Neurological Deterioration, Inflammation, Immune System LDN - Kim M??

[Guest guest]

Hi Kim,

I've noticed you risgnature with " neurological deterioration " . We've also

touched base about gall bladder issues - you have been kind enought to give

guidance based on your experiences.

The past 8 months, which coincided with me starting SCD, have led to a

deteriorating neurological symotoms as well. We are still trying to rule out

the underlying cause:

1: chronic lyme

2: " low-grade " cancer like leukemia, lympohoma, or non-hodgkins lymphoma

3: or an " undifferentiated connective tissue disease " (an unnamed auto-immune

disorder)

Meanitme, my neurological symptoms were in my face, my skin, and my extremities

on my right side. The nerve testing confirmed CIPD:

http://en.wikipedia.org/wiki/Chronic_inflammatory_demyelinating_polyneuropathy

The apparrent good news here is that because only on the nerve coating and not

the nerve itself, the condition can be reversed and symptoms alleviated to some

degree through IVIG (Gamma Globulin) treatments, which I hope to start in the

next few weeks, once we figure out the still undetermined cause of the basic

neurological " system-wide failure. "

A lot of the symptoms I have, you have described to others in varying posts.

Have you looked into IVIG, or has anyone suggested it to you? Or have you done

it? Feedback? I have not yet done much research because I need to do one thing

at a time, but my doctor sounded very positive about it, with minimal

side-effects.

I also can't help but wonder if not having a gall-bladder contributes to this

condition - based on fat digestion and malabsorption. I do takt natural bile

salts, but only since January when my ND put me on them. That meant 6 years of

eating without a gall bladder or bile salts!

Until researching SCD, and even understanding the Nourishing Traditions aproach

to good fats did not understand how consuming the wrong fats can cause damage. I

do wonder if excess inflammation in my gut caused my current condition (although

a Lyme DX would alleviate that).

Finally I do also wonder if LDN would be appropriate at all here - for the

inflammation. I can't help but wonder if all these things are not connected -

the LDN Yahoo group is too much for me right now, so I like the LDN " light "

conversations that go on here.

Anyway, just wondering about your thoughts, and anyone elses!

Thanks for letting me ramble on,

Kim in NJ, SBS from bowel resection Feb 03

**on my way for a brain and body PET/CT - in a few minutes

**spinal tap on monday to conclusively rule out/in lyme

Hoping for answers so I can get on with my life!

SCD with both of my 4-yr old boys since Jan 09.