I can't put it

off for an

> extra 2 wks until 's back from his vacationing. My emotions

are all

> whacked out-- I do believe it's from the reaction. I haven't been

able to get the

> blood sugars back into control yet--so I'm working on that.

>

> This is where I have to go day by day, minute by minute-- and I'm

not good at

> that.

>

> Tracie

>