Re: my husband thinks the diet is optional

[Guest guest]

MY husbands has been great with the diet from the beginning . Thank god I

didn't have to fight him to. This is for an abstract that shows 32 out of 35

are responders to gf/cf diet. Sometimes I save abstracts for doctors ,

teachers , husbands , family. This way they can read something more

scientific than me. There are some other good abstracts out there that have

finally started to support us with this diet. Now if only I could get

organized I would have them all filed so I could access them. kelly

http://www.harcourthealth.com/scripts/om.dll/serve?action=searchDB&sea

rchDBfor=art&artType=misc&id=aai011072b4ab0897

[Guest guest]

We've been on the diet for a year now and my husband is just starting to

understand cross contamination. Everyone thought I was a loon ball too but

better me than my son. It's avery difficult thing to believe if you don't

have an open mind and unfortunately my hubby didn't but he now knows how

important it is to our son. It took a good six months to get my husband to

believe so hang in there.

MA

[Guest guest]

and everyone

Sorry the address didn't come out . I just copied it for now. In the

abstract below is where they report good results with diet. 32 out of 35.

Very , very interesting. kelly

Jyonouchi findings

Harumi Jyonouchi

Sining Sun

Hoa Le

University of Minnesota,

Minneapolis, MN

Etiology of autism is unknown. However, there appears to be a casual

association between onset of regression/autistic behavior and

infant immunization/viral infection/adverse reactions to common food

antigens (gluten and cow's milk). Previous literature indicates

the presence of autoantibodies against neuronal cells in autistic

children and subtle immune abnormalities such as skewed T2

responses. In this study, we hypothesized that children with

regression autism may have aberrant immune responses against these

common, usually benign environmental factors, resulting in

inflammatory and/or autoimmune conditions in the CNS. As a first step

to examine our hypothesis, we determined innate and adaptive immune

responses in children with autism spectrum disorders

(N=35, Age 2-14 yrs, median: 6 yr, 24 males and 9 females). Innate

immune responses are assessed by measuring production of

TNF-, IL-1, IL-6, sTNFRI, and sTNFRII after incubating peripheral

blood mononuclear (PBMN) cells overnight with endotoxin (LPS:

0.1 to 10 µg/ml). Adaptive immune responses are assessed by

measuring

T cell cytokine (IFN-, IL-4, IL-5 and IL-10) production in

response to recall antigens (tetanus and dust mite), mitogens (PHA

and

Con A) and IFN- inducing cytokines (IL-12p70 and IL-18)

after culturing cells for 4 days with these stimuli. Production of

IL-12p40, IL-18, and TGF- was also measured in this setting.

Controls were obtained from healthy normal children (N=17, Age 2-16

yrs, median: 11 yrs). Onset of autism/developmental

regression with immunization was reported in 27/35 patients and 32/35

patients were reported to have improvement of behavior by

parents/teachers/therapists with a casein-free/gluten-free diet.

Autistic children produced higher TNF- (p<0.01), sTNFRII (p=0.038),

and IL-6 (p=0.01) with a low dose of LPS (0.1 µg/ml) than

controls.

This is due to the presence of a subset of patients who produced

large amounts of these cytokines. In fact, 27/35 (77.1%) study

subjects produced higher than the maximum levels of TNF-,

sTNFRII, IL-6 and/or IL-1 observed in controls with a low dose of

LPS.

We also observed elevated serum levels of these cytokines

in 8/18 autistic children. Our results thus indicate a high frequency

of excessive innate immune responses in children with

regression autism. These results may partly explain apparent

association between onset of regression/autistic behavior and

immunization in these children. Production of IFN-, IL-5, IL-10 and

IL-12p40 was highly variable in autistic children. IL-4, IL-18, and

TGF- production by PBMN cells were generally low and did not differ

between the study subjects and controls. We also assessed

T1/T2 responses by comparing the ratio of IFN-/IL-5 levels produced

with recall antigens. The ratio of IFN-/IL-5 did not differ

between autistic children and controls. However, 7 and 8 out of 35

autistic children produced significantly high IL-12p40 with recall

antigens and IL-12/IL-18, respectively. IL-10 production was markedly

variable in autistic children: 10 and 11 out of 35 subjects

produced high amounts of IL-10 with PHA and tetanus, respectively,

while 12/35 subjects produced significantly low IL-10 with PHA

as compared to controls. These results also indicate aberrant

production of regulatory cytokines for T cell responses in subsets of

autistic children.

[Guest guest]

and everyone

Sorry the address didn't come out . I just copied it for now. In the

abstract below is where they report good results with diet. 32 out of 35.

Very , very interesting. kelly

Jyonouchi findings

Harumi Jyonouchi

Sining Sun

Hoa Le

University of Minnesota,

Minneapolis, MN

Etiology of autism is unknown. However, there appears to be a casual

association between onset of regression/autistic behavior and

infant immunization/viral infection/adverse reactions to common food

antigens (gluten and cow's milk). Previous literature indicates

the presence of autoantibodies against neuronal cells in autistic

children and subtle immune abnormalities such as skewed T2

responses. In this study, we hypothesized that children with

regression autism may have aberrant immune responses against these

common, usually benign environmental factors, resulting in

inflammatory and/or autoimmune conditions in the CNS. As a first step

to examine our hypothesis, we determined innate and adaptive immune

responses in children with autism spectrum disorders

(N=35, Age 2-14 yrs, median: 6 yr, 24 males and 9 females). Innate

immune responses are assessed by measuring production of

TNF-, IL-1, IL-6, sTNFRI, and sTNFRII after incubating peripheral

blood mononuclear (PBMN) cells overnight with endotoxin (LPS:

0.1 to 10 µg/ml). Adaptive immune responses are assessed by

measuring

T cell cytokine (IFN-, IL-4, IL-5 and IL-10) production in

response to recall antigens (tetanus and dust mite), mitogens (PHA

and

Con A) and IFN- inducing cytokines (IL-12p70 and IL-18)

after culturing cells for 4 days with these stimuli. Production of

IL-12p40, IL-18, and TGF- was also measured in this setting.

Controls were obtained from healthy normal children (N=17, Age 2-16

yrs, median: 11 yrs). Onset of autism/developmental

regression with immunization was reported in 27/35 patients and 32/35

patients were reported to have improvement of behavior by

parents/teachers/therapists with a casein-free/gluten-free diet.

Autistic children produced higher TNF- (p<0.01), sTNFRII (p=0.038),

and IL-6 (p=0.01) with a low dose of LPS (0.1 µg/ml) than

controls.

This is due to the presence of a subset of patients who produced

large amounts of these cytokines. In fact, 27/35 (77.1%) study

subjects produced higher than the maximum levels of TNF-,

sTNFRII, IL-6 and/or IL-1 observed in controls with a low dose of

LPS.

We also observed elevated serum levels of these cytokines

in 8/18 autistic children. Our results thus indicate a high frequency

of excessive innate immune responses in children with

regression autism. These results may partly explain apparent

association between onset of regression/autistic behavior and

immunization in these children. Production of IFN-, IL-5, IL-10 and

IL-12p40 was highly variable in autistic children. IL-4, IL-18, and

TGF- production by PBMN cells were generally low and did not differ

between the study subjects and controls. We also assessed

T1/T2 responses by comparing the ratio of IFN-/IL-5 levels produced

with recall antigens. The ratio of IFN-/IL-5 did not differ

between autistic children and controls. However, 7 and 8 out of 35

autistic children produced significantly high IL-12p40 with recall

antigens and IL-12/IL-18, respectively. IL-10 production was markedly

variable in autistic children: 10 and 11 out of 35 subjects

produced high amounts of IL-10 with PHA and tetanus, respectively,

while 12/35 subjects produced significantly low IL-10 with PHA

as compared to controls. These results also indicate aberrant

production of regulatory cytokines for T cell responses in subsets of

autistic children.

[Guest guest]

Gee, I can't say what would happen, but think about how autism used to be

called childhood schizophrenia! A really serious psychological problem! If

you have not read Shaw's book " Biologicial Treatments for Autism & PDD " you

must - no your husband must. Did you know that schizophrenia runs the highest

in the country of Ireland - a country with a very high consumption of cow

milk and wheat? Get your husband to read the book! I shudder at thinking

what my son would be like now if we had never changed his diet. Most parents

I run into who poo-poo the gfcfdiet are speaking from lack of knowledge and

lack of experience with it. Most parents I run into who speak well of the

gfcfdiet have knowledge from READING and are experienced with the diet - YES,

experienced for more than a couple of months at it! We are what we eat and

the food doesn't work the same in ANY of our bodies. Why are so many people

scoffing at changing the diet? It is safe and often helpful - so do it and

see if it helps your child. Your jobs are to help your children even if it

is HARD. And after 2 months on the diet, it won't be hard, you will all adapt

very well. YOU CAN DO IT!!!!

[Guest guest]

Gee, I can't say what would happen, but think about how autism used to be

called childhood schizophrenia! A really serious psychological problem! If

you have not read Shaw's book " Biologicial Treatments for Autism & PDD " you

must - no your husband must. Did you know that schizophrenia runs the highest

in the country of Ireland - a country with a very high consumption of cow

milk and wheat? Get your husband to read the book! I shudder at thinking

what my son would be like now if we had never changed his diet. Most parents

I run into who poo-poo the gfcfdiet are speaking from lack of knowledge and

lack of experience with it. Most parents I run into who speak well of the

gfcfdiet have knowledge from READING and are experienced with the diet - YES,

experienced for more than a couple of months at it! We are what we eat and

the food doesn't work the same in ANY of our bodies. Why are so many people

scoffing at changing the diet? It is safe and often helpful - so do it and

see if it helps your child. Your jobs are to help your children even if it

is HARD. And after 2 months on the diet, it won't be hard, you will all adapt

very well. YOU CAN DO IT!!!!

[Guest guest]

>The Bridge Center for

> Autism told us it is important that we do this diet.

Cheryl -

That statement above should be your mantra where your hubby is

concerned. Tell him that these folks have much more combined

experience with Autistic kids than you guys do and treat the diet as

a medical prescription from these folks. It's funny, we had no

support from " experts " regarding this diet, but my hubby and I were

on the same page - we figured, it couldn't hurt so why not. You guys

have " experts " telling you that it is important to do the diet - I

would keep repeating that to everyone who expresses the slightest bit

of doubt until I was blue in the face. Good luck - I know that this

diet is hard enough without having somebody doubt your actions.

Also, as far as the leaky gut theory goes, you can tell hubby that

continuing to feed your child these foods will directly damage his

brain. That is what we believe and that is the way we treat these

offending foods - they are toxins to our kids.

Hang tough and I will send out good thoughts that your hubby comes

around.

Moira

Mom to Vico (4 ASD) and Culzean (10.5 months)

[Guest guest]

>The Bridge Center for

> Autism told us it is important that we do this diet.

Cheryl -

That statement above should be your mantra where your hubby is

concerned. Tell him that these folks have much more combined

experience with Autistic kids than you guys do and treat the diet as

a medical prescription from these folks. It's funny, we had no

support from " experts " regarding this diet, but my hubby and I were

on the same page - we figured, it couldn't hurt so why not. You guys

have " experts " telling you that it is important to do the diet - I

would keep repeating that to everyone who expresses the slightest bit

of doubt until I was blue in the face. Good luck - I know that this

diet is hard enough without having somebody doubt your actions.

Also, as far as the leaky gut theory goes, you can tell hubby that

continuing to feed your child these foods will directly damage his

brain. That is what we believe and that is the way we treat these

offending foods - they are toxins to our kids.

Hang tough and I will send out good thoughts that your hubby comes

around.

Moira

Mom to Vico (4 ASD) and Culzean (10.5 months)

[Guest guest]

For those of you having trouble with your husbands about the diet.

Hopefully you will get at least some backing from them and not sabotage. My

DH has seen the improvement and he helps pretty much with the diet but he

always come up with the idea to go to a fast food place that we cannot take

Evan to. Usually when I have been very busy and he doesn't want me to have

to cook. My most problems is when he goes visiting. Now you people have to

worry about the grandparents but for me it is the other way around. Evan's

mother is constantly forgetting what he cannot have. She is improving

though. When Evan's dad took him recently he called to ask if what they

were fixing for supper would be all right for Evan. And he made a special

trip to the store to buy Evan Skittles after he found the candy that he had

bought had milk in it. Most of the people that see the good results come

around to the diet. I hope it is not too long before all of you with

husbands dragging their feet will soon be on board.

Betty

[Guest guest]

Hi all,

Well, my husband thinks I'm a little nutty with the diet, but he does admit

that he sees positive changes in Graham and wouldn't purposely do anything

to disrupt the process either. I think it bothers my husband more that

Graham can't have these foods then it actually bothers Graham. Anyway, we

are about 2 months in and things are going reasonably well. Daily we are

learning about things he can't have for various reasons, but Graham seems to

take it all in stride.

Fondly,

J--mom to Graham (6 yrs, probable Asperger's syndrome) and Hayley

(10 yrs, mild ADD)

[Guest guest]

If g and c are causing probs, just think what prolonged exposure could do.

Plus, the longer you let this go, the less they develop and the more

backpeddling you will have to do with behavior, etc for all the time they

were " high " and in brain fog. Behaviors that may be tolerable at a young age

are extremely difficult from and older and bigger child. My child is ten. I

am waiting to put her back on the diet until hubby gets more convinced. The

diet is very exhausting which is one reason he said to stop it for a while.

I have seen regression. Why everyone else seems blind to it (except siblings

ages 12 &14) I don't know.

Good luck, best results seem to come when the diet is started early.

April in SE Pa - Simona's mom

[Guest guest]

If g and c are causing probs, just think what prolonged exposure could do.

Plus, the longer you let this go, the less they develop and the more

backpeddling you will have to do with behavior, etc for all the time they

were " high " and in brain fog. Behaviors that may be tolerable at a young age

are extremely difficult from and older and bigger child. My child is ten. I

am waiting to put her back on the diet until hubby gets more convinced. The

diet is very exhausting which is one reason he said to stop it for a while.

I have seen regression. Why everyone else seems blind to it (except siblings

ages 12 &14) I don't know.

Good luck, best results seem to come when the diet is started early.

April in SE Pa - Simona's mom

[Guest guest]

> Hi all,

> Well, my husband thinks I'm a little nutty with the diet, but he

does admit

> that he sees positive changes in Graham and wouldn't purposely do

anything

> to disrupt the process either. I think it bothers my husband more

that

> Graham can't have these foods then it actually bothers Graham.

My husband thinks the cross-contamination thing (using same

toaster/bread maker) is crazy. Well, we met with Tyler's dr on Tues &

we had decided to ask him about it. The dr told us we didn't have to

worry about using different machines..Tyler wasn't that reactive (he

had about the highest delayed allergic reactions you could get to

gluten & casein!). I couldn't believe it!

Kandel

[Guest guest]

For my husband it was helpful that I told him the

theory of g/c-induced autism again and again in

different connections and times (kind of friendly

nagging). Simply we must stop the damage which is

happening in the brain when there is g or c in the

body.

After that it is a build-up/recovery issue and the

results correlate with age & previous damage, working

with supplements, herbs, ABA, proper sleep, yeast,

chelation, but the basis of the treatment of

gluten/casein-induced autism is to remove these

substances from the person's diet consistently.

Also it was helpful when after a couple of months our

son got a bite of bread - which caused a meltdown and

noticeable pains. 5 months on diet he got

unintentionally some casein. He was out of this world

and did not recognize his home, screaming on the floor

wrenching on his back. Very scary and very convincing

for anyone who lives in the same house!

Good luck,

Kati

> > I'm in the same boat! How do most of your

> husbands react to

> this diet?

> > Mine seems to think I've gone off the deep end.

__________________________________________________

[Guest guest]

For my husband it was helpful that I told him the

theory of g/c-induced autism again and again in

different connections and times (kind of friendly

nagging). Simply we must stop the damage which is

happening in the brain when there is g or c in the

body.

After that it is a build-up/recovery issue and the

results correlate with age & previous damage, working

with supplements, herbs, ABA, proper sleep, yeast,

chelation, but the basis of the treatment of

gluten/casein-induced autism is to remove these

substances from the person's diet consistently.

Also it was helpful when after a couple of months our

son got a bite of bread - which caused a meltdown and

noticeable pains. 5 months on diet he got

unintentionally some casein. He was out of this world

and did not recognize his home, screaming on the floor

wrenching on his back. Very scary and very convincing

for anyone who lives in the same house!

Good luck,

Kati

> > I'm in the same boat! How do most of your

> husbands react to

> this diet?

> > Mine seems to think I've gone off the deep end.

__________________________________________________