Re: persistent rash for 13 weeks

January 12, 2005

Vivian

I do remember you and it is good to hear from you. I'm sorry it has to be

something that is wrong that brought you back.

I have a rash on my lower legs which has gradually gotten worse, but it

itches and has not been spreading like it sounds your son's has.

My younger son, while a teenager, got what we called the creeping crud. It

was on the front of his one leg and kept getting worse. No one could figure

out what it was, but it spread rapidly. We never did find out what it was.

His scabbed over and really looked nasty. A physician's assistant debridged

(like they do with burns) the dead skin and opened up the entire sore. The

antibiotics were then able to work and other than a scar, he has no hint of

it ever again.

These are the only ones I'm aware of. I hope you get some answers soon. I'm

sure they looked at an allergic reaction to something.

laurie

>

> Reply-To:

> Date: Thu, 13 Jan 2005 04:36:10 -0000

> To:

> Subject: persistent rash for 13 weeks

>

> Hi, It has been a long time since I posted here. I needed a break

> for a time and then I was unable to connect due to a blocker we put

> on the computer.

>

> I hope that some of you will remember me. My name is Vivian and

> they first thought that I had MS and then discovered that I had MS

> and mitochondrial myopathy. (Dr. Peltier is my physician in

> Milwaukee). My son was seen in Cleveland; and although we did not

> get the muscle biopsy, (he improved significantly on the cocktail);

> the doctors think he also has mito.

>

> He has been well for sometime; but now has developed a rash that we

> have taken him to three doctors; (2 derms) tried six different

> lotions and creams and it is still getting worse. At first they

> said ezema, then psoriasis then pityria rosea, but now they aren't

> even sure about that. My peditrician called Cohen and asked him if

> he has ever heard of anything like this, but he said that he had not.

>

> It does not itch, but is uncomfortable, and is creeping onto his

> face and hands (which is going to make school difficult). I am

> beginning to worry about a systemic infection; considering that the

> skin is the largest organ and it is about covering it.

>

> Has anyone had anything remotely like this; does anyone have any

> ideas?

>

> I would be so grateful for any input.

>

> Vivian

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

> ----------------------------------------------------------------------------

>

January 13, 2005

Maybe the pharmacist can help you double check if any medications he

is on could cause the rash. Niacin can cause people to have skin

reactions, my dad had one to a certain brand (but not other brands,

weird). Also, an infectious disease specialist might someone to see.

Any chance it could be Lyme disease? I'm sorry you guys are going

through such a frustrating time...

If it doesn't itch, it sounds like it could be systemic as you

think. I don't recall exactly, but I think there are a few

autoimmune diseases that present with rashes, maybe a rheumatologist

then?

Take care,

RH

>

> Hi, It has been a long time since I posted here. I needed a break

> for a time and then I was unable to connect due to a blocker we put

> on the computer.

>

> I hope that some of you will remember me. My name is Vivian and

> they first thought that I had MS and then discovered that I had MS

> and mitochondrial myopathy. (Dr. Peltier is my physician in

> Milwaukee). My son was seen in Cleveland; and although we did not

> get the muscle biopsy, (he improved significantly on the cocktail);

> the doctors think he also has mito.

>

> He has been well for sometime; but now has developed a rash that we

> have taken him to three doctors; (2 derms) tried six different

> lotions and creams and it is still getting worse. At first they

> said ezema, then psoriasis then pityria rosea, but now they aren't

> even sure about that. My peditrician called Cohen and asked him if

> he has ever heard of anything like this, but he said that he had

not.

>

> It does not itch, but is uncomfortable, and is creeping onto his

> face and hands (which is going to make school difficult). I am

> beginning to worry about a systemic infection; considering that the

> skin is the largest organ and it is about covering it.

>

> Has anyone had anything remotely like this; does anyone have any

> ideas?

>

> I would be so grateful for any input.

>

> Vivian

January 13, 2005

Maybe the pharmacist can help you double check if any medications he

is on could cause the rash. Niacin can cause people to have skin

reactions, my dad had one to a certain brand (but not other brands,

weird). Also, an infectious disease specialist might someone to see.

Any chance it could be Lyme disease? I'm sorry you guys are going

through such a frustrating time...

If it doesn't itch, it sounds like it could be systemic as you

think. I don't recall exactly, but I think there are a few

autoimmune diseases that present with rashes, maybe a rheumatologist

then?

Take care,

RH

>

> Hi, It has been a long time since I posted here. I needed a break

> for a time and then I was unable to connect due to a blocker we put

> on the computer.

>

> I hope that some of you will remember me. My name is Vivian and

> they first thought that I had MS and then discovered that I had MS

> and mitochondrial myopathy. (Dr. Peltier is my physician in

> Milwaukee). My son was seen in Cleveland; and although we did not

> get the muscle biopsy, (he improved significantly on the cocktail);

> the doctors think he also has mito.

>

> He has been well for sometime; but now has developed a rash that we

> have taken him to three doctors; (2 derms) tried six different

> lotions and creams and it is still getting worse. At first they

> said ezema, then psoriasis then pityria rosea, but now they aren't

> even sure about that. My peditrician called Cohen and asked him if

> he has ever heard of anything like this, but he said that he had

not.

>

> It does not itch, but is uncomfortable, and is creeping onto his

> face and hands (which is going to make school difficult). I am

> beginning to worry about a systemic infection; considering that the

> skin is the largest organ and it is about covering it.

>

> Has anyone had anything remotely like this; does anyone have any

> ideas?

>

> I would be so grateful for any input.

>

> Vivian

January 13, 2005

Hi Vivian,

I am not sure what is causing the rash but my brother always had a rash on the

back of his leg all thru high school and I think still does. He went to a

dermatologist when he lived in Oklahoma a few years ago and he told me what it

was a while back but I do not remember what he said he was told it was. I will

ask email him and find out what it was.

Janet Sample

persistent rash for 13 weeks

Hi, It has been a long time since I posted here. I needed a break

for a time and then I was unable to connect due to a blocker we put

on the computer.

I hope that some of you will remember me. My name is Vivian and

they first thought that I had MS and then discovered that I had MS

and mitochondrial myopathy. (Dr. Peltier is my physician in

Milwaukee). My son was seen in Cleveland; and although we did not

get the muscle biopsy, (he improved significantly on the cocktail);

the doctors think he also has mito.

He has been well for sometime; but now has developed a rash that we

have taken him to three doctors; (2 derms) tried six different

lotions and creams and it is still getting worse. At first they

said ezema, then psoriasis then pityria rosea, but now they aren't

even sure about that. My peditrician called Cohen and asked him if

he has ever heard of anything like this, but he said that he had not.

It does not itch, but is uncomfortable, and is creeping onto his

face and hands (which is going to make school difficult). I am

beginning to worry about a systemic infection; considering that the

skin is the largest organ and it is about covering it.

Has anyone had anything remotely like this; does anyone have any

ideas?

I would be so grateful for any input.

Vivian

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

------------------------------------------------------------------------------

January 13, 2005