Guest guest Posted November 27, 2002 Report Share Posted November 27, 2002 Chin up ! I know it's hard but keep at it. Remember that you rDr's are just that Dr's they are not pharmacists. The have a very brief knoledge of these drugs. Have your pharmacists call your Dr and Discuss this. Several other isses to consider. My mom was in hospital, the Doctor there did two things, 1 he failed to contact her urologist (she has kidney disease) as to what BP meds where ok for her to take and 2 he failed to tell her to stop taking her old BP meds, I was there her told her to continue her meds as before. She almost died. Also the more medications you take on a daily basis the more likely you are to have serious drug interaction/and or allergies. Again this was the issue with my mom. You should also consider the pharmacists ability to read DRs writting. Add to that drug names that are very similar in spelling but worlds apart in there usage and you could have big trouble. Please contact you DR. I'm concerned, Trust your pharmacists, they could be saving you life. Hope you can enjoy Thanksgiving again! God Bless Patty in Banogr ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2002 Report Share Posted November 27, 2002 Chin up ! I know it's hard but keep at it. Remember that you rDr's are just that Dr's they are not pharmacists. The have a very brief knoledge of these drugs. Have your pharmacists call your Dr and Discuss this. Several other isses to consider. My mom was in hospital, the Doctor there did two things, 1 he failed to contact her urologist (she has kidney disease) as to what BP meds where ok for her to take and 2 he failed to tell her to stop taking her old BP meds, I was there her told her to continue her meds as before. She almost died. Also the more medications you take on a daily basis the more likely you are to have serious drug interaction/and or allergies. Again this was the issue with my mom. You should also consider the pharmacists ability to read DRs writting. Add to that drug names that are very similar in spelling but worlds apart in there usage and you could have big trouble. Please contact you DR. I'm concerned, Trust your pharmacists, they could be saving you life. Hope you can enjoy Thanksgiving again! God Bless Patty in Banogr ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2002 Report Share Posted November 27, 2002 Chin up ! I know it's hard but keep at it. Remember that you rDr's are just that Dr's they are not pharmacists. The have a very brief knoledge of these drugs. Have your pharmacists call your Dr and Discuss this. Several other isses to consider. My mom was in hospital, the Doctor there did two things, 1 he failed to contact her urologist (she has kidney disease) as to what BP meds where ok for her to take and 2 he failed to tell her to stop taking her old BP meds, I was there her told her to continue her meds as before. She almost died. Also the more medications you take on a daily basis the more likely you are to have serious drug interaction/and or allergies. Again this was the issue with my mom. You should also consider the pharmacists ability to read DRs writting. Add to that drug names that are very similar in spelling but worlds apart in there usage and you could have big trouble. Please contact you DR. I'm concerned, Trust your pharmacists, they could be saving you life. Hope you can enjoy Thanksgiving again! God Bless Patty in Banogr ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 > > Reply-To: graves_support > Date: Sun, 01 Dec 2002 20:30:22 -0000 > To: graves_support > Subject: Re: Venting- Granny and Jody - To > > > > I try to analyze the motives behind the automatic death sentence > placed on an overactive thyroid until my head is swimming, but maybe > the profit angle isn't so much a consideration as the ability to > dismiss the patient by destroying the thyroid and supplying > replacement hormone. All I hear from the doc (who occasionally give it a try, getting me convinced to do RAI although less frequently) is that it's " so much easier " . > > As far as this color duplex sonography helping to determine the > optimum ATD dosage, I get mad when I think of all the years I was on > a thyroid rollercoaster trying to guess at an effective dose of ATD. Any idea what this test costs? How much equipment that isn't already in place is needed? > Now this study comes out (from Germany no less) that shows the > possibility of gauging ATD dosage needed to attain a euthyroid state > by the vascularity revealed in the color doppler. THEY FIGURED THIS > OUT OVER A YEAR AGO! Why can't we use this here? How many years > will it take for it to even get here? Then I find the Japanese study > that alludes to the same type of info, and it was dated 1996! > > What else is out there that we are not privy to? The actual > cure?????? > > Just to let you know how cynical I am becoming with this. This > morning it struck me that probably the ONLY reason they are > considering lowering the higher end of the " normal values " for the > TSH testing to 2.something: It will place more patients into the > high TSH/hypO range....... thereby more thyroid replacement hormone > sales? I better take up a different hobby before I blow a cork! > hahaha! I don't think you're being logical with the TSH theory! I think maybe they have FINALLY noticed that their ranges weren't accurate, and they are FINALLY doing something to remedy the error! > > Terry p.s., I just caught the end of 60 minutes segment..seems that here in CA the prisoners get to have heart transplants that those on the 'outside' can't get their insurance co. to pay for. Sorry I missed most of the report! I think the guy being interviewed had a dad needing a transplant or something > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 > > Reply-To: graves_support > Date: Sun, 01 Dec 2002 20:30:22 -0000 > To: graves_support > Subject: Re: Venting- Granny and Jody - To > > > > I try to analyze the motives behind the automatic death sentence > placed on an overactive thyroid until my head is swimming, but maybe > the profit angle isn't so much a consideration as the ability to > dismiss the patient by destroying the thyroid and supplying > replacement hormone. All I hear from the doc (who occasionally give it a try, getting me convinced to do RAI although less frequently) is that it's " so much easier " . > > As far as this color duplex sonography helping to determine the > optimum ATD dosage, I get mad when I think of all the years I was on > a thyroid rollercoaster trying to guess at an effective dose of ATD. Any idea what this test costs? How much equipment that isn't already in place is needed? > Now this study comes out (from Germany no less) that shows the > possibility of gauging ATD dosage needed to attain a euthyroid state > by the vascularity revealed in the color doppler. THEY FIGURED THIS > OUT OVER A YEAR AGO! Why can't we use this here? How many years > will it take for it to even get here? Then I find the Japanese study > that alludes to the same type of info, and it was dated 1996! > > What else is out there that we are not privy to? The actual > cure?????? > > Just to let you know how cynical I am becoming with this. This > morning it struck me that probably the ONLY reason they are > considering lowering the higher end of the " normal values " for the > TSH testing to 2.something: It will place more patients into the > high TSH/hypO range....... thereby more thyroid replacement hormone > sales? I better take up a different hobby before I blow a cork! > hahaha! I don't think you're being logical with the TSH theory! I think maybe they have FINALLY noticed that their ranges weren't accurate, and they are FINALLY doing something to remedy the error! > > Terry p.s., I just caught the end of 60 minutes segment..seems that here in CA the prisoners get to have heart transplants that those on the 'outside' can't get their insurance co. to pay for. Sorry I missed most of the report! I think the guy being interviewed had a dad needing a transplant or something > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 I'm so confused I don't even know where to start... ugh. Ok... The diet seems to be going well. I know I feel better and hasn't complained of pain in his bowels in well over a month. I thought I should take him in for a check with his GI doc. I was so SURE everything was going to be awesome aside from that stupid second fistula. The doc requested blood work and I was even happier, because in the blood work would be the proof that was improving. I could wave it high in the air and show his GI that SCD was saving us. What do they say about pride? *sigh* Well, they say pride comes before the fall. 's C-Reactive Proteins are at 5.2 (high), his sed rate is at 14 (borderline high), his glucose is at 109 (high), his Total Protein is 8.3 (high), his Globulin is 3.8 (high), his Bilirubin is 1.3 (high), his Alkaline Phosphates are 40 (low) and his iron is 25 (low). On top of that he'd lost 7 pounds in the 4 months since the last visit... and our lovely GI who has been with since he was 12 is not excited about SCD at all. He thinks that most people lose weight on it. So... He wants to start back on meds. He's thinking Humira with 6mp. I reminded him that the last time was on 6mp his liver failed... so that came off of the table, but he's really pushing for the Humira, or as an alternative, testing to see if he can go back on Remicade. He also put him on an antibiotic for the fistulas. (UGH) When was on Remicade he began having to do school through the " home hospital " program. Three days at school meant a month home sick and the teachers couldn't/wouldn't put together work for him. On one occasion he was at school for a few days, then didn't feel well. I kept him home and he progressively got worse. I took him to Children's where we learned he had managed to catch Mono and Pneumonia. It was in the hospital that his liver failed. The teachers were going to give him " C's " for the year... and I flipped out like only a mother on the edge can. Granted, the Remicade stopped the 5 pounds a week weight loss, and without that I wouldn't have with me. He spent many nights at Children's with that tube feeding him just to keep him with us. He was just starting to consider spending next year.. his Senior year, at school with other kids. Humira would end that. Of course, at the moment he weighs 136 pounds and is 6 feet tall... so much more weight loss and we'll be back to the hospital anyway. Then there's the option of the LDN which seems to be highly recommended by many people on this board. If he absolutely has to be on drugs to turn himself around, that would be my preference. I know, without a shadow of a doubt, we would lose the GI we've come to adore if we go that route. I could very likely get my GP to prescribe it. He's always been very flexible and has cared for the family for 15 years now, so he knows I'm not a loon and I think things through. What I've done so far is to send 's GI an email stating that we are standing by the diet and would like to check back with him in a month for another check. He's stated that he believes 's Crohn's is focusing on his peri-rectal area and that he's very concerned, but that he'll wait to set up the Humira and see us in a month. I don't know if I'm doing the right thing. I don't feel like I can get to eat enough. He just will not snack. He has developed a love for fruit-yogurt smoothies, so I make his yogurt with 1/2 and 1/2 to get as many calories into it as possible. I am trying to really push the yogurt since he's on the antibiotics. I'm having the first stomach pain since starting this diet... gads.. wonder if it's stress related? I did finally manage to make the enchiladas. I bought a crepe maker and that made all the difference in the world for me. I think they came out great. Sadly, had a few bites, and said he was full. Today I had Dad throw steaks on the grill. The one thing he'll eat anytime. He ate a nice big steak, but I can't buy him steaks every day. Ok. Vent complete. Thanks for reading. Rhonda UC Son, 16, CD SCD 2+ months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Hi, Rhonda,I included a recipe for biscuits-- for 's hamburgers-- and it disappeared. Here is the link for the recipe; I have made these and used them for burgers.http://www.grainfreegourmet.com/biscuit.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Hi, Rhonda,I included a recipe for biscuits-- for 's hamburgers-- and it disappeared. Here is the link for the recipe; I have made these and used them for burgers.http://www.grainfreegourmet.com/biscuit.html Quote Link to comment Share on other sites More sharing options...
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