RE: wish I had knew then what I know now

[Guest guest]

Ann,

I understand. I dont think you are alone at experiencing anger at first. I

know I did--mainly becuz my son had all these tummy problem signs and I

couldnt get a pediatrician to listen to me. I removed wheat and milk myself

and then when he was two , I took him to an allergy specialist and had him

tested for wheat/milk allergies and celiac. When the results were negative,

with the advice of the Dr. ., I took him off the diet. I had also mentioned

this to the Regional people and psychologist who often diagnoses autism and

no one said to me anything about this diet or that my son's seeming

sensitivities might mean something. Lots of wasted and lost time. Angry I

was. It takes time to work thru each new thing I think but now, I am just

glad we are making such progress on the diet. I still feel a little angry

though about it.

Hang in there and I wish you lots of improvement on the diet,

wish I had knew then what I know now

> Hi I have been reading the email from this group now

> for awhile almost with a since of anger that I did not know

> about this diet before my daughter had to end up being place it may have

made a big difference .in my daughter

> behavior at school. many time she was sent because " she

> was having a bad day " and they could not handle her. or

> we would get a phone call at 7:30 because her aid was

> sick and the other aids refuse to work with her and her child

> care worker was more worry about burning out the workers than she was

about me burning out. we have been going

> though hell for the pass two years has any one else gone though this.

sorry to unload everyone I'm just feeling angry.

> Ann

>

>

>

[Guest guest]

Ann -

I get angry about vaccines, I get angry about not knowing

about the diet, hell I get more anger about the doctors and school district

individuals who have no respect for me or my child and have no desire to

make life better for these kids.

This anger does nothing to help me know. I vote and buy

using the power that I have and in hopes that it influences influential

people, over time.

And drink a beer or two now and again.

Hang in there. Your reasons for anger are so valid.

Unfortunately, put that anger to good use. It is never to late to make

change possible.

Hugs,

A jeffs mom

Hi I have been reading the email from this group now

for awhile almost with a since of anger that I did not know

about this diet before my daughter had to end up being place

it may have made a big difference .in my daughter

behavior at school. many time she was sent because " she

was having a bad day " and they could not handle her. or

we would get a phone call at 7:30 because her aid was

sick and the other aids refuse to work with her and her

child

care worker was more worry about burning out the workers

than she was about me burning out. we have been going

though hell for the pass two years has any one else gone

though this. sorry to unload everyone I'm just feeling angry.

Ann

[Guest guest]

Ann -

I know exactly what you are going through. I have a lot of anger

about time lost, or about misinformation or any obstacle I have had

to jump over during this process. But I try not to beat myself up too

much about " if only " I just try to focus on the fact that now that I

have this knowledge I can act on it and move forward.

I once heard something in a weight watchers meeting that I found very

profound. If you fall down when you are walking down the street, you

don't just lie there forever, you get up and start walking again. We

are all walking down this path together and we will fall from time to

time, but we will get up and keep walking.

I am with Ackerman, put your anger to good use, I do that every

day. I read and research whenever I have the chance and I work toward

finding the right peices of the puzzle for my child. I try not to go

to a place of guilt or blame because it is counterproductive and it

isn't moving forward - I want to find out the cause of my son's

autism so I can treat him, but I want to focus on getting him better.

Later I will unleash my anger on those that are to blame, but only

when I feel that my energy isn't better spent elsewhere.

Hang in there - you are here among people who can help you on this

journey and among people who know how you feel. I thank God every day

for the internet. I would feel so alone without this resource of good

people.

Moira (who is in a motivational speaker mood today, apparently.)

mom to Vico (4 on Sunday, ASD) and Culzean (10 months)

[Guest guest]

RE: wish I had knew then what I know now

>

> behavior at school. many time she was sent because " she

> was having a bad day " and they could not handle her. or

> we would get a phone call at 7:30 because her aid was

> sick and the other aids refuse to work with her and her

> child

>

My friend had this same problem at her school, so she started leaving home

to run errands, etc. Then they called her hubby who was a teacher at the

school, expecting him to take their son!!! Finally, they moved to a better

district!

Love, Becky from OR

[Guest guest]

RE: wish I had knew then what I know now

>

> behavior at school. many time she was sent because " she

> was having a bad day " and they could not handle her. or

> we would get a phone call at 7:30 because her aid was

> sick and the other aids refuse to work with her and her

> child

>

My friend had this same problem at her school, so she started leaving home

to run errands, etc. Then they called her hubby who was a teacher at the

school, expecting him to take their son!!! Finally, they moved to a better

district!

Love, Becky from OR