Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Barb, I am glad that you have found a good doctor for you. I'm glad that he has taken the time to show and explain things to you. I can tell that he is one who cares. Hugs, a On Fri, 27 May 2005 10:31:55 -0000 " matts_mom96 " matts_mom96@...> writes: Hi all, I first want to thank you all again, i can feel your loving and caring arms around me, I feel very at peace and calm as i read your encouraging post to me. Laurie, visualization is a great idea, im into dragonflies. Ok, I get a call 7am Thursday morning (yesterday), its my primaries secretary calling from her home to tell me they moved my appt. up and it was for Thursday afternoon, and that she would fax all the info to his office just for me to be there. I call Bob who already left for work, and told him about the appt, he said no problem he'd be home by noon to come with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Barb, It was good to read that your surgeon is warm and caring. It sounds as if he is perfect for your needs. You are facing an ordeal and I could tell by your message that he is the right person to have you and your family’s lives in his hands. Dragonflies are beautiful and so are you. Your sweet spirit comes thru with all of your messages and in our chats. I will definitely be thinking dragonflies and praying for your own strength thru the upcoming tests and treatments and a rapid recovery. Your family will be in my thoughts as well. A special plea for wisdom and healing abilities goes out to your doctors. Have a very special holiday weekend. Hugs! Alice -- No virus found in this incoming message. Checked by AVG Anti-Virus. Version: 7.0.322 / Virus Database: 266.11.17 - Release Date: 5/25/2005 -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.322 / Virus Database: 266.11.17 - Release Date: 5/25/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Barb, I will be praying for you. Big hugs to you and your family. Try to enjoy your weekend. matts_mom96 matts_mom96@...> wrote: Hi all, I first want to thank you all again, i can feel your loving and caring arms around me, I feel very at peace and calm as i read your encouraging post to me. Laurie, visualization is a great idea, im into dragonflies. Ok, I get a call 7am Thursday morning (yesterday), its my primaries secretary calling from her home to tell me they moved my appt. up and it was for Thursday afternoon, and that she would fax all the info to his office just for me to be there. I call Bob who already left for work, and told him about the appt, he said no problem he'd be home by noon to come with me. Ive been in slow motion and very pre-occupied, on Tuesday i dressed Matt for school and put on a navy blue sock and a white sock on this child. And didnt realize it till bathtime that night. His homework has not been done for over a week now, and thank God his teacher is very understanding. He of course missed the school bus Thursday morning so i had to drive him to school, which was a blessing in disguise, as i was able to talk to the school nurse, and Matts teacher to let them know whats going on at home. After i left the school i went to pick up a copy of my cat scan. Bob and I get to the surgeons office, i was so nervous, but when i met him he was very nice, we discussed past medical history again, mito and previous breast cancer, he asked me when my last mammogram was and click i remember that 2 years ago i had a mammogram and then an ultra sound (specifically my right breast) at my previous family practice. He wants copies of that mammogram and ultra sound, he said if the cancer was there then, someone would have hell to pay. I was impressed i thought all docs stood behind one another.. He told us to come into his private office, he wanted to show us the cat scan on his laptop, which he could move and was 3-d, bob and i were shocked by what we saw, my right lung is completely closed. it looks alot different in motion than just looking at cat scan film. there is actually 4 masses, massed together. its huge if you put your thumb of one hand to the thumb of your other and your middle finger to your middle finger and make a circle it is that big in circomference, it is also dense. the masses measures 6.6 x 5.4 adn 5.8cm and invades the mediastinum with effacement of the fat planes. There is a mediastinal adenopathy with largest nodal mas in pretracheal-retrocaval spcae measuring 4.3 x 3.0cm and other nodal masses are present within the subcarianl aortico-pulmonic window and prevacular spaces with obliteration of the majority of mediastinal fat planes. Two soft tissue masses are seein in right lung posterior to the right main stem bronchus measuring 1.7 x 1.2cm and 0.9 x 1.3cm and the larger of theses masses abuts the posterior ;leural suface. There is a o.6cm in diameter mass in the anterolateral aspect of right middle lobe. there is a large right hilar soft tissue mass with lobulated contour encasing right pulmonary artery, adn the right main stem bronchus, right upper lobe bronchus and intermediate bronchus. Scary if ya know what this stuff means. The report starts with impression: Bronchogenic carcinoma with a large right hilar mass associated with mediastinal adenopathy with infiltration of the mediastinal fat planes and masses in the right lung suggesting metastatic disease or possibly teh primary lesion. The surgeon said he would like to do a biopsy, this would tell him what form of lung cancer it is and he would know how long its been there. He explained that some masses grow at explosive rates and others very slowly. He needs to do a bleeding time test, where he will nic me and if i stop bleeding at 3 minutes he can do the biospy and if i dont clot within 3 minutes and continue bleeding he will cancel the biospy. He will do this test the morning of biopsy and he explained he will go down with a telescope with an attachment to take a small piece of the mass. Thakfully i will be knocked out for this. I might have some pink bleeding that i would cough up after surgery, but if it is a red im to get right back to the hospital. I said to the doc lets do it my life is now in your hands, and then i asked him to put out his had and i put a picture of in his hand, and i told him now you have my little boys life in your hands, and i proceeded in detail about Matts disability and more important what type of personality he has, and when i was done doc said to me Barb i completley understand where your coming from adn i will do everything i can to help you. He also told me as we got ready to leave that its a holiday weekend so if i needed anything or had any questions when i got home to call him. He also stressed that he wants me to relax, put all this cancer out of my mind and just enjoy my family this holiday weekend. I thought that was very sweet of him. I hope i can block it out and really have a blast this weekend with my family. I will see the chemo oncologist on Tuesday next week i will let yas know how that goes, and when i feel up to it after the biopsy i will let yas know how that goes. God forbid something goes wrong during biopsy, Bob or one of my older children will let yas know whats going on!! Great big hugs to you all, Barb, and think drangonflies!!!! Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Barb Thanks for the update. It sounds like you have started building a great team to work with. This has to give you some peace. I am also glad they are moving on this. I don't know about you, but I can't stand waiting. I will think dragonflies and picture them showing you their beauty while they carry off pieces of the tumor. Hugs, laurie PS - if anyone wants a picture of a dragonfly to hang on your frig or elsewhere, e-mail me privately and I will send you one. You can also go to " google " , click on pictures and do a search for dragonflies. There are lots of them. > Hi all, I first want to thank you all again, i can feel your loving > and caring arms around me, I feel very at peace and calm as i read > your encouraging post to me. Laurie, visualization is a great idea, > im into dragonflies. Ok, I get a call 7am Thursday morning > (yesterday), its my primaries secretary calling from her home to > tell me they moved my appt. up and it was for Thursday afternoon, > and that she would fax all the info to his office just for me to be > there. I call Bob who already left for work, and told him about the > appt, he said no problem he'd be home by noon to come with me. Ive > been in slow motion and very pre-occupied, on Tuesday i dressed Matt > for school and put on a navy blue sock and a white sock on this > child. And didnt realize it till bathtime that night. His homework > has not been done for over a week now, and thank God his teacher is > very understanding. He of course missed the school bus Thursday > morning so i had to drive him to school, which was a blessing in > disguise, as i was able to talk to the school nurse, and Matts > teacher to let them know whats going on at home. After i left the > school i went to pick up a copy of my cat scan. Bob and I get to > the surgeons office, i was so nervous, but when i met him he was > very nice, we discussed past medical history again, mito and > previous breast cancer, he asked me when my last mammogram was and > click i remember that 2 years ago i had a mammogram and then an > ultra sound (specifically my right breast) at my previous family > practice. He wants copies of that mammogram and ultra sound, he > said if the cancer was there then, someone would have hell to pay. I > was impressed i thought all docs stood behind one another.. He told > us to come into his private office, he wanted to show us the cat > scan on his laptop, which he could move and was 3-d, bob and i were > shocked by what we saw, my right lung is completely closed. it > looks alot different in motion than just looking at cat scan film. > there is actually 4 masses, massed together. its huge if you put > your thumb of one hand to the thumb of your other and your middle > finger to your middle finger and make a circle it is that big in > circomference, it is also dense. the masses measures 6.6 x 5.4 adn > 5.8cm and invades the mediastinum with effacement of the fat > planes. There is a mediastinal adenopathy with largest nodal mas in > pretracheal-retrocaval spcae measuring 4.3 x 3.0cm and other nodal > masses are present within the subcarianl aortico-pulmonic window and > prevacular spaces with obliteration of the majority of mediastinal > fat planes. Two soft tissue masses are seein in right lung > posterior to the right main stem bronchus measuring 1.7 x 1.2cm and > 0.9 x 1.3cm and the larger of theses masses abuts the > posterior ;leural suface. There is a o.6cm in diameter mass in the > anterolateral aspect of right middle lobe. there is a large right > hilar soft tissue mass with lobulated contour encasing right > pulmonary artery, adn the right main stem bronchus, right upper lobe > bronchus and intermediate bronchus. Scary if ya know what this > stuff means. The report starts with impression: Bronchogenic > carcinoma with a large right hilar mass associated with mediastinal > adenopathy with infiltration of the mediastinal fat planes and > masses in the right lung suggesting metastatic disease or possibly > teh primary lesion. The surgeon said he would like to do a > biopsy, this would tell him what form of lung cancer it is and he > would know how long its been there. He explained that some masses > grow at explosive rates and others very slowly. He needs to do a > bleeding time test, where he will nic me and if i stop bleeding at 3 > minutes he can do the biospy and if i dont clot within 3 minutes and > continue bleeding he will cancel the biospy. He will do this test > the morning of biopsy and he explained he will go down with a > telescope with an attachment to take a small piece of the mass. > Thakfully i will be knocked out for this. I might have some pink > bleeding that i would cough up after surgery, but if it is a red im > to get right back to the hospital. I said to the doc lets do it my > life is now in your hands, and then i asked him to put out his had > and i put a picture of in his hand, and i told him now you > have my little boys life in your hands, and i proceeded in detail > about Matts disability and more important what type of personality > he has, and when i was done doc said to me Barb i completley > understand where your coming from adn i will do everything i can to > help you. He also told me as we got ready to leave that its a > holiday weekend so if i needed anything or had any questions when i > got home to call him. He also stressed that he wants me to relax, > put all this cancer out of my mind and just enjoy my family this > holiday weekend. I thought that was very sweet of him. I hope i > can block it out and really have a blast this weekend with my > family. I will see the chemo oncologist on Tuesday next week i will > let yas know how that goes, and when i feel up to it after the > biopsy i will let yas know how that goes. God forbid something goes > wrong during biopsy, Bob or one of my older children will let yas > know whats going on!! Great big hugs to you all, Barb, and think > drangonflies!!!! > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Thank you for updating us, it sounds like you have a very good doctor. Just a thought on the socks issue - could you leave a pair of dark socks at school (are uniforms required?), then the teacher could help him out if he has mismatched or the wrong color socks again? We leave multi-pack snacks at school for my son because I forget to give him a snack many days. I have to say my housework and dressing my kids appropriately has suffered somewhat since being sick - the kids are lucky to wear weather-appropriate, clean clothes each day. Forget about me, LOL! We have a few rules - no bugs in the house, no left out food, and baths after sports and if you're smelly. Other than that, we get by. We've also had to save money, so buying new clothes is really low down our list of important things. I went to a luncheon with colleagues from work the other day, and they thought I was wearing something new, but it was 20 years old (!). Have a good weekend and make sure you get some distractions from your medical issues (which we all love)! Let us send love and care to you, and you can think about other things for a bit. Take care, RH > Hi all, I first want to thank you all again, i can feel your loving > and caring arms around me, I feel very at peace and calm as i read > your encouraging post to me. Laurie, visualization is a great idea, > im into dragonflies. Ok, I get a call 7am Thursday morning > (yesterday), its my primaries secretary calling from her home to > tell me they moved my appt. up and it was for Thursday afternoon, > and that she would fax all the info to his office just for me to be > there. I call Bob who already left for work, and told him about the > appt, he said no problem he'd be home by noon to come with me. Ive > been in slow motion and very pre-occupied, on Tuesday i dressed Matt > for school and put on a navy blue sock and a white sock on this > child. And didnt realize it till bathtime that night. His homework > has not been done for over a week now, and thank God his teacher is > very understanding. He of course missed the school bus Thursday > morning so i had to drive him to school, which was a blessing in > disguise, as i was able to talk to the school nurse, and Matts > teacher to let them know whats going on at home. After i left the > school i went to pick up a copy of my cat scan. Bob and I get to > the surgeons office, i was so nervous, but when i met him he was > very nice, we discussed past medical history again, mito and > previous breast cancer, he asked me when my last mammogram was and > click i remember that 2 years ago i had a mammogram and then an > ultra sound (specifically my right breast) at my previous family > practice. He wants copies of that mammogram and ultra sound, he > said if the cancer was there then, someone would have hell to pay. I > was impressed i thought all docs stood behind one another.. He told > us to come into his private office, he wanted to show us the cat > scan on his laptop, which he could move and was 3-d, bob and i were > shocked by what we saw, my right lung is completely closed. it > looks alot different in motion than just looking at cat scan film. > there is actually 4 masses, massed together. its huge if you put > your thumb of one hand to the thumb of your other and your middle > finger to your middle finger and make a circle it is that big in > circomference, it is also dense. the masses measures 6.6 x 5.4 adn > 5.8cm and invades the mediastinum with effacement of the fat > planes. There is a mediastinal adenopathy with largest nodal mas in > pretracheal-retrocaval spcae measuring 4.3 x 3.0cm and other nodal > masses are present within the subcarianl aortico-pulmonic window and > prevacular spaces with obliteration of the majority of mediastinal > fat planes. Two soft tissue masses are seein in right lung > posterior to the right main stem bronchus measuring 1.7 x 1.2cm and > 0.9 x 1.3cm and the larger of theses masses abuts the > posterior ;leural suface. There is a o.6cm in diameter mass in the > anterolateral aspect of right middle lobe. there is a large right > hilar soft tissue mass with lobulated contour encasing right > pulmonary artery, adn the right main stem bronchus, right upper lobe > bronchus and intermediate bronchus. Scary if ya know what this > stuff means. The report starts with impression: Bronchogenic > carcinoma with a large right hilar mass associated with mediastinal > adenopathy with infiltration of the mediastinal fat planes and > masses in the right lung suggesting metastatic disease or possibly > teh primary lesion. The surgeon said he would like to do a > biopsy, this would tell him what form of lung cancer it is and he > would know how long its been there. He explained that some masses > grow at explosive rates and others very slowly. He needs to do a > bleeding time test, where he will nic me and if i stop bleeding at 3 > minutes he can do the biospy and if i dont clot within 3 minutes and > continue bleeding he will cancel the biospy. He will do this test > the morning of biopsy and he explained he will go down with a > telescope with an attachment to take a small piece of the mass. > Thakfully i will be knocked out for this. I might have some pink > bleeding that i would cough up after surgery, but if it is a red im > to get right back to the hospital. I said to the doc lets do it my > life is now in your hands, and then i asked him to put out his had > and i put a picture of in his hand, and i told him now you > have my little boys life in your hands, and i proceeded in detail > about Matts disability and more important what type of personality > he has, and when i was done doc said to me Barb i completley > understand where your coming from adn i will do everything i can to > help you. He also told me as we got ready to leave that its a > holiday weekend so if i needed anything or had any questions when i > got home to call him. He also stressed that he wants me to relax, > put all this cancer out of my mind and just enjoy my family this > holiday weekend. I thought that was very sweet of him. I hope i > can block it out and really have a blast this weekend with my > family. I will see the chemo oncologist on Tuesday next week i will > let yas know how that goes, and when i feel up to it after the > biopsy i will let yas know how that goes. God forbid something goes > wrong during biopsy, Bob or one of my older children will let yas > know whats going on!! Great big hugs to you all, Barb, and think > drangonflies!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Barb, You are in my thoughts and prayers as you go through this time. It sounds like you have a gem for a doctor. That's great. If I could give you a real hug but since I can't for now I hope this helps some {{{{{{{Barb}}}}} HUGS!! Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 In a message dated 5/27/2005 6:35:59 AM Eastern Standard Time, matts_mom96@... writes: He will do this test the morning of biopsy and he explained he will go down with a telescope with an attachment to take a small piece of the mass. Thakfully i will be knocked out for this. Hi Barb, I've been keeping up with your e-mails. Which hospital is your pulmo. at? I want you to know that I am keeping you in my thoughts and prayers. My heart goes out to you. Is there anything that I can do for your family or that we, as a mito community in the Phila. area, can do for you? I know you may not be able to think of things right now, but as your journey continues, please know we are all here for you. Good luck with your bronchoscopy. I like dragonflies too......picturing many of them coming to help you during this difficult time. Love and hugs, Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Hi Barb, I must say it sounds like you have a great doctor in your corner, and as we all know that makes a big difference in the way we are treated and the way our body responds to treatment. I hope that the time you spent with the surgeon has helped you and that you are at peace with his skills and his compassion as a person. Just tell Matt that the different color socks are a New Fashion Statement!! Please know that you are in my thoughts and prayers. From now on when I think of you I will always see Dragonflies. I hope those dragonflies know how to kick butt!!! Hugs and Love, Ann-Marie At 06:31 AM 5/27/2005, you wrote: >Hi all, I first want to thank you all again, i can feel your loving >and caring arms around me, I feel very at peace and calm as i read >your encouraging post to me. Laurie, visualization is a great idea, >im into dragonflies. Ok, I get a call 7am Thursday morning >(yesterday), its my primaries secretary calling from her home to >tell me they moved my appt. up and it was for Thursday afternoon, >and that she would fax all the info to his office just for me to be >there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Hi Barb, I also want to say that if there is anything that I can do for you or your family, please let me know. I think I live pretty close to you, and like Malisa said " we are here for you " . We have quite a big Mito community in the Philly area. I am wishing you and your family the best as you all continue this journey. Love and Hugs, Ann-Marie At 01:29 AM 5/28/2005, you wrote: >Is there anything that I can do for your family or that we, >as a mito community in the Phila. area, can do for you? I know you may >not be >able to think of things right now, but as your journey continues, please >know >we are all here for you. Good luck with your bronchoscopy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Hi Barb, I also want to say that if there is anything that I can do for you or your family, please let me know. I think I live pretty close to you, and like Malisa said " we are here for you " . We have quite a big Mito community in the Philly area. I am wishing you and your family the best as you all continue this journey. Love and Hugs, Ann-Marie At 01:29 AM 5/28/2005, you wrote: >Is there anything that I can do for your family or that we, >as a mito community in the Phila. area, can do for you? I know you may >not be >able to think of things right now, but as your journey continues, please >know >we are all here for you. Good luck with your bronchoscopy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Malisa, Im so glad you are doing much better than you were, My family was so worried about you!! Even who is usually so selfcentered at his age prayed for you when you were ill up in Boston. My Pulmo is from University of Penn, Im just thankful that he has an office here in Norristown too, actually my radiation and chemo oncologist are with U of P. And they do work here also in Norristown at the Mercy Cancer Center which is 10 minutes from my house. And they also work at the Montgomery Hosp. Cancer Center, but i like the atmosphere at Mercy better. I will get a central line for my chemo, and im scared to death of needles as it is let alone even thinking of a central line in me. Hopefully my body will fair well with this. I already told the docs i have to be here for my sons 9th birthday party, we have 60 people coming,that will not be a problem they said, and i explained i have to go on my vacation if they like it or not. Looks like the vacation is going to be a battle, because of us going to Ocean City NJ, I know being around all that sand, i will have to be careful, and exposing myself on the boardwalk isnt a great idea either. Hopefully they will come up with a way that i can go, i told them Matt and I have gone through so much this year and Bob and the kids have bared with us and they really need a vacation too. they got a medical supply comp. bringing me O2 and they are looking into 24 hour nursing for me when i start getting really ill, which they assured me i will. Matt usually does the extended school year but this year he is not going as he no longer needs it, so he will be home with me, docs assured me the nursing comp they get for me (they are trying for the same comp that comes for Matts over night) will help Matt too while he is home, at least Matt has 5 weeks of camp starting in August, and by the time he gets home everyday Bob will be done work. I cant wait to get the biopsy results even if its horrible, so i can know the exact plan of action, we need to know if this is small cell, or large cell, and how long its been there. Oncologist says i have to get my rest, and they are extremely worried about my weight loss. Its funny cause i been eating like a pig lately (was on steriods for a few weeks) and still losing weight. And then we have to factor in the mito. I have to call doc P and D at Hannaman and let them know about my diagnosis of cancer. And my AO doc too, Matts specialist too, we decided to put his 2nd biopsy on hold for now. I dont know how im going to keep up on my appts with my other docs being as sick as i will be but i will cross that bridge when i get there. Well i promised my team of docs that i would enjoy this weekend (and not over do things) we are taking Matt fishing at a private stream today. We are trying to keep me away from crowds of people as im not even allowed to catch a chill and fever would be disasterous now. I will give you a call as i have so many questions about the central line. You keep well, love Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Malisa, Im so glad you are doing much better than you were, My family was so worried about you!! Even who is usually so selfcentered at his age prayed for you when you were ill up in Boston. My Pulmo is from University of Penn, Im just thankful that he has an office here in Norristown too, actually my radiation and chemo oncologist are with U of P. And they do work here also in Norristown at the Mercy Cancer Center which is 10 minutes from my house. And they also work at the Montgomery Hosp. Cancer Center, but i like the atmosphere at Mercy better. I will get a central line for my chemo, and im scared to death of needles as it is let alone even thinking of a central line in me. Hopefully my body will fair well with this. I already told the docs i have to be here for my sons 9th birthday party, we have 60 people coming,that will not be a problem they said, and i explained i have to go on my vacation if they like it or not. Looks like the vacation is going to be a battle, because of us going to Ocean City NJ, I know being around all that sand, i will have to be careful, and exposing myself on the boardwalk isnt a great idea either. Hopefully they will come up with a way that i can go, i told them Matt and I have gone through so much this year and Bob and the kids have bared with us and they really need a vacation too. they got a medical supply comp. bringing me O2 and they are looking into 24 hour nursing for me when i start getting really ill, which they assured me i will. Matt usually does the extended school year but this year he is not going as he no longer needs it, so he will be home with me, docs assured me the nursing comp they get for me (they are trying for the same comp that comes for Matts over night) will help Matt too while he is home, at least Matt has 5 weeks of camp starting in August, and by the time he gets home everyday Bob will be done work. I cant wait to get the biopsy results even if its horrible, so i can know the exact plan of action, we need to know if this is small cell, or large cell, and how long its been there. Oncologist says i have to get my rest, and they are extremely worried about my weight loss. Its funny cause i been eating like a pig lately (was on steriods for a few weeks) and still losing weight. And then we have to factor in the mito. I have to call doc P and D at Hannaman and let them know about my diagnosis of cancer. And my AO doc too, Matts specialist too, we decided to put his 2nd biopsy on hold for now. I dont know how im going to keep up on my appts with my other docs being as sick as i will be but i will cross that bridge when i get there. Well i promised my team of docs that i would enjoy this weekend (and not over do things) we are taking Matt fishing at a private stream today. We are trying to keep me away from crowds of people as im not even allowed to catch a chill and fever would be disasterous now. I will give you a call as i have so many questions about the central line. You keep well, love Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Anne Marie, Thank you so much, I will keep you posted. Bob wants to put up a caringbridge page, so he can keep our family and friends updated, the hardest thing yet will be telling my parents. They are elderly, and my mom is fragile, so we will tell them little bits at a time. I guess there is no easy way to tell them, i just cant seem to make that phone call to tell them i need to see them, about something important. I think im going to wait till after the biospy result so i will have better info for them. Thanks again for your thoughts and prayers, hugs Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Barb My youngest son (30) made a comment to me the other day about people worrying - he said it is a form of caring and mom's probably do it best. I thought this was good - especially coming from one his age. I think your decision to wait until after your biopsy to tell your parents is good. But remember that when they get upset, it is because they care. Family will manage and be their for you as we will. My sister-in-law has been having chemo every two weeks and they are getting through it. It is not fun as you know, but thinking of those things down the road you want to see and do will help. You are a strong person and have dealt with many issues with Matt and come up on top. Try to take care of yourself and let your hubby worry about the others. I know - moms can't do that, but can try. laurie > Hi Anne Marie, Thank you so much, I will keep you posted. Bob wants to > put up a caringbridge page, so he can keep our family and friends > updated, the hardest thing yet will be telling my parents. They are > elderly, and my mom is fragile, so we will tell them little bits at a > time. I guess there is no easy way to tell them, i just cant seem to > make that phone call to tell them i need to see them, about something > important. I think im going to wait till after the biospy result so i > will have better info for them. Thanks again for your thoughts and > prayers, hugs Barb > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Barb, I think setting up a caringbridge website to keep family and friends up to date on your condition, your treatment, etc. is a fantastic idea. And it also gives you the opportunity to open up emotionally and get your bottled up feelings out in the open. I have a caringbridge website and I really enjoy being able to keep family and friends up to date on my health. And i look forward to reading all the messages that friends and family leave in my guestbook. I try to update my CB Journal at least once a week(but at times I don't update that often, b/c I sleep 18 to 20 hours most days) and by doing that I don't have to write a ton of individual emails and that saves me a lot of time and energy. If you want to visit my CB site here is the address: http://www.caringbridge.org/pa/annmarie and leave me a message so I know you stopped by. :-) I can only imagine how hard it will be to tell your parents (especially your Mom) about the lung cancer. And we thought telling them about our Mito diagnosis was hard(which it was)....but this news is going to be the hardest thing you will ever have to do. I want you to know that I may not be next to you physically when you tell them, but please know that I am there with you in spirit and love. I hope that you are able to enjoy this holiday weekend with your family and that your fears about your health will stay far away from your thoughts. Love and Hugs, Ann-Marie At 07:31 AM 5/28/2005, you wrote: >Hi Anne Marie, Thank you so much, I will keep you posted. Bob wants to >put up a caringbridge page, so he can keep our family and friends >updated, the hardest thing yet will be telling my parents. They are >elderly, and my mom is fragile, so we will tell them little bits at a >time. I guess there is no easy way to tell them, i just cant seem to >make that phone call to tell them i need to see them, about something >important. I think im going to wait till after the biospy result so i >will have better info for them. Thanks again for your thoughts and >prayers, hugs Barb > > > > >Medical advice, information, opinions, data and statements contained >herein are not necessarily those of the list moderators. The author of >this e mail is entirely responsible for its content. List members are >reminded of their responsibility to evaluate the content of the postings >and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is >automatically moderated or removed depending on the severity of the attack. > > > > >---------- > Quote Link to comment Share on other sites More sharing options...
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