Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 I have mito, functional complex I & II defect. I finally had a fresh bx done at CCF (Cleveland Clinic Foundation). klaga5 wrote: > >I'm glad to be forwarned. I suppose as hard as these are to >diagnose, it's a good idea to accept that the dx could be wrong when >you get one. Makes second opinions sound like a good idea. >Do you have a GSD, or is your dx something totally different? >Kim > > > > >>I was misdiagnosed with GSD # 9 by Athena Labs. >> >> >> >> > > > > > > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 I have seen several references to poor work done by athena labs. The reason I am concerned is because the tissue from my last muscle biopsy was sent there and am awaiting those results. From what I have read, they don't have a very good track record. Any thoughts or advice would be helpful in case the results from this last biopsy prove to be less than helpful. Thanks!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Hopefully you will get some results that make sense. Our family got different diagnostic results for different people, but they were not looking specifically for mito. Do you know if your doctor ordered the tests specific for mito? laurie > I have seen several references to poor work done by athena labs. The > reason I am concerned is because the tissue from my last muscle biopsy > was sent there and am awaiting those results. From what I have read, > they don't have a very good track record. Any thoughts or advice would > be helpful in case the results from this last biopsy prove to be less > than helpful. Thanks!! > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
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