Maybe someone would have some advice....

[Guest guest]

I am Ida a married mother of 4 teenagers my husband is Ken he is 38

been mostly healthy his life we have been together 19 yrs married for

16.the thing is when he was 12 he broke his arm and a cyst was

discovered on lower forearm it was said to be non cancerous and thats

all that was said.In 1998 he was in a truck accident at work and he

had some pain.We had just bought a nice house everything was looking

up.in 99 the pain got worse he was sent to Cleveland clinic here in

Ohio diagnosed with osteoartheritus and fibromyalsia.Finally in 2000

he got a job driving truck with his uncle and the pain let up

some.Then in 2003 he started getting pain alot again in left Arm,hand

shoulder,around shoulder blades and sometimes chest pains made a few

trips to ER to rule out heart attack.He missed alot of work due to

pain then depression started kicking in.h has been in pain for years

now but as of Dec 04 when he went to get into bed his shoulder popped

very loudly.Drs couldnt find anything except bones are deformed and

some blood works come back abnormal.Sent him to a surgeon in Dayton

Ohio who diagnosed him with pagents disease he had surgery to remove

some bone from elbow because joint was crowded,and artheritus

scrapped from shoulder.I did my research and discovered that there

was alot more benificial things than just the vicodin the dr was

giving him to treat it so I talked to family Dr and he sent us to a

cancer Dr who put him on Aridia IV theraphy to strengthen

bones.helped some but not to much so they sent him to another dr and

another so far drs have said they think its pagents even though blood

work dont show and Artheritus,Fibromyalsia,emphazema,heartburn Reflux

problems and now Sarcoidosis.I was doing reading on it and some

symptoms are Chest pain,spots on skin,fatigue,depression,joint pain,

only things I didnt notice him having was enlarged liver or any

kidney problems.He was off work all but 3 months last year and hasnt

worked at all since july he has applied for disability.unable to go

to kids plays or sporting event cant sit very long.he now has MAJOR

DEPRESSION.They have him on Wellbutrin for it and Oxycotin40 mg 2xs

daily,hydromorphone 12 mg every 3-4 hrs,amitriptoline 75 mg,some over

the counter joint medication.he applied for social security last yr

and dec it was denied they said he can work doing light duty all 14

drs he has saw in past year say he cant work using left arm at all

EVER and cant till they get pain and depression under controle.So we

are appealing.it has been so rough lately on Easter he tooka

overdose.luckily got a ambulance and to hospital in time it didnt do

any damage.he said he is tired of being in pain feels nobody beleives

him,he dont feel like a father anymore or a husband since he is on

such strong meds and in such pain about the only thing he can do

anymore is lay on couch.Sexlife is gone,he cant drive anymore,he

didnt go with us to fair last year,cant go camping,dont play cards or

hang out with friends anymore because he cant stand to be around

people anymore,he has always been so sweet and loving and now he

snaps at everything....What are some of the best ways to be diagnosed

with this?the patches he has looks almost like a bright red rash

mostly on his face.This is really starting to tear us apart in every

way.We are located in NW Ohio