Re: echocardiogram results

[Guest guest]

, I was hoping that once your nutrition improved, that your heart

might begin to repair and improve. I am sorry to hear that is not happening,

at least yet. I pray your doctors will be wise in their decisions. So many

challenges here, so many things to balance.

I think of you often.

Hugs,

Barbara

_____

From: [mailto: ] On Behalf

Of LILQT4U1984@...

Sent: Monday, May 23, 2005 7:24 PM

To:

Subject: echocardiogram results

I recieved my echo results today. I have cardiomyopathy and my EF was 35%.

There were no significant changes over the last 4 months since my last echo.

My

EF decreased by 5%. The doc is out of town so the nurse is going to discuss

this with him when he returns and see what he wants to do. The prob is that

I

don't have the classic heart failure symptoms. My BP is way too low instead

of high so that eliminates the majority of the medications used. There is

one

med that just makes the heart pump better/more but is has quite a few side

effects so I don't know if the doc would want to introduce it or not. Thats

all I know for now.

[Guest guest]

I'm sorry to hear that your echo wasn't better. My mother had

significant cardiomyopathy, yet with continued use of CoQ, she died

from several strokes rather than her heart. Stay positive as I know

you will.

You are in my thoughts and prayers.

laurie

> I recieved my echo results today. I have cardiomyopathy and my EF was 35%.

>

> There were no significant changes over the last 4 months since my last echo.

> My

> EF decreased by 5%. The doc is out of town so the nurse is going to discuss

>

> this with him when he returns and see what he wants to do. The prob is that

> I

> don't have the classic heart failure symptoms. My BP is way too low instead

>

> of high so that eliminates the majority of the medications used. There is

> one

> med that just makes the heart pump better/more but is has quite a few side

>

> effects so I don't know if the doc would want to introduce it or not. Thats

>

> all I know for now.

>

>

>

>

>

[Guest guest]

Dear , I am sorry that the news was not better on this today.

I sure hope the docs can give you some answers and support in this

area soon. I'll continue praying for you.

Cindy (mom to two mito kids and probably a grown up mito kid, too)

> I recieved my echo results today. I have cardiomyopathy and my EF

was 35%.

> There were no significant changes over the last 4 months since my

last echo. My

> EF decreased by 5%. The doc is out of town so the nurse is going

to discuss

> this with him when he returns and see what he wants to do. The

prob is that I

> don't have the classic heart failure symptoms. My BP is way too

low instead

> of high so that eliminates the majority of the medications used.

There is one

> med that just makes the heart pump better/more but is has quite a

few side

> effects so I don't know if the doc would want to introduce it or

not. Thats

> all I know for now.

>

>

>

>

[Guest guest]

, I am sorry you didn't hear better results from the echo. I was

hoping that the better nutrition would help. Please know that you are

always in my thoughts and prayers.

Hugs,

a

On Mon, 23 May 2005 20:24:02 EDT LILQT4U1984@... writes:

I recieved my echo results today. I have cardiomyopathy and my EF was

35%.

There were no significant changes over the last 4 months since my last

echo. My

EF decreased by 5%. The doc is out of town so the nurse is going to

discuss

this with him when he returns and see what he wants to do. The prob is

that I

don't have the classic heart failure symptoms. My BP is way too low

instead

of high so that eliminates the majority of the medications used. There

is one

med that just makes the heart pump better/more but is has quite a few

side

effects so I don't know if the doc would want to introduce it or not.

Thats

all I know for now.

[Guest guest]

as I said before just hand in there as best you can, I do have you on my

prayer line and I know you are in the thoughts and prayers of the entire group.

God Bless, Dolores

LILQT4U1984@... wrote:I recieved my echo results today. I have

cardiomyopathy and my EF was 35%.

There were no significant changes over the last 4 months since my last echo. My

EF decreased by 5%. The doc is out of town so the nurse is going to discuss

this with him when he returns and see what he wants to do. The prob is that I

don't have the classic heart failure symptoms. My BP is way too low instead

of high so that eliminates the majority of the medications used. There is one

med that just makes the heart pump better/more but is has quite a few side

effects so I don't know if the doc would want to introduce it or not. Thats

all I know for now.

[Guest guest]

, you are in my thoughts and prayers, Im so sorry about your

results. Thank God research is top notch and new heart medications

are right around the corner, so you hang in there. You are an

inspiration to me, you have such a strong spirit, i pray i can be

strong like you!! Many hugs, Barb

[Guest guest]

--- I am sorry that your echo did not show improvement. Maybe your

body just has not had enough time to heal from the increased

nutrition. Let's hope this is the case. You are in my thoughts and

prayers. Hugs, DawnA

In , LILQT4U1984@a... wrote:

> I recieved my echo results today. I have cardiomyopathy and my EF

was 35%.

> There were no significant changes over the last 4 months since my

last echo. My

> EF decreased by 5%. The doc is out of town so the nurse is going

to discuss

> this with him when he returns and see what he wants to do. The

prob is that I

> don't have the classic heart failure symptoms. My BP is way too

low instead

> of high so that eliminates the majority of the medications used.

There is one

> med that just makes the heart pump better/more but is has quite a

few side

> effects so I don't know if the doc would want to introduce it or

not. Thats

> all I know for now.

>

>

>

>

>

[Guest guest]

,

Have you had a chance to talk with your doctor about the test results?

Hugs,

LILQT4U1984@... wrote:

>I recieved my echo results today. I have cardiomyopathy and my EF was 35%.

>There were no significant changes over the last 4 months since my last echo. My

> EF decreased by 5%. The doc is out of town so the nurse is going to discuss

>this with him when he returns and see what he wants to do. The prob is that I

>don't have the classic heart failure symptoms. My BP is way too low instead

>of high so that eliminates the majority of the medications used. There is one

>med that just makes the heart pump better/more but is has quite a few side

>effects so I don't know if the doc would want to introduce it or not. Thats

>all I know for now.

>

>

>

>

>

[Guest guest]

I have an appt on Monday at 12:30 with my cardiologist. That is his first

day back in the office after 3 wks so the nurse said to plan to have a long wait

but she felt it was warranted that I be seen since I passed out and have had

some off and on left arm pain. I'm going to the hospital today for pre-op

tests. One week from today I will have my ileostomy reversal surgery. I'm

counting down the days.

Thanks for asking .

[Guest guest]

Good luck today! I hope it isn't too tiring.

laurie

> I have an appt on Monday at 12:30 with my cardiologist. That is his first

> day back in the office after 3 wks so the nurse said to plan to have a long

wait

> but she felt it was warranted that I be seen since I passed out and have had

> some off and on left arm pain. I'm going to the hospital today for pre-op

> tests. One week from today I will have my ileostomy reversal surgery. I'm

> counting down the days.

>

> Thanks for asking .

>

>

>

>

>

[Guest guest]

, I am so sorry you keep having problems, I can tell that you are a very

strong young lady and my prayers are with you as well as the fact that you are

in the prayers of the entire congreation of my church. I am sure the Lord is

watching over you! God Bless, Dolores

LILQT4U1984@... wrote:I have an appt on Monday at 12:30 with my

cardiologist. That is his first

day back in the office after 3 wks so the nurse said to plan to have a long wait

but she felt it was warranted that I be seen since I passed out and have had

some off and on left arm pain. I'm going to the hospital today for pre-op

tests. One week from today I will have my ileostomy reversal surgery. I'm

counting down the days.

Thanks for asking .

[Guest guest]

My thoughts and prayers continue to be with you. What does your PCP say

about you passing out, etc?

LILQT4U1984@... wrote:

>I have an appt on Monday at 12:30 with my cardiologist. That is his first

>day back in the office after 3 wks so the nurse said to plan to have a long

wait

> but she felt it was warranted that I be seen since I passed out and have had

> some off and on left arm pain. I'm going to the hospital today for pre-op

>tests. One week from today I will have my ileostomy reversal surgery. I'm

>counting down the days.

>

>Thanks for asking .

>

>

>

>

>

[Guest guest]

My thoughts and prayers continue to be with you. What does your PCP say

about you passing out, etc?

LILQT4U1984@... wrote:

>I have an appt on Monday at 12:30 with my cardiologist. That is his first

>day back in the office after 3 wks so the nurse said to plan to have a long

wait

> but she felt it was warranted that I be seen since I passed out and have had

> some off and on left arm pain. I'm going to the hospital today for pre-op

>tests. One week from today I will have my ileostomy reversal surgery. I'm

>counting down the days.

>

>Thanks for asking .

>

>

>

>

>