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Me again

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Well so far today Im doing good. Im still totally stuffed from

breakfast so I didnt do lunch. If I get hungry before I leave work, I

have the rest of my omlet or some yogurt. I have to take

responsibility for this myself. I know what is going on, now I just

gotta work on it. Rory, gave me some great advice....if it were any of

you how would I respond...and then take my own advice.

Francisco...you made me cry!! Thank you so much for your

support...you know me so well my friend.

On step at a time. I will do this...I have to!!

HUGGLES

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  • 3 years later...
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Hello Jodee,My name is . It is nice to meet you. I wish it could be under different circumstances. I live is a suburb of Chicago. Sounds like you have a full plate. I am a new comer to this great group of people. I haven't really replied much because I don't feel like I have that much to offer but the people here are wonderful! If you have questions you will get a honest straight forward answers . They are very supportive.. I read e-mails everyday. I will keep you in my prayers and look forward to your posts. Take care and God bless IPF 3/03, Bronchectsis 3/03To: Breathe-support (AT) YahooSent: Wednesday, May 6, 2009 3:19:33 AMSubject: Me Again

Everyone, Thank you for your help in switching from Yahoo to Outlook Express. Your instructions were simple and everything is working fine. To tell you a little about myself. I am a 66 year old woman. California born and raised here - married an Ohio man and converted him to a want-a-be Californian. I feel it is the best state in the union. Married for 44 years, 2 daughters, 4 grandchildren (3 boys – 1 girl). Retired from my own gift shop business 9 years ago. Use to travel and have been to England, Canada, Mexico, Alaska, Hawaii, but my very best favorite was Africa. If you are an animal lover like me there is nothing better than seeing animals in their habitat doing things that come natural to them. Absolutely amazing. Wish I could do it again. I have pulmonary fibrosis, lupus, congestive heart failure, diabetes, fibromyalgia, osteoporosis, rheumatoid arthritis, am overweight, been on prednisone for 7 years, have never felt well my whole life and then diagnosed with all of this a little over 7 years ago. I am on liquid oxygen 4L 24/7. The slightest activity leaves me breathless and I’m so tired not to mention the pain, it is unbearable at times. I also have high blood pressure, and high cholesterol. I am on 4 tablets 500 ea. of Cellcept, 20 units of Predisone for my “absolutely horrible diseaseâ€. Every time I try to go down on the Predisone my body reacts with such pain that Morphine doesn’t control. So I’m kind of resigned to being on the Predisone. Have more bad days then good. Using more oxygen when I’m active. Went out to dinner tonight left at 4:00 on my portable liquid oxygen tank, came back at 9:00 and used 1-¾ tanks. I have plenty of questions and will be popping in to address them. Just wanted to give you a little background on little old me. Thanks for listening, Jodee

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Hi Jodee

I am on cellcept too, 1000 mgs 2 times daily

was just able to get down to 10 mgs prednisone and doing ok

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Me AgainTo: Breathe-support (AT) YahooDate: Wednesday, May 6, 2009, 4:19 AM

Everyone,

Thank you for your help in switching from Yahoo to Outlook Express.

Your instructions were simple and everything is working fine.

To tell you a little about myself. I am a 66 year old woman. California born and raised here - married an Ohio man and converted him to a want-a-be Californian. I feel it is the best state in the union. Married for 44 years, 2 daughters, 4 grandchildren (3 boys – 1 girl). Retired from my own gift shop business 9 years ago. Use to travel and have been to England, Canada, Mexico, Alaska, Hawaii, but my very best favorite was Africa. If you are an animal lover like me there is nothing better than seeing animals in their

habitat doing things that come natural to them. Absolutely amazing. Wish I could do it again.

I have pulmonary fibrosis, lupus, congestive heart failure, diabetes, fibromyalgia, osteoporosis, rheumatoid arthritis, am overweight, been on prednisone for 7 years, have never felt well my whole life and then diagnosed with all of this a little over 7 years ago. I am on liquid oxygen 4L 24/7. The slightest activity leaves me breathless and I’m so tired not to mention the pain, it is unbearable at times. I also have high blood pressure, and high cholesterol. I am on 4 tablets 500 ea. of Cellcept, 20 units of Predisone for my “absolutely horrible diseaseâ€.

Every time I try to go down on the Predisone my body reacts with such pain that Morphine doesn’t control. So I’m kind of resigned to being on the Predisone. Have more bad days then good. Using more oxygen when I’m active. Went out to dinner tonight left at 4:00 on my portable liquid oxygen tank, came back at 9:00 and used 1-¾ tanks.

I have plenty of questions and will be popping in to address them. Just wanted to give you a little background on little old me.

Thanks for listening,

Jodee

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