Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I can't believe that doctors are still so ignorant as to patient relations in general and treating this disease. I have been seeing the same neuro for 4 years and have went to NS specialist in Birmingham and Atlanta. When I first started having problems 5 years ago, they saw the sarcoid inflamation near the brain stem. I have had consistently elevated ACE levels and all the normal symptoms. I was recently diagnosed with Meniere's so now the neuro is saying that maybe that was what it was all along which is pure BS. What explains the elevated ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have run out of options so they are just going to see how the ENT does with the Meniere's. Reading about the treatment you are receiving also makes me mad. We all need patient advocates. I for one do not have the patience, energy, time, or money to shop for doctors or to do all the struggling involved. I know there are a lot of websites with information, but is anyone doing anything to actually assist patients? Becky _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
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