Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 , So glad they can now tap the greater body of knowledge. Hopefully that combined wealth of information will lead to successful recommendations toward treatment and helping you feel significantly better. We are still waiting for the entire mitochondrial genome studies from Atlanta. It has been two (almost 2 1/2 years) already. I some ways it won't change anything, yet it would give us the full physician support at some medical centers that has been lacking. It would also cement the girls decision to adopt their children when they are ready to start their families. Barbara Seaman wheatchild@...> wrote: , Yes yes! You are now officially rare in several ways! Rare courage, rare beauty, rare mutation. I certainly hope this leads to better understanding of your disease pathology, and will in turn lead to more options and help. Joanne Kocourek (mom to , lies, and ) visit us at: http://www.caringbridge.org/il/annakris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Hi , im so happy you finally have your diagnoses, knowing is wisdom and wisdom is power, now they can help you even more!!! God Bless!! Your in my prayers! Hugs to you! Barb Quote Link to comment Share on other sites More sharing options...
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