Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 Ahhh, another harbinger of Spring . . . . People are starting to train for the World Rant Championships, and this is a decent warm-up effort. A little too polite at the beginning, but obviously got the old adrenaline kicking in midway through the routine, with a strong finish. Rant Score: 5.5 for content; 6 for presentation. Keep training, find a mentor, don't be afraid to play to the audience. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Specific Question & SLE BLOOD WORKDate: Sat, 25 Mar 2006 23:49:01 -0000Tracie,I have had a positive ACE and multiple positive ANA's and with all of mysymptoms they continue to say they don't know what is wrong with me. They feel that since that cannot find my lesion(s) I cannot possiblyhave a neurological illness. I have a neurogenic bladder and when I askwhy I have that they just shake their heads. Healthy people don't havethis. I also have arthritis. They keep saying that it is an emotionalproblem. No one I know wants to stay at home and feel sick all day andnot have a life. I wish those idjits would get a clue and listen towhat their patients are saying; really listen.Well, I could go on and really start a diatribe, but I am just going tosay thanks for the info and I am going to keep on keepin' on and bug thecrap out of everyone until they get it.Thanks.Terri G.>> >>> > Could this be a reason why I have a positive ANA?>>> ANA is AntiNuclear Antibodies and is usually high in auto-immunediseases.> It does not necessarily mean you have Lupus.>> There are multiple forms of Lupus-- and Lupus Erythmaeos is a rashthat we> get that is raised bumps --for me it's on my nose (I look like I havethat> wonderful alcoholic red tip nose with a blister from being sunburned)and under my> breasts along the lymphatic system and hilar lymph nodes-(which weknow are> full of sarc).>> One of the reasons they do these tests is to rule them out-- so thatthey are> left with sarc as the diagnosis. Remember-- we are a disease that is> diagnosed by exclusion--when they run out of all the common stuff-we're finally dx> with NS.>> Hugs,> Tracie> NS Co-owner/moderator>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.