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how much worse could it get?

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I'm sorry I haven't posted in a while. I've been in the hospital since March. Turns out, I don't respond to prednisone or imuran. (120 mg of Pred daily since last june!) Ive had 2 more brain surgeries (bringing my total to 5).

I cant walk because of wasting due to pred. Ive got severe diabetes, insomnia, and hair loss. OH! and I start chemotherapy this Friday.

I started a betting pool: will she make it to her 26th birthday.

I just wish this could've happened to me later in life. I'm missing my prime because of this disease. And its taken 4 years- it just keeps getting worse.

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