Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Hmm you are not tooo far from me I am in Ontario.... glad you are alos having positive experiences with your medics. it is such a relief and great help when one is understood ..... Wel back to searching for my young birds and enjoying the view over the valley behind our house ) corry Doctors > > Hi Everyone! > Now, now Corry! I am a country bumpkin...eheheh.....I can relate to your story. I am from a very small are in NW Ohio and the dr. I was seeing even before I started having problems with fibro. I was seeing him for migraines. Granted, he is a great dr. and he is my mom, dad, brother, sis, niece, & bro-in-law's dr. I was with him for 6 years then I moved to Columbus, all I can say is wow. There were a ton of dr's on my husband's primary care physician list. I just so happened to pick a great dr.(I had some help). My first visit to him was right after I started passing out and he knew exactly what it was and referred me to a great cardiologist and neurologist for the migraines. Out of all the dr's down here I got 4 great dr's. I just thought I'd share also my great experiance. Oh, about the neurologist, I work with a nurse practioner and she is great. I prafer her to the dr. He is a nice guy, but I didn't care for him on my first visit. I seen him another time and it was better, but still like the practioner. Well, have a great day! > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Hmm you are not tooo far from me I am in Ontario.... glad you are alos having positive experiences with your medics. it is such a relief and great help when one is understood ..... Wel back to searching for my young birds and enjoying the view over the valley behind our house ) corry Doctors > > Hi Everyone! > Now, now Corry! I am a country bumpkin...eheheh.....I can relate to your story. I am from a very small are in NW Ohio and the dr. I was seeing even before I started having problems with fibro. I was seeing him for migraines. Granted, he is a great dr. and he is my mom, dad, brother, sis, niece, & bro-in-law's dr. I was with him for 6 years then I moved to Columbus, all I can say is wow. There were a ton of dr's on my husband's primary care physician list. I just so happened to pick a great dr.(I had some help). My first visit to him was right after I started passing out and he knew exactly what it was and referred me to a great cardiologist and neurologist for the migraines. Out of all the dr's down here I got 4 great dr's. I just thought I'd share also my great experiance. Oh, about the neurologist, I work with a nurse practioner and she is great. I prafer her to the dr. He is a nice guy, but I didn't care for him on my first visit. I seen him another time and it was better, but still like the practioner. Well, have a great day! > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 I can't believe a doctor would actually say that, what do you pay them for???? Their time, right, their expertise, their knowledge that they are supposed to soak up while going to school for some many years, why else would we go to doctors????? I can't believe how insensitive some of these doctors are....it's awful. ok, now that I have vented, sorry. a Faye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 I can't believe a doctor would actually say that, what do you pay them for???? Their time, right, their expertise, their knowledge that they are supposed to soak up while going to school for some many years, why else would we go to doctors????? I can't believe how insensitive some of these doctors are....it's awful. ok, now that I have vented, sorry. a Faye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 It scares the heck out of me that so many doctors really do not give a flying leap about their patients. They are there for the days work and that's it. Over the past 3 years I have been to more than 15 doctors. All of which did their best to make me feel like it was " all in my head " and I started to believe that too. I was ready to give up and just consider myself a crazy person and I was feeling very alone and isolated. The pain kept coming, work was becoming nearly impossible to do. I was forced to seek yet another doctor and thank God that I did. I finally found one that sees me as a suffering human being and not " oh boy, another insurance payment for my over the top charges! " Even though I am still very new to treating and dealing with this, I am so very grateful that my doctor is who he is. Just a little input. Jim " Someday I will fly away and leave all of this to yesterday " re:doctors I can't believe a doctor would actually say that, what do you pay them for???? Their time, right, their expertise, their knowledge that they are supposed to soak up while going to school for some many years, why else would we go to doctors????? I can't believe how insensitive some of these doctors are....it's awful. ok, now that I have vented, sorry. a Faye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 It scares the heck out of me that so many doctors really do not give a flying leap about their patients. They are there for the days work and that's it. Over the past 3 years I have been to more than 15 doctors. All of which did their best to make me feel like it was " all in my head " and I started to believe that too. I was ready to give up and just consider myself a crazy person and I was feeling very alone and isolated. The pain kept coming, work was becoming nearly impossible to do. I was forced to seek yet another doctor and thank God that I did. I finally found one that sees me as a suffering human being and not " oh boy, another insurance payment for my over the top charges! " Even though I am still very new to treating and dealing with this, I am so very grateful that my doctor is who he is. Just a little input. Jim " Someday I will fly away and leave all of this to yesterday " re:doctors I can't believe a doctor would actually say that, what do you pay them for???? Their time, right, their expertise, their knowledge that they are supposed to soak up while going to school for some many years, why else would we go to doctors????? I can't believe how insensitive some of these doctors are....it's awful. ok, now that I have vented, sorry. a Faye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Are you talking about Rochester NY? I live in Rochester and see an absolutely wonderful doctor. He is considered the best neurosurgeon in this area. If you do mean Rochester, I'll see if I can answer your questions. I have not had the surgery yet. I'm still considering all the options.From: Kienow [mailto: josjosjam@...]To: Chiari@...: Mon, 14 Apr 2003 15:03:52 -0700 (PDT)Subject: DoctorsHave any of you gone to Rochester for surgery? KansasCity - the Chiari Clinic? What do you think?Thank you,6mm, not decompressed__________________________________________________Do you Yahoo!?Yahoo! Tax Center - File online, calculators, forms, and morehttp://tax.yahoo.comHelp section: http://www.yahoogroups.com/help/NOTE: NCC refers to posts with No Chiari ContentTo Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Dora is asking what doctors list members use. She initially saw Dr. Green in Portland, now Dr. Berger. But the cost is high. She is looking for other possibilities. Jody Buenos dias: quisiera averiguar que medicos ven a sus hijos. Inicialmente lo vio el Dr. Green en Portland y ahora el Dr. Berger, el problema es el costo. Quisiera ver otras posibilidades. Mil gracias DORA INES ROA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I can't believe that doctors are still so ignorant as to patient relations in general and treating this disease. I have been seeing the same neuro for 4 years and have went to NS specialist in Birmingham and Atlanta. When I first started having problems 5 years ago, they saw the sarcoid inflamation near the brain stem. I have had consistently elevated ACE levels and all the normal symptoms. I was recently diagnosed with Meniere's so now the neuro is saying that maybe that was what it was all along which is pure BS. What explains the elevated ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have run out of options so they are just going to see how the ENT does with the Meniere's. Reading about the treatment you are receiving also makes me mad. We all need patient advocates. I for one do not have the patience, energy, time, or money to shop for doctors or to do all the struggling involved. I know there are a lot of websites with information, but is anyone doing anything to actually assist patients? Becky _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 hi becky my name is joe and im starting with a new neurologist and so far he is kinda like hmm dont think so on the sarcoid but he doestn really take a side of weather i should do testing or not to do it...can you tell me wht test you have had...my ace levels are norma;l but my xrays and lung biopsy says other things...i have many or most of the symptoms but i dont know how to get the doc to push and do these tests. also its very very difficult for me to type as well so i must type in short spurts.. plz write back and let me know the names of all the tests you have had and or how to convince hime to do them..thx joe Whitaker wrote: I can't believe that doctors are still so ignorant as to patient relations in general and treating this disease. I have been seeing the same neuro for 4 years and have went to NS specialist in Birmingham and Atlanta. When I first started having problems 5 years ago, they saw the sarcoid inflamation near the brain stem. I have had consistently elevated ACE levels and all the normal symptoms.I was recently diagnosed with Meniere's so now the neuro is saying that maybe that was what it was all along which is pure BS. What explains the elevated ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have run out of options so they are just going to see how the ENT does with the Meniere's.Reading about the treatment you are receiving also makes me mad. We all need patient advocates. I for one do not have the patience, energy, time, or money to shop for doctors or to do all the struggling involved. I know there are a lot of websites with information, but is anyone doing anything to actually assist patients? Becky_______________________________________________Join Excite! - http://www.excite.comThe most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 hi becky my name is joe and im starting with a new neurologist and so far he is kinda like hmm dont think so on the sarcoid but he doestn really take a side of weather i should do testing or not to do it...can you tell me wht test you have had...my ace levels are norma;l but my xrays and lung biopsy says other things...i have many or most of the symptoms but i dont know how to get the doc to push and do these tests. also its very very difficult for me to type as well so i must type in short spurts.. plz write back and let me know the names of all the tests you have had and or how to convince hime to do them..thx joe Whitaker wrote: I can't believe that doctors are still so ignorant as to patient relations in general and treating this disease. I have been seeing the same neuro for 4 years and have went to NS specialist in Birmingham and Atlanta. When I first started having problems 5 years ago, they saw the sarcoid inflamation near the brain stem. I have had consistently elevated ACE levels and all the normal symptoms.I was recently diagnosed with Meniere's so now the neuro is saying that maybe that was what it was all along which is pure BS. What explains the elevated ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have run out of options so they are just going to see how the ENT does with the Meniere's.Reading about the treatment you are receiving also makes me mad. We all need patient advocates. I for one do not have the patience, energy, time, or money to shop for doctors or to do all the struggling involved. I know there are a lot of websites with information, but is anyone doing anything to actually assist patients? Becky_______________________________________________Join Excite! - http://www.excite.comThe most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 hi becky my name is joe and im starting with a new neurologist and so far he is kinda like hmm dont think so on the sarcoid but he doestn really take a side of weather i should do testing or not to do it...can you tell me wht test you have had...my ace levels are norma;l but my xrays and lung biopsy says other things...i have many or most of the symptoms but i dont know how to get the doc to push and do these tests. also its very very difficult for me to type as well so i must type in short spurts.. plz write back and let me know the names of all the tests you have had and or how to convince hime to do them..thx joe Whitaker wrote: I can't believe that doctors are still so ignorant as to patient relations in general and treating this disease. I have been seeing the same neuro for 4 years and have went to NS specialist in Birmingham and Atlanta. When I first started having problems 5 years ago, they saw the sarcoid inflamation near the brain stem. I have had consistently elevated ACE levels and all the normal symptoms.I was recently diagnosed with Meniere's so now the neuro is saying that maybe that was what it was all along which is pure BS. What explains the elevated ACE, difficulty walking, fatigue, neuropathy, myclonus, etcc. I think they have run out of options so they are just going to see how the ENT does with the Meniere's.Reading about the treatment you are receiving also makes me mad. We all need patient advocates. I for one do not have the patience, energy, time, or money to shop for doctors or to do all the struggling involved. I know there are a lot of websites with information, but is anyone doing anything to actually assist patients? Becky_______________________________________________Join Excite! - http://www.excite.comThe most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
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