Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 I am new to this site. I have had Neurosarcoidosis for several years. Can no longer work. Have now developed nodules in the pericardium. Overall, I think I have done well compared to some of you whose messages I have read. I have been on many meds and reacted to most of them so had to settle for old basic medications. I was on large doses of prednisone for years. I have had nonhealing neuropathic ulcers on my feet for the last 19 months now. I had my second surgery (Deep debridement with graft) on May 19th. So they have now decreased the prednisone. I am now non-weight bearing again. I had the first procedure done in January (the wound had been debrided in the office and treated at a wound clinic for 13 months. Since January I have had two bouts of Cellulitis in my leg, one requiring hospitalization. However aside from this I have done OK except I have difficulty walking,of course. It is good to know you are out there. God Bless Each Of You. macleen500 Quote Link to comment Share on other sites More sharing options...
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