doctors

[Guest guest]

Hmm you are not tooo far from me I am in Ontario.... glad you are

alos having positive experiences with your medics. it is such a relief and

great help when one is understood ..... Wel back to searching for my young

birds and enjoying the view over the valley behind our house )

corry

Doctors

>

> Hi Everyone!

> Now, now Corry! I am a country bumpkin...eheheh.....I can relate to your

story. I am from a very small are in NW Ohio and the dr. I was seeing even

before I started having problems with fibro. I was seeing him for migraines.

Granted, he is a great dr. and he is my mom, dad, brother, sis, niece, &

bro-in-law's dr. I was with him for 6 years then I moved to Columbus, all I

can say is wow. There were a ton of dr's on my husband's primary care

physician list. I just so happened to pick a great dr.(I had some help). My

first visit to him was right after I started passing out and he knew exactly

what it was and referred me to a great cardiologist and neurologist for the

migraines. Out of all the dr's down here I got 4 great dr's. I just thought

I'd share also my great experiance. Oh, about the neurologist, I work with a

nurse practioner and she is great. I prafer her to the dr. He is a nice guy,

but I didn't care for him on my first visit. I seen him another time and it

was better, but still like the practioner. Well, have a great day!

>

>

>

>

> ---------------------------------

>

[Guest guest]

I can't believe a doctor would actually say that, what do you pay

them for???? Their time, right, their expertise, their knowledge that

they are supposed to soak up while going to school for some many

years, why else would we go to doctors????? I can't believe how

insensitive some of these doctors are....it's awful.

ok, now that I have vented, sorry.

a Faye

[Guest guest]

It scares the heck out of me that so many doctors really do not give a

flying leap about their patients. They are there for the days work and

that's it. Over the past 3 years I have been to more than 15 doctors.

All of which did their best to make me feel like it was " all in my head "

and I started to believe that too. I was ready to give up and just

consider myself a crazy person and I was feeling very alone and

isolated. The pain kept coming, work was becoming nearly impossible to

do. I was forced to seek yet another doctor and thank God that I did.

I finally found one that sees me as a suffering human being and not " oh

boy, another insurance payment for my over the top charges! "

Even though I am still very new to treating and dealing with this, I am

so very grateful that my doctor is who he is.

Just a little input.

Jim

" Someday I will fly away and leave all of this to yesterday "

re:doctors

I can't believe a doctor would actually say that, what do you pay

them for???? Their time, right, their expertise, their knowledge that

they are supposed to soak up while going to school for some many

years, why else would we go to doctors????? I can't believe how

insensitive some of these doctors are....it's awful.

ok, now that I have vented, sorry.

a Faye

[Guest guest]

Are you talking about Rochester NY? I live in Rochester and see an absolutely

wonderful doctor. He is considered the best neurosurgeon in this area. If you

do mean Rochester, I'll see if I can answer your questions. I have not had the

surgery yet. I'm still considering all the options.From: Kienow [mailto:

josjosjam@...]To: Chiari@...: Mon, 14 Apr 2003 15:03:52

-0700 (PDT)Subject: DoctorsHave any of you gone to Rochester for

surgery? KansasCity - the Chiari Clinic? What do you think?Thank you,6mm,

not decompressed__________________________________________________Do you

Yahoo!?Yahoo! Tax Center - File online, calculators, forms, and

morehttp://tax.yahoo.comHelp section: http://www.yahoogroups.com/help/NOTE: NCC

refers to posts with No Chiari ContentTo Unsubscribe Yourself:

chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online

Group: http://groups.yahoo.com/group/chiari/

[Guest guest]

Dora is asking what doctors list members use.

She initially saw Dr. Green in Portland, now Dr. Berger.

But the cost is high.

She is looking for other possibilities.

Jody

Buenos dias:

quisiera averiguar que medicos ven a sus hijos. Inicialmente lo vio el

Dr. Green en Portland y ahora el Dr. Berger, el problema es el costo.

Quisiera ver otras posibilidades.

Mil gracias

DORA INES ROA

[Guest guest]

I can't believe that doctors are still so ignorant as to patient relations in

general and treating this disease. I have been seeing the same neuro for 4

years and have went to NS specialist in Birmingham and Atlanta. When I first

started having problems 5 years ago, they saw the sarcoid inflamation near the

brain stem. I have had consistently elevated ACE levels and all the normal

symptoms.

I was recently diagnosed with Meniere's so now the neuro is saying that maybe

that was what it was all along which is pure BS. What explains the elevated

ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have

run out of options so they are just going to see how the ENT does with the

Meniere's.

Reading about the treatment you are receiving also makes me mad. We all need

patient advocates. I for one do not have the patience, energy, time, or money

to shop for doctors or to do all the struggling involved. I know there are a

lot of websites with information, but is anyone doing anything to actually

assist patients?

Becky

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