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Terri's rant score

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>

>Terri, I know you were trying to be nice, but if you want the gold,

you have to pull out all the stops & take risks!

Rant score: 2.5 for composition, 3.5 for presentation, 9.7 for good

intentions. You need a good coach, but keep trying.

> Rose,

>

> I know this wasn't for me but I have to say I am going to print

this out

> and send to my docs. You have pretty much the exact symptomology

that I

> have. All tests are normal. I have had a positive ACE and

oligloconal

> bands on my first LP. I have enlarged hilar nodes and have to have

my

> third chest CT in three months. The node on the right is located

in an

> area that is very dangerous to remove and the one of the left is not

> considered significant enough to deal with. But they are both still

> there after six months and no one feels this is significant. But I

do.

> This is the one thing that is keeping my spirits kind of down these

> days. No one will take this crap seriously enough to treat me for

> anything. AAAAAhhhhhh! This is bull pucky. (I am keeping it clean

for

> the new folks).

>

> Rose, thanks for posting your story. Maybe my docs will take a

look at

> it and think, hmmm....maybe she can have a rare disease? You think?

>

> Whoo - I feel much better.

>

> Terri G. [soapbox]

> http://www.smileycentral.com/?partner=ZSzeb001_ZS>

> http://www.smileycentral.com/?partner=ZSzeb001_ZS>

>

>

>

>

>

> http://www.smileycentral.com/?partner=ZSzeb062_ZS>

>

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