RE: Severe Upper Abdomen Pain Attacks (Not Gallbla...

[Guest guest]

Thanks to everyone who has responded to my questions. As for the heart question, I forgot to mention I have a cardiologist and my heart has just been cleared of any sarcoidosis. It's still looking and acting good so far :-) I was concerned that it might be the culprit of the pain also. I hope it stays clear of the sarc monster FOREVER! Tracie sounds like she is experiencing close to what I'm talking about. I don't have bad lung involvement, but my spine and lymph nodes are as bad as you can get. I'm sure my nerves are shot. I've also had a lesion and bad swelling in my spinal cord back in 2000. I have lots of nerve damage on my right side from that one. That's when I was misdiagnosed with Transverse Myelitis. That's another thing most people have never heard of. Anyway, I've had this pain thing going on for months now and I've only been on the MTX for one week so I know the pain doesn't have anything to do with the meds. What is this other drug you're talking about Tracie? What does this Plaquenil do?

Good new when I brushed my teeth this morning. I didn't bleed today! I was really happy about that. And as for drinking lots of water. Water is my choice of drink and I have it all day long. Sometimes I have iced tea in the summer or an occasional soda, but mostly water. I will try the icing thing and read up on the MSM stuff. Anything has got to be better than what is happening now. If anyone out there is experiencing this kind of pain, I feel horrible for you. Right now I only have Lortab and it doesn't do anything. I have a sis on the patch and she is so addicted to it. I don't want to be that way. I take so much stuff now and I don't want to be addicted to something if I can help it. I know there may come a day, when I can't take the pain anymore and I'll say to heck with it, but for now, I'm going to hope and pray that day won't come.

Thanks again to everyone who wrote back to me with concern, questions and advice. You don't know how much I appreciate it. I'll keep you all posted on how I'm doing on the MTX and when I hopefully get the Remicade.

Diane in Sizzling North Texas

..

[Guest guest]

Thanks to everyone who has responded to my questions. As for the heart question, I forgot to mention I have a cardiologist and my heart has just been cleared of any sarcoidosis. It's still looking and acting good so far :-) I was concerned that it might be the culprit of the pain also. I hope it stays clear of the sarc monster FOREVER! Tracie sounds like she is experiencing close to what I'm talking about. I don't have bad lung involvement, but my spine and lymph nodes are as bad as you can get. I'm sure my nerves are shot. I've also had a lesion and bad swelling in my spinal cord back in 2000. I have lots of nerve damage on my right side from that one. That's when I was misdiagnosed with Transverse Myelitis. That's another thing most people have never heard of. Anyway, I've had this pain thing going on for months now and I've only been on the MTX for one week so I know the pain doesn't have anything to do with the meds. What is this other drug you're talking about Tracie? What does this Plaquenil do?

Good new when I brushed my teeth this morning. I didn't bleed today! I was really happy about that. And as for drinking lots of water. Water is my choice of drink and I have it all day long. Sometimes I have iced tea in the summer or an occasional soda, but mostly water. I will try the icing thing and read up on the MSM stuff. Anything has got to be better than what is happening now. If anyone out there is experiencing this kind of pain, I feel horrible for you. Right now I only have Lortab and it doesn't do anything. I have a sis on the patch and she is so addicted to it. I don't want to be that way. I take so much stuff now and I don't want to be addicted to something if I can help it. I know there may come a day, when I can't take the pain anymore and I'll say to heck with it, but for now, I'm going to hope and pray that day won't come.

Thanks again to everyone who wrote back to me with concern, questions and advice. You don't know how much I appreciate it. I'll keep you all posted on how I'm doing on the MTX and when I hopefully get the Remicade.

Diane in Sizzling North Texas

..

[Guest guest]

Hi

Diane,

The Plaquanil

is another immune depressant medication, I am on both Mtx and Plaquanil, and

have been for 3 years. It takes a little time for the drugs to kick in and you

see a difference, I was on the plaquanil first, then they added the Methotrexate

and I did better on the combination.

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

Sent: Friday, July 14, 2006 5:46

PM

To: Neurosarcoidosis

Subject: Re:

Severe Upper Abdomen Pain Attacks (Not Gallbla...

Thanks to everyone who has responded to my questions.

As for the heart question, I forgot to mention I have a cardiologist and my

heart has just been cleared of any sarcoidosis. It's still looking and

acting good so far :-) I was concerned that it might be the culprit of

the pain also. I hope it stays clear of the sarc monster FOREVER!

Tracie sounds like she is experiencing close to what I'm talking about. I

don't have bad lung involvement, but my spine and lymph nodes are as bad as you

can get. I'm sure my nerves are shot. I've also had a lesion and

bad swelling in my spinal cord back in 2000. I have lots of nerve damage

on my right side from that one. That's when I was misdiagnosed with

Transverse Myelitis. That's another thing most people have never heard

of. Anyway, I've had this pain thing going on for months now and I've

only been on the MTX for one week so I know the pain doesn't have anything to

do with the meds. What is this other drug you're talking about

Tracie? What does this Plaquenil do?

Good new when I brushed my teeth this morning. I

didn't bleed today! I was really happy about that. And as for

drinking lots of water. Water is my choice of drink and I have it all day

long. Sometimes I have iced tea in the summer or an occasional soda, but

mostly water. I will try the icing thing and read up on the MSM

stuff. Anything has got to be better than what is happening now. If

anyone out there is experiencing this kind of pain, I feel horrible for

you. Right now I only have Lortab and it doesn't do anything. I

have a sis on the patch and she is so addicted to it. I don't want to be

that way. I take so much stuff now and I don't want to be addicted to

something if I can help it. I know there may come a day, when I can't

take the pain anymore and I'll say to heck with it, but for now, I'm going to

hope and pray that day won't come.

Thanks again to everyone who wrote back to me with concern,

questions and advice. You don't know how much I appreciate it. I'll

keep you all posted on how I'm doing on the MTX and when I hopefully get the

Remicade.

Diane in Sizzling North Texas

..