Re: resolving rhabdo, hand troubles

[Guest guest]

In a message dated 2/26/2005 12:05:45 PM Eastern Standard Time,

mom2colemankidz3@... writes:

I'm not sure what to think, is this related to the rhabdo or

should I get this checked? What have other people done with hand

weakness? I do have low carnitine and I haven't started supplements

yet, but I'm assuming that I've had this my whole life and I haven't

noticed anything till now. Does exercise help?

Hi Heidi,

I would really push for them to start you on the carnitine sooner rather

than later. If you have documented low carnitine levels, they need to get you

an RX for that. You probably have had mito your whole life, but sometimes it

just takes a trigger to start sx in motion. Now that you have mito sx, it

seems even more important to get yourself on the proper supplements. It's worth

asking your PCP or Dr K (or Margaret) about this week to see what they would

start you on. If they're not responding, keep calling til you get to talk to

one of them!

Exercise doesn't help me when I have muscle weakness--it makes it worse. I

would definitely check with your docs about that too. Somebody needs to be

giving you guidance on all of this!

Give Miss a hug for me. Glad she's doing pretty well this week!

Malisa

[Guest guest]

In a message dated 2/26/2005 12:05:45 PM Eastern Standard Time,

mom2colemankidz3@... writes:

I'm not sure what to think, is this related to the rhabdo or

should I get this checked? What have other people done with hand

weakness? I do have low carnitine and I haven't started supplements

yet, but I'm assuming that I've had this my whole life and I haven't

noticed anything till now. Does exercise help?

Hi Heidi,

I would really push for them to start you on the carnitine sooner rather

than later. If you have documented low carnitine levels, they need to get you

an RX for that. You probably have had mito your whole life, but sometimes it

just takes a trigger to start sx in motion. Now that you have mito sx, it

seems even more important to get yourself on the proper supplements. It's worth

asking your PCP or Dr K (or Margaret) about this week to see what they would

start you on. If they're not responding, keep calling til you get to talk to

one of them!

Exercise doesn't help me when I have muscle weakness--it makes it worse. I

would definitely check with your docs about that too. Somebody needs to be

giving you guidance on all of this!

Give Miss a hug for me. Glad she's doing pretty well this week!

Malisa

[Guest guest]

Hand strength is probably my second worry in the muscle dept., next

to my eyes. Maybe it's sunspots or something, as I've been dropping

things more than usual this week, and dropped our humidifier's tank

when filling it (stupid thing broke of course). I drop things all

the time, and try not to use glass because of it.

I feel like it is an extension of my peripheral neuropathy for me, I

just can't feel things being held like " normal " . My weakness is much

worse on the left, but I have problems with both sides when I am not

well. I also have problems sensing hot and cold and pressure when

these episodes happen.

I'm not aware of ever having any rhabdomyolysis, so as I noted above,

I think my issues are more neurological than muscular. I don't

usually experience " lactic acid buildup pain " during these episodes.

Take care,

RH

>

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I

noticed

> today that I'm having trouble with hand strength. I think it's

been

> happening all week, but today is the first day I've been trying to

do

> normal things... a lady of leisure!lol. I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip

on

> the pencil when I was trying to write a note. I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving

until

> today. I'm not sure what to think, is this related to the rhabdo

or

> should I get this checked? What have other people done with hand

> weakness? I do have low carnitine and I haven't started

supplements

> yet, but I'm assuming that I've had this my whole life and I

haven't

> noticed anything till now. Does exercise help? I was planning to

go

> back to work tonight but now I'm afraid to. I have to do a lot

with

> my hands (nurse) and it's NOT OK to have trouble holding,

squeezing,

> writing, etc.

>

> Thanks

> Heidi

[Guest guest]

RH

Just to throw another idea out. I drop things when tired as a result of my

myoclonus getting worse. The jerks in my hands aren't very noticeable

compared to my legs. It's a " whoops, there it goes " kind of thing.

laurie

>

> Reply-To:

> Date: Sat, 26 Feb 2005 20:50:21 -0000

> To:

> Subject: Re: resolving rhabdo, hand troubles

>

>

>

> Hand strength is probably my second worry in the muscle dept., next

> to my eyes. Maybe it's sunspots or something, as I've been dropping

> things more than usual this week, and dropped our humidifier's tank

> when filling it (stupid thing broke of course). I drop things all

> the time, and try not to use glass because of it.

>

> I feel like it is an extension of my peripheral neuropathy for me, I

> just can't feel things being held like " normal " . My weakness is much

> worse on the left, but I have problems with both sides when I am not

> well. I also have problems sensing hot and cold and pressure when

> these episodes happen.

>

> I'm not aware of ever having any rhabdomyolysis, so as I noted above,

> I think my issues are more neurological than muscular. I don't

> usually experience " lactic acid buildup pain " during these episodes.

>

> Take care,

> RH

>

>

>

>>

>>

>> Hi all

>> The rhabdo is resolving and I'm getting back to normal, but I

> noticed

>> today that I'm having trouble with hand strength. I think it's

> been

>> happening all week, but today is the first day I've been trying to

> do

>> normal things... a lady of leisure!lol. I couldn't move my fingers

>> well enough to braid my daughter's hair and I couldn't keep a grip

> on

>> the pencil when I was trying to write a note. I've been doing very

>> quick things with my hands and although I've noticed a big decrease

>> in strength I didn't notice the cramping and diffiuclty moving

> until

>> today. I'm not sure what to think, is this related to the rhabdo

> or

>> should I get this checked? What have other people done with hand

>> weakness? I do have low carnitine and I haven't started

> supplements

>> yet, but I'm assuming that I've had this my whole life and I

> haven't

>> noticed anything till now. Does exercise help? I was planning to

> go

>> back to work tonight but now I'm afraid to. I have to do a lot

> with

>> my hands (nurse) and it's NOT OK to have trouble holding,

> squeezing,

>> writing, etc.

>>

>> Thanks

>> Heidi

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Hi, Heidi

I am pretty sure I don't have nerological involvement, but I have

problems with hand/forearm strength. I would say my forearms are the

weakest of all my muscles. If I am not careful, my wrists get painful

and very weak. The doc says it is a type of tendonitis. When it gets

that bad I must use a wrist guard for a few days, and then I work hard

at doing hand exercises the Physical Therapist gave me. I squeeze a

sponge in several ways, and lift a light weight in several directions.

If I do those faithfully, my strength does noticeably improve for a

while. If I get lazy, it gets worse again. The interesting thing is,

the right hand, which I use less because I am strong dominant left

handed, gets the weakest. From that I conclude it is not overuse, but

rather the muscles need to work to keep a minimum of strength.

I pulled my lower back a 6 days ago, and had to be on bedrest for

several days. I believe I could notice increased muscle weakness in my

entire body, just from those few days of doing nothing. I am busy at

the gym right now, trying to get some power (ha ha, I really mean

getting back to sub-normal, rather that impossibly weak) back. I have

posted before, for me it us " use it or lose it " to the extreme.

Hope your hands improve soon, Heidi.

Regard

Sunny

>

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I noticed

> today that I'm having trouble with hand strength.  I think it's been

> happening all week, but today is the first day I've been trying to do

> normal things... a lady of leisure!lol.  I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip on

> the pencil when I was trying to write a note.  I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving until

> today.  I'm not sure what to think, is this related to the rhabdo or

> should I get this checked?  What have other people done with hand

> weakness?  I do have low carnitine and I haven't started supplements

> yet, but I'm assuming that I've had this my whole life and I haven't

> noticed anything till now.  Does exercise help? I was planning to go

> back to work tonight but now I'm afraid to.  I have to do a lot with

> my hands (nurse) and it's NOT OK to have trouble holding, squeezing,

> writing, etc.

>

> Thanks

> Heidi

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

> herein are not necessarily those of the list moderators. The author of

> this e mail is entirely responsible for its content. List members are

> reminded of their responsibility to evaluate the content of the

> postings and consult with their physicians regarding changes in their

> own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

> one is automatically moderated or removed depending on the severity of

> the attack.

>

>

>

>

>

>

[Guest guest]

Hi, Heidi

I am pretty sure I don't have nerological involvement, but I have

problems with hand/forearm strength. I would say my forearms are the

weakest of all my muscles. If I am not careful, my wrists get painful

and very weak. The doc says it is a type of tendonitis. When it gets

that bad I must use a wrist guard for a few days, and then I work hard

at doing hand exercises the Physical Therapist gave me. I squeeze a

sponge in several ways, and lift a light weight in several directions.

If I do those faithfully, my strength does noticeably improve for a

while. If I get lazy, it gets worse again. The interesting thing is,

the right hand, which I use less because I am strong dominant left

handed, gets the weakest. From that I conclude it is not overuse, but

rather the muscles need to work to keep a minimum of strength.

I pulled my lower back a 6 days ago, and had to be on bedrest for

several days. I believe I could notice increased muscle weakness in my

entire body, just from those few days of doing nothing. I am busy at

the gym right now, trying to get some power (ha ha, I really mean

getting back to sub-normal, rather that impossibly weak) back. I have

posted before, for me it us " use it or lose it " to the extreme.

Hope your hands improve soon, Heidi.

Regard

Sunny

>

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I noticed

> today that I'm having trouble with hand strength.  I think it's been

> happening all week, but today is the first day I've been trying to do

> normal things... a lady of leisure!lol.  I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip on

> the pencil when I was trying to write a note.  I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving until

> today.  I'm not sure what to think, is this related to the rhabdo or

> should I get this checked?  What have other people done with hand

> weakness?  I do have low carnitine and I haven't started supplements

> yet, but I'm assuming that I've had this my whole life and I haven't

> noticed anything till now.  Does exercise help? I was planning to go

> back to work tonight but now I'm afraid to.  I have to do a lot with

> my hands (nurse) and it's NOT OK to have trouble holding, squeezing,

> writing, etc.

>

> Thanks

> Heidi

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

> herein are not necessarily those of the list moderators. The author of

> this e mail is entirely responsible for its content. List members are

> reminded of their responsibility to evaluate the content of the

> postings and consult with their physicians regarding changes in their

> own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

> one is automatically moderated or removed depending on the severity of

> the attack.

>

>

>

>

>

>

[Guest guest]

I had an interesting situation arise due to my hands, I was getting a new bottle

of tomato catsup out and getting ready to remove the safety seal from the

bottle, it slipped out of my hands, hit the kitchen floor, the plastic bottle

split open and it looked like a mass murder had been commited. Tomato catsup

was everywhere, splatters on the wall, refrigerator, stove, cabinets, and a

river of red all over the floor. I don't bend over well and I can't stoop over

at all, so my only alternative was to sit down on the floor and endeavor to

clean up the MESS. My next concern was going to be when I needed to get back up

off the kitchen floor, but skooting across things or down steps (if needed) has

become second nature to me so I decided to cross that bridge when I got to it.

About an hour later telephone in hand, I started skooting to find a place where

I could pull myself up. I decided that the loveseat would be my best bet as I

could use the couch for leverage since the living room

is small and the couch and loveseat almost touch each other. After a couple of

trys I made it and I only dumped the coffee table over once, but nothing but my

pride was damaged. That's a story for me to tell my great-grandchildren when

they are older. I have never seen such a MESS in all of my almost 69 years.

I'll talk to you again, Good Luck with your hands. Dolores

heidicoleman2002 mom2colemankidz3@...> wrote:

Hi all

The rhabdo is resolving and I'm getting back to normal, but I noticed

today that I'm having trouble with hand strength. I think it's been

happening all week, but today is the first day I've been trying to do

normal things... a lady of leisure!lol. I couldn't move my fingers

well enough to braid my daughter's hair and I couldn't keep a grip on

the pencil when I was trying to write a note. I've been doing very

quick things with my hands and although I've noticed a big decrease

in strength I didn't notice the cramping and diffiuclty moving until

today. I'm not sure what to think, is this related to the rhabdo or

should I get this checked? What have other people done with hand

weakness? I do have low carnitine and I haven't started supplements

yet, but I'm assuming that I've had this my whole life and I haven't

noticed anything till now. Does exercise help? I was planning to go

back to work tonight but now I'm afraid to. I have to do a lot with

my hands (nurse) and it's NOT OK to have trouble holding, squeezing,

writing, etc.

Thanks

Heidi

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

[Guest guest]

Heidi

I'm sorry that you are having a difficult time with your hands. My hands

have become weak as well. I am no longer to tear open the inside bag in a

cereal box or anything similar. I also have trouble turning pages. I was

getting cramping and myoclonus in my hands which was driving me nuts. This

has improved since my doctor increased my magnesium and it is again in the

normal range.

Have you had your magnesium, potassium, phosphorus and calcium levels

checked since the rhabdo? The rhabdo is hard on the kidneys and it may be

that you are spilling some or these which is not unusual with mito.

Just some thoughts - not from a doc. If it continues, you probably should

have it checked out.

laurie

>

> Reply-To:

> Date: Sat, 26 Feb 2005 19:25:12 -0800 (PST)

> To:

> Subject: Re: resolving rhabdo, hand troubles

>

>

>

> I had an interesting situation arise due to my hands, I was getting a new

> bottle of tomato catsup out and getting ready to remove the safety seal from

> the bottle, it slipped out of my hands, hit the kitchen floor, the plastic

> bottle split open and it looked like a mass murder had been commited. Tomato

> catsup was everywhere, splatters on the wall, refrigerator, stove, cabinets,

> and a river of red all over the floor. I don't bend over well and I can't

> stoop over at all, so my only alternative was to sit down on the floor and

> endeavor to clean up the MESS. My next concern was going to be when I needed

> to get back up off the kitchen floor, but skooting across things or down steps

> (if needed) has become second nature to me so I decided to cross that bridge

> when I got to it. About an hour later telephone in hand, I started skooting

> to find a place where I could pull myself up. I decided that the loveseat

> would be my best bet as I could use the couch for leverage since the livi

> ng room

> is small and the couch and loveseat almost touch each other. After a couple

> of trys I made it and I only dumped the coffee table over once, but nothing

> but my pride was damaged. That's a story for me to tell my

> great-grandchildren when they are older. I have never seen such a MESS in all

> of my almost 69 years. I'll talk to you again, Good Luck with your hands.

> Dolores

>

> heidicoleman2002 mom2colemankidz3@...> wrote:

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I noticed

> today that I'm having trouble with hand strength. I think it's been

> happening all week, but today is the first day I've been trying to do

> normal things... a lady of leisure!lol. I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip on

> the pencil when I was trying to write a note. I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving until

> today. I'm not sure what to think, is this related to the rhabdo or

> should I get this checked? What have other people done with hand

> weakness? I do have low carnitine and I haven't started supplements

> yet, but I'm assuming that I've had this my whole life and I haven't

> noticed anything till now. Does exercise help? I was planning to go

> back to work tonight but now I'm afraid to. I have to do a lot with

> my hands (nurse) and it's NOT OK to have trouble holding, squeezing,

> writing, etc.

>

> Thanks

> Heidi

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

Heidi,

I am glad that you are feeling a little better. I have weakness

in my hands as well. When I was in high school, it was hard to hold a

pencil on some days. I was going to PT at that time, so she gave me some

exercises for my hands as well. That helped and I haven't had that

weakness for about 10 years. Now I am starting to get it back again, but

find it is when I am tired or overly fatigued or going into a crash. It

is like the fingers just don't want to do what my mind is telling them to

do! I hope you continue to feel better.

Smiles,

a

On Sat, 26 Feb 2005 17:00:19 -0000 " heidicoleman2002 "

mom2colemankidz3@...> writes:

Hi all

The rhabdo is resolving and I'm getting back to normal, but I noticed

today that I'm having trouble with hand strength. I think it's been

happening all week, but today is the first day I've been trying to do

normal things... a lady of leisure!lol. I couldn't move my fingers

well enough to braid my daughter's hair and I couldn't keep a grip on

the pencil when I was trying to write a note. I've been doing very

quick things with my hands and although I've noticed a big decrease

in strength I didn't notice the cramping and diffiuclty moving until

today. I'm not sure what to think, is this related to the rhabdo or

should I get this checked? What have other people done with hand

weakness? I do have low carnitine and I haven't started supplements

yet, but I'm assuming that I've had this my whole life and I haven't

noticed anything till now. Does exercise help? I was planning to go

back to work tonight but now I'm afraid to. I have to do a lot with

my hands (nurse) and it's NOT OK to have trouble holding, squeezing,

writing, etc.

Thanks

Heidi

[Guest guest]

-Thanks for all the suggestions and anecdotes. I hadn't thought

about having additional labs done, but I really should. Both my Mom

and my daughter have RTA (my mom is now on dialysis) and have

electrolyte and elemental problems (Ca, Mg, Phos) and it would be

very nice to know what they're doing. I can tell you what my

daughter's labs usually run but I don't know about my own. The ER

doc said my CPK was " a couple thousand " but it should be way down by

now. Thank you Malisa, for suggesting that I have Dr. K or Margaret

help out with all this. I guess I haven't asked for enough help. I

will be starting carnitor on Monday. My Co Q10 levels were low

normal but still within range. Dr. G is doing a study on lactate

levels before and after Co Q10 supplementation so I won't be starting

it till after that.

It seems like my blood sugar is MUCH higher and stays up longer after

I eat anything with wheat. My son and sister have celiac and I plan

on being tested, hopefully next week at the GI's. Until then I'm

going to eat as much wheat as I want so the antibody levels are high

if they're going to be, hehehe. Gotta get in that Domino's now.

My hand strength problems are really getting scary. I can't open

jars, wite for extended time, sew buttons, etc. The really scary

part is that my mom and my grandmom had the very same problem and I

can remember rolling my eyes and getting frustrated with them for

complaining. I'm afraid to tell anyone what's going on because I

don't want to people to think I'm complaining or whining. My mom has

significant medical problems, yes, but she also was a " career sick

person " and did a lot less for herself than she was capable of doing.

Much of my family has no idea that I'm having any medical problems,

and I'm afraid to tell them. and I get a lot of support from

friends and folks from church, so we're doing OK. It just worries me

that I'll be out of work for a while.

Thanks

Heidi

[Guest guest]

I sit down often to do things on the floor, like use a hand vac or

pick up toys the kids left around. Usually I'm able to pull myself

up by getting on my hands and knees, getting up to kneeling, then

pulling myself up on a counter. I often go up the stairs on my hands

and knees, although I keep meaning to put in another hand rail.

Take care,

RH

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I

noticed

> today that I'm having trouble with hand strength. I think it's

been

> happening all week, but today is the first day I've been trying to

do

> normal things... a lady of leisure!lol. I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip

on

> the pencil when I was trying to write a note. I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving

until

> today. I'm not sure what to think, is this related to the rhabdo

or

> should I get this checked? What have other people done with hand

> weakness? I do have low carnitine and I haven't started

supplements

> yet, but I'm assuming that I've had this my whole life and I

haven't

> noticed anything till now. Does exercise help? I was planning to

go

> back to work tonight but now I'm afraid to. I have to do a lot

with

> my hands (nurse) and it's NOT OK to have trouble holding,

squeezing,

> writing, etc.

>

> Thanks

> Heidi

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

[Guest guest]

Have you thought of going to a " regular " hand specialist - an

orthopedic who specializes in hands and hand surgery?

There may be a chance that you're getting some carpal tunnel

syndrome, or something else is going on. Or as someone else said,

maybe some hand-specific PT would help. A friend of mine got a Ph.D.

in hand therapy, a subspecialty of PT.

Just a thought,

RH

>

>

> -Thanks for all the suggestions and anecdotes. I hadn't thought

> about having additional labs done, but I really should. Both my

Mom

> and my daughter have RTA (my mom is now on dialysis) and have

> electrolyte and elemental problems (Ca, Mg, Phos) and it would be

> very nice to know what they're doing. I can tell you what my

> daughter's labs usually run but I don't know about my own. The ER

> doc said my CPK was " a couple thousand " but it should be way down

by

> now. Thank you Malisa, for suggesting that I have Dr. K or

Margaret

> help out with all this. I guess I haven't asked for enough help.

I

> will be starting carnitor on Monday. My Co Q10 levels were low

> normal but still within range. Dr. G is doing a study on lactate

> levels before and after Co Q10 supplementation so I won't be

starting

> it till after that.

>

> It seems like my blood sugar is MUCH higher and stays up longer

after

> I eat anything with wheat. My son and sister have celiac and I

plan

> on being tested, hopefully next week at the GI's. Until then I'm

> going to eat as much wheat as I want so the antibody levels are

high

> if they're going to be, hehehe. Gotta get in that Domino's now.

>

> My hand strength problems are really getting scary. I can't open

> jars, wite for extended time, sew buttons, etc. The really scary

> part is that my mom and my grandmom had the very same problem and I

> can remember rolling my eyes and getting frustrated with them for

> complaining. I'm afraid to tell anyone what's going on because I

> don't want to people to think I'm complaining or whining. My mom

has

> significant medical problems, yes, but she also was a " career sick

> person " and did a lot less for herself than she was capable of

doing.

> Much of my family has no idea that I'm having any medical problems,

> and I'm afraid to tell them. and I get a lot of support from

> friends and folks from church, so we're doing OK. It just worries

me

> that I'll be out of work for a while.

>

> Thanks

> Heidi

[Guest guest]

They think that part of my problem is that I have a nerve caught near my right

wrist and they are going to try to do a nerve release on my right hand April

first so that I can start on physical therapy as I have arthritis in my right

thumb and wrist and no feeling in my fingers, so I have a problem writing,

typing, keying or just about anything, fortunately, I can use my index finger or

I would be in big trouble even trying to lock my front door. Oh, well things

could be worse, I am sure. I just don't want to just sit around and dwell on

what I have no control over or I could cause myself alll kinds of problems.

From what I have been researching, I am very afraid that my 48 year old son may

have had some type of Mytchondrial Dysfunction when he passed away so suddenly

in August. At least since I am no longer taking the Parkinsons meds I am able

to get around much better. I still can't go on my own, but at least I am doing

better.

ohgminion rakshasis@...> wrote:

I sit down often to do things on the floor, like use a hand vac or

pick up toys the kids left around. Usually I'm able to pull myself

up by getting on my hands and knees, getting up to kneeling, then

pulling myself up on a counter. I often go up the stairs on my hands

and knees, although I keep meaning to put in another hand rail.

Take care,

RH

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I

noticed

> today that I'm having trouble with hand strength. I think it's

been

> happening all week, but today is the first day I've been trying to

do

> normal things... a lady of leisure!lol. I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip

on

> the pencil when I was trying to write a note. I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving

until

> today. I'm not sure what to think, is this related to the rhabdo

or

> should I get this checked? What have other people done with hand

> weakness? I do have low carnitine and I haven't started

supplements

> yet, but I'm assuming that I've had this my whole life and I

haven't

> noticed anything till now. Does exercise help? I was planning to

go

> back to work tonight but now I'm afraid to. I have to do a lot

with

> my hands (nurse) and it's NOT OK to have trouble holding,

squeezing,

> writing, etc.

>

> Thanks

> Heidi

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

[Guest guest]

They think that part of my problem is that I have a nerve caught near my right

wrist and they are going to try to do a nerve release on my right hand April

first so that I can start on physical therapy as I have arthritis in my right

thumb and wrist and no feeling in my fingers, so I have a problem writing,

typing, keying or just about anything, fortunately, I can use my index finger or

I would be in big trouble even trying to lock my front door. Oh, well things

could be worse, I am sure. I just don't want to just sit around and dwell on

what I have no control over or I could cause myself alll kinds of problems.

From what I have been researching, I am very afraid that my 48 year old son may

have had some type of Mytchondrial Dysfunction when he passed away so suddenly

in August. At least since I am no longer taking the Parkinsons meds I am able

to get around much better. I still can't go on my own, but at least I am doing

better.

ohgminion rakshasis@...> wrote:

I sit down often to do things on the floor, like use a hand vac or

pick up toys the kids left around. Usually I'm able to pull myself

up by getting on my hands and knees, getting up to kneeling, then

pulling myself up on a counter. I often go up the stairs on my hands

and knees, although I keep meaning to put in another hand rail.

Take care,

RH

>

> Hi all

> The rhabdo is resolving and I'm getting back to normal, but I

noticed

> today that I'm having trouble with hand strength. I think it's

been

> happening all week, but today is the first day I've been trying to

do

> normal things... a lady of leisure!lol. I couldn't move my fingers

> well enough to braid my daughter's hair and I couldn't keep a grip

on

> the pencil when I was trying to write a note. I've been doing very

> quick things with my hands and although I've noticed a big decrease

> in strength I didn't notice the cramping and diffiuclty moving

until

> today. I'm not sure what to think, is this related to the rhabdo

or

> should I get this checked? What have other people done with hand

> weakness? I do have low carnitine and I haven't started

supplements

> yet, but I'm assuming that I've had this my whole life and I

haven't

> noticed anything till now. Does exercise help? I was planning to

go

> back to work tonight but now I'm afraid to. I have to do a lot

with

> my hands (nurse) and it's NOT OK to have trouble holding,

squeezing,

> writing, etc.

>

> Thanks

> Heidi

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

[Guest guest]

One of the nice things about being an MDA clinic patient is that they

send out a magazine called QUEST - it has a lot of info about

accommodations and generally any issue that is affected by a

neuromuscular disease, or disabilities in general.

You might be able to get some ideas from your local MDA chapter about

accommodations you can institute in your home. For example, I have a

lever lock on my front door instead of a knob. A major disadvantage

is that my 4-year-old can open it too, but an advantage is that he

can open it for me when I'm outside.

Take care,

RH

> >

> > Hi all

> > The rhabdo is resolving and I'm getting back to normal, but I

> noticed

> > today that I'm having trouble with hand strength. I think it's

> been

> > happening all week, but today is the first day I've been trying

to

> do

> > normal things... a lady of leisure!lol. I couldn't move my

fingers

> > well enough to braid my daughter's hair and I couldn't keep a

grip

> on

> > the pencil when I was trying to write a note. I've been doing

very

> > quick things with my hands and although I've noticed a big

decrease

> > in strength I didn't notice the cramping and diffiuclty moving

> until

> > today. I'm not sure what to think, is this related to the rhabdo

> or

> > should I get this checked? What have other people done with hand

> > weakness? I do have low carnitine and I haven't started

> supplements

> > yet, but I'm assuming that I've had this my whole life and I

> haven't

> > noticed anything till now. Does exercise help? I was planning to

> go

> > back to work tonight but now I'm afraid to. I have to do a lot

> with

> > my hands (nurse) and it's NOT OK to have trouble holding,

> squeezing,

> > writing, etc.

> >

> > Thanks

> > Heidi

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list moderators.

> The author of this e mail is entirely responsible for its content.

> List members are reminded of their responsibility to evaluate the

> content of the postings and consult with their physicians regarding

> changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends

> one is automatically moderated or removed depending on the severity

> of the attack.

> >

> >

> >

> >

[Guest guest]

A nerve release or a tendon release? If you have a tendon all messed up

that is pressing on a nerve, they might do a tendon release. I have

never heard of a nerve release. I have had a tendon release when I had

dequavenes disease, which is carpel tunnel of the thumb tendon.

Dolores wrote:

>They think that part of my problem is that I have a nerve caught near my right

wrist and they are going to try to do a nerve release on my right hand April

first so that I can start on physical therapy as I have arthritis in my right

thumb and wrist and no feeling in my fingers, so I have a problem writing,

typing, keying or just about anything, fortunately, I can use my index finger or

I would be in big trouble even trying to lock my front door. Oh, well things

could be worse, I am sure. I just don't want to just sit around and dwell on

what I have no control over or I could cause myself alll kinds of problems.

From what I have been researching, I am very afraid that my 48 year old son may

have had some type of Mytchondrial Dysfunction when he passed away so suddenly

in August. At least since I am no longer taking the Parkinsons meds I am able

to get around much better. I still can't go on my own, but at least I am doing

better.

>

>ohgminion rakshasis@...> wrote:

>I sit down often to do things on the floor, like use a hand vac or

>pick up toys the kids left around. Usually I'm able to pull myself

>up by getting on my hands and knees, getting up to kneeling, then

>pulling myself up on a counter. I often go up the stairs on my hands

>and knees, although I keep meaning to put in another hand rail.

>

>Take care,

>RH

>

>

>

>>

>>Hi all

>>The rhabdo is resolving and I'm getting back to normal, but I

>>

>>

>noticed

>

>

>>today that I'm having trouble with hand strength. I think it's

>>

>>

>been

>

>

>>happening all week, but today is the first day I've been trying to

>>

>>

>do

>

>

>>normal things... a lady of leisure!lol. I couldn't move my fingers

>>well enough to braid my daughter's hair and I couldn't keep a grip

>>

>>

>on

>

>

>>the pencil when I was trying to write a note. I've been doing very

>>quick things with my hands and although I've noticed a big decrease

>>in strength I didn't notice the cramping and diffiuclty moving

>>

>>

>until

>

>

>>today. I'm not sure what to think, is this related to the rhabdo

>>

>>

>or

>

>

>>should I get this checked? What have other people done with hand

>>weakness? I do have low carnitine and I haven't started

>>

>>

>supplements

>

>

>>yet, but I'm assuming that I've had this my whole life and I

>>

>>

>haven't

>

>

>>noticed anything till now. Does exercise help? I was planning to

>>

>>

>go

>

>

>>back to work tonight but now I'm afraid to. I have to do a lot

>>

>>

>with

>

>

>>my hands (nurse) and it's NOT OK to have trouble holding,

>>

>>

>squeezing,

>

>

>>writing, etc.

>>

>>Thanks

>>Heidi

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements

>>

>>

>contained herein are not necessarily those of the list moderators.

>The author of this e mail is entirely responsible for its content.

>List members are reminded of their responsibility to evaluate the

>content of the postings and consult with their physicians regarding

>changes in their own treatment.

>

>

>>Personal attacks are not permitted on the list and anyone who sends

>>

>>

>one is automatically moderated or removed depending on the severity

>of the attack.

>

>

>>

>>

[Guest guest]

A nerve release or a tendon release? If you have a tendon all messed up

that is pressing on a nerve, they might do a tendon release. I have

never heard of a nerve release. I have had a tendon release when I had

dequavenes disease, which is carpel tunnel of the thumb tendon.

Dolores wrote:

>They think that part of my problem is that I have a nerve caught near my right

wrist and they are going to try to do a nerve release on my right hand April

first so that I can start on physical therapy as I have arthritis in my right

thumb and wrist and no feeling in my fingers, so I have a problem writing,

typing, keying or just about anything, fortunately, I can use my index finger or

I would be in big trouble even trying to lock my front door. Oh, well things

could be worse, I am sure. I just don't want to just sit around and dwell on

what I have no control over or I could cause myself alll kinds of problems.

From what I have been researching, I am very afraid that my 48 year old son may

have had some type of Mytchondrial Dysfunction when he passed away so suddenly

in August. At least since I am no longer taking the Parkinsons meds I am able

to get around much better. I still can't go on my own, but at least I am doing

better.

>

>ohgminion rakshasis@...> wrote:

>I sit down often to do things on the floor, like use a hand vac or

>pick up toys the kids left around. Usually I'm able to pull myself

>up by getting on my hands and knees, getting up to kneeling, then

>pulling myself up on a counter. I often go up the stairs on my hands

>and knees, although I keep meaning to put in another hand rail.

>

>Take care,

>RH

>

>

>

>>

>>Hi all

>>The rhabdo is resolving and I'm getting back to normal, but I

>>

>>

>noticed

>

>

>>today that I'm having trouble with hand strength. I think it's

>>

>>

>been

>

>

>>happening all week, but today is the first day I've been trying to

>>

>>

>do

>

>

>>normal things... a lady of leisure!lol. I couldn't move my fingers

>>well enough to braid my daughter's hair and I couldn't keep a grip

>>

>>

>on

>

>

>>the pencil when I was trying to write a note. I've been doing very

>>quick things with my hands and although I've noticed a big decrease

>>in strength I didn't notice the cramping and diffiuclty moving

>>

>>

>until

>

>

>>today. I'm not sure what to think, is this related to the rhabdo

>>

>>

>or

>

>

>>should I get this checked? What have other people done with hand

>>weakness? I do have low carnitine and I haven't started

>>

>>

>supplements

>

>

>>yet, but I'm assuming that I've had this my whole life and I

>>

>>

>haven't

>

>

>>noticed anything till now. Does exercise help? I was planning to

>>

>>

>go

>

>

>>back to work tonight but now I'm afraid to. I have to do a lot

>>

>>

>with

>

>

>>my hands (nurse) and it's NOT OK to have trouble holding,

>>

>>

>squeezing,

>

>

>>writing, etc.

>>

>>Thanks

>>Heidi

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements

>>

>>

>contained herein are not necessarily those of the list moderators.

>The author of this e mail is entirely responsible for its content.

>List members are reminded of their responsibility to evaluate the

>content of the postings and consult with their physicians regarding

>changes in their own treatment.

>

>

>>Personal attacks are not permitted on the list and anyone who sends

>>

>>

>one is automatically moderated or removed depending on the severity

>of the attack.

>

>

>>

>>

[Guest guest]

I think it is a nerve release, but my Grandson would know for sure as he sees

Dr. Polly every week in the surgery area, when I saw Dr. Baker today about my

right knee and foot (it turns in like a clubbed foot) and he said that my knee

has just had all it can take, but he wouldn't even think of allowing anyone to

do a total knee on me as my condition is not up to that. He wrote a

prescription for a brace for my right foot and made me an appt with one of the

doctors in his group. He is semi-retired and he doesn't do any surgery anymore

and only sees long standing patients of his. He is the one that started this

Mytochondral idea in Decemeber, 2004. He had been doing some in-depth research

on me as I have so many different problems, seizures, severe peripheral

neuropathy in both legs, poor reflexes, gastrointestinal problems, irritable

bowel syndrome, weak muscles accompanied by cramping and painful muscles,

various kidney problems, heart problems, nausea and vomiting and now

trigeminal neuralgia in the right side of my face, sharp stabbing pains in my

right eye where I also have narrow angle glaucoma. Thursday I will have some

outpatient testing done, one of which will be another follow-up MRI. I have had

to have at least yearly MRI follow-ups since 1999 when I had my Gamma Knife

Surgery at Research Medical Center in Kansas City. My health problems are

varied and considerable, but I managed to continue working until February 2004.

I also have degenerative scoliosis with translocation of the mid-lumbar spine as

well as severe osteoarthritis of the lumbar spine and an early degenerative

disease of my left knee. All in all, I guess I'm a mess. When I started

falling apart, I really went fast, but I feel that a lot of my problems were

caused by a mis-diagnosis and being treating by multiple Parkinsons medications

that I did not need. When they took their toll on me, I went downhill very

rapidly

and I thank God each and every day for Dr. Baker who insisted that I see a

different neurologist and get the proper care I needed. I had a cousin that

htis same thing happened to, but Bless her Soul, her condition was too

deterioated for it to help her when her neurologist retired and a new one took

over her case and told her that ten years ago she was mis-diagnosed with

Parkinsons and he took her off of the medications, but she passed away shortyly

after. I am very frightened that my 48 year old son that passed away suddenly

in August had a Mytochondrial disease as no one really had any ideas as to what

his problem was, he had lost his sight shorthly before his untimely death. Dr.

Baker never once ever stated that I had Parkinsons, he would only state that I

had " Parkinson like symptoms " . When my sone passed away, it took three people

to help me get up a slight grade to his gravesite for the services at the

cemetery and now I am just using a cane, for which I thank God and Dr.

Baker. I was terrified that I would be in a nursing facility at 68. I am so

elated even though I don't go far when I go out, only to the parking area where

I have transportaion of some sort picking me up. I can't even get as far as the

dumpster to take my trash out. i have to depend on the kindness of neighbors or

my son has to come over after he drives to Topeka from Kansas City. My Grandson

does all he can but they have a new baby girl and that takes up a lot of their

time. He comes on Saturday or if I need something that can't wait until

Saturday he will come on his Friday as that is his day off. I'll call my

Grandson later (as he doesn't get off work until 7:30) and I will ask him if it

is a tendon thing, he would know as he sees Dr. Polly when he has surgery

scheduled at the hospital wher he works and has talked to Dr. Polly about my

hand (who Dr. Baker said was the one to do my hand), whereas he wants me to see

Dr. Mumford about my knee condition (?) to see if he has any

minor type of recommendations for Dr. Baker. I'll keep you posted. Thanks for

your concern, Dolores

dgregori@...> wrote:

A nerve release or a tendon release? If you have a tendon all messed up

that is pressing on a nerve, they might do a tendon release. I have

never heard of a nerve release. I have had a tendon release when I had

dequavenes disease, which is carpel tunnel of the thumb tendon.

Dolores wrote:

>They think that part of my problem is that I have a nerve caught near my right

wrist and they are going to try to do a nerve release on my right hand April

first so that I can start on physical therapy as I have arthritis in my right

thumb and wrist and no feeling in my fingers, so I have a problem writing,

typing, keying or just about anything, fortunately, I can use my index finger or

I would be in big trouble even trying to lock my front door. Oh, well things

could be worse, I am sure. I just don't want to just sit around and dwell on

what I have no control over or I could cause myself alll kinds of problems.

From what I have been researching, I am very afraid that my 48 year old son may

have had some type of Mytchondrial Dysfunction when he passed away so suddenly

in August. At least since I am no longer taking the Parkinsons meds I am able

to get around much better. I still can't go on my own, but at least I am doing

better.

>

>ohgminion rakshasis@...> wrote:

>I sit down often to do things on the floor, like use a hand vac or

>pick up toys the kids left around. Usually I'm able to pull myself

>up by getting on my hands and knees, getting up to kneeling, then

>pulling myself up on a counter. I often go up the stairs on my hands

>and knees, although I keep meaning to put in another hand rail.

>

>Take care,

>RH

>

>

>

>>

>>Hi all

>>The rhabdo is resolving and I'm getting back to normal, but I

>>

>>

>noticed

>

>

>>today that I'm having trouble with hand strength. I think it's

>>

>>

>been

>

>

>>happening all week, but today is the first day I've been trying to

>>

>>

>do

>

>

>>normal things... a lady of leisure!lol. I couldn't move my fingers

>>well enough to braid my daughter's hair and I couldn't keep a grip

>>

>>

>on

>

>

>>the pencil when I was trying to write a note. I've been doing very

>>quick things with my hands and although I've noticed a big decrease

>>in strength I didn't notice the cramping and diffiuclty moving

>>

>>

>until

>

>

>>today. I'm not sure what to think, is this related to the rhabdo

>>

>>

>or

>

>

>>should I get this checked? What have other people done with hand

>>weakness? I do have low carnitine and I haven't started

>>

>>

>supplements

>

>

>>yet, but I'm assuming that I've had this my whole life and I

>>

>>

>haven't

>

>

>>noticed anything till now. Does exercise help? I was planning to

>>

>>

>go

>

>

>>back to work tonight but now I'm afraid to. I have to do a lot

>>

>>

>with

>

>

>>my hands (nurse) and it's NOT OK to have trouble holding,

>>

>>

>squeezing,

>

>

>>writing, etc.

>>

>>Thanks

>>Heidi

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements

>>

>>

>contained herein are not necessarily those of the list moderators.

>The author of this e mail is entirely responsible for its content.

>List members are reminded of their responsibility to evaluate the

>content of the postings and consult with their physicians regarding

>changes in their own treatment.

>

>

>>Personal attacks are not permitted on the list and anyone who sends

>>

>>

>one is automatically moderated or removed depending on the severity

>of the attack.

>

>

>>

>>

[Guest guest]

I think it is a nerve release, but my Grandson would know for sure as he sees

Dr. Polly every week in the surgery area, when I saw Dr. Baker today about my

right knee and foot (it turns in like a clubbed foot) and he said that my knee

has just had all it can take, but he wouldn't even think of allowing anyone to

do a total knee on me as my condition is not up to that. He wrote a

prescription for a brace for my right foot and made me an appt with one of the

doctors in his group. He is semi-retired and he doesn't do any surgery anymore

and only sees long standing patients of his. He is the one that started this

Mytochondral idea in Decemeber, 2004. He had been doing some in-depth research

on me as I have so many different problems, seizures, severe peripheral

neuropathy in both legs, poor reflexes, gastrointestinal problems, irritable

bowel syndrome, weak muscles accompanied by cramping and painful muscles,

various kidney problems, heart problems, nausea and vomiting and now

trigeminal neuralgia in the right side of my face, sharp stabbing pains in my

right eye where I also have narrow angle glaucoma. Thursday I will have some

outpatient testing done, one of which will be another follow-up MRI. I have had

to have at least yearly MRI follow-ups since 1999 when I had my Gamma Knife

Surgery at Research Medical Center in Kansas City. My health problems are

varied and considerable, but I managed to continue working until February 2004.

I also have degenerative scoliosis with translocation of the mid-lumbar spine as

well as severe osteoarthritis of the lumbar spine and an early degenerative

disease of my left knee. All in all, I guess I'm a mess. When I started

falling apart, I really went fast, but I feel that a lot of my problems were

caused by a mis-diagnosis and being treating by multiple Parkinsons medications

that I did not need. When they took their toll on me, I went downhill very

rapidly

and I thank God each and every day for Dr. Baker who insisted that I see a

different neurologist and get the proper care I needed. I had a cousin that

htis same thing happened to, but Bless her Soul, her condition was too

deterioated for it to help her when her neurologist retired and a new one took

over her case and told her that ten years ago she was mis-diagnosed with

Parkinsons and he took her off of the medications, but she passed away shortyly

after. I am very frightened that my 48 year old son that passed away suddenly

in August had a Mytochondrial disease as no one really had any ideas as to what

his problem was, he had lost his sight shorthly before his untimely death. Dr.

Baker never once ever stated that I had Parkinsons, he would only state that I

had " Parkinson like symptoms " . When my sone passed away, it took three people

to help me get up a slight grade to his gravesite for the services at the

cemetery and now I am just using a cane, for which I thank God and Dr.

Baker. I was terrified that I would be in a nursing facility at 68. I am so

elated even though I don't go far when I go out, only to the parking area where

I have transportaion of some sort picking me up. I can't even get as far as the

dumpster to take my trash out. i have to depend on the kindness of neighbors or

my son has to come over after he drives to Topeka from Kansas City. My Grandson

does all he can but they have a new baby girl and that takes up a lot of their

time. He comes on Saturday or if I need something that can't wait until

Saturday he will come on his Friday as that is his day off. I'll call my

Grandson later (as he doesn't get off work until 7:30) and I will ask him if it

is a tendon thing, he would know as he sees Dr. Polly when he has surgery

scheduled at the hospital wher he works and has talked to Dr. Polly about my

hand (who Dr. Baker said was the one to do my hand), whereas he wants me to see

Dr. Mumford about my knee condition (?) to see if he has any

minor type of recommendations for Dr. Baker. I'll keep you posted. Thanks for

your concern, Dolores

dgregori@...> wrote:

A nerve release or a tendon release? If you have a tendon all messed up

that is pressing on a nerve, they might do a tendon release. I have

never heard of a nerve release. I have had a tendon release when I had

dequavenes disease, which is carpel tunnel of the thumb tendon.

Dolores wrote:

>They think that part of my problem is that I have a nerve caught near my right

wrist and they are going to try to do a nerve release on my right hand April

first so that I can start on physical therapy as I have arthritis in my right

thumb and wrist and no feeling in my fingers, so I have a problem writing,

typing, keying or just about anything, fortunately, I can use my index finger or

I would be in big trouble even trying to lock my front door. Oh, well things

could be worse, I am sure. I just don't want to just sit around and dwell on

what I have no control over or I could cause myself alll kinds of problems.

From what I have been researching, I am very afraid that my 48 year old son may

have had some type of Mytchondrial Dysfunction when he passed away so suddenly

in August. At least since I am no longer taking the Parkinsons meds I am able

to get around much better. I still can't go on my own, but at least I am doing

better.

>

>ohgminion rakshasis@...> wrote:

>I sit down often to do things on the floor, like use a hand vac or

>pick up toys the kids left around. Usually I'm able to pull myself

>up by getting on my hands and knees, getting up to kneeling, then

>pulling myself up on a counter. I often go up the stairs on my hands

>and knees, although I keep meaning to put in another hand rail.

>

>Take care,

>RH

>

>

>

>>

>>Hi all

>>The rhabdo is resolving and I'm getting back to normal, but I

>>

>>

>noticed

>

>

>>today that I'm having trouble with hand strength. I think it's

>>

>>

>been

>

>

>>happening all week, but today is the first day I've been trying to

>>

>>

>do

>

>

>>normal things... a lady of leisure!lol. I couldn't move my fingers

>>well enough to braid my daughter's hair and I couldn't keep a grip

>>

>>

>on

>

>

>>the pencil when I was trying to write a note. I've been doing very

>>quick things with my hands and although I've noticed a big decrease

>>in strength I didn't notice the cramping and diffiuclty moving

>>

>>

>until

>

>

>>today. I'm not sure what to think, is this related to the rhabdo

>>

>>

>or

>

>

>>should I get this checked? What have other people done with hand

>>weakness? I do have low carnitine and I haven't started

>>

>>

>supplements

>

>

>>yet, but I'm assuming that I've had this my whole life and I

>>

>>

>haven't

>

>

>>noticed anything till now. Does exercise help? I was planning to

>>

>>

>go

>

>

>>back to work tonight but now I'm afraid to. I have to do a lot

>>

>>

>with

>

>

>>my hands (nurse) and it's NOT OK to have trouble holding,

>>

>>

>squeezing,

>

>

>>writing, etc.

>>

>>Thanks

>>Heidi

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements

>>

>>

>contained herein are not necessarily those of the list moderators.

>The author of this e mail is entirely responsible for its content.

>List members are reminded of their responsibility to evaluate the

>content of the postings and consult with their physicians regarding

>changes in their own treatment.

>

>

>>Personal attacks are not permitted on the list and anyone who sends

>>

>>

>one is automatically moderated or removed depending on the severity

>of the attack.

>

>

>>

>>