Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Yes. It can be anywhere from pink to black and many shades in between. Tea-colored, cola, black, brown, red, rose, rust. The color seems to vary depending on the amount of myoglobin, although some patients have told me that initial signs are red urine which then turns darker over the next few hours. Others just say black or tea-colored. Once just for fun, I was going to try to assemble all the different color descriptions of myoblobinuria I'd heard from patients or seen in medical journals and print it in our newsletter to demonstrate the wide variations. One of those things I never got done. B _____ From: [mailto: ] On Behalf Of klaga5 Sent: Saturday, June 25, 2005 11:21 AM To: Subject: red urine Here's a question. Is the red urine of muscle breakdown really red? Is it different colors for different people? Kim > Yes, the burnout factor. I was there lots of times too and sometimes went > several years without seeing a doctor. Waiting is not always a bad strategy. > You just have to decide whether you want to pursue right now. If your PCP > knows about the red urine, I'm surprised he would suggest fibromyalgia, as > it does not cause elevated CK or myoglobinuria. It would at least be helpful > to have the red urine evaluated. The fact that it occurs after activity > would certainly suggest myoglobinuria and muscle breakdown. At the same > time, they should check your CK. To have that confirmed would be very > helpful to Shoffner or any other expert if you decide to go ahead and keep > searching. > > > > B Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Thanks, mine has always been red. The worst time, it was like dark cranberry juice. It shocked the lab tech. Back then I just assumed it was a bladder infection, and they didn't have a clue, so it wasn't tested. I can't imagine that a bladder infection could cause it to be that color. That and the elevated pyruvate in my blood and muscle means I probably need to go to Atlanta or Cleveland. I guess the good news is that they tested for the dozen or so most common metabolic diseases, and ruled them out. The bad news is that it points more toward mito. Kim > > Yes, the burnout factor. I was there lots of times too and > sometimes went > > several years without seeing a doctor. Waiting is not always a bad > strategy. > > You just have to decide whether you want to pursue right now. If > your PCP > > knows about the red urine, I'm surprised he would suggest > fibromyalgia, as > > it does not cause elevated CK or myoglobinuria. It would at least > be helpful > > to have the red urine evaluated. The fact that it occurs after > activity > > would certainly suggest myoglobinuria and muscle breakdown. At > the same > > time, they should check your CK. To have that confirmed would be > very > > helpful to Shoffner or any other expert if you decide to go ahead > and keep > > searching. > > > > > > > > B > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 I had urine that color for two weeks after my kidney stone surgery, but it was mostly due to the temporary stent, I think. Once they took it out, the bleeding stopped. Yellow never looked so good! Mine was like dark red wine with large clots. It gradually lightened to the color of cranberry juice toward the end of the two weeks. I don't know that a bladder infection can ever cause that much bleeding, but kidneys can. Definitely should be checked. B _____ From: [mailto: ] On Behalf Of klaga5 Sent: Saturday, June 25, 2005 11:44 AM To: Subject: Re: red urine Thanks, mine has always been red. The worst time, it was like dark cranberry juice. It shocked the lab tech. Back then I just assumed it was a bladder infection, and they didn't have a clue, so it wasn't tested. I can't imagine that a bladder infection could cause it to be that color. That and the elevated pyruvate in my blood and muscle means I probably need to go to Atlanta or Cleveland. I guess the good news is that they tested for the dozen or so most common metabolic diseases, and ruled them out. The bad news is that it points more toward mito. Kim > > Yes, the burnout factor. I was there lots of times too and > sometimes went > > several years without seeing a doctor. Waiting is not always a bad > strategy. > > You just have to decide whether you want to pursue right now. If > your PCP > > knows about the red urine, I'm surprised he would suggest > fibromyalgia, as > > it does not cause elevated CK or myoglobinuria. It would at least > be helpful > > to have the red urine evaluated. The fact that it occurs after > activity > > would certainly suggest myoglobinuria and muscle breakdown. At > the same > > time, they should check your CK. To have that confirmed would be > very > > helpful to Shoffner or any other expert if you decide to go ahead > and keep > > searching. > > > > > > > > B > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Thanks, I'm convinced to go in when it happens again. I can see now that my reluctance to go in when I'm having trouble is getting in the way of figuring this out. Kim > > > Yes, the burnout factor. I was there lots of times too and > > sometimes went > > > several years without seeing a doctor. Waiting is not always a > bad > > strategy. > > > You just have to decide whether you want to pursue right now. If > > your PCP > > > knows about the red urine, I'm surprised he would suggest > > fibromyalgia, as > > > it does not cause elevated CK or myoglobinuria. It would at > least > > be helpful > > > to have the red urine evaluated. The fact that it occurs after > > activity > > > would certainly suggest myoglobinuria and muscle breakdown. At > > the same > > > time, they should check your CK. To have that confirmed would be > > very > > > helpful to Shoffner or any other expert if you decide to go > ahead > > and keep > > > searching. > > > > > > > > > > > > B > > > > > > > > > > > > Medical advice, information, opinions, data and statements > contained herein > > are not necessarily those of the list moderators. The author of > this e mail > > is entirely responsible for its content. List members are reminded > of their > > responsibility to evaluate the content of the postings and consult > with > > their physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who > sends one is > > automatically moderated or removed depending on the severity of > the attack. > > > > > > > > > > > > _____ > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.