Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Kim, I am so sorry you are having all these set backs. I know how you feel, because that is where I am right now. It is frustrating!!! I was just wondering this morning if I had the strength to keep looking for my own dx. I recently had a blood test that showed slightly elevated ammonia levels. (this was not taken during a crash) My pcp told me I should consult with dr Enns again. Dr. Enns first reaction was that the lab didn't do the test right. He was a little bit more interested when I told him that I had been taking sugar free candy containing lactitol (which has been studied as an alternative to lactulose) and that I have felt stronger. And that I also have been drinking water spiked with baking soda. (If anything will help me avoid a crash the baking soda will. Don't ask me why.) After I told him that, he asked me to get another ammonia test and blood gasses next time I had an attack. I am trying to go to see dr. Schoffner in Atlanta. My HMO is not co- operating though. My pcp said we needed to get dr Enns on board to help convince them. Hang in there. You are certainly not alone in your quest. Joanne Quote Link to comment Share on other sites More sharing options...
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