Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi......I just wanted to give my two cents worth on Creon. We started our son on Creon just 10 days ago, and to our family, it is a miracle!! His digestive problems are already much better, and the severe chronic constipation he had is much much better! As I said, just my two cents worth. Creon-10 is definitely a " wonder drug " for us. in Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 OK, I haven't heard back from the manufacturer of Creon. I'm wondering what else is in it....any soy? Does anyone know? Jolene in KC ____________________________________________________________________ Get free email and a permanent address at http://www.netaddress.com/?N=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Louie, That is interesting that the GI brought up the Creon. I was given a research study that addresses the generic vs Creon brand enzymes. My insurance did not have Creon on the formulary either. However, when I continued to complain of pain with eating and nausea, etc., my doctor said she had just seen a report stating that the generic Creon was not as effective in some pts. My doctor wrote a Rx for Creon (DAW) which stands for Dispense As Written. Merck Medco is now filling my Creon Rx without any questions. I think they work better, for me anyway. You know how the mind thing is, though, I might just think I they work better. Either way, guess it doesn't matter, I take Creon Brand Enzymes and I have less nausea and less greasy output. I could not locate the article I have on line. It is reprinted from US Pharmacist, January 2002. I did find a Position Statement written by some Pharmacists regarding this issue. They can be read at: http://www.rx4cf.org/whitepapers.htmlhttp://www.rx4cf.org/whitepapers.ht\ ml I do want to say that I don't feel comfortable with their title they use calling the use of generic pancreatic Enzyme Supplementation as 'illegal.' The truth of the matter is that there is no FDA regulation of these products. It is unfortunate that this article isn't available online, because it explains on a biochemical level the problems that are caused when there is a disproportionate quantity of Lipase: Amylase. The position statement papers don't explain this as well. To date I don't think anyone has had a problem with an insurance company denying filling a Rx for Creon when the doctor write (Do not substitute) at the bottom of the Rx. One more reminder to everyone: Amylase is secreted in the saliva. Every effort should be made to utilize the saliva to assist with food digestion. When I drink fluid I always take a sip and hold in my mouth for a second before swallowing. I also try to chew very slowly. Most of you know that for almost a year I suffered with sever dry mouth syndrome. Besides causing tooth deterioration, the dry mouth meant that I did not have the saliva and subsequently did not have that added boost of Amylase for food digestion. It is just amazing how inter / intra-related everything is. Karyn Karyn E. , RN Founder / Executive Director Pancreatitis Association International Corp. Office: Indps, IN, USA 1- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Louie, That is interesting that the GI brought up the Creon. I was given a research study that addresses the generic vs Creon brand enzymes. My insurance did not have Creon on the formulary either. However, when I continued to complain of pain with eating and nausea, etc., my doctor said she had just seen a report stating that the generic Creon was not as effective in some pts. My doctor wrote a Rx for Creon (DAW) which stands for Dispense As Written. Merck Medco is now filling my Creon Rx without any questions. I think they work better, for me anyway. You know how the mind thing is, though, I might just think I they work better. Either way, guess it doesn't matter, I take Creon Brand Enzymes and I have less nausea and less greasy output. I could not locate the article I have on line. It is reprinted from US Pharmacist, January 2002. I did find a Position Statement written by some Pharmacists regarding this issue. They can be read at: http://www.rx4cf.org/whitepapers.htmlhttp://www.rx4cf.org/whitepapers.ht\ ml I do want to say that I don't feel comfortable with their title they use calling the use of generic pancreatic Enzyme Supplementation as 'illegal.' The truth of the matter is that there is no FDA regulation of these products. It is unfortunate that this article isn't available online, because it explains on a biochemical level the problems that are caused when there is a disproportionate quantity of Lipase: Amylase. The position statement papers don't explain this as well. To date I don't think anyone has had a problem with an insurance company denying filling a Rx for Creon when the doctor write (Do not substitute) at the bottom of the Rx. One more reminder to everyone: Amylase is secreted in the saliva. Every effort should be made to utilize the saliva to assist with food digestion. When I drink fluid I always take a sip and hold in my mouth for a second before swallowing. I also try to chew very slowly. Most of you know that for almost a year I suffered with sever dry mouth syndrome. Besides causing tooth deterioration, the dry mouth meant that I did not have the saliva and subsequently did not have that added boost of Amylase for food digestion. It is just amazing how inter / intra-related everything is. Karyn Karyn E. , RN Founder / Executive Director Pancreatitis Association International Corp. Office: Indps, IN, USA 1- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Hi Karyn, Thanks for the information. It's an interesting article which I just got done reading. For now, I going to stay an the generic Lipram, because it does seem to be working fine on me. I don't have any malabsorbant problems with it and so far it is helping. But, I will remember to have the doctor write Brand Necessary, if it quite working for me. Thanks again, for your help. Take care, Louie in WV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Hi all, I have a question about enzymes. I do not remember precisely what was on the script my GI wrote for me when I started enzymes. I took the script to my pharmacy and of course they filled with a generic. The generic is called pangestyme UL 20 of which I take 3 with each meal plus 3 right before I go to bed. Is pangestyme a generic Creon? Anyone else take pangestyme? I was slow to adopt enzymes because of some strange concern I had about loading up on something I seem to make too much of when I have an attack. However, you all, by speaking of your experiences, have shown me the value of enzymes and I now take them religiously. And having done so I have managed to finally push my diet forward to include oatmeal and small bland food portions like white rice. My main source of nourishment is still ensure but now I can actually CHEW some food! Thank you all for sharing...it made a direct impact in my life. Any thoughts on pangestyme? Thanks, Bert ----- Bert Bolin Idiopathic recurrent pancreatitis Need to chat? Yahoo Messenger: l10nx, http://l10nx.net/ Info and Support: Pancreatitis Association International: http://pancassociation.org may you be free if but for awhile from the pain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Bert, I am not sure exactly what pangestymeis. I believe it is a Microencapsulated enteric coated generic formulation of Creon, though. That just means they are capsule of tiny beads that are coated with a material that won't breakdown until it comes in contact with food. The patients that are most sensitive to any alteration in the exact concentrations of these enzymes are sick Cystic Fibrosis patients. You can monitor that by any change in nausea when eating or weight loss. I am glad that you have found the information on the board helpful Karyn E. , RN Founder / Executive Director Pancreatitis Association International Corp. Office: Indps, IN, USA 1- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Bert, I am not sure exactly what pangestymeis. I believe it is a Microencapsulated enteric coated generic formulation of Creon, though. That just means they are capsule of tiny beads that are coated with a material that won't breakdown until it comes in contact with food. The patients that are most sensitive to any alteration in the exact concentrations of these enzymes are sick Cystic Fibrosis patients. You can monitor that by any change in nausea when eating or weight loss. I am glad that you have found the information on the board helpful Karyn E. , RN Founder / Executive Director Pancreatitis Association International Corp. Office: Indps, IN, USA 1- Quote Link to comment Share on other sites More sharing options...
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