Re: Strange questions?????

[Guest guest]

We started our son on the diet almost a month ago, and the improvement has

been dramatic. There was no withdrawal, just WONDERFUL improvements in all

areas. Any slips are always obvious too. He was diagnosed by the ped. as

borderline Asbergers and by the neurologist as being slightly on the

autistic spectrum. Good eye contact, good speech, but ritual behavior, lack

of empathy, sensory issues, tactile defensiveness, rages, poor social

skills, etc.

Hope this helps.

(Los Angeles)

Strange questions?????

> We started my younger son (6) on this diet 6 days ago!

>

> He is doing great! NO crying, NO screaming! I have a Celiac child, so we

do

> have many yummy GF foods in the house, but he doesn't like them all. He

> really hasn't had any negative reactions at all. He is eating exactly what

> his brother is eating for the most part, so he doesn't have to see someone

> else eating, But I was thinking that he would have a BAD Physical

reaction??

> He is not Autistic in the way you think about it. He is more like PDD,

> ADHD,Aspergers, He has SENSORY INTEGRATION DYSFUNCTION,severe(Has been

much

> improved with therapy), so he is probably under the Autism umbrella, he

goes

> to Neuro testing soon!

>

> I am curious why he is not reacting?????

> He is Hypoglycemic and when we cut his sugar intake down, he went

> NUTS!!!!!!!! Like an addict, he begged, screamed etc.... On day 7, he

calmed

> down and acted better than he had in his whole life, we still limit sugar.

> Parents just don't realize what an effect it has. My kids have never had

> Soda or a whole candy bar. Juice is the worst thing that parents could

give

> a 2 or 3 year old, yet I see drink box after drink box everywhere I go. I

> don't think one ped. tells a mom to give their kid WATER!!!!!!

Anyway......

>

> I am not seeing anything even remotely like this! Is it normal to have a

> delayed craving or reaction(Bad reaction I mean???) I have been bracing

> myself for it! I am assuming that he first Pizza he sees at school will be

> hard, or something like that, but that is different(More wanting to be

like

> everyone else, not craving it)

>

> Any thoughts would be great!

>

> Thanks, Laurie Renke

>

>

>

[Guest guest]

--My son is only cf so far (2 weeks) and he hasn't had one craving.

He is allowed " ice cream " (toffutti) ever night but has not asked for

cheese once. The only withdrawal symptom I think I saw was he was a

bit more hyper the first few days. I was kind of wondering the same

thing because I read all thses posts about kids craving things like

addicts and I'm not getting that reaction at all from my son. Makes

me wonder if I really am on the right track.

Irene

In GFCFKids@y..., " Custom Plumbing " wrote:

> We started our son on the diet almost a month ago, and the

improvement has

> been dramatic. There was no withdrawal, just WONDERFUL improvements

in all

> areas. Any slips are always obvious too. He was diagnosed by the

ped. as

> borderline Asbergers and by the neurologist as being slightly on the

> autistic spectrum. Good eye contact, good speech, but ritual

behavior, lack

> of empathy, sensory issues, tactile defensiveness, rages, poor

social

> skills, etc.

> Hope this helps.

>

> (Los Angeles)

> Strange questions?????

>

>

> > We started my younger son (6) on this diet 6 days ago!

> >

> > He is doing great! NO crying, NO screaming! I have a Celiac

child, so we

> do

> > have many yummy GF foods in the house, but he doesn't like them

all. He

> > really hasn't had any negative reactions at all. He is eating

exactly what

> > his brother is eating for the most part, so he doesn't have to

see someone

> > else eating, But I was thinking that he would have a BAD Physical

> reaction??

> > He is not Autistic in the way you think about it. He is more like

PDD,

> > ADHD,Aspergers, He has SENSORY INTEGRATION DYSFUNCTION,severe

(Has been

> much

> > improved with therapy), so he is probably under the Autism

umbrella, he

> goes

> > to Neuro testing soon!

> >

> > I am curious why he is not reacting?????

> > He is Hypoglycemic and when we cut his sugar intake down, he went

> > NUTS!!!!!!!! Like an addict, he begged, screamed etc.... On day

7, he

> calmed

> > down and acted better than he had in his whole life, we still

limit sugar.

> > Parents just don't realize what an effect it has. My kids have

never had

> > Soda or a whole candy bar. Juice is the worst thing that parents

could

> give

> > a 2 or 3 year old, yet I see drink box after drink box everywhere

I go. I

> > don't think one ped. tells a mom to give their kid WATER!!!!!!

> Anyway......

> >

> > I am not seeing anything even remotely like this! Is it normal to

have a

> > delayed craving or reaction(Bad reaction I mean???) I have been

bracing

> > myself for it! I am assuming that he first Pizza he sees at

school will be

> > hard, or something like that, but that is different(More wanting

to be

> like

> > everyone else, not craving it)

> >

> > Any thoughts would be great!

> >

> > Thanks, Laurie Renke

> >

> >

> >

[Guest guest]

(Los Angeles)

How old is your child that is borderline Aspergers.?

[Guest guest]

(Los Angeles)

How old is your child that is borderline Aspergers.?

[Guest guest]

I took Evan casein free twice a year before we finally went gfcf. I did not

see a difference so we stopped. Finally I heard Karyn Seroussi speak and

realized that Evan needed to go 100% with the full gfcf diet. We have not

seem complete recovery but we have seen a young boy who now participates

more with those at school, church and home. It is well worth it. Keep on

going and take out the gluten before you give up. Don't waste a couple of

years like I did. You may regret in two years. I do.

Betty

----- Original Message -----

> --My son is only cf so far (2 weeks) and he hasn't had one craving.

> He is allowed " ice cream " (toffutti) ever night but has not asked for

> cheese once. The only withdrawal symptom I think I saw was he was a

> bit more hyper the first few days. I was kind of wondering the same

> thing because I read all thses posts about kids craving things like

> addicts and I'm not getting that reaction at all from my son. Makes

> me wonder if I really am on the right track.

>

> Irene

[Guest guest]

Hi Irene,

Austin doesn't seem to crave foods either. At least not like an addict type

craving. He has always loved chocolate and is happy when he gets " special "

chocolate. However, Austin did go through terrible withdrawal for about a

week. I think every kid reacts differently. I took Austin off both gluten

and casien on the same day. Also, I had help with the diet and in the

beginning dedicated one cupboard of food that was totally gluten and casien

free so that there were no slip ups.

Mom to Austin (Recovered from PDD) and (NT) 4.11 twins

bit more hyper the first few days. I was kind of wondering the same

> thing because I read all thses posts about kids craving things like

> addicts and I'm not getting that reaction at all from my son. Makes

> me wonder if I really am on the right track.

>

> Irene

>

>

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[Guest guest]

> Did you do any other therapies, or metal detox for your son??

Hi ,

Austin's other big gain came with Auditory Integration Therapy. In fact, I

am going to put him through another round next month. When they did the

re-evaluation recently, he scored in the average range on the verbal testing

and superior level on the non-verbal testing. The psychologist said that he

suspects that Austin has an auditory processing concern. Simply put, he has

difficulty understanding what he hears. AIT made a huge difference the

first time and I am hoping that the second round will help with the rest.

In the mean time, being average isn't so bad -- right? (I say that because

his mom is average

The doctor said once we help him with the auditory issues the scores will

come up to the superior range. His speech and language therapist has always

treated him as though he had an auditory processing issue.

Other therapies:

I put him on magnesuim and B6 the same week I started the diet. Later we

went to Super nu Thera.

Speech and Language (2x a week privately, 2x week at school)

Pragmatics Therapy (1x a week)

Physical Therapy, Occupational Therapy, Sensory Integration Therapy (1x

week)

PPI classroom

Special School that has OT on Monday, PT on Tuesday, SLT on Wednesday,

Psychologist on Thursday (2.5 hrs a day)

We found bad bacteria (klebzyella) in the gut and treated that with Uva

Ursa. After years of diarreha, Austin is finally having normal BM's.

AIT helped him tremendously. But the diet was the thing that was absolutely

necessary to bring him back. The other therapies are much needed to regain

what Austin missed while he was 'lost to us.'

In the past, I have seen regression with the slightest infraction on the

diet. He is 100% gluten and casien free. Now that we have gotten rid of

the klebzyella, I am hoping that minor infractions will be tolerated. Time

will tell.

Rating the therapies

1) Diet & AIT

2) Vitamins (Super nu Thera, calcium) & Treating the gut for the klebzyella

3) SLT

4) PT, OT, SIT

We did one round of chelation but had to stop because Austin's levels of

calcium and other (good) metals were so low. We are building him up now in

preparation for chelation. However, he is doing so good that I am not sure

if we will go ahead with the chelation. We pulled out some arsenic and

antimony (fire retardant) with the first round. No mercury -- but our DAN

doctor said that it will probably take a couple of rounds to get it out.

Mom to Austin (Recovered from PDD) and (NT) 4.11 twins

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[Guest guest]

: wow, what great results. Was your son over or underresponsive to

sounds, etc. i.e, did he cover his ears a lot, or not at all. I have heard

conflicting reports on AIT. I am glad you got a great outcome. Where do you

live, which DAN doctor do you go to? THanks,

[Guest guest]

: wow, what great results. Was your son over or underresponsive to

sounds, etc. i.e, did he cover his ears a lot, or not at all. I have heard

conflicting reports on AIT. I am glad you got a great outcome. Where do you

live, which DAN doctor do you go to? THanks,

[Guest guest]

: thanks for the response re your son and AIT. Your son sounds like

mine, i am thinking of trying this. Again, thanks, in CA.

[Guest guest]

Hi ,

In the beginning Austin seemed unresponsive to most sound -- except the mall

and the sound of the boat engine, applause. Any time we got on a boat or

went to a mall, he would have problems -- running off and uncontrollable.

With AIT, he became sound sensitive for a period. I believe he was actually

hearing correctly for the first time and it too a while to adjust.

We live in a small town north of Rochester, Michigan and see Dr. Ng.

Re: Strange questions?????

> : wow, what great results. Was your son over or underresponsive to

sounds, etc. i.e, did he cover his ears a lot, or not at all. I have

heard conflicting reports on AIT. I am glad you got a great outcome. Where

do you live, which DAN doctor do you go to? THanks,

>

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[Guest guest]

Hi ,

In the beginning Austin seemed unresponsive to most sound -- except the mall

and the sound of the boat engine, applause. Any time we got on a boat or

went to a mall, he would have problems -- running off and uncontrollable.

With AIT, he became sound sensitive for a period. I believe he was actually

hearing correctly for the first time and it too a while to adjust.

We live in a small town north of Rochester, Michigan and see Dr. Ng.

Re: Strange questions?????

> : wow, what great results. Was your son over or underresponsive to

sounds, etc. i.e, did he cover his ears a lot, or not at all. I have

heard conflicting reports on AIT. I am glad you got a great outcome. Where

do you live, which DAN doctor do you go to? THanks,

>

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