Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Thanks I have gone there but I wanted personal experiences from people. I have been fighting for over a year now and have been a member of the list just as long. Walter was just asking me so I thought I could get some more info from personal experiences. -- Shelia Ellis Premiere Shetland Sheepdogs and Parrots Champion Shelties,all colors,all testing done http://www.geocities.com/premierepets White Shetland Sheepdog Association http://www.geocities.com/colorheadedwhite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Therese, Happy Birthday to Ainslie and Connor. It's a big deal when you hit 'double number's'. We haven't done a gymnastics' party yet, but they are already telling me what they want for next year and they only just had there's. You must being doing something right to keep her so well. We on the other hand are having a lousy year with Cf, so it's good to hear all the kid's who are doing well. Good luck with your exam's. I'm off now out to dinner with my parents (no husband or kids). (Australia) Ainslie I can't believe it, Ainslie turns 10 today and Connor turned 6 last Friday. They had a gymnastics party at our local PCYC (think it is similar to a YMCA elsewhere) on Saturday and they had an absolute ball. Every couple of years I combine their birthdays - makes it easier for me and they love it as there are more people to have a great time with. I am still so amazed that Ainslie has stayed so well. I remember so clearly the dread and worry I felt in the first couple of years, it still comes back to haunt me when something new occurs. But hey, Ainslie has only been hospitalised for sinus clean outs and that is it. She has only had one serious lung infection and that was in July - that was enough to get her to understand why you need to look after yourself ie be able to breathe. So besides the myriad of drugs, treatments and exercise she is just a normal everyday kid. Must go I have exams in 19 days, as someone reminded me just a little while ago, and I am not at all ready for them. Terri mum to Ainslie 10 wcf and Connor 6 nocf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Therese, Happy Birthday to Ainslie and Connor. It's a big deal when you hit 'double number's'. We haven't done a gymnastics' party yet, but they are already telling me what they want for next year and they only just had there's. You must being doing something right to keep her so well. We on the other hand are having a lousy year with Cf, so it's good to hear all the kid's who are doing well. Good luck with your exam's. I'm off now out to dinner with my parents (no husband or kids). (Australia) Ainslie I can't believe it, Ainslie turns 10 today and Connor turned 6 last Friday. They had a gymnastics party at our local PCYC (think it is similar to a YMCA elsewhere) on Saturday and they had an absolute ball. Every couple of years I combine their birthdays - makes it easier for me and they love it as there are more people to have a great time with. I am still so amazed that Ainslie has stayed so well. I remember so clearly the dread and worry I felt in the first couple of years, it still comes back to haunt me when something new occurs. But hey, Ainslie has only been hospitalised for sinus clean outs and that is it. She has only had one serious lung infection and that was in July - that was enough to get her to understand why you need to look after yourself ie be able to breathe. So besides the myriad of drugs, treatments and exercise she is just a normal everyday kid. Must go I have exams in 19 days, as someone reminded me just a little while ago, and I am not at all ready for them. Terri mum to Ainslie 10 wcf and Connor 6 nocf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Let me hitch on here to send those great wishes too. Good words & wishes to you all LOVE & HUGS, GrandmomBEV Ainslie I can't believe it, Ainslie turns 10 today and Connor turned 6 last Friday. They had a gymnastics party at our local PCYC (think it is similar to a YMCA elsewhere) on Saturday and they had an absolute ball. Every couple of years I combine their birthdays - makes it easier for me and they love it as there are more people to have a great time with. I am still so amazed that Ainslie has stayed so well. I remember so clearly the dread and worry I felt in the first couple of years, it still comes back to haunt me when something new occurs. But hey, Ainslie has only been hospitalised for sinus clean outs and that is it. She has only had one serious lung infection and that was in July - that was enough to get her to understand why you need to look after yourself ie be able to breathe. So besides the myriad of drugs, treatments and exercise she is just a normal everyday kid. Must go I have exams in 19 days, as someone reminded me just a little while ago, and I am not at all ready for them. Terri mum to Ainslie 10 wcf and Connor 6 nocf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Let me hitch on here to send those great wishes too. Good words & wishes to you all LOVE & HUGS, GrandmomBEV Ainslie I can't believe it, Ainslie turns 10 today and Connor turned 6 last Friday. They had a gymnastics party at our local PCYC (think it is similar to a YMCA elsewhere) on Saturday and they had an absolute ball. Every couple of years I combine their birthdays - makes it easier for me and they love it as there are more people to have a great time with. I am still so amazed that Ainslie has stayed so well. I remember so clearly the dread and worry I felt in the first couple of years, it still comes back to haunt me when something new occurs. But hey, Ainslie has only been hospitalised for sinus clean outs and that is it. She has only had one serious lung infection and that was in July - that was enough to get her to understand why you need to look after yourself ie be able to breathe. So besides the myriad of drugs, treatments and exercise she is just a normal everyday kid. Must go I have exams in 19 days, as someone reminded me just a little while ago, and I am not at all ready for them. Terri mum to Ainslie 10 wcf and Connor 6 nocf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Let me hitch on here to send those great wishes too. Good words & wishes to you all LOVE & HUGS, GrandmomBEV Ainslie I can't believe it, Ainslie turns 10 today and Connor turned 6 last Friday. They had a gymnastics party at our local PCYC (think it is similar to a YMCA elsewhere) on Saturday and they had an absolute ball. Every couple of years I combine their birthdays - makes it easier for me and they love it as there are more people to have a great time with. I am still so amazed that Ainslie has stayed so well. I remember so clearly the dread and worry I felt in the first couple of years, it still comes back to haunt me when something new occurs. But hey, Ainslie has only been hospitalised for sinus clean outs and that is it. She has only had one serious lung infection and that was in July - that was enough to get her to understand why you need to look after yourself ie be able to breathe. So besides the myriad of drugs, treatments and exercise she is just a normal everyday kid. Must go I have exams in 19 days, as someone reminded me just a little while ago, and I am not at all ready for them. Terri mum to Ainslie 10 wcf and Connor 6 nocf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Terri, Now you know what our SA water tastes like. We have bought bottled water for years. We just recently switched to Piccadilly, which goes by various names in different states. It has a high level of magnesium which Kim told me about (the Magnesium not which brand to buy). Its so cold here today I think its 20 Celsius but the wind is cold. Cant wait for Summer to start. (SA) Drought Here in Australia we are in drought EVERYWHERE, as far as the news reports go. Even here in " green " supposedly lush Tasmania, we are in drought. Recently we had our water changed - used to come directly from mountain streams and tasted terrific, now it has changed to river water and Nigel says that it is just like South Australian water, tastes funny too. Oh well, can't complain too much the water dept is trying to make sure the dams don't go dry. But I bet the affluent suburbs have still got the great tasting water. I might now go to bottled water for the time being - and pray for generous rains here and everywhere else. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Terri, Now you know what our SA water tastes like. We have bought bottled water for years. We just recently switched to Piccadilly, which goes by various names in different states. It has a high level of magnesium which Kim told me about (the Magnesium not which brand to buy). Its so cold here today I think its 20 Celsius but the wind is cold. Cant wait for Summer to start. (SA) Drought Here in Australia we are in drought EVERYWHERE, as far as the news reports go. Even here in " green " supposedly lush Tasmania, we are in drought. Recently we had our water changed - used to come directly from mountain streams and tasted terrific, now it has changed to river water and Nigel says that it is just like South Australian water, tastes funny too. Oh well, can't complain too much the water dept is trying to make sure the dams don't go dry. But I bet the affluent suburbs have still got the great tasting water. I might now go to bottled water for the time being - and pray for generous rains here and everywhere else. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Terri, Now you know what our SA water tastes like. We have bought bottled water for years. We just recently switched to Piccadilly, which goes by various names in different states. It has a high level of magnesium which Kim told me about (the Magnesium not which brand to buy). Its so cold here today I think its 20 Celsius but the wind is cold. Cant wait for Summer to start. (SA) Drought Here in Australia we are in drought EVERYWHERE, as far as the news reports go. Even here in " green " supposedly lush Tasmania, we are in drought. Recently we had our water changed - used to come directly from mountain streams and tasted terrific, now it has changed to river water and Nigel says that it is just like South Australian water, tastes funny too. Oh well, can't complain too much the water dept is trying to make sure the dams don't go dry. But I bet the affluent suburbs have still got the great tasting water. I might now go to bottled water for the time being - and pray for generous rains here and everywhere else. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 , Terri and anyone else in Australia... Are you familiar with a veterinary medicine called Pimobenden? It's a medicine for dogs with heart problems. If you know a vet, could you please check to see what it would take to get this med shipped to the US? We can't get in in the States because whoever approves vet meds hasn't yet approved this. I have a friend whose vet wants to get Pimobenden for her dog. Studies are very promising and apparently, many US vets would love to get their hands on some. Thanks, Kim > Terri, > > Now you know what our SA water tastes like. We have bought bottled > water for years. We just recently switched to Piccadilly, which goes by > various names in different states. It has a high level of magnesium > which Kim told me about (the Magnesium not which brand to buy). Its so > cold here today I think its 20 Celsius but the wind is cold. Cant wait > for Summer to start. > > (SA) > > Drought > > > Here in Australia we are in drought EVERYWHERE, as far as the news > reports go. > > Even here in " green " supposedly lush Tasmania, we are in drought. > Recently we had our water changed - used to come directly from mountain > streams and tasted terrific, now it has changed to river water and Nigel > says that it is just like South Australian water, tastes funny too. Oh > well, can't complain too much the water dept is trying to make sure the > dams don't go dry. But I bet the affluent suburbs have still got the > great tasting water. > > I might now go to bottled water for the time being - and pray for > generous rains here and everywhere else. > > Terri > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 , Terri and anyone else in Australia... Are you familiar with a veterinary medicine called Pimobenden? It's a medicine for dogs with heart problems. If you know a vet, could you please check to see what it would take to get this med shipped to the US? We can't get in in the States because whoever approves vet meds hasn't yet approved this. I have a friend whose vet wants to get Pimobenden for her dog. Studies are very promising and apparently, many US vets would love to get their hands on some. Thanks, Kim > Terri, > > Now you know what our SA water tastes like. We have bought bottled > water for years. We just recently switched to Piccadilly, which goes by > various names in different states. It has a high level of magnesium > which Kim told me about (the Magnesium not which brand to buy). Its so > cold here today I think its 20 Celsius but the wind is cold. Cant wait > for Summer to start. > > (SA) > > Drought > > > Here in Australia we are in drought EVERYWHERE, as far as the news > reports go. > > Even here in " green " supposedly lush Tasmania, we are in drought. > Recently we had our water changed - used to come directly from mountain > streams and tasted terrific, now it has changed to river water and Nigel > says that it is just like South Australian water, tastes funny too. Oh > well, can't complain too much the water dept is trying to make sure the > dams don't go dry. But I bet the affluent suburbs have still got the > great tasting water. > > I might now go to bottled water for the time being - and pray for > generous rains here and everywhere else. > > Terri > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Terri, I do the usual clinic visits as is at work. But any night time things, physio, boogie sucking, anaemia's etc. In fact all the gross stuff is his job. Have you had much of a heat wave there? WOW - if either of the kids need to go to the doctor or hospital Nigel runs a mile. Didn't even make it into the hospital the last time she had sinus surgery. Funny thing is, when he was unemployed for 12 months he only did one doctor type visit - a lung function test - and you would have thought I was demanding his manhood or something equally as dreadful. LOL. Ainslie wasn't much better. Great that your hubby helps or rather is an interested participant in your family and ALL it entails. I'm jealous. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Terri, I do the usual clinic visits as is at work. But any night time things, physio, boogie sucking, anaemia's etc. In fact all the gross stuff is his job. Have you had much of a heat wave there? WOW - if either of the kids need to go to the doctor or hospital Nigel runs a mile. Didn't even make it into the hospital the last time she had sinus surgery. Funny thing is, when he was unemployed for 12 months he only did one doctor type visit - a lung function test - and you would have thought I was demanding his manhood or something equally as dreadful. LOL. Ainslie wasn't much better. Great that your hubby helps or rather is an interested participant in your family and ALL it entails. I'm jealous. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 Terri, Were do they live in SA? Today it was about 28c so it was perfect, as was yesterday. But they say by the weekend high 30'sc again. At least we can play outside in the water (I say we because us adults also went on the slip & slide). (Australia) p.s. I have my in-laws sleeping over for the very first time on New Years Eve yippee!!! We have had some terrific weather lately, warm but not heat wave conditions. Xmas day and today have been quite cool, light jumper weather at times. We tend to get our hot weather at the end of January through to early to mid March. My inlaws have been here for 11days and they are happy to be here out of the heat, but I will be happier tomorrow afternoon when the leave to go back to SA. They really have no idea of what our family is like, dealing with life with cf and trying to be normal. Oh they have just returned home from a picnic - better go. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 Terri, Were do they live in SA? Today it was about 28c so it was perfect, as was yesterday. But they say by the weekend high 30'sc again. At least we can play outside in the water (I say we because us adults also went on the slip & slide). (Australia) p.s. I have my in-laws sleeping over for the very first time on New Years Eve yippee!!! We have had some terrific weather lately, warm but not heat wave conditions. Xmas day and today have been quite cool, light jumper weather at times. We tend to get our hot weather at the end of January through to early to mid March. My inlaws have been here for 11days and they are happy to be here out of the heat, but I will be happier tomorrow afternoon when the leave to go back to SA. They really have no idea of what our family is like, dealing with life with cf and trying to be normal. Oh they have just returned home from a picnic - better go. Terri ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Terri, We do all go through problems like this, I have a bad sinus infection, the kind that is like stuck up in the sinuses and doesn't drain, except at night when I lay down then I waking up and cough stuff up for awhile, but the past couple days the face pain and pressure were too much, well I finally got an Rx antibiotic for it, and about fell over, $60 my copay for 5 pills, ouch! anyway point is that the past couple of weeks have been H-ll around here too, regarding my husband, only yelling and blaming instead of not talking, that too is difficult, and now he wonders why I have gotten sick with a sinus infection?? duh??? Oh well, see that is life, and we all need somewhere to vent, where other's understand and we all do! hugs and blessings, Marla , I really need the prayers more now than ever. Without going into details my home life isn't that great right now. My husband, all of a sudden, has been awful. I know it must be difficult to live with someone who is sick all the time, but it is such an about face. I was singing his praises (and about our marriage) a couple of weeks ago and all of a sudden he is not even speaking to me. He works out every day after work and doesn't get home until 6:30 or so. He just doesn't want to be at home. He golfs every Saturday (all day) so the only time I really see him is on Sunday. I just don't understand what is going on. Maybe it is just too much for him. If it is, I wish he would just say so...I don't need the additional stress. I woke up with facial pain and drooping today and I know it is in part caused by the stress that I am feeling from being ignored all week. Wow, I didn't mean to say that much, but I know a lot of people on the site go through marital problems. I just thought our faith in God had brought us closer and I realize that he may not believe it like I do. Sorry for the diatribe. Thanks for your paryers. Terri G. > > > You're in my prayers too Terri. > > grannylunatic@y... > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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