Just home from hospital

[Guest guest]

I apologize for this being so long.

I woke up Saturday morning and could not move my legs and barely

move my arms. After 3 hours of not being able to move my legs, I

crawled on my stomach to get the phone and called a friend. By this

time, it was 3 p.m. She was pretty far away but got to me at about

5 p.m. Ambulance took me to University Hospital in Cincinnati.

After exam in ER, we were told I had no reflexes in my legs or

feet. I could not stand up at all, and I was admitted. Neuro docs

in ER told me something was wrong and they would find out what.

Sunday, I saw the Neuro Intern for about a 1/2 hour, assured they

would find the problem. I told him that DR. BAUGHMAN, had told my

Rheumatologist in September that he said he was " convinced " I had

neurosarcoidosis. I had only seen Baughman 2 times in 2004.

Neurosarc was diagnosed, but somebody goofed up and told me I did

not have it.

In September, my Rheumatologist examined me, called Baughman, and

they decided it definitely was neurosarc. About that time, my

insurance was canceled so I couldn't go back to Dr. Baughman. I

asked several times for them to call these doctors, they said they

would, but I know they didn't.

I was at UC Hospital ER on Saturday the 4th because my heart wacked

out. Saw my cardiologist on the 9th and ended up back at UC on the

11.

The attending Neurologist came in Sunday, examined me for 5 minutes,

and told me " I needed to see a psychiatrist because it was all in my

head. " She had a snotty attitude and refused to listen to anything

that I said about neurosarc or Dr. Baughman. I reported her to

patient services hoping that would help, and she was nicer the next

day, but that didn't last.

I asked the attending and the intern to call Dr. Baughman and my

Rheumatologist and they said they would. THEY LIED. They never

called either one of them.

I was there from Saturday thru Tuesday, she refused to do any tests,

she told me she did not know what was wrong but was sure I would get

better.( THAT MAKE SENSE?). She decided this on tests results from

2002 and 2004. No matter what I said or my sister said made any

difference, she refused to listen. Each time she was asked a direct

question, she avoided it.

I was finally told on Tuesday that they were sending me to a rehab

unit. I kept asking which one but got no answers.

The Rehab doctor, Physical Therapist and Attending Neuro all lied to

me and told me I was going to Rehab, but the truth is they were

sending me home the next day. I had not even walked yet, and I live

on the 3rd floor, (33 steps to climb from outside to my apt door).

One of the people from social services came to talk to me and I

found out that they could not send me out for Rehab because I did

not have insurance. I asked to see the doctor again but I saw the

doctor or 2nd shift. He told me that I was scheduled to go home on

Wednesday without any rehab. He thought I knew this.

They were also asked to do tests on my heart that are ordered for

April, but they refused to do that as well.

I asked the attending why she would not call Dr. Baughman, and her

reply was " I don't see anything that would make me think you have

neurosarcoidosis, so there is no reason to do any tests. " I told

her if it ended up that I had neurosarc and I was in the hospital

without anything being that I didn't think Dr. Baughman would be to

happy about that. She replied " He won't be mad at me. "

My Rheumatologist called today and I asked her to call Dr. Baughman

and talk with him about what happened.

How can doctors openly lie and mislead someone and get away with

it? They did not call the doctors that I asked them to, but they

called a doctor who is no longer my doctor because I dismissed him

for his pain pill pushing; they never asked if it was okay to call

him either, and I told them he was no longer my doctor.

While I was in the hospital, they got me up in a chair to go to the

bathroom (the neuro doc ordered no more bed pan, even though I

couldn't walk). At first, I had 2 nurses helping, but a nurse

decided I only needed 1 person to help me. First time, one person

got me up, she let me fall. I hurt my ankle, knee, bruised my leg,

and hurt my hip when it hit the bed. She got another nurse to help

get me up, and that nurse was furious. She wanted to know why I was

up, I told her doc ordered it, she said you can't walk. She refused

to let me get up any more. The nurse that let me fall, was holding

my hand like a couple would hold hands while walking. She never

tried to even stop me from falling, oh and she never said she was

sorry. She could have cared less. They called a doctor to come, he

never even examined me, and ordered an aspirin for me because my hip

hurt. A nurse also tried to give me a drug that I was allergic to.

I never got to bathe or brush my teeth until Tuesday because nobody

bothered. My friend tried to help me as much as she could but she

had a lot going on at home and with work (works part-time weekends,

full time during the week and has 2 kids and a sick mom and dad,

also just moved back into their house after being in a hotel for 3

months because of a fire.

I had had a mild left-sided headache since Saturday afternoon that

would come and go. On Monday night, I had a horrible headache (had

to be the 3rd worst headache of my life). Nurse gave me an aspirin,

and I told her how bad the headache was, how bad I felt, and how

much pain I was in, and her reply was " I'm sorry. " , walked out and

closed the door. I WAS ON THE NEUROLOGY FLOOR.

I know that some of you see Dr. Baughman. Do you think I should try

to call him and tell him what happened? Has anybody had anything

like this happen to them? I saw a total of 12 doctors while I was

there, and nobody help. Says a lot for the the medical field

doesn't it?

Thanks for listening. Any suggestions would be greatly appreciated.

Bonnie