Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 its good to hear from steve and others that i am not alone in feeling frustrated in dealing with specialists who know a lot but care a little and negotiating with insurance folks (or having my pcp's office folks do it for me). i am so new to this whole process. i don't even have a diagnosis yet, but its sounds like i am not alone in that taking a while. i am at the stage now of wondering how to be most efficient with my resources. i am having to convince our HMO to approve referrals. i don't want to waste my time and money or theirs. it looks now like i could ask for a referral to a not too far away MDA clinic and doctor, to Dr. Whiteman at Mayo and/or to Dr. Shields at Cleveland. i am convinced that a fresh muscle biopsy is my best option for a diagnosis at this point. on the other hand, i am not sure that my symptoms are mito but could instead be inclusion body myositis or some other disease that i am not aware of now just as i wasn't aware of mito until only months ago. so what do you think, new friends? should i go with the MDA doc and let hime help direct me from there? should i go through the hard work of pressing the HMO for a Mayo appointment (if i can even get in)? or should i go for the even longer shot of getting the HMO to approve cleveland? thanks for your suggestions. kent Quote Link to comment Share on other sites More sharing options...
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