Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 I am a new member. Just joined this group a couple of days ago and thought I should introduce myself. My name is Caitlin. I am 22 years old and from central PA. I have not officially been diagnosed with a mito disorder but one is suspected. I have had cyclic vomiting syndrome since I was 4 and was diagnosed with that when I was 8. There is a Dr in California, Dr. Boles who believes that cyclic vomiting syndrome (CVS) is mitochondrial related. He has a study going on and I met the criteria for the first phase of the study. There are three phases of the study and they are either on the second or third, I can't remember. I had my COQ10 level checked and it was below normal thus leading us to suspect even more that I have a mito disorder. I have always needed a lot of sleep. Even as a baby I slept a lot. I am tired pretty much all of the time. Heat makes me even more tired. I try to stay cool in the summer because I know if I do have mito that extreme temperatures are pretty bad but it is hard because I love going out in the summer. I've written a lot so I will go for now. Caitlin Quote Link to comment Share on other sites More sharing options...
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