Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 More difficult than predicted but better than craniotomy, I'm sure. My long-time doctor called the GK Center and talked to them, bless his heart. I only found out later. His intervention made an enormous difference. They treated me like queen for a day and rearranged their schedule to fit my needs. The worst part, aside from getting up at 4 am, was the 4 screws in my head. I knew that was coming, but didn't know the weight of my head and shoulders would be suspended from those four screws for hours or that they would use the attached halo like a suitcase handle to move my head around willy-nilly! Talk about a sore head! Still having severe headaches and swelling but it's getting better. Will take up to a year to know for sure if tumor growth has been halted. If not, we do it again. B _____ From: Sent: Wednesday, February 23, 2005 3:57 PM To: Subject: Re: need for hydration * How did the gamma knife go? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Wow, sounds like a great deal of fun!!! Are the headaches and swelling something to be expected? I'm sure glad your long-time doc intervened and you were queen for a day at least. Hugs, Barbara Seaman wrote: >More difficult than predicted but better than craniotomy, I'm sure. My >long-time doctor called the GK Center and talked to them, bless his heart. I >only found out later. His intervention made an enormous difference. They >treated me like queen for a day and rearranged their schedule to fit my >needs. The worst part, aside from getting up at 4 am, was the 4 screws in my >head. I knew that was coming, but didn't know the weight of my head and >shoulders would be suspended from those four screws for hours or that they >would use the attached halo like a suitcase handle to move my head around >willy-nilly! Talk about a sore head! Still having severe headaches and >swelling but it's getting better. Will take up to a year to know for sure if >tumor growth has been halted. If not, we do it again. > > > >B > > > > _____ > >From: >Sent: Wednesday, February 23, 2005 3:57 PM >To: >Subject: Re: need for hydration > > > >* How did the gamma knife go? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Sorry to hear that you are experiencing severe headaches and swelling. Is that part of the side-effects from the surgery? Are they keeping a watch on your swelling? I remember reading and seeing that they have this device they put in your head to monitor the swelling in your brain. I am really glad to hear that your long time doc called them at the center and spoke to them. I can tell it made a world of a difference. Sure is nice being treated like a " Queen " especially since you are a " Queen " :-) A long time to wait to see if the Gamma Knife was successful or not, but I know it will be. Keeping you in my prayers. Hugs, Ann-Marie Re: need for hydration * How did the gamma knife go? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 --- Barbara, Iwill keep you in my prayers that this worked and you do not have to go through it again. Hope your head is feeling better. Hugs, Dawn A In , " Barbara Seaman " wrote: > More difficult than predicted but better than craniotomy, I'm sure. My > long-time doctor called the GK Center and talked to them, bless his heart. I > only found out later. His intervention made an enormous difference. They > treated me like queen for a day and rearranged their schedule to fit my > needs. The worst part, aside from getting up at 4 am, was the 4 screws in my > head. I knew that was coming, but didn't know the weight of my head and > shoulders would be suspended from those four screws for hours or that they > would use the attached halo like a suitcase handle to move my head around > willy-nilly! Talk about a sore head! Still having severe headaches and > swelling but it's getting better. Will take up to a year to know for sure if > tumor growth has been halted. If not, we do it again. > > > > B > > > > _____ > > From: [mailto:dgregori@w...] > Sent: Wednesday, February 23, 2005 3:57 PM > To: > Subject: Re: need for hydration > > > > * How did the gamma knife go? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 My face and scalp are swollen but hopefully the brain not. They tell you that if you have a headache that 2 tylenol won't kill, you need to go back in and see the neurosurgeon. Well, I have disobeyed their instructions and am nursing myself through this. I don't want a course of high-dose steroids which is what they would do. Things are gradually getting better. I know my body pretty well and feel more comfortable managing this recovery myself. There are no serious neurological indications. If there were, I would call my local neurologist pronto. Generally I am a compliant patient, but sometimes I trust my own judgment more than theirs. This is one of those cases. The high steroids really scare me. They have a very bad effect on me and I don't know how much function I would recover. B _____ From: Ann-Marie Sent: Wednesday, February 23, 2005 5:07 PM To: Subject: Re: RE: gamma knife Sorry to hear that you are experiencing severe headaches and swelling. Is that part of the side-effects from the surgery? Are they keeping a watch on your swelling? I remember reading and seeing that they have this device they put in your head to monitor the swelling in your brain. I am really glad to hear that your long time doc called them at the center and spoke to them. I can tell it made a world of a difference. Sure is nice being treated like a " Queen " especially since you are a " Queen " :-) A long time to wait to see if the Gamma Knife was successful or not, but I know it will be. Keeping you in my prayers. Hugs, Ann-Marie Re: need for hydration * How did the gamma knife go? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Thanks, Dawn. And I was sorry to read about your outcome at Mayo. I do hope you are able to find another path to answers and eventually get a fresh biopsy. It must be very difficult to start all over again. Hugs, B _____ From: dawnanich Sent: Wednesday, February 23, 2005 5:52 PM To: Subject: Re: gamma knife --- Barbara, Iwill keep you in my prayers that this worked and you do not have to go through it again. Hope your head is feeling better. Hugs, Dawn A In , " Barbara Seaman " wrote: > More difficult than predicted but better than craniotomy, I'm sure. My > long-time doctor called the GK Center and talked to them, bless his heart. I > only found out later. His intervention made an enormous difference. They > treated me like queen for a day and rearranged their schedule to fit my > needs. The worst part, aside from getting up at 4 am, was the 4 screws in my > head. I knew that was coming, but didn't know the weight of my head and > shoulders would be suspended from those four screws for hours or that they > would use the attached halo like a suitcase handle to move my head around > willy-nilly! Talk about a sore head! Still having severe headaches and > swelling but it's getting better. Will take up to a year to know for sure if > tumor growth has been halted. If not, we do it again. > > > > B > > > > _____ > > From: [mailto:dgregori@w...] > Sent: Wednesday, February 23, 2005 3:57 PM > To: > Subject: Re: need for hydration > > > > * How did the gamma knife go? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 --- Thanks , I am going to take a break for a while from dx testing and just start taking the cocktail. I want to concentrate on feeling better. testing can very emotional, esp when you are intially told it is psychosomatic. I'm sure you can relate. I am still waiting on the results from my skin biopsy...but am doubtful anything will show up. Hugs, DawnA In , " Barbara Seaman " wrote: > Thanks, Dawn. And I was sorry to read about your outcome at Mayo. I do hope > you are able to find another path to answers and eventually get a fresh > biopsy. It must be very difficult to start all over again. > > > > Hugs, > > B > > > > _____ > > From: dawnanich [mailto:Danich1@w...] > Sent: Wednesday, February 23, 2005 5:52 PM > To: > Subject: Re: gamma knife > > > > > --- Barbara, Iwill keep you in my prayers that this worked and you > do not have to go through it again. Hope your head is feeling better. > > Hugs, > Dawn A > > > > > In , " Barbara Seaman " > wrote: > > More difficult than predicted but better than craniotomy, I'm > sure. My > > long-time doctor called the GK Center and talked to them, bless > his heart. I > > only found out later. His intervention made an enormous > difference. They > > treated me like queen for a day and rearranged their schedule to > fit my > > needs. The worst part, aside from getting up at 4 am, was the 4 > screws in my > > head. I knew that was coming, but didn't know the weight of my > head and > > shoulders would be suspended from those four screws for hours or > that they > > would use the attached halo like a suitcase handle to move my head > around > > willy-nilly! Talk about a sore head! Still having severe headaches > and > > swelling but it's getting better. Will take up to a year to know > for sure if > > tumor growth has been halted. If not, we do it again. > > > > > > > > B > > > > > > > > _____ > > > > From: [mailto:dgregori@w...] > > Sent: Wednesday, February 23, 2005 3:57 PM > > To: > > Subject: Re: need for hydration > > > > > > > > * How did the gamma knife go? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Barbara, I am keeping you in my thoughts and prayers. I knew the Gamma Knife was coming up, but since it had to be postponed due to your insurance, I wasn't sure when it was. I hope that the headache lessens each day. Smiles, a On Wed, 23 Feb 2005 16:52:13 -0600 " Barbara Seaman " wheatchild@...> writes: More difficult than predicted but better than craniotomy, I'm sure. My long-time doctor called the GK Center and talked to them, bless his heart. I only found out later. His intervention made an enormous difference. They treated me like queen for a day and rearranged their schedule to fit my needs. The worst part, aside from getting up at 4 am, was the 4 screws in my head. I knew that was coming, but didn't know the weight of my head and shoulders would be suspended from those four screws for hours or that they would use the attached halo like a suitcase handle to move my head around willy-nilly! Talk about a sore head! Still having severe headaches and swelling but it's getting better. Will take up to a year to know for sure if tumor growth has been halted. If not, we do it again. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Thanks, a, much appreciated. I am making progress. B _____ From: a C Koch Sent: Thursday, February 24, 2005 7:28 AM To: Subject: Re: RE: gamma knife Barbara, I am keeping you in my thoughts and prayers. I knew the Gamma Knife was coming up, but since it had to be postponed due to your insurance, I wasn't sure when it was. I hope that the headache lessens each day. Smiles, a On Wed, 23 Feb 2005 16:52:13 -0600 " Barbara Seaman " wheatchild@...> writes: More difficult than predicted but better than craniotomy, I'm sure. My long-time doctor called the GK Center and talked to them, bless his heart. I only found out later. His intervention made an enormous difference. They treated me like queen for a day and rearranged their schedule to fit my needs. The worst part, aside from getting up at 4 am, was the 4 screws in my head. I knew that was coming, but didn't know the weight of my head and shoulders would be suspended from those four screws for hours or that they would use the attached halo like a suitcase handle to move my head around willy-nilly! Talk about a sore head! Still having severe headaches and swelling but it's getting better. Will take up to a year to know for sure if tumor growth has been halted. If not, we do it again. B Quote Link to comment Share on other sites More sharing options...
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