chronic pain assoc.

[Guest guest]

This organization is also listed in the Links section. The website has very good brochures that you can download & print out. There is also an excellect section on neuropathic pain. I also have gone to a support group sponsored by the ACPA, although the past few months I have been committed to support groups for my granddaughter. I hope to start back in June.

Ramblin' Rose

Moderator

From: tiodaat@...Reply-To: Neurosarcoidosis To: neurosarcoidosis Subject: Tracie updateDate: Fri, 19 May 2006 04:09:42 EDTHello to everyone.I've still on hiatus--I'm in a regrouping, reframing, reclaiming time in my life. This last year has been one of tremendous loss of close friends due to illness. It's been hard to have to say goodbye to several that barely saw their 45 birthdays--and some that saw their 80th. I know that we've had quite an influx of new members, welcome to our family. You'll find a wealth of information and friendship from people who are on the same journey that you're starting.This disease is one of elimination. When they've eliminated that we don't have MS, Lupus, RA, and all the other auto-immune diseases--they may decide to say it's NS.In our LINKS and ARCHIVES we have set up sites and articles that you can print out and take to the MD with you. Sit down, block the door, and have a talk with your MD. The tests he needs to order, the scans, neuropsych testing-- is all there. If you have confirmed biopsy proven sarcoidosis-- then the arthritis you have is more than likely induced by your sarcoidosis. The nerve pain is more than likely sarcoidosis inflammation, either of the bloodcells themself, or by the inflammation of the nerves and blood vessels (vasculitis.)I am lucky enough to have a Support group that I can go to for chronic pain. It is a charter group of the American Chronic Pain Association. The site address is: http://www.theacpa.org/I was in Chico yesterday, and the founder, Penny Cowan gave a short seminar on chronic pain. It was wonderful and refreshing to hear of how the organization advocates self education and different ways to help control chronic pain that doesn't involve pain medication. Please check out the site-- I know you'll all get a tremendous amount out of it.I'll write more about what I came home with-- as soon as I am able to devote some more time. For now, know that all of you are important--and that we all need each other to find our way thru the maze.Blessings,TracieNS Co-owner/moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database