Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 I was given a pill in ER for them once when I went in for red urine and spasms. It worked well. I'm sorry I don't remember what it was called. Kim > > Hi, > > I have bladder spasms and was wondering if anyone else here has them? They > are very painful and at times can last a long time. For those of you who do > have Bladder spasms what do you do for them? Is there a medication to take > to stop the spasms? Is there some kind of surgery to stop them? I do know > that they are not unusual in Mito patients, so somebody has to know what to > do to eliminate them or at least keep them at bay. > > Thanks!! > Hugs, Ann-Marie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 HI Kim, Thanks for the response. At least I know there is something out there that helps with the spasms. Hopefully someone else on the list will know. Hugs, Ann-Marie At 01:04 AM 6/26/2005, you wrote: >To: > >Subject: Re: Bladder Spasms > >I was given a pill in ER for them once when I went in for red urine >and spasms. It worked well. I'm sorry I don't remember what it was >called. >Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Hi as I'm sure you can tell by the time of my post that this is one of my problematic nights as I was experiencing swelling of my feet again all day yesterday and this was afrer taking two Lasix . A weight a gain of six pounds yesterday now has progressed to the point that sleep is not to be had due to lack of air again. I finally decided just to get up to see if that helped as laying down just isn't in the picture. Now to your question, I definiely have had this experience, at various times and several years ago the urologist I was seeing prescribed Donnatal for my bladder spasms, he said it can be used for a variety of problems including " motion sickness " ? When I was still able to work the woman that was the Pharmacy Consultant for Kansas Medicaid suggested I try Azo-Cranberry pills, they can be purchased at Walgreens or Wal-Mart in Topeka, they also have what is called Azo-Gantrasin which has a " dye " that l have taken on rare occasions, I am a firm believer in the Azo-Cranberry. I hope this will be of some help to you. I am trying to regain my energy back after a colon biopsy and a biopsy of my esophagus on the 23rd. I also had heart tests done last tuesday which showed a leakage areound two of my heart valves? I guess I'll hear on the heart tests his week and I have a follow-up visit with Dr. Feagan on the 30th about the pathology results. I do so hope you can find some relief from the bladder spasms as they are very painful and I am speaking from first hand experience. At times I have also tried using a heating pad. Good night and God Bless, Dolores Ann-Marie Mc peetie@...> wrote: Hi, I have bladder spasms and was wondering if anyone else here has them? They are very painful and at times can last a long time. For those of you who do have Bladder spasms what do you do for them? Is there a medication to take to stop the spasms? Is there some kind of surgery to stop them? I do know that they are not unusual in Mito patients, so somebody has to know what to do to eliminate them or at least keep them at bay. Thanks!! Hugs, Ann-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Hi as I'm sure you can tell by the time of my post that this is one of my problematic nights as I was experiencing swelling of my feet again all day yesterday and this was afrer taking two Lasix . A weight a gain of six pounds yesterday now has progressed to the point that sleep is not to be had due to lack of air again. I finally decided just to get up to see if that helped as laying down just isn't in the picture. Now to your question, I definiely have had this experience, at various times and several years ago the urologist I was seeing prescribed Donnatal for my bladder spasms, he said it can be used for a variety of problems including " motion sickness " ? When I was still able to work the woman that was the Pharmacy Consultant for Kansas Medicaid suggested I try Azo-Cranberry pills, they can be purchased at Walgreens or Wal-Mart in Topeka, they also have what is called Azo-Gantrasin which has a " dye " that l have taken on rare occasions, I am a firm believer in the Azo-Cranberry. I hope this will be of some help to you. I am trying to regain my energy back after a colon biopsy and a biopsy of my esophagus on the 23rd. I also had heart tests done last tuesday which showed a leakage areound two of my heart valves? I guess I'll hear on the heart tests his week and I have a follow-up visit with Dr. Feagan on the 30th about the pathology results. I do so hope you can find some relief from the bladder spasms as they are very painful and I am speaking from first hand experience. At times I have also tried using a heating pad. Good night and God Bless, Dolores Ann-Marie Mc peetie@...> wrote: Hi, I have bladder spasms and was wondering if anyone else here has them? They are very painful and at times can last a long time. For those of you who do have Bladder spasms what do you do for them? Is there a medication to take to stop the spasms? Is there some kind of surgery to stop them? I do know that they are not unusual in Mito patients, so somebody has to know what to do to eliminate them or at least keep them at bay. Thanks!! Hugs, Ann-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 -Hi Ann Marie Sorry to hear about the bladder spasms. I've had them since having my last child and I thought they had something to do with my C- section. But then I started taking domperidone for gastroparesis and my bladder got better. Now I just have to make sure I go at regular intervals and empty all the way. Still not ideal but hey it's better than not making it to the potty! Domperidone didn't help my stomach but now I don't want to stop it because of how great my bladder feels. There's a medicine called pyridium that turns your urine orange and acts as a local anesthetic. Good in a pinch but doesn't really fix the problem. Ditropan is for bladder spasms and donnatal is for everything spasms. Any of those meds can cause constipation and urinary retention so if that's a problem be careful. If you're just starting to have problems you should consider seeing a urologist. It wouldn't be helpful to have your doctors assume " mito mito mito " for all symptoms when it could be something treatable. Good luck! Heidi -- In , Ann-Marie Mc wrote: > > Hi, > > I have bladder spasms and was wondering if anyone else here has them? They > are very painful and at times can last a long time. For those of you who do > have Bladder spasms what do you do for them? Is there a medication to take > to stop the spasms? Is there some kind of surgery to stop them? I do know > that they are not unusual in Mito patients, so somebody has to know what to > do to eliminate them or at least keep them at bay. > > Thanks!! > Hugs, Ann-Marie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Ann-Marie, I've had bladder spasms for years but they are related to my interstitial cystitis which is a chronic inflammation of the bladder. I don't take anything specifically for the spasms, just wait them out, being cautious of meds in general. Barbara _____ From: [mailto: ] On Behalf Of Ann-Marie Mc Sent: Saturday, June 25, 2005 11:30 PM To: Mitoldies Subject: Bladder Spasms Hi, I have bladder spasms and was wondering if anyone else here has them? They are very painful and at times can last a long time. For those of you who do have Bladder spasms what do you do for them? Is there a medication to take to stop the spasms? Is there some kind of surgery to stop them? I do know that they are not unusual in Mito patients, so somebody has to know what to do to eliminate them or at least keep them at bay. Thanks!! Hugs, Ann-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Ann Marie, Hi! I have had issues with bladder spasms. The urologist did put my on Ditropan XL, but it can cause constipation, so I have to be careful. I am on the lowest dose possible. This might not be the best thing, but I am not running to the bathroom every 10 minutes anymore. I just need to watch things and make sure I do empty the bladder when I go. Smiles, a On Sun, 26 Jun 2005 00:30:02 -0400 Ann-Marie Mc peetie@...> writes: Hi, I have bladder spasms and was wondering if anyone else here has them? They are very painful and at times can last a long time. For those of you who do have Bladder spasms what do you do for them? Is there a medication to take to stop the spasms? Is there some kind of surgery to stop them? I do know that they are not unusual in Mito patients, so somebody has to know what to do to eliminate them or at least keep them at bay. Thanks!! Hugs, Ann-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Hi, all Stupid question here..... can you define bladder spasms a little bit for me? Do you mean a strong urge to empty the bladder more frequently than one would expect? Or do you mean pain in that part of the body in another way? I have had an unusual frequent urge for several years now, but intermittently. I mean, it might be an annoyance for months, and then it seems to go back to normal for a while. I toyed with the idea of a bladder infection, and finally just had a urine culture last Friday. No results yet. I don't think that causes it though, because I never have any pain on emptying my bladder. The urologist, whom I consulted several years ago just thought that I did not empty my bladder completely, but I don't think that is the problem, because I am quite careful about that aspect now, and still have the same situation again from time to time. The urologist also suggested a Beta blocker (sorry, I cannot remember the name, but the same med used for hypertension and some other things). I decided not to take it, because I am already antihypertensive medication, and don't want to rock that boat. In the past I did take cranberry extract capsules, and I had a guess that they might have helped, but not sure, really. Sometimes I also thought this came and went on its own. Currently, I hit the cranberry extracts again, for about 3 weeks, without noticeable improvement. Of course I am also at an age where they will just pass it off on " getting older " . I am not buying that right now, but still trying to understand what else might be going on in my body to make it come on intermittently. Regards to all Sunny > Ann Marie, >        Hi! I have had issues with bladder spasms. The urologist did > put my on Ditropan XL, but it can cause constipation, so I have to be > careful. I am on the lowest dose possible. This might not be the > best > thing, but I am not running to the bathroom every 10 minutes > anymore. I > just need to watch things and make sure I do empty the bladder when I > go. > > Smiles, > a > > On Sun, 26 Jun 2005 00:30:02 -0400 Ann-Marie Mc peetie@...> > writes: > > Hi, > > I have bladder spasms and was wondering if anyone else here has them? > They > are very painful and at times can last a long time. For those of you > who > do > have Bladder spasms what do you do for them? Is there a medication to > take > to stop the spasms? Is there some kind of surgery to stop them? I do > know > > that they are not unusual in Mito patients, so somebody has to know > what > to > do to eliminate them or at least keep them at bay. > > Thanks!! > Hugs, Ann-Marie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 When I get it, I have sever pain. Kim > > > Ann Marie, > >        Hi! I have had issues with bladder spasms. The urologist did > > put my on Ditropan XL, but it can cause constipation, so I have to be > > careful. I am on the lowest dose possible. This might not be the > > best > > thing, but I am not running to the bathroom every 10 minutes > > anymore. I > > just need to watch things and make sure I do empty the bladder when I > > go. > > > > Smiles, > > a > > > > On Sun, 26 Jun 2005 00:30:02 -0400 Ann-Marie Mc > > writes: > > > > Hi, > > > > I have bladder spasms and was wondering if anyone else here has them? > > They > > are very painful and at times can last a long time. For those of you > > who > > do > > have Bladder spasms what do you do for them? Is there a medication to > > take > > to stop the spasms? Is there some kind of surgery to stop them? I do > > know > > > > that they are not unusual in Mito patients, so somebody has to know > > what > > to > > do to eliminate them or at least keep them at bay. > > > > Thanks!! > > Hugs, Ann-Marie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Yes, I would distinguish between frequency/pressure and a spasm. I have frequency/pressure 24/7 due to IC. Spasms are intermittent. To me, a bladder spasm feels like a spasm in any other muscle. B _____ From: [mailto: ] On Behalf Of klaga5 Sent: Sunday, June 26, 2005 12:42 PM To: Subject: Re: Bladder Spasms When I get it, I have sever pain. Kim > > > Ann Marie, > >        Hi! I have had issues with bladder spasms. The urologist did > > put my on Ditropan XL, but it can cause constipation, so I have to be > > careful. I am on the lowest dose possible. This might not be the > > best > > thing, but I am not running to the bathroom every 10 minutes > > anymore. I > > just need to watch things and make sure I do empty the bladder when I > > go. > > > > Smiles, > > a > > > > On Sun, 26 Jun 2005 00:30:02 -0400 Ann-Marie Mc > > writes: > > > > Hi, > > > > I have bladder spasms and was wondering if anyone else here has them? > > They > > are very painful and at times can last a long time. For those of you > > who > > do > > have Bladder spasms what do you do for them? Is there a medication to > > take > > to stop the spasms? Is there some kind of surgery to stop them? I do > > know > > > > that they are not unusual in Mito patients, so somebody has to know > > what > > to > > do to eliminate them or at least keep them at bay. > > > > Thanks!! > > Hugs, Ann-Marie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Ya, pyridium must have been what I had. I went to urgent care in extreme pain. It worked very well. Kim --- > There's a medicine called pyridium that turns your urine orange and > acts as a local anesthetic. Good in a pinch but doesn't really fix > the problem. > Good luck! > Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 I had had bladder problems my whole life I am 45, I can remember when I was around 4- 5 I always had what the doctor told my mom bladder infections. I no longer finished the medication and was back on it they ran blood work and told my mom I would grow out of it. Well I did for a while I see my urologist once a year I take Macrobid at the first sign and I also take pyridum and it is wonderful, I had all kind of testing done through my life and even had a bladder scope done and nothing was ever found this is what works best for me hope this information helps. Hugs, Donna K ---- klaga5 klaga5@...> wrote: > Ya, pyridium must have been what I had. I went to urgent care in > extreme pain. It worked very well. > Kim > > --- > There's a medicine called pyridium that turns your urine orange > and > > acts as a local anesthetic. Good in a pinch but doesn't really fix > > the problem. > > Good luck! > > Heidi > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Macrobid is very good, I had one doctor that kept me on a red sulfa compound that turned my urine orange (we lived in Missouri and the water had iron in it so couldn't hardly tell). There is an OTC Azo-Gantrasin (I think) that is for urinary pain relief and it also discolors the urine. I also have been plagued with urinary tract problems since childhood and having toxemia when my oldest son was born. Good Lunk and God Bless. Dolores amerikooch@... wrote: I had had bladder problems my whole life I am 45, I can remember when I was around 4- 5 I always had what the doctor told my mom bladder infections. I no longer finished the medication and was back on it they ran blood work and told my mom I would grow out of it. Well I did for a while I see my urologist once a year I take Macrobid at the first sign and I also take pyridum and it is wonderful, I had all kind of testing done through my life and even had a bladder scope done and nothing was ever found this is what works best for me hope this information helps. Hugs, Donna K ---- klaga5 klaga5@...> wrote: > Ya, pyridium must have been what I had. I went to urgent care in > extreme pain. It worked very well. > Kim > > --- > There's a medicine called pyridium that turns your urine orange > and > > acts as a local anesthetic. Good in a pinch but doesn't really fix > > the problem. > > Good luck! > > Heidi > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Have any of you guys with bladder issues tried to take mega-doses of acidophilus? If I skip a day, I get severe bladder pain and painful urination. Mega-doses for me has been two capsules of the high- potency Puritan's Pride brand, although sometimes I have to take 8 or more capsules in a day to get relief. I tried to just eat yogurt, but it doesn't work for me (and I use Stonyfield Farms, which is supposed to be quite active). Take care, RH > > Ya, pyridium must have been what I had. I went to urgent care in > > extreme pain. It worked very well. > > Kim > > > > --- > There's a medicine called pyridium that turns your urine orange > > and > > > acts as a local anesthetic. Good in a pinch but doesn't really fix > > > the problem. > > > Good luck! > > > Heidi > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 I think Puritan's Pride sells under several local labels, like Twinlab for example. You should be able to find acidophilus capsules easily - the high potency ones I take say " Probiotic Acidophilus with Pectin, 3 Billion Live Cells per capsule " . The chewable kind my kids (and rabbits use has only 100 million live cells per tablet. So look for the number of cells in the billions, IMHO. There are a few other good bacterias out there, like bifidus, you may see them as additional active ingredients. Several of the doctors in my doctor's practice now recommend taking acidophilus when taking any oral antibiotic. YMMV, I'm not a medical doctor, but it's helped me out a lot. Take care, RH > > > > Ya, pyridium must have been what I had. I went to urgent care in > > > > extreme pain. It worked very well. > > > > Kim > > > > > > > > --- > There's a medicine called pyridium that turns your urine > > orange > > > > and > > > > > acts as a local anesthetic. Good in a pinch but doesn't really > > fix > > > > > the problem. > > > > > Good luck! > > > > > Heidi > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list moderators. > > The author of this e mail is entirely responsible for its content. > > List members are reminded of their responsibility to evaluate the > > content of the postings and consult with their physicians regarding > > changes in their own treatment. > > > > > > > > Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Hi Heidi, Thank you for the good information concerning bladder spasms. I also have urine retention. So it is difficult. Unfortunately it seems these meds can cause urine retention and constipation, which I have both. Really bad constipation. Dr. Korson wants me to see a urologist so I will start working on that soon. I was so hoping that they would just go away. You stated that it wouldn't be helpful for my doctors to just assume it is mito, mito, mito for every symptom, and I agree with you. But it seems that they get worse when I am in a crash, stressed out, etc. So I will do what Dr. Korson asked me to do and find out if it is anything that can be treated, fixed or at least helped. Thanks Hugs, Ann-Marie At 06:21 AM 6/26/2005, you wrote: >-Hi Ann Marie >Sorry to hear about the bladder spasms. I've had them since having >my last child and I thought they had something to do with my C- >section. But then I started taking domperidone for gastroparesis and >my bladder got better. Now I just have to make sure I go at regular >intervals and empty all the way. Still not ideal but hey it's better >than not making it to the potty! Domperidone didn't help my stomach >but now I don't want to stop it because of how great my bladder feels. > >There's a medicine called pyridium that turns your urine orange and >acts as a local anesthetic. Good in a pinch but doesn't really fix >the problem. > >Ditropan is for bladder spasms and donnatal is for everything >spasms. Any of those meds can cause constipation and urinary >retention so if that's a problem be careful. > >If you're just starting to have problems you should consider seeing a >urologist. It wouldn't be helpful to have your doctors assume " mito >mito mito " for all symptoms when it could be something treatable. > >Good luck! >Heidi > > >-- In , Ann-Marie Mc >wrote: > > > > Hi, > > > > I have bladder spasms and was wondering if anyone else here has >them? They > > are very painful and at times can last a long time. For those of >you who do > > have Bladder spasms what do you do for them? Is there a medication >to take > > to stop the spasms? Is there some kind of surgery to stop them? I >do know > > that they are not unusual in Mito patients, so somebody has to know >what to > > do to eliminate them or at least keep them at bay. > > > > Thanks!! > > Hugs, Ann-Marie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Hi a, Thanks for the info. Looks like DitropanXL won't do me any good since I have severe constipation. I am glad that it helps you. It is hard when you think you emptied your bladder totally and 5 minutes later you can fill a pool..... :-[ Hugs, Ann-Marie At 09:52 AM 6/26/2005, you wrote: >Ann Marie, > Hi! I have had issues with bladder spasms. The urologist did >put my on Ditropan XL, but it can cause constipation, so I have to be >careful. I am on the lowest dose possible. This might not be the best >thing, but I am not running to the bathroom every 10 minutes anymore. I >just need to watch things and make sure I do empty the bladder when I go. > >Smiles, >a > >On Sun, 26 Jun 2005 00:30:02 -0400 Ann-Marie Mc peetie@...> >writes: > >Hi, > >I have bladder spasms and was wondering if anyone else here has them? >They >are very painful and at times can last a long time. For those of you who >do >have Bladder spasms what do you do for them? Is there a medication to >take >to stop the spasms? Is there some kind of surgery to stop them? I do know > >that they are not unusual in Mito patients, so somebody has to know what >to >do to eliminate them or at least keep them at bay. > >Thanks!! >Hugs, Ann-Marie > > Quote Link to comment Share on other sites More sharing options...
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