Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Ruth,, Thanks for such good news.. I am waiting for my appt with my Rheumy for the start of Remicad myself.. glad its working for you.. Hugs & blessings and a pain free day in pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 I had my third infusion with Remicade yesterday and a bit tired today but otherwise everything went well. I took the information on the clinical trials and Drs Baughman and Sharma to give to my Rheumy. He overly thanked me for the information telling me he had not heard of the clinical trial and appreciated the information. He tells me at each visit that I am his only Sarcoid patient who he has given Remicade to and that it is being done for my eye involement. I tell him that I am thankful my eyes are better..but I am also thankful my bones and nueo are better too. I feel so much pain for all of you that are struggling with finding a physicaian who recogonizes what Sarc and do to our bodies. It has take me a long time to get my docs on board but I am grateful that they are now working together. Althought they all talk about NS they are still not giving me the diagnosis but as long as I am getting treated that is what is important. I wish each of you a good pain free day. I am off to be good and not overdo. Have a good 4th weekend! TTFN Ruth Quote Link to comment Share on other sites More sharing options...
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