(Barbara)RE: gamma knife

[Guest guest]

Barbara,

I'm glad the actual GK procedure is behind you. (It sounded like a very tough

procedure to endure.) Please know my thoughts and vibes are with you during

your recovery. (So sorry for the pain and discomfort you are dealing with.)

My son is scheduled for his pre-op testing (labs, MRI, ct scan, mask fitting) on

March 1st. His FSR treatments begin on March 7th. He'll have daily radiation

treatments for the duration of that week.

I fully admit DH and I are very worried and my son is too.

Thinking of you.

Hugs,

Marie

Re: need for hydration

* How did the gamma knife go?

[Guest guest]

Oh, Marie! I've been thinking of you! Your info from the docs at JHH (who

could find nothing in the literature about the effects of radiation on mito

disease) really had an impact on my docs, made them much more appreciative

of the risks and made everyone much more willing to accommodate my special

needs. We did prevent worst-case scenarios-no seizures or stroke-like

episodes. I am now 10 days past and making more progress than I had expected

for this length of time. But I can certainly understand your concern. In

retrospect it's hard for me to sort out what really did cause the crash-and

I did have a grand crash. Probably a combination of factors: the grueling

schedule, the sedatives and the radiation. As my doc commented, the GK

schedule for one day was more than I do in a week, plus it disrupted all my

usual patterns of sleep, rest and activity. They only gave me one-quarter of

the usual Versed dose and in tiny increments, but it still had profound

negative effects on muscle. Picture a drunk noodle and you have the idea.

Factor in a sizeable dose of radiation and it all made for a crash. I can

only hope that for your son, spreading the radiation out over a week will

help prevent the worst effects. Will certainly keep you in my thoughts and

prayers and will put a post-it note on my monitor for your dates so I won't

forget!

Hugs,

Barbara

_____

From: Marie

Sent: Thursday, February 24, 2005 3:14 AM

To:

Subject: (Barbara)RE: gamma knife

Barbara,

I'm glad the actual GK procedure is behind you. (It sounded like a very

tough procedure to endure.) Please know my thoughts and vibes are with you

during your recovery. (So sorry for the pain and discomfort you are dealing

with.)

My son is scheduled for his pre-op testing (labs, MRI, ct scan, mask

fitting) on March 1st. His FSR treatments begin on March 7th. He'll have

daily radiation treatments for the duration of that week.

I fully admit DH and I are very worried and my son is too.

Thinking of you.

Hugs,

Marie

Re: need for hydration

* How did the gamma knife go?