Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Barb, Wish mine were without pain. No such luck, though. What my late father called Aunt Agatha's Travelling Pains, and I call the Zing!Zap!Zoomers! can hit anytime and cause spasms. Very hard to predict, and very disquieting...to say the least. I'm glad to hear that your legs have let up, though. I seem to remember it was pretty awful there for a while. I am itching all over my back, arms, head and legs again. This is because I got too much UV exposure while we were camping. I just couldn't avoid it altogether, as living outdoors pretty much makes it impossible to stay in the shade all the time. And, too, near the ocean, the sky is frequently overcast and the UV rays burning through it are magnified by the moisture droplets in the air. Much worse than full sun. I always forget to put my hat and long sleeves on when it is so comfortable tempera- ture wise. So, I take half an Allegra tab, mix my favorite moisturizer with Cortaid creme, and that helps, but when it wears off, Holy Cow! Right now, I am about to go out of my mind. More later. Love you, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Barb, Wish mine were without pain. No such luck, though. What my late father called Aunt Agatha's Travelling Pains, and I call the Zing!Zap!Zoomers! can hit anytime and cause spasms. Very hard to predict, and very disquieting...to say the least. I'm glad to hear that your legs have let up, though. I seem to remember it was pretty awful there for a while. I am itching all over my back, arms, head and legs again. This is because I got too much UV exposure while we were camping. I just couldn't avoid it altogether, as living outdoors pretty much makes it impossible to stay in the shade all the time. And, too, near the ocean, the sky is frequently overcast and the UV rays burning through it are magnified by the moisture droplets in the air. Much worse than full sun. I always forget to put my hat and long sleeves on when it is so comfortable tempera- ture wise. So, I take half an Allegra tab, mix my favorite moisturizer with Cortaid creme, and that helps, but when it wears off, Holy Cow! Right now, I am about to go out of my mind. More later. Love you, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Barb, Wish mine were without pain. No such luck, though. What my late father called Aunt Agatha's Travelling Pains, and I call the Zing!Zap!Zoomers! can hit anytime and cause spasms. Very hard to predict, and very disquieting...to say the least. I'm glad to hear that your legs have let up, though. I seem to remember it was pretty awful there for a while. I am itching all over my back, arms, head and legs again. This is because I got too much UV exposure while we were camping. I just couldn't avoid it altogether, as living outdoors pretty much makes it impossible to stay in the shade all the time. And, too, near the ocean, the sky is frequently overcast and the UV rays burning through it are magnified by the moisture droplets in the air. Much worse than full sun. I always forget to put my hat and long sleeves on when it is so comfortable tempera- ture wise. So, I take half an Allegra tab, mix my favorite moisturizer with Cortaid creme, and that helps, but when it wears off, Holy Cow! Right now, I am about to go out of my mind. More later. Love you, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 well walking them out is what I usually do. It helps to know I am not alone in this. Though I wish there was some way to prevent this....it is terrible to wake up and stetch and have the spasms.....Yours, Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Vivian I find that if I can stay still and stand the pain that they will go away. If not, sitting on the edge of the bed and bouncing them sometimes works. If this doesn't work, then walking a bit does. I have found that I can't just go back to bed immediately or they occur again. Pacing myself, so as to avoid them is the best thing for me to do, but I can't always do that. Relaxing with my feet up a while before bed and letting the cramps happen then usually prevents too many at night. laurie > what other than med's can I do for spasms in the feet and toes....this will > happen when I am lying down in bed and move/change position. Thanks Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 I don't know for sure if I am hoping so much that this will help or if it really is helping but I have been putting my feet up and putting ice packs on them as of late. Perhaps I have my feet so frozen that when I go to bed it takes them awhile to thaw out or it really is helping me? Dolores Vcgpg@... wrote:what other than med's can I do for spasms in the feet and toes....this will happen when I am lying down in bed and move/change position. Thanks Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Vivian, Cannot help with an answer on this but sure would like to find one. I get this every now and then also and it is awful. Lately it has not been happening at night but during the day while I am at work. I try my best to kind of stand my foot up in my shoe and press my toes to the ground. Sometimes I do take my shoes off and press my toes to the floor. Janet spasms what other than med's can I do for spasms in the feet and toes....this will happen when I am lying down in bed and move/change position. Thanks Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Vivian, Blessedly mine don't last very long, or come that often, because they are dreadfully painful. They seem to come when I move my foot sideways, or stretch it a certain way. I immediately try to massage it, and move the foot in the opposite directions with my hands, and they seem to fade quite quickly then. I have always been out of the company of others except my husband. I certainly would not want to be seen by anyone when one hits. I also get a similar sharp pain in the center of my head, when I yawn a certain way. It originates from one of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't move and just try to let my jaw go slack, it releases in a short time. > Vivian, > > Cannot help with an answer on this but sure would like to find one. > I get this every now and then also and it is awful. Lately it has not > been happening at night but during the day while I am at work. I try > my best to kind of stand my foot up in my shoe and press my toes to > the ground. Sometimes I do take my shoes off and press my toes to the > floor. > > Janet >  spasms > > >  what other than med's can I do for spasms in the feet and > toes....this will >  happen when I am lying down in bed and move/change position. Thanks > Vivian > > >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I have always had severe leg cramps and I have taken several types of muscle relaxers over the years. I have very severe pains in the right side of my head, ear, face and I have stabbing pains in my right eye that feels like someone is sticking a needle in my eye, I have been told that this is from trigeminial neuralgia. My opthamologist spoke with my current neurologist and he increased the dosage of neurotin from 300mg three times daily to 300mg four times daily and it has helped the pain in the right side of my head, ear, face and eye considerably. At least I do feel that it is livable now. At times my feet feel like (please don't think I've lost it) there is an electrical current going thru them. I do have peripheral neuropathy in both legs, but with the antodyne thereapy and the neurotin it isn't as bad as it was, for which I am very thankful. I'm not sure if this is in any way helpful or if it just sounds like the ramblings of an " old " lady (ha). Dolores johnson z39z@... wrote:Vivian, Blessedly mine don't last very long, or come that often, because they are dreadfully painful. They seem to come when I move my foot sideways, or stretch it a certain way. I immediately try to massage it, and move the foot in the opposite directions with my hands, and they seem to fade quite quickly then. I have always been out of the company of others except my husband. I certainly would not want to be seen by anyone when one hits. I also get a similar sharp pain in the center of my head, when I yawn a certain way. It originates from one of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't move and just try to let my jaw go slack, it releases in a short time. > Vivian, > > Cannot help with an answer on this but sure would like to find one. > I get this every now and then also and it is awful. Lately it has not > been happening at night but during the day while I am at work. I try > my best to kind of stand my foot up in my shoe and press my toes to > the ground. Sometimes I do take my shoes off and press my toes to the > floor. > > Janet > spasms > > > what other than med's can I do for spasms in the feet and > toes....this will > happen when I am lying down in bed and move/change position. Thanks > Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I have always had severe leg cramps and I have taken several types of muscle relaxers over the years. I have very severe pains in the right side of my head, ear, face and I have stabbing pains in my right eye that feels like someone is sticking a needle in my eye, I have been told that this is from trigeminial neuralgia. My opthamologist spoke with my current neurologist and he increased the dosage of neurotin from 300mg three times daily to 300mg four times daily and it has helped the pain in the right side of my head, ear, face and eye considerably. At least I do feel that it is livable now. At times my feet feel like (please don't think I've lost it) there is an electrical current going thru them. I do have peripheral neuropathy in both legs, but with the antodyne thereapy and the neurotin it isn't as bad as it was, for which I am very thankful. I'm not sure if this is in any way helpful or if it just sounds like the ramblings of an " old " lady (ha). Dolores johnson z39z@... wrote:Vivian, Blessedly mine don't last very long, or come that often, because they are dreadfully painful. They seem to come when I move my foot sideways, or stretch it a certain way. I immediately try to massage it, and move the foot in the opposite directions with my hands, and they seem to fade quite quickly then. I have always been out of the company of others except my husband. I certainly would not want to be seen by anyone when one hits. I also get a similar sharp pain in the center of my head, when I yawn a certain way. It originates from one of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't move and just try to let my jaw go slack, it releases in a short time. > Vivian, > > Cannot help with an answer on this but sure would like to find one. > I get this every now and then also and it is awful. Lately it has not > been happening at night but during the day while I am at work. I try > my best to kind of stand my foot up in my shoe and press my toes to > the ground. Sometimes I do take my shoes off and press my toes to the > floor. > > Janet > spasms > > > what other than med's can I do for spasms in the feet and > toes....this will > happen when I am lying down in bed and move/change position. Thanks > Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 No Dolores, you haven't lost it. I go through periods of time where just stepping on my right foot triggers a strong electric shock sensation in the ball of my foot. The first time this happened many years ago I was vacuuming and thought the vacuum had given me a shock. Not so. It kept happening, and it is stepping on the foot that triggers the shock. With every step, shock, shock, shock. Once it starts, the more I walk the worse it gets. If I rest for several hours, it will usually stop for a while. I haven't had this as much in recent years. I believe there is a medical term for this event, but have forgotten it. Barbara > Re: spasms > > I have always had severe leg cramps and I have taken several types of muscle > relaxers over the years. I have very severe pains in the right side of my head, ear, > face and I have stabbing pains in my right eye that feels like someone is sticking a > needle in my eye, I have been told that this is from trigeminial neuralgia. My > opthamologist spoke with my current neurologist and he increased the dosage of > neurotin from 300mg three times daily to 300mg four times daily and it has helped > the pain in the right side of my head, ear, face and eye considerably. At least I do > feel that it is livable now. At times my feet feel like (please don't think I've lost it) > there is an electrical current going thru them. I do have peripheral neuropathy in > both legs, but with the antodyne thereapy and the neurotin it isn't as bad as it was, > for which I am very thankful. I'm not sure if this is in any way helpful or if it just > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > z39z@... wrote:Vivian, > > Blessedly mine don't last very long, or come that often, because they > are dreadfully painful. They seem to come when I move my foot > sideways, or stretch it a certain way. I immediately try to massage > it, and move the foot in the opposite directions with my hands, and > they seem to fade quite quickly then. I have always been out of the > company of others except my husband. I certainly would not want to be > seen by anyone when one hits. I also get a similar sharp pain in the > center of my head, when I yawn a certain way. It originates from one > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 No Dolores, you haven't lost it. I go through periods of time where just stepping on my right foot triggers a strong electric shock sensation in the ball of my foot. The first time this happened many years ago I was vacuuming and thought the vacuum had given me a shock. Not so. It kept happening, and it is stepping on the foot that triggers the shock. With every step, shock, shock, shock. Once it starts, the more I walk the worse it gets. If I rest for several hours, it will usually stop for a while. I haven't had this as much in recent years. I believe there is a medical term for this event, but have forgotten it. Barbara > Re: spasms > > I have always had severe leg cramps and I have taken several types of muscle > relaxers over the years. I have very severe pains in the right side of my head, ear, > face and I have stabbing pains in my right eye that feels like someone is sticking a > needle in my eye, I have been told that this is from trigeminial neuralgia. My > opthamologist spoke with my current neurologist and he increased the dosage of > neurotin from 300mg three times daily to 300mg four times daily and it has helped > the pain in the right side of my head, ear, face and eye considerably. At least I do > feel that it is livable now. At times my feet feel like (please don't think I've lost it) > there is an electrical current going thru them. I do have peripheral neuropathy in > both legs, but with the antodyne thereapy and the neurotin it isn't as bad as it was, > for which I am very thankful. I'm not sure if this is in any way helpful or if it just > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > z39z@... wrote:Vivian, > > Blessedly mine don't last very long, or come that often, because they > are dreadfully painful. They seem to come when I move my foot > sideways, or stretch it a certain way. I immediately try to massage > it, and move the foot in the opposite directions with my hands, and > they seem to fade quite quickly then. I have always been out of the > company of others except my husband. I certainly would not want to be > seen by anyone when one hits. I also get a similar sharp pain in the > center of my head, when I yawn a certain way. It originates from one > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I told my son about that strange sensation and he asked me if I had talked to one of my doctors and I told him " No " as I didn't care to have my PCP start shaking her head and not saying anything, just giving me that look again. I know it sure is a strange sensation, it reminds me of touching an electric fence one when I was about nine years old. Thanks for the post I feel much better knowing it isn't just me. Take care, Dolores Barbara Seaman wheatchild@...> wrote:No Dolores, you haven't lost it. I go through periods of time where just stepping on my right foot triggers a strong electric shock sensation in the ball of my foot. The first time this happened many years ago I was vacuuming and thought the vacuum had given me a shock. Not so. It kept happening, and it is stepping on the foot that triggers the shock. With every step, shock, shock, shock. Once it starts, the more I walk the worse it gets. If I rest for several hours, it will usually stop for a while. I haven't had this as much in recent years. I believe there is a medical term for this event, but have forgotten it. Barbara > Re: spasms > > I have always had severe leg cramps and I have taken several types of muscle > relaxers over the years. I have very severe pains in the right side of my head, ear, > face and I have stabbing pains in my right eye that feels like someone is sticking a > needle in my eye, I have been told that this is from trigeminial neuralgia. My > opthamologist spoke with my current neurologist and he increased the dosage of > neurotin from 300mg three times daily to 300mg four times daily and it has helped > the pain in the right side of my head, ear, face and eye considerably. At least I do > feel that it is livable now. At times my feet feel like (please don't think I've lost it) > there is an electrical current going thru them. I do have peripheral neuropathy in > both legs, but with the antodyne thereapy and the neurotin it isn't as bad as it was, > for which I am very thankful. I'm not sure if this is in any way helpful or if it just > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > z39z@... wrote:Vivian, > > Blessedly mine don't last very long, or come that often, because they > are dreadfully painful. They seem to come when I move my foot > sideways, or stretch it a certain way. I immediately try to massage > it, and move the foot in the opposite directions with my hands, and > they seem to fade quite quickly then. I have always been out of the > company of others except my husband. I certainly would not want to be > seen by anyone when one hits. I also get a similar sharp pain in the > center of my head, when I yawn a certain way. It originates from one > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I told my son about that strange sensation and he asked me if I had talked to one of my doctors and I told him " No " as I didn't care to have my PCP start shaking her head and not saying anything, just giving me that look again. I know it sure is a strange sensation, it reminds me of touching an electric fence one when I was about nine years old. Thanks for the post I feel much better knowing it isn't just me. Take care, Dolores Barbara Seaman wheatchild@...> wrote:No Dolores, you haven't lost it. I go through periods of time where just stepping on my right foot triggers a strong electric shock sensation in the ball of my foot. The first time this happened many years ago I was vacuuming and thought the vacuum had given me a shock. Not so. It kept happening, and it is stepping on the foot that triggers the shock. With every step, shock, shock, shock. Once it starts, the more I walk the worse it gets. If I rest for several hours, it will usually stop for a while. I haven't had this as much in recent years. I believe there is a medical term for this event, but have forgotten it. Barbara > Re: spasms > > I have always had severe leg cramps and I have taken several types of muscle > relaxers over the years. I have very severe pains in the right side of my head, ear, > face and I have stabbing pains in my right eye that feels like someone is sticking a > needle in my eye, I have been told that this is from trigeminial neuralgia. My > opthamologist spoke with my current neurologist and he increased the dosage of > neurotin from 300mg three times daily to 300mg four times daily and it has helped > the pain in the right side of my head, ear, face and eye considerably. At least I do > feel that it is livable now. At times my feet feel like (please don't think I've lost it) > there is an electrical current going thru them. I do have peripheral neuropathy in > both legs, but with the antodyne thereapy and the neurotin it isn't as bad as it was, > for which I am very thankful. I'm not sure if this is in any way helpful or if it just > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > z39z@... wrote:Vivian, > > Blessedly mine don't last very long, or come that often, because they > are dreadfully painful. They seem to come when I move my foot > sideways, or stretch it a certain way. I immediately try to massage > it, and move the foot in the opposite directions with my hands, and > they seem to fade quite quickly then. I have always been out of the > company of others except my husband. I certainly would not want to be > seen by anyone when one hits. I also get a similar sharp pain in the > center of my head, when I yawn a certain way. It originates from one > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I have sensation " memories " from my (extremely painful) EMG, in my hands, they feel like either electric current or a shock, or plunging my hands fingers first in a pot of boiling water. So I know what you mean, unless we've both lost it! Take care, RH > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I have sensation " memories " from my (extremely painful) EMG, in my hands, they feel like either electric current or a shock, or plunging my hands fingers first in a pot of boiling water. So I know what you mean, unless we've both lost it! Take care, RH > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Thanks for the post as it really is a weird sensation. Now that you mention it I do definitely recall the tests that my current neurologist ran on me the first of the year and that EMG was something else. Thanks, Dolores ohgminion rakshasis@...> wrote:I have sensation " memories " from my (extremely painful) EMG, in my hands, they feel like either electric current or a shock, or plunging my hands fingers first in a pot of boiling water. So I know what you mean, unless we've both lost it! Take care, RH > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Thanks for the post as it really is a weird sensation. Now that you mention it I do definitely recall the tests that my current neurologist ran on me the first of the year and that EMG was something else. Thanks, Dolores ohgminion rakshasis@...> wrote:I have sensation " memories " from my (extremely painful) EMG, in my hands, they feel like either electric current or a shock, or plunging my hands fingers first in a pot of boiling water. So I know what you mean, unless we've both lost it! Take care, RH > > > Vivian, > > > > Cannot help with an answer on this but sure would like to find one. > > I get this every now and then also and it is awful. Lately it has not > > been happening at night but during the day while I am at work. I try > > my best to kind of stand my foot up in my shoe and press my toes to > > the ground. Sometimes I do take my shoes off and press my toes to the > > floor. > > > > Janet > > spasms > > > > > > what other than med's can I do for spasms in the feet and > > toes....this will > > happen when I am lying down in bed and move/change position. Thanks > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Dolores I have the same kinds of sensations and my neuro said it was a form or neuropathy - hypersensitive nerves which fire when they are suppose to. I still have some, but they were greatly reduced when I started taking the Lamictal for the myoclonus. For those who have had very painful EMGs, it depends on the doctor doing them. I have had at least a dozen EMGs by many different people and many different pain levels. If you are to have one, check to see how often the doc does them and ask him/her to use pediatric needles. I've had a sadistic doc or two and my MDA neuro who teaches EMG at two medical schools says they can be close to painless and they are when he does them. laurie > I told my son about that strange sensation and he asked me if I had talked to one of my doctors and I told him " No " as I didn't care to have my PCP start shaking her head and not saying anything, just giving me that look again. I know it sure is a strange sensation, it reminds me of touching an electric fence one when I was about nine years old. Thanks for the post I feel much better knowing it isn't just me. Take care, Dolores > > Barbara Seaman wheatchild@...> wrote:No Dolores, you haven't lost it. I go through periods of time where just > stepping on my right foot triggers a strong electric shock sensation in the > ball of my foot. The first time this happened many years ago I was vacuuming > and thought the vacuum had given me a shock. Not so. It kept happening, and > it is stepping on the foot that triggers the shock. With every step, shock, > shock, shock. Once it starts, the more I walk the worse it gets. If I rest > for several hours, it will usually stop for a while. I haven't had this as > much in recent years. I believe there is a medical term for this event, but > have forgotten it. > Barbara > > > > > Re: spasms > > > > I have always had severe leg cramps and I have taken several types of > muscle > > relaxers over the years. I have very severe pains in the right side of my > head, ear, > > face and I have stabbing pains in my right eye that feels like someone is > sticking a > > needle in my eye, I have been told that this is from trigeminial > neuralgia. My > > opthamologist spoke with my current neurologist and he increased the > dosage of > > neurotin from 300mg three times daily to 300mg four times daily and it > has helped > > the pain in the right side of my head, ear, face and eye considerably. At > least I do > > feel that it is livable now. At times my feet feel like (please don't > think I've lost it) > > there is an electrical current going thru them. I do have peripheral > neuropathy in > > both legs, but with the antodyne thereapy and the neurotin it isn't as > bad as it was, > > for which I am very thankful. I'm not sure if this is in any way helpful > or if it just > > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > > > z39z@... wrote:Vivian, > > > > Blessedly mine don't last very long, or come that often, because they > > are dreadfully painful. They seem to come when I move my foot > > sideways, or stretch it a certain way. I immediately try to massage > > it, and move the foot in the opposite directions with my hands, and > > they seem to fade quite quickly then. I have always been out of the > > company of others except my husband. I certainly would not want to be > > seen by anyone when one hits. I also get a similar sharp pain in the > > center of my head, when I yawn a certain way. It originates from one > > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > > > > > > > Vivian, > > > > > > Cannot help with an answer on this but sure would like to find one. > > > I get this every now and then also and it is awful. Lately it has not > > > been happening at night but during the day while I am at work. I try > > > my best to kind of stand my foot up in my shoe and press my toes to > > > the ground. Sometimes I do take my shoes off and press my toes to the > > > floor. > > > > > > Janet > > > spasms > > > > > > > > > what other than med's can I do for spasms in the feet and > > > toes....this will > > > happen when I am lying down in bed and move/change position. Thanks > > > Vivian > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Dolores I have the same kinds of sensations and my neuro said it was a form or neuropathy - hypersensitive nerves which fire when they are suppose to. I still have some, but they were greatly reduced when I started taking the Lamictal for the myoclonus. For those who have had very painful EMGs, it depends on the doctor doing them. I have had at least a dozen EMGs by many different people and many different pain levels. If you are to have one, check to see how often the doc does them and ask him/her to use pediatric needles. I've had a sadistic doc or two and my MDA neuro who teaches EMG at two medical schools says they can be close to painless and they are when he does them. laurie > I told my son about that strange sensation and he asked me if I had talked to one of my doctors and I told him " No " as I didn't care to have my PCP start shaking her head and not saying anything, just giving me that look again. I know it sure is a strange sensation, it reminds me of touching an electric fence one when I was about nine years old. Thanks for the post I feel much better knowing it isn't just me. Take care, Dolores > > Barbara Seaman wheatchild@...> wrote:No Dolores, you haven't lost it. I go through periods of time where just > stepping on my right foot triggers a strong electric shock sensation in the > ball of my foot. The first time this happened many years ago I was vacuuming > and thought the vacuum had given me a shock. Not so. It kept happening, and > it is stepping on the foot that triggers the shock. With every step, shock, > shock, shock. Once it starts, the more I walk the worse it gets. If I rest > for several hours, it will usually stop for a while. I haven't had this as > much in recent years. I believe there is a medical term for this event, but > have forgotten it. > Barbara > > > > > Re: spasms > > > > I have always had severe leg cramps and I have taken several types of > muscle > > relaxers over the years. I have very severe pains in the right side of my > head, ear, > > face and I have stabbing pains in my right eye that feels like someone is > sticking a > > needle in my eye, I have been told that this is from trigeminial > neuralgia. My > > opthamologist spoke with my current neurologist and he increased the > dosage of > > neurotin from 300mg three times daily to 300mg four times daily and it > has helped > > the pain in the right side of my head, ear, face and eye considerably. At > least I do > > feel that it is livable now. At times my feet feel like (please don't > think I've lost it) > > there is an electrical current going thru them. I do have peripheral > neuropathy in > > both legs, but with the antodyne thereapy and the neurotin it isn't as > bad as it was, > > for which I am very thankful. I'm not sure if this is in any way helpful > or if it just > > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > > > z39z@... wrote:Vivian, > > > > Blessedly mine don't last very long, or come that often, because they > > are dreadfully painful. They seem to come when I move my foot > > sideways, or stretch it a certain way. I immediately try to massage > > it, and move the foot in the opposite directions with my hands, and > > they seem to fade quite quickly then. I have always been out of the > > company of others except my husband. I certainly would not want to be > > seen by anyone when one hits. I also get a similar sharp pain in the > > center of my head, when I yawn a certain way. It originates from one > > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > > > > > > > Vivian, > > > > > > Cannot help with an answer on this but sure would like to find one. > > > I get this every now and then also and it is awful. Lately it has not > > > been happening at night but during the day while I am at work. I try > > > my best to kind of stand my foot up in my shoe and press my toes to > > > the ground. Sometimes I do take my shoes off and press my toes to the > > > floor. > > > > > > Janet > > > spasms > > > > > > > > > what other than med's can I do for spasms in the feet and > > > toes....this will > > > happen when I am lying down in bed and move/change position. Thanks > > > Vivian > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I had one EMG in January and one later in a different area, I could really feel parts of me jumping when they pricked me. I do have peripheral neuropathy in both legs and trigemminal neuralgia in my right eye and right sice of my had and face for which I take neurotin. My current neurologist told me if at any time I have questions or concerns between appts to call, so since I know that others have this same problem I am going to give his office a call. I am very new at this game and really not sure what is symptomatic and what isn't, thanks to all that answered my post for helping clear this up for me. God Bless, Dolores Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores I have the same kinds of sensations and my neuro said it was a form or neuropathy - hypersensitive nerves which fire when they are suppose to. I still have some, but they were greatly reduced when I started taking the Lamictal for the myoclonus. For those who have had very painful EMGs, it depends on the doctor doing them. I have had at least a dozen EMGs by many different people and many different pain levels. If you are to have one, check to see how often the doc does them and ask him/her to use pediatric needles. I've had a sadistic doc or two and my MDA neuro who teaches EMG at two medical schools says they can be close to painless and they are when he does them. laurie > I told my son about that strange sensation and he asked me if I had talked to one of my doctors and I told him " No " as I didn't care to have my PCP start shaking her head and not saying anything, just giving me that look again. I know it sure is a strange sensation, it reminds me of touching an electric fence one when I was about nine years old. Thanks for the post I feel much better knowing it isn't just me. Take care, Dolores > > Barbara Seaman wheatchild@...> wrote:No Dolores, you haven't lost it. I go through periods of time where just > stepping on my right foot triggers a strong electric shock sensation in the > ball of my foot. The first time this happened many years ago I was vacuuming > and thought the vacuum had given me a shock. Not so. It kept happening, and > it is stepping on the foot that triggers the shock. With every step, shock, > shock, shock. Once it starts, the more I walk the worse it gets. If I rest > for several hours, it will usually stop for a while. I haven't had this as > much in recent years. I believe there is a medical term for this event, but > have forgotten it. > Barbara > > > > > Re: spasms > > > > I have always had severe leg cramps and I have taken several types of > muscle > > relaxers over the years. I have very severe pains in the right side of my > head, ear, > > face and I have stabbing pains in my right eye that feels like someone is > sticking a > > needle in my eye, I have been told that this is from trigeminial > neuralgia. My > > opthamologist spoke with my current neurologist and he increased the > dosage of > > neurotin from 300mg three times daily to 300mg four times daily and it > has helped > > the pain in the right side of my head, ear, face and eye considerably. At > least I do > > feel that it is livable now. At times my feet feel like (please don't > think I've lost it) > > there is an electrical current going thru them. I do have peripheral > neuropathy in > > both legs, but with the antodyne thereapy and the neurotin it isn't as > bad as it was, > > for which I am very thankful. I'm not sure if this is in any way helpful > or if it just > > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > > > z39z@... wrote:Vivian, > > > > Blessedly mine don't last very long, or come that often, because they > > are dreadfully painful. They seem to come when I move my foot > > sideways, or stretch it a certain way. I immediately try to massage > > it, and move the foot in the opposite directions with my hands, and > > they seem to fade quite quickly then. I have always been out of the > > company of others except my husband. I certainly would not want to be > > seen by anyone when one hits. I also get a similar sharp pain in the > > center of my head, when I yawn a certain way. It originates from one > > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > > > > > > > Vivian, > > > > > > Cannot help with an answer on this but sure would like to find one. > > > I get this every now and then also and it is awful. Lately it has not > > > been happening at night but during the day while I am at work. I try > > > my best to kind of stand my foot up in my shoe and press my toes to > > > the ground. Sometimes I do take my shoes off and press my toes to the > > > floor. > > > > > > Janet > > > spasms > > > > > > > > > what other than med's can I do for spasms in the feet and > > > toes....this will > > > happen when I am lying down in bed and move/change position. Thanks > > > Vivian > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 I had one EMG in January and one later in a different area, I could really feel parts of me jumping when they pricked me. I do have peripheral neuropathy in both legs and trigemminal neuralgia in my right eye and right sice of my had and face for which I take neurotin. My current neurologist told me if at any time I have questions or concerns between appts to call, so since I know that others have this same problem I am going to give his office a call. I am very new at this game and really not sure what is symptomatic and what isn't, thanks to all that answered my post for helping clear this up for me. God Bless, Dolores Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores I have the same kinds of sensations and my neuro said it was a form or neuropathy - hypersensitive nerves which fire when they are suppose to. I still have some, but they were greatly reduced when I started taking the Lamictal for the myoclonus. For those who have had very painful EMGs, it depends on the doctor doing them. I have had at least a dozen EMGs by many different people and many different pain levels. If you are to have one, check to see how often the doc does them and ask him/her to use pediatric needles. I've had a sadistic doc or two and my MDA neuro who teaches EMG at two medical schools says they can be close to painless and they are when he does them. laurie > I told my son about that strange sensation and he asked me if I had talked to one of my doctors and I told him " No " as I didn't care to have my PCP start shaking her head and not saying anything, just giving me that look again. I know it sure is a strange sensation, it reminds me of touching an electric fence one when I was about nine years old. Thanks for the post I feel much better knowing it isn't just me. Take care, Dolores > > Barbara Seaman wheatchild@...> wrote:No Dolores, you haven't lost it. I go through periods of time where just > stepping on my right foot triggers a strong electric shock sensation in the > ball of my foot. The first time this happened many years ago I was vacuuming > and thought the vacuum had given me a shock. Not so. It kept happening, and > it is stepping on the foot that triggers the shock. With every step, shock, > shock, shock. Once it starts, the more I walk the worse it gets. If I rest > for several hours, it will usually stop for a while. I haven't had this as > much in recent years. I believe there is a medical term for this event, but > have forgotten it. > Barbara > > > > > Re: spasms > > > > I have always had severe leg cramps and I have taken several types of > muscle > > relaxers over the years. I have very severe pains in the right side of my > head, ear, > > face and I have stabbing pains in my right eye that feels like someone is > sticking a > > needle in my eye, I have been told that this is from trigeminial > neuralgia. My > > opthamologist spoke with my current neurologist and he increased the > dosage of > > neurotin from 300mg three times daily to 300mg four times daily and it > has helped > > the pain in the right side of my head, ear, face and eye considerably. At > least I do > > feel that it is livable now. At times my feet feel like (please don't > think I've lost it) > > there is an electrical current going thru them. I do have peripheral > neuropathy in > > both legs, but with the antodyne thereapy and the neurotin it isn't as > bad as it was, > > for which I am very thankful. I'm not sure if this is in any way helpful > or if it just > > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > > > z39z@... wrote:Vivian, > > > > Blessedly mine don't last very long, or come that often, because they > > are dreadfully painful. They seem to come when I move my foot > > sideways, or stretch it a certain way. I immediately try to massage > > it, and move the foot in the opposite directions with my hands, and > > they seem to fade quite quickly then. I have always been out of the > > company of others except my husband. I certainly would not want to be > > seen by anyone when one hits. I also get a similar sharp pain in the > > center of my head, when I yawn a certain way. It originates from one > > of my jaw muscles, I am sure. Again, it grabs sharply, but if I don't > > move and just try to let my jaw go slack, it releases in a short time. > > > > > > > > > > > > > Vivian, > > > > > > Cannot help with an answer on this but sure would like to find one. > > > I get this every now and then also and it is awful. Lately it has not > > > been happening at night but during the day while I am at work. I try > > > my best to kind of stand my foot up in my shoe and press my toes to > > > the ground. Sometimes I do take my shoes off and press my toes to the > > > floor. > > > > > > Janet > > > spasms > > > > > > > > > what other than med's can I do for spasms in the feet and > > > toes....this will > > > happen when I am lying down in bed and move/change position. Thanks > > > Vivian > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Yes, definitely depends on the doctor. The doctor who did mine was oblivious to the fact I was freezing (even with blankets on) and also answered a page and took a call in the middle of the procedure. Take care, RH > > > > > > > Vivian, > > > > > > > > Cannot help with an answer on this but sure would like to find one. > > > > I get this every now and then also and it is awful. Lately it has not > > > > been happening at night but during the day while I am at work. I try > > > > my best to kind of stand my foot up in my shoe and press my toes to > > > > the ground. Sometimes I do take my shoes off and press my toes to the > > > > floor. > > > > > > > > Janet > > > > spasms > > > > > > > > > > > > what other than med's can I do for spasms in the feet and > > > > toes....this will > > > > happen when I am lying down in bed and move/change position. Thanks > > > > Vivian > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Yes, definitely depends on the doctor. The doctor who did mine was oblivious to the fact I was freezing (even with blankets on) and also answered a page and took a call in the middle of the procedure. Take care, RH > > > > > > > Vivian, > > > > > > > > Cannot help with an answer on this but sure would like to find one. > > > > I get this every now and then also and it is awful. Lately it has not > > > > been happening at night but during the day while I am at work. I try > > > > my best to kind of stand my foot up in my shoe and press my toes to > > > > the ground. Sometimes I do take my shoes off and press my toes to the > > > > floor. > > > > > > > > Janet > > > > spasms > > > > > > > > > > > > what other than med's can I do for spasms in the feet and > > > > toes....this will > > > > happen when I am lying down in bed and move/change position. Thanks > > > > Vivian > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 My two cent's worth on foot pain. I have had general pain in my feet, especially the balls of my feet, since I was a teenager. (Dont want to admit it, over 40 years ago). Supposedly " good " shoes and support stockings didn't help much. Heels were/are out of the question. Then custom molded orthotics helped somewhat. I finally found the best solution for me with the metatarsal arches (forward and center of the regular arch) found in Birkenstock sandals. Additionally, the sandal/shoe has a footbed made of cork, which compresses over time to mold to feet as they are actually bearing weight in walking. These darlings have allowed me to walk with more comfort now than when I was 20. I wear em rain or shine, 24/7/365. One pair is even designated as house shoes. My hypothesis about my foot problem, which no one could ever explain, was that the muscles just didn't have the strength/endurance to do their work long enough, like in a normal person, and that the support under the metatarsal area takes some of the weight off my bones. There are some inexpensive plastic, fairly rigid arches I have bought from TV that also give me the support in the metatarsal area where I need it. Not that one size fits all, or that the same shoes will help everyone, but I do want to suggest that aggressively trying different shoes/support arches might help us with some of our pain. Additionally, it is claimed when the feet have proper arch supports, the entire body is in better alignment, again putting less stress on our other muscles/joints. A friend claims her knee problem has been greatly reduced with Birkenstocks. Just observations from a long time foot sufferer. One more thought, if you consider Birkies, know they take some getting used to, and the comfort will greatly increase over time, when you wear in the footbed to your foot. Getting them fit properly is also important, so i would not suggest buying online. Regards to all Sunny > No Dolores, you haven't lost it. I go through periods of time where > just > stepping on my right foot triggers a strong electric shock sensation > in the > ball of my foot. The first time this happened many years ago I was > vacuuming > and thought the vacuum had given me a shock. Not so. It kept > happening, and > it is stepping on the foot that triggers the shock. With every step, > shock, > shock, shock. Once it starts, the more I walk the worse it gets. If I > rest > for several hours, it will usually stop for a while. I haven't had > this as > much in recent years. I believe there is a medical term for this > event, but > have forgotten it. > Barbara > > > > > Re: spasms > > > > I have always had severe leg cramps and I have taken several types > of > muscle > > relaxers over the years. I have very severe pains in the right > side of my > head, ear, > > face and I have stabbing pains in my right eye that feels like > someone is > sticking a > > needle in my eye, I have been told that this is from trigeminial > neuralgia. My > > opthamologist spoke with my current neurologist and he increased the > dosage of > > neurotin from 300mg three times daily to 300mg four times daily > and it > has helped > > the pain in the right side of my head, ear, face and eye > considerably. At > least I do > > feel that it is livable now. At times my feet feel like (please > don't > think I've lost it) > > there is an electrical current going thru them. I do have > peripheral > neuropathy in > > both legs, but with the antodyne thereapy and the neurotin it > isn't as > bad as it was, > > for which I am very thankful. I'm not sure if this is in any way > helpful > or if it just > > sounds like the ramblings of an " old " lady (ha). Dolores johnson > > > > z39z@... wrote:Vivian, > > > > Blessedly mine don't last very long, or come that often, because > they > > are dreadfully painful. They seem to come when I move my foot > > sideways, or stretch it a certain way. I immediately try to massage > > it, and move the foot in the opposite directions with my hands, and > > they seem to fade quite quickly then. I have always been out of the > > company of others except my husband. I certainly would not want to > be > > seen by anyone when one hits. I also get a similar sharp pain in the > > center of my head, when I yawn a certain way. It originates from one > > of my jaw muscles, I am sure. Again, it grabs sharply, but if I > don't > > move and just try to let my jaw go slack, it releases in a short > time. > > > > > > > > > > > > > Vivian, > > > > > > Cannot help with an answer on this but sure would like to find > one. > > > I get this every now and then also and it is awful. Lately it > has not > > > been happening at night but during the day while I am at work. I > try > > > my best to kind of stand my foot up in my shoe and press my toes > to > > > the ground. Sometimes I do take my shoes off and press my toes > to the > > > floor. > > > > > > Janet > > >  spasms > > > > > > > > >  what other than med's can I do for spasms in the feet and > > > toes....this will > > >  happen when I am lying down in bed and move/change position. > Thanks > > > Vivian > > > > > > > > >  Quote Link to comment Share on other sites More sharing options...
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