Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Hi Sue, As far as I know there is no cure per say for graves disease all we can do is make life style changes, diet, exercise and positive changes to our health. The good hope though is that there is something called " remission " and that is what I am hoping to achieve but like you I was also wondering the effects of graves on longevity because of the heart Palpitations that has to be bad for us in the long run. I try not to think about it and dwell on it since I haven't had palpitations that bad lately. I'm sure someone else can shed some light here. Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Hi Sue, As far as I know there is no cure per say for graves disease all we can do is make life style changes, diet, exercise and positive changes to our health. The good hope though is that there is something called " remission " and that is what I am hoping to achieve but like you I was also wondering the effects of graves on longevity because of the heart Palpitations that has to be bad for us in the long run. I try not to think about it and dwell on it since I haven't had palpitations that bad lately. I'm sure someone else can shed some light here. Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 As far as I know there is no cure per say for graves disease all we can do is make life style changes, diet, exercise and positive changes to our health. Alyssa So is there a chance at remission? Like a lifelong remission state? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Well Sue, I don't know about life long remission but anything is possible I have heard people go in and out of remission but my goal is to remain in remission once I get there. I suppose lifelong remission is possible there is always hope. Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Well Sue, I don't know about life long remission but anything is possible I have heard people go in and out of remission but my goal is to remain in remission once I get there. I suppose lifelong remission is possible there is always hope. Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 S E L Paolini wrote: > > So is there a chance at remission? Like a lifelong remission state? At least one study of remission suggests that most Graves' patients retain an abnormal response to one test (I think it was thyrotropin stimulation test), so in a sense we are likely to remain different. However this abnormal response doesn't mean people are ill or need treatment, indeed it may just be pointing out we are different (which is obvious as the problem goes in families). More testing of those who get better, and relatives who don't get ill might shed more light. The question of whether we are inherently ill, or just susceptible (or more susceptible) to different problems, cuts right at the question of " what causes Graves' disease " . Survival of the fittest is pretty good at eliminating wonky genes unless they compensate in other ways, and I wonder if our overactive immune systems protect us from other problems. Indeed one hypoothesis is that autoimmune diseases are abnormally aggressive responses to common pathogens. My family seems to have nothing wrong with them except autoimmune problems - I don't recognise the concept of weakened immune system in my family - broken yes - but weak - not here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Hi Simon- Elaine and I were speculating, a long time ago, about whether or not Graves' may have had some adaptive value in the past. It's a fascinating concept. Other diseases certainly have. For example, diabetics survive famine much better than people with " normal " genes. And diabetes tends to be more common in populations that had to survive famine in the past. Sickle cell disease is another disease that, though fatal if a patient is homozygous for it, allowed people to survive malaria in regions where it is found (if they are heterozygous). " Normal " people didn't survive malaria nearly as well as those with sickle cell anemia did and those are the populations that sickle cell disease is found in. We were wondering if there hadn't been some advantage in the past to having Graves' disease but I don't think they have studied that aspect of the disease. Neat stuff! Take care, dx & RAI 1987 (at age 24) > Survival of the fittest is pretty good at eliminating wonky > genes unless they compensate in other ways, and I wonder if our > overactive immune systems protect us from other problems. Indeed > one hypoothesis is that autoimmune diseases are abnormally > aggressive responses to common pathogens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Re: Re: Some questions Hi Sue, Long term or permanent remission is much higher statistically in Europe and Japan where the use of BRT and a 3-5 year recovery plan is the protocol...Don't get discouraged or give up, things do get easier in time. Jody What is BRT? And why is it not used here if it is so successful? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I tried posting these questions before but I think Yahoo must have had the message for lunch I have had iritis for over six months. I have used drops and had injections of kenlog but it keeps persisting. Has anyone had this happen. I am now using dialating drops for the discomfort in my right eye. FYI Saroid stated in my lungs 10 years ago. I have calcifation in my speen and in my bones of my right hip and Lord (ONLY HE KNOWS BECAUSE THE DOCTORS SURE AREN'T LOOKING!) knows where else. I have NS symptoms but no one wants to treat them. Any one had to be treated for this? Thank You Ruth Quote Link to comment Share on other sites More sharing options...
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