Update on

[Guest guest]

I am so glad to hear is doing well. Don't dread the bar too

much! There are lots of bad stories that turn out great. You tend to

hear more about those than the smooth transitions, because people

need more help with the bad stories. Zoe got her FAB at 2 months and

other than a small blister has done really well with it.

Louisa

6-27-99

Zoe 2-22-04 RCF FAB 18/7

>

> is almost 11 months and just started treatment with a Ponseti

> doctor at Shriner's Hospital in Springfield, MA. He had his first

> casts put on last week and we went to have them changed today. His

> right foot was really improved by a lot and the doctor's assistant

> and I were really encouraged by that. His left foot is tighter and

> tends to be more stubborn, but I'm sure it will come along too.

>

> We flew down to MA on Angel Flight, which made the trip much

easier,

> although it was still a long day. I'm beginning to dread the shoes

> and bar from the posts I've been reading here, but am looking

forward

> to not having to make weekly trips to the doctor.

[Guest guest]

I am so glad to hear is doing well. Don't dread the bar too

much! There are lots of bad stories that turn out great. You tend to

hear more about those than the smooth transitions, because people

need more help with the bad stories. Zoe got her FAB at 2 months and

other than a small blister has done really well with it.

Louisa

6-27-99

Zoe 2-22-04 RCF FAB 18/7

>

> is almost 11 months and just started treatment with a Ponseti

> doctor at Shriner's Hospital in Springfield, MA. He had his first

> casts put on last week and we went to have them changed today. His

> right foot was really improved by a lot and the doctor's assistant

> and I were really encouraged by that. His left foot is tighter and

> tends to be more stubborn, but I'm sure it will come along too.

>

> We flew down to MA on Angel Flight, which made the trip much

easier,

> although it was still a long day. I'm beginning to dread the shoes

> and bar from the posts I've been reading here, but am looking

forward

> to not having to make weekly trips to the doctor.

[Guest guest]

Hi. I am not sure if this latest update was posted or not, but

is out of the PICU and into a regular room. She is still getting TPN,

but is also starting to eat some regular food. This is good and

hopefully everything will start back on the road to a good recovery for

her.

Smiles,

a

[Guest guest]

In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

daniel111@... writes:

Has anyone else experienced pain in their stomach after chemo? Guess

we'll find out tomorrow. I have my fingers crossed that it is

nothing as I don't know if we can handle more bad news.

Hi Dan and !!

So sorry the chemo is knocking for a loop...she's only down for a bit,

tho!! She'll be back up and fighting soon!! I'm glad you are getting the

pain checked out, but fyi Glenn has had lower ab pain ever since his colon

resection...more so now with the weekly fluid build up problem he has. Praying

for good results today!! Hang in there, ...tell the young body of yours

to " Fight, damn it!!! "

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

daniel111@... writes:

Has anyone else experienced pain in their stomach after chemo? Guess

we'll find out tomorrow. I have my fingers crossed that it is

nothing as I don't know if we can handle more bad news.

Hi Dan and !!

So sorry the chemo is knocking for a loop...she's only down for a bit,

tho!! She'll be back up and fighting soon!! I'm glad you are getting the

pain checked out, but fyi Glenn has had lower ab pain ever since his colon

resection...more so now with the weekly fluid build up problem he has. Praying

for good results today!! Hang in there, ...tell the young body of yours

to " Fight, damn it!!! "

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

daniel111@... writes:

Has anyone else experienced pain in their stomach after chemo? Guess

we'll find out tomorrow. I have my fingers crossed that it is

nothing as I don't know if we can handle more bad news.

Hi Dan and !!

So sorry the chemo is knocking for a loop...she's only down for a bit,

tho!! She'll be back up and fighting soon!! I'm glad you are getting the

pain checked out, but fyi Glenn has had lower ab pain ever since his colon

resection...more so now with the weekly fluid build up problem he has. Praying

for good results today!! Hang in there, ...tell the young body of yours

to " Fight, damn it!!! "

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Hi Dan, So sorry that had dropped blood counts. That can

account for a lot of tiredness as well as some aches and pains. But

you are right in checking it out. I know is getting sick and

tired of the chemo. That is normal. It does get you down at times.

And it sounds like ia a real go-getter and feeling down can

really be fustrating.

I too had gotten real down and wanted the chemo done with. But the

doctor told me something that made me push on. It was give me six

months of your life and I will give you a life time. (cancer free).

Maybe that would encourage Marie to go on. It is all her choice. But

I can understand her fustrations. I hope she feels better. Am Praying

for all of you. Ingrid

> Sorry everyone that I haven't been in here for a while. Hate to

use

> the excuse that I've been busy, but it is true. I should not be

too

> busy to come in here though.

>

> My wife is doing okay. She had to postpone her 3rd chemo

> treatment because her counts were rock bottom. She also started

> getting a fever so that kind of scared the hell out of me. Took

her

> in on a Monday and they said her count was starting to come back

up.

> It was coming up so well that they wanted to reschedule the chemo

for

> that Thursday. But wouldn't have anything to do with that.

She

> told them " I'm taking this week off! " and scheduled it for last

> Thursday.

>

> We went in and talked to the oncologist and he said that the chemo

> dropped her blood counts way too low so they were going to cut back

> the dosage about 20%. He went on to explain that the way they

figure

> out how much chemo to give you is based on something they came up

> with back in the 60's. He said it was outdated but that there

wasn't

> another method that has been proven effective yet. He stated that

> they normally have to wait for 4-6 weeks after the 1st chemo

> treatment to see what goes on. He said that the chemo kind of

cycles

> in 4-6 weeks. Once they see what is going on they can increase or

> decrease the chemo from there. He said matter-of-factly that the

> chemo really did its work on her this time.

>

> She got her chemo treatment on Thursday and it lasted about 5 hours

> again. She gets a little irritated that she has to sit there for

> that long. Fortunately there are some other women in there that

she

> has developed a relationship with that she can talk to. Afterwards

> she went and had her chemo pump hooked up. She was really tired

> afterwards which from our limited experience is pretty much the

> standard side effect she is getting. Normally she is down all

> weekend but yesterday (Sunday) she was up and about. She had

gotten

> her energy back a little bit and it wasn't going to slow her down.

>

> Other than that we are supposed to see the gastroenterologist

> tomorrow (he discovered the cancer) concerning her Cat Scan she had

a

> couple of weeks ago. She has been feeling some pain off and on in

> her stomach and rear end so we were a little concerned with that.

> When we talked to the oncologist we told him that we were going to

> see the gastroenterologist on Tuesday and told him why. He said

any

> pain concerns them so he definately wanted a copy of the results.

He

> went on to say that sometimes when they remove a section of the

colon

> that when it heals it can tighten up making poopin' painful. He

> didn't say what they could do about it, but said that it could be

> corrected. Her pain during the 2 weeks off from the 3rd chemo

> treatment went down so I am guessing it has a bit to do with the

> chemo drugs. I am hopeful that if there was something serious the

> gastroenterologist would have called us immediately to discuss or

> schedule more tests.

>

> Has anyone else experienced pain in their stomach after chemo?

Guess

> we'll find out tomorrow. I have my fingers crossed that it is

> nothing as I don't know if we can handle more bad news.

>

> Dan

[Guest guest]

Dan & Donelle:

What wonderful partners you are to your sick spouses. Glen and are

very lucky indeed. You are their inspiration -- the wind beneath their wings

-- and you should be proud.

in California

Donelle,

Give our best to Glenn. Her pain comes and goes and isn't

constant, the only constant thing is pain when she, well poops.

She'd kick my butt if she knew I was writing about her poopin'. She

is a fighter though and won't let this keep her down long. Sometimes

I think it does but she tries not to show it. Taking the week off

from chemo did her wonders. She was getting back to her old self. I

keep telling her, 3 down 9 to go. I actually in a way look forward

to her appointments cause I know it is kicking the crap out of any

cancer left in her body and that when it is all over I'll have her

back to the way she was. Okay maybe not 100% back to the way she was

but better than she feels now.

Hugs,

Dan &

>

> In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

> daniel111@c... writes:

>

> Has anyone else experienced pain in their stomach after chemo?

Guess

> we'll find out tomorrow. I have my fingers crossed that it is

> nothing as I don't know if we can handle more bad news.

>

>

>

> Hi Dan and !!

>

> So sorry the chemo is knocking for a loop...she's only down

for a bit,

> tho!! She'll be back up and fighting soon!! I'm glad you are

getting the

> pain checked out, but fyi Glenn has had lower ab pain ever since

his colon

> resection...more so now with the weekly fluid build up problem he

has. Praying

> for good results today!! Hang in there, ...tell the young

body of yours

> to " Fight, damn it!!! "

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

> [Non-text portions of this message have been removed]

[Guest guest]

Donelle,

Give our best to Glenn. Her pain comes and goes and isn't

constant, the only constant thing is pain when she, well poops.

She'd kick my butt if she knew I was writing about her poopin'. She

is a fighter though and won't let this keep her down long. Sometimes

I think it does but she tries not to show it. Taking the week off

from chemo did her wonders. She was getting back to her old self. I

keep telling her, 3 down 9 to go. I actually in a way look forward

to her appointments cause I know it is kicking the crap out of any

cancer left in her body and that when it is all over I'll have her

back to the way she was. Okay maybe not 100% back to the way she was

but better than she feels now.

Hugs,

Dan &

>

> In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

> daniel111@c... writes:

>

> Has anyone else experienced pain in their stomach after chemo?

Guess

> we'll find out tomorrow. I have my fingers crossed that it is

> nothing as I don't know if we can handle more bad news.

>

>

>

> Hi Dan and !!

>

> So sorry the chemo is knocking for a loop...she's only down

for a bit,

> tho!! She'll be back up and fighting soon!! I'm glad you are

getting the

> pain checked out, but fyi Glenn has had lower ab pain ever since

his colon

> resection...more so now with the weekly fluid build up problem he

has. Praying

> for good results today!! Hang in there, ...tell the young

body of yours

> to " Fight, damn it!!! "

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

[Guest guest]

Ingrid,

There was a few days or moments there where she was ready to quit

chemo all together. But despite the bad effects of it she knows that

it will make her better in the end. She hates the side effects, but

knows that is all part of it. She is trying to lead a normal life

but sometimes she just had to break down and let it all out. She

tries not to make me worry but knows that if she doesn't tell me if

something is wrong, then I worry more. She knows that I can tell

when she isn't feeling well so she is getting better about not trying

to hide it. She said yesterday " I'm all drugged up " . This comes

from a woman who before all of this wouldn't even take aspirin for a

headache. She is the healthiest person I know. Hell, I'm sure she

is healthier than me. I'll tell her about what the doctor told you,

I think that will help her through it. Thanks a million!

Hugs,

Dan &

> > Sorry everyone that I haven't been in here for a while. Hate to

> use

> > the excuse that I've been busy, but it is true. I should not be

> too

> > busy to come in here though.

> >

> > My wife is doing okay. She had to postpone her 3rd chemo

> > treatment because her counts were rock bottom. She also started

> > getting a fever so that kind of scared the hell out of me. Took

> her

> > in on a Monday and they said her count was starting to come back

> up.

> > It was coming up so well that they wanted to reschedule the chemo

> for

> > that Thursday. But wouldn't have anything to do with that.

> She

> > told them " I'm taking this week off! " and scheduled it for last

> > Thursday.

> >

> > We went in and talked to the oncologist and he said that the

chemo

> > dropped her blood counts way too low so they were going to cut

back

> > the dosage about 20%. He went on to explain that the way they

> figure

> > out how much chemo to give you is based on something they came up

> > with back in the 60's. He said it was outdated but that there

> wasn't

> > another method that has been proven effective yet. He stated

that

> > they normally have to wait for 4-6 weeks after the 1st chemo

> > treatment to see what goes on. He said that the chemo kind of

> cycles

> > in 4-6 weeks. Once they see what is going on they can increase

or

> > decrease the chemo from there. He said matter-of-factly that the

> > chemo really did its work on her this time.

> >

> > She got her chemo treatment on Thursday and it lasted about 5

hours

> > again. She gets a little irritated that she has to sit there for

> > that long. Fortunately there are some other women in there that

> she

> > has developed a relationship with that she can talk to.

Afterwards

> > she went and had her chemo pump hooked up. She was really tired

> > afterwards which from our limited experience is pretty much the

> > standard side effect she is getting. Normally she is down all

> > weekend but yesterday (Sunday) she was up and about. She had

> gotten

> > her energy back a little bit and it wasn't going to slow her

down.

> >

> > Other than that we are supposed to see the gastroenterologist

> > tomorrow (he discovered the cancer) concerning her Cat Scan she

had

> a

> > couple of weeks ago. She has been feeling some pain off and on

in

> > her stomach and rear end so we were a little concerned with

that.

> > When we talked to the oncologist we told him that we were going

to

> > see the gastroenterologist on Tuesday and told him why. He said

> any

> > pain concerns them so he definately wanted a copy of the

results.

> He

> > went on to say that sometimes when they remove a section of the

> colon

> > that when it heals it can tighten up making poopin' painful. He

> > didn't say what they could do about it, but said that it could be

> > corrected. Her pain during the 2 weeks off from the 3rd chemo

> > treatment went down so I am guessing it has a bit to do with the

> > chemo drugs. I am hopeful that if there was something serious

the

> > gastroenterologist would have called us immediately to discuss or

> > schedule more tests.

> >

> > Has anyone else experienced pain in their stomach after chemo?

> Guess

> > we'll find out tomorrow. I have my fingers crossed that it is

> > nothing as I don't know if we can handle more bad news.

> >

> > Dan

[Guest guest]

,

Thank you for your kind words. I'm not sure how Donelle feels but

has always been my whole world and nothing will ever change

that.

Hugs,

Dan &

> >

> > In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

> > daniel111@c... writes:

> >

> > Has anyone else experienced pain in their stomach after chemo?

> Guess

> > we'll find out tomorrow. I have my fingers crossed that it is

> > nothing as I don't know if we can handle more bad news.

> >

> >

> >

> > Hi Dan and !!

> >

> > So sorry the chemo is knocking for a loop...she's only

down

> for a bit,

> > tho!! She'll be back up and fighting soon!! I'm glad you are

> getting the

> > pain checked out, but fyi Glenn has had lower ab pain ever

since

> his colon

> > resection...more so now with the weekly fluid build up problem

he

> has. Praying

> > for good results today!! Hang in there, ...tell the

young

> body of yours

> > to " Fight, damn it!!! "

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> > [Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

,

Thank you for your kind words. I'm not sure how Donelle feels but

has always been my whole world and nothing will ever change

that.

Hugs,

Dan &

> >

> > In a message dated 8/8/2005 9:00:18 AM Eastern Standard Time,

> > daniel111@c... writes:

> >

> > Has anyone else experienced pain in their stomach after chemo?

> Guess

> > we'll find out tomorrow. I have my fingers crossed that it is

> > nothing as I don't know if we can handle more bad news.

> >

> >

> >

> > Hi Dan and !!

> >

> > So sorry the chemo is knocking for a loop...she's only

down

> for a bit,

> > tho!! She'll be back up and fighting soon!! I'm glad you are

> getting the

> > pain checked out, but fyi Glenn has had lower ab pain ever

since

> his colon

> > resection...more so now with the weekly fluid build up problem

he

> has. Praying

> > for good results today!! Hang in there, ...tell the

young

> body of yours

> > to " Fight, damn it!!! "

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> > [Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

Dan, Sounds like is really a fighter.

I can understand her feelings of being all drugged up. I too did

not even take anything before this cancer. Then WHAMO!!!! All kinds

of drugs. They tell you take this for that and on and on. The worst

part is we all know and understand that each drug we take has good

effects and bad. I get sick when I think of all the stuff that has

been pumped into me. I mean how much can one's body handle? But she

will make it through it.

Remind her that there will be an end to this. Right now the end

still seems too far out of reach for her. But there will be an end

and she will feel so much better.

I am Praying that they find that there is nothing else wrong with

her. Could be stress just doing this. Yes, pooping can still be

painful after all of this. Could be the chemo doing this. Hopeing

that all goes well. Ingrid

> > > Sorry everyone that I haven't been in here for a while. Hate

to

> > use

> > > the excuse that I've been busy, but it is true. I should not

be

> > too

> > > busy to come in here though.

> > >

> > > My wife is doing okay. She had to postpone her 3rd chemo

> > > treatment because her counts were rock bottom. She also

started

> > > getting a fever so that kind of scared the hell out of me.

Took

> > her

> > > in on a Monday and they said her count was starting to come

back

> > up.

> > > It was coming up so well that they wanted to reschedule the

chemo

> > for

> > > that Thursday. But wouldn't have anything to do with

that.

> > She

> > > told them " I'm taking this week off! " and scheduled it for last

> > > Thursday.

> > >

> > > We went in and talked to the oncologist and he said that the

> chemo

> > > dropped her blood counts way too low so they were going to cut

> back

> > > the dosage about 20%. He went on to explain that the way they

> > figure

> > > out how much chemo to give you is based on something they came

up

> > > with back in the 60's. He said it was outdated but that there

> > wasn't

> > > another method that has been proven effective yet. He stated

> that

> > > they normally have to wait for 4-6 weeks after the 1st chemo

> > > treatment to see what goes on. He said that the chemo kind of

> > cycles

> > > in 4-6 weeks. Once they see what is going on they can increase

> or

> > > decrease the chemo from there. He said matter-of-factly that

the

> > > chemo really did its work on her this time.

> > >

> > > She got her chemo treatment on Thursday and it lasted about 5

> hours

> > > again. She gets a little irritated that she has to sit there

for

> > > that long. Fortunately there are some other women in there

that

> > she

> > > has developed a relationship with that she can talk to.

> Afterwards

> > > she went and had her chemo pump hooked up. She was really

tired

> > > afterwards which from our limited experience is pretty much the

> > > standard side effect she is getting. Normally she is down all

> > > weekend but yesterday (Sunday) she was up and about. She had

> > gotten

> > > her energy back a little bit and it wasn't going to slow her

> down.

> > >

> > > Other than that we are supposed to see the gastroenterologist

> > > tomorrow (he discovered the cancer) concerning her Cat Scan she

> had

> > a

> > > couple of weeks ago. She has been feeling some pain off and on

> in

> > > her stomach and rear end so we were a little concerned with

> that.

> > > When we talked to the oncologist we told him that we were going

> to

> > > see the gastroenterologist on Tuesday and told him why. He

said

> > any

> > > pain concerns them so he definately wanted a copy of the

> results.

> > He

> > > went on to say that sometimes when they remove a section of the

> > colon

> > > that when it heals it can tighten up making poopin' painful.

He

> > > didn't say what they could do about it, but said that it could

be

> > > corrected. Her pain during the 2 weeks off from the 3rd chemo

> > > treatment went down so I am guessing it has a bit to do with

the

> > > chemo drugs. I am hopeful that if there was something serious

> the

> > > gastroenterologist would have called us immediately to discuss

or

> > > schedule more tests.

> > >

> > > Has anyone else experienced pain in their stomach after chemo?

> > Guess

> > > we'll find out tomorrow. I have my fingers crossed that it is

> > > nothing as I don't know if we can handle more bad news.

> > >

> > > Dan

[Guest guest]

In a message dated 8/8/2005 9:04:29 PM Eastern Standard Time,

daniel111@... writes:

Donelle,

Give our best to Glenn. Her pain comes and goes and isn't

constant, the only constant thing is pain when she, well poops.

She'd kick my butt if she knew I was writing about her poopin'. She

is a fighter though and won't let this keep her down long. Sometimes

I think it does but she tries not to show it. Taking the week off

from chemo did her wonders. She was getting back to her old self. I

keep telling her, 3 down 9 to go. I actually in a way look forward

to her appointments cause I know it is kicking the crap out of any

cancer left in her body and that when it is all over I'll have her

back to the way she was. Okay maybe not 100% back to the way she was

but better than she feels now.

Hugs,

Dan &

Those little " chemo vacations " do help tremendously to let the body

rejuvenate. Don't be disheartened, but I know how you feel about her getting

each

treatment and knowing that is " kicking butt " on that dreaded disease within her

beautiful body. Tell we all talk about poopin'....no big deal!!! We

have all kinds of " poopers " here!! And all kinds of pooper problems!! LOL

Seriously, she is so tiny, she may not be able to get through all of the 12

treatments, but the more she gets, the better off she is!!! And if she has to

take a week off every now and then, it does drag it out, but it's o.k.

She'll get through this, with you right beside her!!! And we'll be here for

both

of you!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 8/8/2005 9:04:29 PM Eastern Standard Time,

daniel111@... writes:

Donelle,

Give our best to Glenn. Her pain comes and goes and isn't

constant, the only constant thing is pain when she, well poops.

She'd kick my butt if she knew I was writing about her poopin'. She

is a fighter though and won't let this keep her down long. Sometimes

I think it does but she tries not to show it. Taking the week off

from chemo did her wonders. She was getting back to her old self. I

keep telling her, 3 down 9 to go. I actually in a way look forward

to her appointments cause I know it is kicking the crap out of any

cancer left in her body and that when it is all over I'll have her

back to the way she was. Okay maybe not 100% back to the way she was

but better than she feels now.

Hugs,

Dan &

Those little " chemo vacations " do help tremendously to let the body

rejuvenate. Don't be disheartened, but I know how you feel about her getting

each

treatment and knowing that is " kicking butt " on that dreaded disease within her

beautiful body. Tell we all talk about poopin'....no big deal!!! We

have all kinds of " poopers " here!! And all kinds of pooper problems!! LOL

Seriously, she is so tiny, she may not be able to get through all of the 12

treatments, but the more she gets, the better off she is!!! And if she has to

take a week off every now and then, it does drag it out, but it's o.k.

She'll get through this, with you right beside her!!! And we'll be here for

both

of you!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

>>>Tell we all talk about poopin'....no big deal!!! We

have all kinds of " poopers " here!! And all kinds of pooper problems!! LOL

Seriously, she is so tiny, she may not be able to get through all of the 12

treatments, but the more she gets, the better off she is!!! >>>

Boy, you got that right!! I just talk " poopytalk " all the time!LOLOL I mean, how

many people do you know that carry a litterbox???

And being very small does make a difference in treatments. At least it does

concerning chemos for gynecological cancers, so I assume it probably is true for

all types. I was scheduled for 6 chemos, 3 weeks apart as part of the clinical

trial I was in. I only made it through 4. I knew I would not survive number 5,

and told them so. After checking my blood levels, toxicity, etc....they agreed

and pulled me from further treatments.

Tell hello for me!!

nancy j

----------

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Checked by AVG Anti-Virus.

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[Guest guest]

>>>Tell we all talk about poopin'....no big deal!!! We

have all kinds of " poopers " here!! And all kinds of pooper problems!! LOL

Seriously, she is so tiny, she may not be able to get through all of the 12

treatments, but the more she gets, the better off she is!!! >>>

Boy, you got that right!! I just talk " poopytalk " all the time!LOLOL I mean, how

many people do you know that carry a litterbox???

And being very small does make a difference in treatments. At least it does

concerning chemos for gynecological cancers, so I assume it probably is true for

all types. I was scheduled for 6 chemos, 3 weeks apart as part of the clinical

trial I was in. I only made it through 4. I knew I would not survive number 5,

and told them so. After checking my blood levels, toxicity, etc....they agreed

and pulled me from further treatments.

Tell hello for me!!

nancy j

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[Guest guest]

LOL!!! I always said I would not do " poopy talk " .... My hubby used to

go into discourse on size and shape of his " turds " .. I had to walk away,

could not listen.

Promised myself If I ever started talking about my turds I would have

myself committed or something. But here I am, well at least not talking

about turds anyway. Frequency and consistency is acceptable though. LOL...

That is enough for now. Still planning to wash some clothes but the

thunderstorms are circling around again. My garage is not attached to

house, so get wet when I go out to do wash etc. What a mess, but we need

the rain desperately. Take care all. Jolene

wrote:

> >>>Tell we all talk about poopin'....no big deal!!! We

> have all kinds of " poopers " here!! And all kinds of pooper

> problems!! LOL

> Seriously, she is so tiny, she may not be able to get through all of

> the 12

> treatments, but the more she gets, the better off she is!!! >>>

>

> Boy, you got that right!! I just talk " poopytalk " all the time!LOLOL I

> mean, how many people do you know that carry a litterbox???

> And being very small does make a difference in treatments. At least it

> does concerning chemos for gynecological cancers, so I assume it

> probably is true for all types. I was scheduled for 6 chemos, 3 weeks

> apart as part of the clinical trial I was in. I only made it through

> 4. I knew I would not survive number 5, and told them so. After

> checking my blood levels, toxicity, etc....they agreed and pulled me

> from further treatments.

> Tell hello for me!!

> nancy j

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.0/63 - Release Date: 8/3/2005

>

>

>

[Guest guest]

LOL!!! I always said I would not do " poopy talk " .... My hubby used to

go into discourse on size and shape of his " turds " .. I had to walk away,

could not listen.

Promised myself If I ever started talking about my turds I would have

myself committed or something. But here I am, well at least not talking

about turds anyway. Frequency and consistency is acceptable though. LOL...

That is enough for now. Still planning to wash some clothes but the

thunderstorms are circling around again. My garage is not attached to

house, so get wet when I go out to do wash etc. What a mess, but we need

the rain desperately. Take care all. Jolene

wrote:

> >>>Tell we all talk about poopin'....no big deal!!! We

> have all kinds of " poopers " here!! And all kinds of pooper

> problems!! LOL

> Seriously, she is so tiny, she may not be able to get through all of

> the 12

> treatments, but the more she gets, the better off she is!!! >>>

>

> Boy, you got that right!! I just talk " poopytalk " all the time!LOLOL I

> mean, how many people do you know that carry a litterbox???

> And being very small does make a difference in treatments. At least it

> does concerning chemos for gynecological cancers, so I assume it

> probably is true for all types. I was scheduled for 6 chemos, 3 weeks

> apart as part of the clinical trial I was in. I only made it through

> 4. I knew I would not survive number 5, and told them so. After

> checking my blood levels, toxicity, etc....they agreed and pulled me

> from further treatments.

> Tell hello for me!!

> nancy j

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.0/63 - Release Date: 8/3/2005

>

>

>

[Guest guest]

>>>LOL!!! I always said I would not do " poopy talk " ....>>>

I have to laugh now when I hear some mother tell their child that they have a

'potty mouth'.

I think, " hey, they oughta hear me!! " LOLOL

nancy j

----------

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[Guest guest]

>>>LOL!!! I always said I would not do " poopy talk " ....>>>

I have to laugh now when I hear some mother tell their child that they have a

'potty mouth'.

I think, " hey, they oughta hear me!! " LOLOL

nancy j

----------

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[Guest guest]

, Your humor is wonderful!!! Thanks for making me smile. Ingrid

> >>>LOL!!! I always said I would not do " poopy talk " ....>>>

>

> I have to laugh now when I hear some mother tell their child that

they have a 'potty mouth'.

> I think, " hey, they oughta hear me!! " LOLOL

>

> nancy j

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.0/63 - Release Date:

8/3/2005

>

>

>

[Guest guest]

Mom talks about that poopy stuff all the time, in GREAT detail. When all this

began it was kind of hard for all of us to talk about these private things, but

it's so easy now.

I took mom to see her surgeon today, the after colonoscopy check up. He said no

cancer was found, he removed one small polyp, no cancer, so in a year they will

call and set up a new colonoscopy. She sees her chemo doc the end of this month

and every month for awhile. He'll do blood tests, CEA and WBC and flush her

port. She wants rid of that but it has to wait awhile. The surgeon said he can

take that out in his office when the time comes. She wont be scheduled for any

scans, unless the CEA goes up. And she's happy to have no chemo, yay!

(For those of you who dont know, mom had a large rectal tumor removed last

August,a good part of her rectum and several inches of colon, she was

reconnected, no bag ). Karima, mom goes poopy about 3 times a day now, she walks

a fine line to keep it moving as she also gets constipated easily, and she takes

Miralax (sp?) I think that's what it is, once every evening, she has stopped the

prune juice as she hasnt been constipated lately. She said she often feels like

shes going to have diarreah but it's just soft, she's satisfied lately that it

hasnt been TOO bad one way or the other. She was also given the go ahead for

fresh sweet corn and local tomatoes so she's a happy camper now, she LOVES that

stuff. She eats alot of dairy, her surgeon told her that can cause constipation

so watch it. She's slowly losing weight, is only 132 now, littler than I've

ever seen her in my life. She's getting a girly figure back. They kid at her

bingo that all the guys are going to be after her soon.

She and my sister have alot of depression, maybe that'll let up now, but my

sister's cancer is the squamus type and someone here just said that is the

hardest to cure? I wont tell her that.She just also had her chemo ended. If

hers comes back, she's in trouble, they are talking about having to remove her

vagina and rectum if the tumor comes back, maybe even uretha, that means 2 bags,

they cant do anymore surgery without doing all that, hers is sqaumus cell of the

vulva, a reoccurance from 10 years ago. She would rather be dead she said if it

comes to that. This is pretty darn hard sometimes. Well, I'm heading back to

bed, only had 3 hours of sleep last night.

Oh no word on the a Zahn show airing the choking game yet, I'm just going to

watch every night, but I've heard the People Magazine will have an article next

week, we'll see. I'm getting pretty down with all this about my son's death in

the forefront lately, I work on this all the time, talking to other parents, it

gets to me. But it has to be done, I cant rest till the world is aware. I think

him all the time anyway, so might as well try to do something good so his death

saves some other lives.

Donelle, I'm happy Glenn's birthday was fun, and everyone else, I'm thinking of

all of you all the time. Life is hard, but beats the alternative. ~~Dianna

Jolene Ehret jehret@...> wrote:

LOL!!! I always said I would not do " poopy talk " .... My hubby used to

go into discourse on size and shape of his " turds " .. I had to walk away,

could not listen.

Promised myself If I ever started talking about my turds I would have

myself committed or something. But here I am, well at least not talking

about turds anyway. Frequency and consistency is acceptable though. LOL...

That is enough for now. Still planning to wash some clothes but the

thunderstorms are circling around again. My garage is not attached to

house, so get wet when I go out to do wash etc. What a mess, but we need

the rain desperately. Take care all. Jolene

wrote:

> >>>Tell we all talk about poopin'....no big deal!!! We

> have all kinds of " poopers " here!! And all kinds of pooper

> problems!! LOL

> Seriously, she is so tiny, she may not be able to get through all of

> the 12

> treatments, but the more she gets, the better off she is!!! >>>

>

> Boy, you got that right!! I just talk " poopytalk " all the time!LOLOL I

> mean, how many people do you know that carry a litterbox???

> And being very small does make a difference in treatments. At least it

> does concerning chemos for gynecological cancers, so I assume it

> probably is true for all types. I was scheduled for 6 chemos, 3 weeks

> apart as part of the clinical trial I was in. I only made it through

> 4. I knew I would not survive number 5, and told them so. After

> checking my blood levels, toxicity, etc....they agreed and pulled me

> from further treatments.

> Tell hello for me!!

> nancy j

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.0/63 - Release Date: 8/3/2005

>

>

>

[Guest guest]

Dianna, I am so happy that your mom is doing good. Tell her to keep

it up.

Yes, we can all talk about poopy among the close friends that we

are. LOL Ingrid

>

> > >>>Tell we all talk about poopin'....no big deal!!! We

> > have all kinds of " poopers " here!! And all kinds of pooper

> > problems!! LOL

> > Seriously, she is so tiny, she may not be able to get through

all of

> > the 12

> > treatments, but the more she gets, the better off she is!!! >>>

> >

> > Boy, you got that right!! I just talk " poopytalk " all the time!

LOLOL I

> > mean, how many people do you know that carry a litterbox???

> > And being very small does make a difference in treatments. At

least it

> > does concerning chemos for gynecological cancers, so I assume it

> > probably is true for all types. I was scheduled for 6 chemos, 3

weeks

> > apart as part of the clinical trial I was in. I only made it

through

> > 4. I knew I would not survive number 5, and told them so. After

> > checking my blood levels, toxicity, etc....they agreed and pulled

me

> > from further treatments.

> > Tell hello for me!!

> > nancy j

> > ----------

> >

> > No virus found in this outgoing message.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.338 / Virus Database: 267.10.0/63 - Release Date:

8/3/2005

> >

> >

> >