To Tracie

[Guest guest]

Dear Tracie,

As I read your message this afternoon my first thought was to pray

for you so I will be doing that very often. You have been such a

guide to me in helping me with Remicade questions..I am truely

grateful. Has your doseage increased and caused the reaction? You

are a very special person to a lot of people so we are all gonna tie

a really big knot in the end of your rope an all hang on together!

My prayer, good thoughts and BIG hugs are on there way to you.

Ruth

.

>

> Ok guys,

>

> We all know I'm in a funk.

>

> Two weeks ago when I got my Remicade infusion, I ended up with a

wallbanger

> allergic reaction, and for 3 or 4 days, my throat was closing

off. Benadryl

> managed to work this time.

>

> My next infusion is set for July 27 and I'm having to make a

serious

> decision. If I get the infusion-- I will have to have all the

premeds and the

> Benadryl. If I have another allergic reaction--then I will have

to discontinue the

> Remicade.

>

> I've decided to roll the dice on the 27th, and get the infusion--

with the

> hope that the other meds will keep me safe. I am frustrated,

scared, angry

> becuase I know that my other choices are no where near as

effective as the

> Remicade has been.

>

> I've been on Remicade for almost 2 yrs now, and I would hate to

lose the

> progress I've made. For me, it has been excellant, but the more I

take, the

> higher the dosage, and the more often you require it-- the higher

the chance of

> side effects.

>

> It's going to be interesting, will be backpacking that week

with a

> bunch of kids-- so there isn't anyone else that will be home.

(Torey has moved

> out.)

>

> I am struggling with this decision, yet I know that I can't put it

off for an

> extra 2 wks until 's back from his vacationing. My emotions

are all

> whacked out-- I do believe it's from the reaction. I haven't been

able to get the

> blood sugars back into control yet--so I'm working on that.

>

> This is where I have to go day by day, minute by minute-- and I'm

not good at

> that.

>

> Tracie

>