Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 To all who have been told they are in remission: If you have been told by your drs. that you are in a state of remission , do you still have some of the muscle aches and pains , the fatigue, weakness, the rotten headaches especially when you over do it? Right now I am not on any immunosuppressants, because my drs. don't think I need them. But I still am having these symptoms. They say they maybe caused by Fibromyalgia. They don't seem to think my sarcoid is in an active phase. I was just wondering because I know a lot of you have had times in your past that you were in states of remission. Any feedback on this? thanks Debbie Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Tracie, Your post was inspiratioal. And all you say is true. Three years ago this Saturday I lost my best friend and husband to cancer. Once he got sick he told everyone he had " Tumor Humor " . He went from being a stuffed shirt to the funniest guy around always pulling jokes on everyone....Many times in my worst flare ups I think of him and then am encouraged to do the same. I was blessed to have shared his journay with him and he blesses me still everyday by his courage he left with me. Thanks! Ruth > > In a message dated 6/19/06 11:24:41 AM Pacific Daylight Time, > anci3ntgoddess@... writes: > > > > When the Neuro Dr trys to wean me down on the Imuran i end up in the > > hospital.. He told me i had a good chance of not seeing remission at all. > > whats your opinion ??? anyone. > > > > Jessie, > My opinion is that we can NEVER SAY NEVER. > I refuse to believe that this is forever. It is for today-- and it has it's > limitations. But if we decide that this disease will take our life-- we stand > a greater chance that it will. > Even if it cripples us, it will does not have the ability to take our > soul--our spirit --unless we let it. > This last year has been a huge lesson of learning about illness and watching > several close friends pass away from cancers. The difference in their > personal journey and the quality of life they had-- was how they decided to see their > disease progressing. > For me, it has been a lesson in humbleness. These people had end- stage > cancers and lymphomas. They were incontinent, bed ridden, semi- comatose, in > extreme pain-- and they would come around for minutes at a time in such incredible > lucidness-- and crack some wise-ass joke, then smile and go back into their > process-- and they lived each day as the gift it is. > I've been so blessed to get to go on the emotional journeys with them- share > their pain and sorrow and joy- at being alive " one more day " -- and they all > said that they wouldn't change any of the journey. > Their voyage opened their hearts in ways that I never knew existed- - and in > many ways still am learning. > Will this be hard-- it may be. It'll be harder if we fight or fear it-- and > even if we fight and fear the what if-- what a horrible waste of time and > energy that we lose-- if we stay in fear. > > Just for today- I will see the beauty of the spiders web on the roses. > Just for today, I will step outside, and listen for the laughter of a child. > Just for today, I will open my heart to my fears-- the unknown of what this > disease has in store-- and celebrate the fact my heart is still beating. > Just for today, I will tell someone that they are loved, truly loved. > Just for today, I will tell myself that I am loved-- by me. > > Blessings for us all, > Tracie > NS Co-owner/moderator > Quote Link to comment Share on other sites More sharing options...
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