Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 Welcome home Irene! :-) Gosh, what a way to spend your last night of vacation. I'm glad you all got out safely. I hope you had a great, even tho hectic, time with your daughter and granddaughters. {{{Hugs}}} Jacqui Jacqui McCallister Age: 39 Dx'd with FMS: 1995, but symptoms since 1984 Approved for SSI Disability: June 18, 2002 Additional Illnesses: Papillary Thyroid Cancer spread to lungs, Intra-Ocular Migraines, TMJ, Allergies, Periodontitis, Mitral Valve Prolapse, IBS, Osteoarthritis, MPS and CFS, Congenital Hip Dysplasia, Osteopenia, Bunions, Heel Spur, Light/Smell/Sound Sensitivities, Motion Sickness, Sleep Problems, Depression, Anxiety Location: Ridgeview, West Virginia USA Divorced, no kids. One furbaby, Jasmine, my Himalayan cat Hobbies: Internet, Country, Rock and Gospel music, TV, Horror Movies, Days of Our Lives, Trivia games ICQ#: 126676406 Yahoo Messenger ID: jacqui_mccallister Email: persephene@... --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.381 / Virus Database: 214 - Release Date: 8/3/2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi all, Im back home from the hospital, biospy went well, and pathologist were doing study while i was still on the table. Three insicions on my side. Lung tube for drainage and breathing was painful, dont ever want that again!!! Nurses were wonderful except for one who i did get into a screaming match with. She gave me morphine via IV, and the vein had collapsed so no medication got through vein, just under my skin which my hand immediately blew up like a catchers mit. when i told her the IV was out, she accused me of wanting more morphine, and i exploded at that. Anyway another nurse came in and i showed her my hand and i showed her my other arm (wrist) where they had a blood gas needle in and told her that was also collapsed, to please call my doc to get permission to have them pulled. She was back in ten minutes with orders to pull them, and the nurse who was so rude was repromanded by her superior. so there is justice in the world!!! My veins collapsed within 6 hours of being put in. So the doc came in that night to visit me and he asked if he could do the surgery for my port, that they were all in agreement that poking me over and over was not a good idea. He put the port in the following morning and while i was under he pulled my lung line. He explained its rght below my collor bone on the left side and i will receive chemo, hydration adn nutrician thruough this, and im grateful for that. Im black and blue everywhere there was something done. The insicion for the lung tube has no stitches, no steri stiches nothihg just a big gaping hole, right beneath where the breast and chest meet up again, and it is still draining, which is good, i just wish it would stop and heal.. The port sight is swollen like a golf ball, he said that was normal, and it hurts so bad, i feel at night like i will rip my hair out, and im on plenty of pain medication. the evenings when its quiet, is when it bothers me the most. and im extremely tired. They did take MH precautions, and that was good since they didnt understand mito much, but they sure knew about MH. I will meet with chemo nurses this week, to discuss everything, three days of chemo, three weeks off. WEll i have to go lay down cant keep my eyes open, Thanks for all the prayers and good wishes!!! Now we can get those drangonflies to do thier jobs!! Love ya's, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi Barb, So good to hear from you!! :-) I am sorry to hear that you had to deal with One bad apple of a Nurse, but isn't that the way it always is?? :-( I am glad that you exploded at her and it is so good to know that she got reprimanded by her superior!! Good for You. It is probably good that you got the port in now, this way you won't be constantly poked by them trying to find veins. That is one less thing to worry about. I am sorry to hear that it is so painful, I have heard that from many people who get ports. I am sure it has alot to do with where it is located. But now everything can be given to you thru the port. Just keep an eye on the port site to make sure it doesn't become infected. I hope and pray that the incision heals quickly. Thankfully they have you on lots of pain meds, but I am sorry to hear that it isn't enough to control the pain. You might want to talk to your doctor about possibly changing your pain meds to something that can better control your pain.It doesn't hurt to ask. Good Luck with your meeting with the Chemo nurses. I hope and pray that they are compassionate and caring and kind and make you feel loved and special. It so helps when they care and show it. Please know that I am thinking of you and praying for you. I bet your hospital room was filled with dragonflies flying all around you and healing you with their special powers!!! >< You did bring the dragonflies home with you, didn't you?? ;-) Love and Hugs, Ann-Marie At 08:43 PM 6/19/2005, you wrote: >Hi all, Im back home from the hospital, biospy went well, and >pathologist were doing study while i was still on the table. Three >insicions on my side. Lung tube for drainage and breathing was >painful, dont ever want that again!!! Nurses were wonderful except >for one who i did get into a screaming match with. She gave me >morphine via IV, and the vein had collapsed so no medication got >through vein, just under my skin which my hand immediately blew up >like a catchers mit. when i told her the IV was out, she accused me >of wanting more morphine, and i exploded at that. Anyway another >nurse came in and i showed her my hand and i showed her my other arm >(wrist) where they had a blood gas needle in Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi Barb, So good to hear from you!! :-) I am sorry to hear that you had to deal with One bad apple of a Nurse, but isn't that the way it always is?? :-( I am glad that you exploded at her and it is so good to know that she got reprimanded by her superior!! Good for You. It is probably good that you got the port in now, this way you won't be constantly poked by them trying to find veins. That is one less thing to worry about. I am sorry to hear that it is so painful, I have heard that from many people who get ports. I am sure it has alot to do with where it is located. But now everything can be given to you thru the port. Just keep an eye on the port site to make sure it doesn't become infected. I hope and pray that the incision heals quickly. Thankfully they have you on lots of pain meds, but I am sorry to hear that it isn't enough to control the pain. You might want to talk to your doctor about possibly changing your pain meds to something that can better control your pain.It doesn't hurt to ask. Good Luck with your meeting with the Chemo nurses. I hope and pray that they are compassionate and caring and kind and make you feel loved and special. It so helps when they care and show it. Please know that I am thinking of you and praying for you. I bet your hospital room was filled with dragonflies flying all around you and healing you with their special powers!!! >< You did bring the dragonflies home with you, didn't you?? ;-) Love and Hugs, Ann-Marie At 08:43 PM 6/19/2005, you wrote: >Hi all, Im back home from the hospital, biospy went well, and >pathologist were doing study while i was still on the table. Three >insicions on my side. Lung tube for drainage and breathing was >painful, dont ever want that again!!! Nurses were wonderful except >for one who i did get into a screaming match with. She gave me >morphine via IV, and the vein had collapsed so no medication got >through vein, just under my skin which my hand immediately blew up >like a catchers mit. when i told her the IV was out, she accused me >of wanting more morphine, and i exploded at that. Anyway another >nurse came in and i showed her my hand and i showed her my other arm >(wrist) where they had a blood gas needle in Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 The only thing that helps my OA pain is methyl sulfonyl methane (MSM), a supplemental form of organic sulfur. I use the kind with molybdenum in it, a trace mineral (Source naturals brand). I went to the ER (screaming and crying) for OA pain, and narcotics didn't help, but the MSM did. I don't think I would be able to function at all without it. The point is to provide sulfur to the proteins that rebuild the inflamed joint. It's very safe, but YMMV, and I'm not a medical doctor, etc. Take care, RH > Hi Anne-Marie, Thank you for all your prayers, and good thoughts, they > really help!!! Im waiting now for a return call from my pain > management doc, ( i will tell him today about the cancer) I want him to > be part of my team, he knows me for 5 years now, and i think he can be > very beneficial, in my treatment as far as the pain goes. If not, hes > fired!!! I just have to be that discriminating at this point, they > either help or they are fired!!! I will ask him to up my morphine as > the cancer is affecting my OA and degenarative bone and joint disease, > and need more morphine because of the cancer pain. I rather him up the > dose than, the oncologist just write up for pain pills, becuase they > dont know me as well as him, he can write up for a higher dose and i > dont have to worry if the dose is too high or not, that is how much > confidence i have in him. Well keep thinking Dragonflies, and keep me > in your thoughts!!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 The only thing that helps my OA pain is methyl sulfonyl methane (MSM), a supplemental form of organic sulfur. I use the kind with molybdenum in it, a trace mineral (Source naturals brand). I went to the ER (screaming and crying) for OA pain, and narcotics didn't help, but the MSM did. I don't think I would be able to function at all without it. The point is to provide sulfur to the proteins that rebuild the inflamed joint. It's very safe, but YMMV, and I'm not a medical doctor, etc. Take care, RH > Hi Anne-Marie, Thank you for all your prayers, and good thoughts, they > really help!!! Im waiting now for a return call from my pain > management doc, ( i will tell him today about the cancer) I want him to > be part of my team, he knows me for 5 years now, and i think he can be > very beneficial, in my treatment as far as the pain goes. If not, hes > fired!!! I just have to be that discriminating at this point, they > either help or they are fired!!! I will ask him to up my morphine as > the cancer is affecting my OA and degenarative bone and joint disease, > and need more morphine because of the cancer pain. I rather him up the > dose than, the oncologist just write up for pain pills, becuase they > dont know me as well as him, he can write up for a higher dose and i > dont have to worry if the dose is too high or not, that is how much > confidence i have in him. Well keep thinking Dragonflies, and keep me > in your thoughts!!! Hugs, Barb Quote Link to comment Share on other sites More sharing options...
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